Not sure what's going on but I've always been strong when it came to my Cf but lately and almost on a daily basis I feel like I'm falling deeper and deeper into a hole. I've always had good lung function and up until last year my weight was awesome. But it's dropped and it doesn't matter how much or how often I eat I can't gain a pound. and as you all know the lower the weight the worst off you are. I was in the hospital for the first time this summer and I had never felt so alone, helpless and scared. I've always been positive and I've always pushed to be better and healthier but reading what everybody is going through or has gone through is scaring me and everytime I turn the TV on that commercial for CF is on...the one where the girl deflats (spelling) doing the laundry....it feels hopeless some days. Any Advice on making this go away
feeling weak
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Not sure what's going on but I've always been strong when it came to my Cf but lately and almost on a daily basis I feel like I'm falling deeper and deeper into a hole. I've always had good lung function and up until last year my weight was awesome. But it's dropped and it doesn't matter how much or how often I eat I can't gain a pound. and as you all know the lower the weight the worst off you are. I was in the hospital for the first time this summer and I had never felt so alone, helpless and scared. I've always been positive and I've always pushed to be better and healthier but reading what everybody is going through or has gone through is scaring me and everytime I turn the TV on that commercial for CF is on...the one where the girl deflats (spelling) doing the laundry....it feels hopeless some days. Any Advice on making this go away
lilMeggies
New member
that was me forgot to login again
lilMeggies
New member
that was me forgot to login again
I don't know which commercial you are talking about as I don't think I have seen it...but please try to maintain a positive focus...even if your lung function is decreasing ( you can say 'well, at least it's still at x'), or like me, I' m going for a port (instead of a PICC), and quite honestly, I'm scared to death, but I keep telling my friends, 'hey, i'll have a cool scar!'. I'm not trying to minimize anything you are going through at the moment....just trying to "see" the "positive". 
I don't know which commercial you are talking about as I don't think I have seen it...but please try to maintain a positive focus...even if your lung function is decreasing ( you can say 'well, at least it's still at x'), or like me, I' m going for a port (instead of a PICC), and quite honestly, I'm scared to death, but I keep telling my friends, 'hey, i'll have a cool scar!'. I'm not trying to minimize anything you are going through at the moment....just trying to "see" the "positive".
lilMeggies
New member
the commercial is aweful....great message but so hard to watch....a girl is doing the laundry and she starts to breath really heavy until she deflats and is no more.....seriously powerful message but ouch...maybe it's on a canadian channel....I've have to pay attention next time I see it
lilMeggies
New member
the commercial is aweful....great message but so hard to watch....a girl is doing the laundry and she starts to breath really heavy until she deflats and is no more.....seriously powerful message but ouch...maybe it's on a canadian channel....I've have to pay attention next time I see it
Well...I do work with a guy from Canada who told me about some CF commercial he sees quite often about how people don't give to charity "x" because they don't know someone with the disease...and now they do. The commercials sound quite sad compared to the ones in the US.
Hope your day(s) go better. Some days it's just all too much to deal with. A good night's sleep does wonders for me....although these days they're few and far between.
Hope your day(s) go better. Some days it's just all too much to deal with. A good night's sleep does wonders for me....although these days they're few and far between.
Well...I do work with a guy from Canada who told me about some CF commercial he sees quite often about how people don't give to charity "x" because they don't know someone with the disease...and now they do. The commercials sound quite sad compared to the ones in the US.
Hope your day(s) go better. Some days it's just all too much to deal with. A good night's sleep does wonders for me....although these days they're few and far between.
Hope your day(s) go better. Some days it's just all too much to deal with. A good night's sleep does wonders for me....although these days they're few and far between.
M
melleemac
Guest
It is a Canadian commercial, there is also one of a little boy brushing his teeth when he starts to deflate. We were actually sent letters from the canadian cf foundation fore warning us on how hard it could be to watch.
Mel
Mel
M
melleemac
Guest
It is a Canadian commercial, there is also one of a little boy brushing his teeth when he starts to deflate. We were actually sent letters from the canadian cf foundation fore warning us on how hard it could be to watch.
Mel
Mel
WOW....... what a good idea to make people more aware of CF and how common it is.
We don't have any sort of CF adds/commercials here in Australia. I think if we did more people would be involved in fund raising
efforts for CF research.
This add should be screened world wide.
We don't have any sort of CF adds/commercials here in Australia. I think if we did more people would be involved in fund raising
efforts for CF research.
This add should be screened world wide.
WOW....... what a good idea to make people more aware of CF and how common it is.
We don't have any sort of CF adds/commercials here in Australia. I think if we did more people would be involved in fund raising
efforts for CF research.
This add should be screened world wide.
