feeling weak

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anonymous

New member
Hey, I know how you feel meagan, I never got an admission til I was 19. Always well, never did masks, always active. Then when I was 19 I got pneumonia, and since then its been so up and down. Its so hard to keep a good balanced lifestyle with cf. Eating straight, resting right, exercising enough. Sometimes I feel its such a full time job, and even one day of neglect can throw the whole balance off. Im 29 now, and I had about a good year of no admissions, small infections treated by orals, then I was admitted in october and since then ive had 3 re occuring infections. Especially through the winter too, especially from an ontario winter, I live in Barrie currently, you might also suffer from SAD (seasonal affective disorder) I usually get that in the winters, this year ive been lucky, although I have the serious symptom of fatigue, and tiredness, which makes it hard to acheive that balance when you dont wanna exercise, get up to eat, blah blah blah. Seeing a psych may help. But I believe you just gotta try and keep that balance. I know being 20 as well you wanna do things like go out have fun, which is perfect, just always remember you have cf in the back of your head and accomodate it.

Chad 29 w/cf(-) Ontario Canada
 
A

anonymous

New member
Hey, I know how you feel meagan, I never got an admission til I was 19. Always well, never did masks, always active. Then when I was 19 I got pneumonia, and since then its been so up and down. Its so hard to keep a good balanced lifestyle with cf. Eating straight, resting right, exercising enough. Sometimes I feel its such a full time job, and even one day of neglect can throw the whole balance off. Im 29 now, and I had about a good year of no admissions, small infections treated by orals, then I was admitted in october and since then ive had 3 re occuring infections. Especially through the winter too, especially from an ontario winter, I live in Barrie currently, you might also suffer from SAD (seasonal affective disorder) I usually get that in the winters, this year ive been lucky, although I have the serious symptom of fatigue, and tiredness, which makes it hard to acheive that balance when you dont wanna exercise, get up to eat, blah blah blah. Seeing a psych may help. But I believe you just gotta try and keep that balance. I know being 20 as well you wanna do things like go out have fun, which is perfect, just always remember you have cf in the back of your head and accomodate it.

Chad 29 w/cf(-) Ontario Canada
 
A

anonymous

New member
Hey,

I've been through something similar. A year after I got married my health/energy plummeted. I kinda denied it for a year or so, but I was always very healthy and strong before. I got very discouraged, scarefd and depressed. I thought I was dying. Eventually, I succumbed and started therapy on my husband's advice. It's hard to start, but it was the wisest decision I've ever made for my health.
My health is a little more complicated than it used to be, but the body changes as you get older. I am no where near dying, and I'm sure you aren't.
You must stay positive. It's scary when you feel like you are slipping. But, you have to get rid of the fear, and say-ok, how am I going to do deal with this, what work do I have to do? And just do it. Try to talk to a professional about your fears. It's probably the best thing for you.
And it's amazing what the body can recover from when you are very happy and positive.

Christian
 
A

anonymous

New member
Hey,

I've been through something similar. A year after I got married my health/energy plummeted. I kinda denied it for a year or so, but I was always very healthy and strong before. I got very discouraged, scarefd and depressed. I thought I was dying. Eventually, I succumbed and started therapy on my husband's advice. It's hard to start, but it was the wisest decision I've ever made for my health.
My health is a little more complicated than it used to be, but the body changes as you get older. I am no where near dying, and I'm sure you aren't.
You must stay positive. It's scary when you feel like you are slipping. But, you have to get rid of the fear, and say-ok, how am I going to do deal with this, what work do I have to do? And just do it. Try to talk to a professional about your fears. It's probably the best thing for you.
And it's amazing what the body can recover from when you are very happy and positive.

Christian
 
L

lilMeggies

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Hey, I know how you feel meagan, I never got an admission til I was 19. Always well, never did masks, always active. Then when I was 19 I got pneumonia, and since then its been so up and down. Its so hard to keep a good balanced lifestyle with cf. Eating straight, resting right, exercising enough. Sometimes I feel its such a full time job, and even one day of neglect can throw the whole balance off. Im 29 now, and I had about a good year of no admissions, small infections treated by orals, then I was admitted in october and since then ive had 3 re occuring infections. Especially through the winter too, especially from an ontario winter, I live in Barrie currently, you might also suffer from SAD (seasonal affective disorder) I usually get that in the winters, this year ive been lucky, although I have the serious symptom of fatigue, and tiredness, which makes it hard to acheive that balance when you dont wanna exercise, get up to eat, blah blah blah. Seeing a psych may help. But I believe you just gotta try and keep that balance. I know being 20 as well you wanna do things like go out have fun, which is perfect, just always remember you have cf in the back of your head and accomodate it.



