Feeling very discouraged - needing some wisdom and support

[cfprincess19]

Hello. I am 19 years old and currently in an accredited cf hospital. I came in because I was coughing up very large quantities of blood. While I was here, they happened to do an X-ray and found an air pocket causing my left lung to collapse. Luckily, the air pocket was easily removed with a small tube in my side.
I know a little a bit of what you're going through and I'm very sorry. Don't give up hope. Others are fighting with you.

-Maddie

 

[cfprincess19]

Hello. I am 19 years old and currently in an accredited cf hospital. I came in because I was coughing up very large quantities of blood. While I was here, they happened to do an X-ray and found an air pocket causing my left lung to collapse. Luckily, the air pocket was easily removed with a small tube in my side.
I know a little a bit of what you're going through and I'm very sorry. Don't give up hope. Others are fighting with you.

-Maddie

 

[cfprincess19]

Hello. I am 19 years old and currently in an accredited cf hospital. I came in because I was coughing up very large quantities of blood. While I was here, they happened to do an X-ray and found an air pocket causing my left lung to collapse. Luckily, the air pocket was easily removed with a small tube in my side.
I know a little a bit of what you're going through and I'm very sorry. Don't give up hope. Others are fighting with you.

-Maddie

 

[cfprincess19]

Hello. I am 19 years old and currently in an accredited cf hospital. I came in because I was coughing up very large quantities of blood. While I was here, they happened to do an X-ray and found an air pocket causing my left lung to collapse. Luckily, the air pocket was easily removed with a small tube in my side.
I know a little a bit of what you're going through and I'm very sorry. Don't give up hope. Others are fighting with you.

-Maddie

 

[cfprincess19]

Hello. I am 19 years old and currently in an accredited cf hospital. I came in because I was coughing up very large quantities of blood. While I was here, they happened to do an X-ray and found an air pocket causing my left lung to collapse. Luckily, the air pocket was easily removed with a small tube in my side.
<br />I know a little a bit of what you're going through and I'm very sorry. Don't give up hope. Others are fighting with you.
<br />
<br />-Maddie

 

[meier78]

Thank you everyone for your responses. I have a lot of people praying for me and its comforting to know there is more everyday.
Since I last posted they're starting to test if my lung will stay inflated by decreasing suction on the chest tube and so far so good. Keeping my fingers crossed and praying really hard that i'll be going home early next week. Im at my hospital where my CF clinics are - London, Ontario. Its a good hospital, but I think the next move is going to be to Toronto - much bigger centre and deals with transplants.
Its gonna be a long recovery - emotionally - this disease is showing its ugly side, but I hope being at home and having such great family support will help me come to terms with it and can find some peace.
Thanks again for everyone's support.
Kathy

 

[meier78]

Thank you everyone for your responses. I have a lot of people praying for me and its comforting to know there is more everyday.
Since I last posted they're starting to test if my lung will stay inflated by decreasing suction on the chest tube and so far so good. Keeping my fingers crossed and praying really hard that i'll be going home early next week. Im at my hospital where my CF clinics are - London, Ontario. Its a good hospital, but I think the next move is going to be to Toronto - much bigger centre and deals with transplants.
Its gonna be a long recovery - emotionally - this disease is showing its ugly side, but I hope being at home and having such great family support will help me come to terms with it and can find some peace.
Thanks again for everyone's support.
Kathy

 

[meier78]

Thank you everyone for your responses. I have a lot of people praying for me and its comforting to know there is more everyday.
Since I last posted they're starting to test if my lung will stay inflated by decreasing suction on the chest tube and so far so good. Keeping my fingers crossed and praying really hard that i'll be going home early next week. Im at my hospital where my CF clinics are - London, Ontario. Its a good hospital, but I think the next move is going to be to Toronto - much bigger centre and deals with transplants.
Its gonna be a long recovery - emotionally - this disease is showing its ugly side, but I hope being at home and having such great family support will help me come to terms with it and can find some peace.
Thanks again for everyone's support.
Kathy

 

[meier78]

Thank you everyone for your responses. I have a lot of people praying for me and its comforting to know there is more everyday.
Since I last posted they're starting to test if my lung will stay inflated by decreasing suction on the chest tube and so far so good. Keeping my fingers crossed and praying really hard that i'll be going home early next week. Im at my hospital where my CF clinics are - London, Ontario. Its a good hospital, but I think the next move is going to be to Toronto - much bigger centre and deals with transplants.
Its gonna be a long recovery - emotionally - this disease is showing its ugly side, but I hope being at home and having such great family support will help me come to terms with it and can find some peace.
Thanks again for everyone's support.
Kathy

 

[meier78]

Thank you everyone for your responses. I have a lot of people praying for me and its comforting to know there is more everyday.
<br />Since I last posted they're starting to test if my lung will stay inflated by decreasing suction on the chest tube and so far so good. Keeping my fingers crossed and praying really hard that i'll be going home early next week. Im at my hospital where my CF clinics are - London, Ontario. Its a good hospital, but I think the next move is going to be to Toronto - much bigger centre and deals with transplants.
<br />Its gonna be a long recovery - emotionally - this disease is showing its ugly side, but I hope being at home and having such great family support will help me come to terms with it and can find some peace.
<br />Thanks again for everyone's support.
<br />Kathy

 

[dream2live]

Hello...I just saw your message. I am 40 years old and was diagnosed with CF at 13 months old. The first time I had to do IV antibiotics, I was 25 years old. My first in-patient hospitalization, I was 30 years old. I had enough of PICC lines, and opted for a port. It is soooooo much more convenient (except it has to be flushed once a month). My FEV1 bounce up and down depending on the weather and how bad the pollen and/or ragweed is. I have never had to have a chest tube put in, so I don't know what to tell you regarding that. BUT, I am here if you need a CF buddy to chat with. I live in Florida, and the area I live in, the pollution is the worst in the state. Just remember...your too blessed to be stressed!!! I know that sounds whacky. Sometimes, I feel if I was truly blessed, then I wouldn't have CF. But, since I do, I have been blessed by God to be able to live this long. Hope to hear from you, and I hope I can help. Trust me, I know all about doctors (the good, the bad, and the ugly).

