I'm Soooo glad I found this sight!
My name is Rebecca, and I am a mother of 3. Payton 5, Ainsley 3 and Calder 17 months. Our daughter Ainsley was diagnosed with Cystic Fibrosis in September and her health has been our main concern on a daily basis.
On top of seeing her CF doctor, we have also seen a ear, nose throat specialist because she has an unusual amount of mucous running out of her nose at all times. We are now scheduled to see a Pediatric Cardiologist because of some concerns about her heart.
Not only was she born on the bathroom floor, but when we got to the hospital, she had a heart rate of 70 bpm and had to see a cardiologist atone week old, at which time, he said she was fine. At seven weeks, it was thought she had RSV and was put on a heart and resp. rate monitor on which her heart rate kept dropping. Now just being a newly diagnosed CF patient they've just found out that she has a heart murmer. She constantly goes white as a sheet for no apparent reason, as well there is a history on my mother's side of heart problems.
After the CF diagnosis, you don't want any other health issues. Am I being neurotic? Am I just to show concern? Has anybody ever heard of heart issues related with CF? I would like any input if you have any.
My name is Rebecca, and I am a mother of 3. Payton 5, Ainsley 3 and Calder 17 months. Our daughter Ainsley was diagnosed with Cystic Fibrosis in September and her health has been our main concern on a daily basis.
On top of seeing her CF doctor, we have also seen a ear, nose throat specialist because she has an unusual amount of mucous running out of her nose at all times. We are now scheduled to see a Pediatric Cardiologist because of some concerns about her heart.
Not only was she born on the bathroom floor, but when we got to the hospital, she had a heart rate of 70 bpm and had to see a cardiologist atone week old, at which time, he said she was fine. At seven weeks, it was thought she had RSV and was put on a heart and resp. rate monitor on which her heart rate kept dropping. Now just being a newly diagnosed CF patient they've just found out that she has a heart murmer. She constantly goes white as a sheet for no apparent reason, as well there is a history on my mother's side of heart problems.
After the CF diagnosis, you don't want any other health issues. Am I being neurotic? Am I just to show concern? Has anybody ever heard of heart issues related with CF? I would like any input if you have any.