We don't have any sort of CF adds/commercials here in Australia. I think if we did more people would be involved in fund raising
efforts for CF research.
This add should be screened world wide.
Everyone has hard times especially when its you first "reality check" after going so long in good standing. It is normal to feel overwhelmed & down. The problem lies when it goes for too long &/or interferes with your life. If U really think its a problem and not just a "phase" then please, please seek help. Even if U are not sure seek help. Dealing with life at times can be tough so when U throw a chronic illness into the mix its even harder. As far as the commercials.....since I am in the US I havent seen them. Sadly in order for it to get thru to people who dont have exposure to the illness it has to be harsh. Its not like CF is a walk in the park for everyone. Hard for us to watch.....yes>>>>>does it get the point thru to others....hopefully!
Everyone has hard times especially when its you first "reality check" after going so long in good standing. It is normal to feel overwhelmed & down. The problem lies when it goes for too long &/or interferes with your life. If U really think its a problem and not just a "phase" then please, please seek help. Even if U are not sure seek help. Dealing with life at times can be tough so when U throw a chronic illness into the mix its even harder. As far as the commercials.....since I am in the US I havent seen them. Sadly in order for it to get thru to people who dont have exposure to the illness it has to be harsh. Its not like CF is a walk in the park for everyone. Hard for us to watch.....yes>>>>>does it get the point thru to others....hopefully!
Hi There
I hear one thing that is good from your post. You are very Aware and that is a good thing. You can get it together. Just do more things for your health. Get up early in the morning and eat a good breakfast and if you did not sleep well go back to sleep. Not sure if you work or not but if not take advantage of the time. Do extra therapy on the days you need so the bad days do not seem to long. Add some more calories to your food intake. Workout buids muscle. Some people with CF think if I exercise I will lose weight. Not true. You can achieve greater health from exercise. The more you are able to workout you will have a bigger appetite and will eat more.
IF your lung function was better last year make it your goal to work toward getting it better by getting yourself motivated.
Do not worry because there is always room for improvement with CF as long as you are relatively healthy. I would talk to your doctor too and make sure your blood tests are good. IT is good to have yourself checked for diabetes too. Start today do something special for yourself to show your lungs you care
Take care of yourself
Risa
I hear one thing that is good from your post. You are very Aware and that is a good thing. You can get it together. Just do more things for your health. Get up early in the morning and eat a good breakfast and if you did not sleep well go back to sleep. Not sure if you work or not but if not take advantage of the time. Do extra therapy on the days you need so the bad days do not seem to long. Add some more calories to your food intake. Workout buids muscle. Some people with CF think if I exercise I will lose weight. Not true. You can achieve greater health from exercise. The more you are able to workout you will have a bigger appetite and will eat more.
IF your lung function was better last year make it your goal to work toward getting it better by getting yourself motivated.
Do not worry because there is always room for improvement with CF as long as you are relatively healthy. I would talk to your doctor too and make sure your blood tests are good. IT is good to have yourself checked for diabetes too. Start today do something special for yourself to show your lungs you care
Take care of yourself
Risa
Hi There
I hear one thing that is good from your post. You are very Aware and that is a good thing. You can get it together. Just do more things for your health. Get up early in the morning and eat a good breakfast and if you did not sleep well go back to sleep. Not sure if you work or not but if not take advantage of the time. Do extra therapy on the days you need so the bad days do not seem to long. Add some more calories to your food intake. Workout buids muscle. Some people with CF think if I exercise I will lose weight. Not true. You can achieve greater health from exercise. The more you are able to workout you will have a bigger appetite and will eat more.
IF your lung function was better last year make it your goal to work toward getting it better by getting yourself motivated.
Do not worry because there is always room for improvement with CF as long as you are relatively healthy. I would talk to your doctor too and make sure your blood tests are good. IT is good to have yourself checked for diabetes too. Start today do something special for yourself to show your lungs you care
Take care of yourself
Risa
I hear one thing that is good from your post. You are very Aware and that is a good thing. You can get it together. Just do more things for your health. Get up early in the morning and eat a good breakfast and if you did not sleep well go back to sleep. Not sure if you work or not but if not take advantage of the time. Do extra therapy on the days you need so the bad days do not seem to long. Add some more calories to your food intake. Workout buids muscle. Some people with CF think if I exercise I will lose weight. Not true. You can achieve greater health from exercise. The more you are able to workout you will have a bigger appetite and will eat more.
IF your lung function was better last year make it your goal to work toward getting it better by getting yourself motivated.
Do not worry because there is always room for improvement with CF as long as you are relatively healthy. I would talk to your doctor too and make sure your blood tests are good. IT is good to have yourself checked for diabetes too. Start today do something special for yourself to show your lungs you care
Take care of yourself
Risa