 

[dream2live]

Hello...I just saw your message. I am 40 years old and was diagnosed with CF at 13 months old. The first time I had to do IV antibiotics, I was 25 years old. My first in-patient hospitalization, I was 30 years old. I had enough of PICC lines, and opted for a port. It is soooooo much more convenient (except it has to be flushed once a month). My FEV1 bounce up and down depending on the weather and how bad the pollen and/or ragweed is. I have never had to have a chest tube put in, so I don't know what to tell you regarding that. BUT, I am here if you need a CF buddy to chat with. I live in Florida, and the area I live in, the pollution is the worst in the state. Just remember...your too blessed to be stressed!!! I know that sounds whacky. Sometimes, I feel if I was truly blessed, then I wouldn't have CF. But, since I do, I have been blessed by God to be able to live this long. Hope to hear from you, and I hope I can help. Trust me, I know all about doctors (the good, the bad, and the ugly).

 

[dream2live]

Hello...I just saw your message. I am 40 years old and was diagnosed with CF at 13 months old. The first time I had to do IV antibiotics, I was 25 years old. My first in-patient hospitalization, I was 30 years old. I had enough of PICC lines, and opted for a port. It is soooooo much more convenient (except it has to be flushed once a month). My FEV1 bounce up and down depending on the weather and how bad the pollen and/or ragweed is. I have never had to have a chest tube put in, so I don't know what to tell you regarding that. BUT, I am here if you need a CF buddy to chat with. I live in Florida, and the area I live in, the pollution is the worst in the state. Just remember...your too blessed to be stressed!!! I know that sounds whacky. Sometimes, I feel if I was truly blessed, then I wouldn't have CF. But, since I do, I have been blessed by God to be able to live this long. Hope to hear from you, and I hope I can help. Trust me, I know all about doctors (the good, the bad, and the ugly).

 

[dream2live]

Hello...I just saw your message. I am 40 years old and was diagnosed with CF at 13 months old. The first time I had to do IV antibiotics, I was 25 years old. My first in-patient hospitalization, I was 30 years old. I had enough of PICC lines, and opted for a port. It is soooooo much more convenient (except it has to be flushed once a month). My FEV1 bounce up and down depending on the weather and how bad the pollen and/or ragweed is. I have never had to have a chest tube put in, so I don't know what to tell you regarding that. BUT, I am here if you need a CF buddy to chat with. I live in Florida, and the area I live in, the pollution is the worst in the state. Just remember...your too blessed to be stressed!!! I know that sounds whacky. Sometimes, I feel if I was truly blessed, then I wouldn't have CF. But, since I do, I have been blessed by God to be able to live this long. Hope to hear from you, and I hope I can help. Trust me, I know all about doctors (the good, the bad, and the ugly).

 

[dream2live]

Hello...I just saw your message. I am 40 years old and was diagnosed with CF at 13 months old. The first time I had to do IV antibiotics, I was 25 years old. My first in-patient hospitalization, I was 30 years old. I had enough of PICC lines, and opted for a port. It is soooooo much more convenient (except it has to be flushed once a month). My FEV1 bounce up and down depending on the weather and how bad the pollen and/or ragweed is. I have never had to have a chest tube put in, so I don't know what to tell you regarding that. BUT, I am here if you need a CF buddy to chat with. I live in Florida, and the area I live in, the pollution is the worst in the state. Just remember...your too blessed to be stressed!!! I know that sounds whacky. Sometimes, I feel if I was truly blessed, then I wouldn't have CF. But, since I do, I have been blessed by God to be able to live this long. Hope to hear from you, and I hope I can help. Trust me, I know all about doctors (the good, the bad, and the ugly).

 

[beleache]

Hi & Welcome Kathy,

I hope the drs get to under control ASAP .. Thoughts & prayers coming your way.. Please keep us posted, take care & God Bless You ..

<img src="i/expressions/heart.gif" border="0"> joni

 

[beleache]

Hi & Welcome Kathy,

I hope the drs get to under control ASAP .. Thoughts & prayers coming your way.. Please keep us posted, take care & God Bless You ..

<img src="i/expressions/heart.gif" border="0"> joni

 

[beleache]

Hi & Welcome Kathy,

I hope the drs get to under control ASAP .. Thoughts & prayers coming your way.. Please keep us posted, take care & God Bless You ..

<img src="i/expressions/heart.gif" border="0"> joni

 

[beleache]

Hi & Welcome Kathy,

I hope the drs get to under control ASAP .. Thoughts & prayers coming your way.. Please keep us posted, take care & God Bless You ..

<img src="i/expressions/heart.gif" border="0"> joni

 

[beleache]

Hi & Welcome Kathy,
<br />
<br /> I hope the drs get to under control ASAP .. Thoughts & prayers coming your way.. Please keep us posted, take care & God Bless You ..
<br />
<br /> <img src="i/expressions/heart.gif" border="0"> joni