Chad 29 w/cf(-) Ontario Canada<hr></blockquote>
That's crazy I live in barrie too
 
L

lilMeggies

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Hey, I know how you feel meagan, I never got an admission til I was 19. Always well, never did masks, always active. Then when I was 19 I got pneumonia, and since then its been so up and down. Its so hard to keep a good balanced lifestyle with cf. Eating straight, resting right, exercising enough. Sometimes I feel its such a full time job, and even one day of neglect can throw the whole balance off. Im 29 now, and I had about a good year of no admissions, small infections treated by orals, then I was admitted in october and since then ive had 3 re occuring infections. Especially through the winter too, especially from an ontario winter, I live in Barrie currently, you might also suffer from SAD (seasonal affective disorder) I usually get that in the winters, this year ive been lucky, although I have the serious symptom of fatigue, and tiredness, which makes it hard to acheive that balance when you dont wanna exercise, get up to eat, blah blah blah. Seeing a psych may help. But I believe you just gotta try and keep that balance. I know being 20 as well you wanna do things like go out have fun, which is perfect, just always remember you have cf in the back of your head and accomodate it.



Chad 29 w/cf(-) Ontario Canada<hr></blockquote>
That's crazy I live in barrie too
 
S

southbound

New member
I definitely think seeing a therapist would help -- specifically search for one that deals with chronic illness. I found that to be quite helpful.
 
S

southbound

New member
I definitely think seeing a therapist would help -- specifically search for one that deals with chronic illness. I found that to be quite helpful.
 
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thelizardqueen

New member
Why not take a break from the forum for awhile? I found that when I first came on here, I became overwhelmed by reading everything that everyone was going through. I started to feel depressed and worried for no apparent reason that my health was on the decline. I found that taking a break from the forum and not reading about CF on a daily basis made me feel a bit better. Pace yourself. You don't like reading about this stuff all the time, then take a break and don't read it. I've seen the commercial myself, and they do scare me. I simply change the channel.
 
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thelizardqueen

New member
Why not take a break from the forum for awhile? I found that when I first came on here, I became overwhelmed by reading everything that everyone was going through. I started to feel depressed and worried for no apparent reason that my health was on the decline. I found that taking a break from the forum and not reading about CF on a daily basis made me feel a bit better. Pace yourself. You don't like reading about this stuff all the time, then take a break and don't read it. I've seen the commercial myself, and they do scare me. I simply change the channel.
 
D

Debi

New member
I am 54 years old, so have been through many years of ups and downs. Two years ago I felt very down about it all. Fortunately my pulmonologist suggested talking to someone from the psychology dept while I was in the hospital dealing with a flareup. Turns out I was truly in overwhelm. I took an antidepressent for about 6 months, then was weaned off of it, and have been doing great ever since. And, I also agree with the suggestion to take a break from the forum every once in awhile. While it's nice to get some of the advice and to know you are not alone, it is also easy to get wrapped up in all the emotion and scary stuff. Remember, the forum is a tool, it's not supposed to run your life. Ultimately what has kept me as strong and healthy as I have been is keeping an open mind and being willing to try reasonable alternatives. I wish you all the best.
 
D

Debi

New member
I am 54 years old, so have been through many years of ups and downs. Two years ago I felt very down about it all. Fortunately my pulmonologist suggested talking to someone from the psychology dept while I was in the hospital dealing with a flareup. Turns out I was truly in overwhelm. I took an antidepressent for about 6 months, then was weaned off of it, and have been doing great ever since. And, I also agree with the suggestion to take a break from the forum every once in awhile. While it's nice to get some of the advice and to know you are not alone, it is also easy to get wrapped up in all the emotion and scary stuff. Remember, the forum is a tool, it's not supposed to run your life. Ultimately what has kept me as strong and healthy as I have been is keeping an open mind and being willing to try reasonable alternatives. I wish you all the best.
 
A

anonymous

New member
Maybe your'e right and therapy is not the answer for you. The point is, just try hard to stay positive.
Best to you,

Christian
 
A

anonymous

New member
Maybe your'e right and therapy is not the answer for you. The point is, just try hard to stay positive.
Best to you,

Christian
 
C

CowTown

New member
This is my first post on here and wanted to say how great it is to feel the comradre. My whole life I have tried to stay away from my cf side of life (so to speak) because it gets me down. For the past year I have just started to seak out reading cf forums and taking an interest in cf newsletters and what other cfers go through. I think I've started to do this to make sure that I'm not alone. That's my guess. I've just started to become scared in the last year. I struggle with my "normal" life, ie: love being newly married, 8-12 hour work days, playing with the dogs, tring to be active VS. me trying to care of myself everyday. For some reason I have such a hard time mixing the two. They feel very separate, which gets me into trouble.

I did want to say that staying positive has always been my modo and has always helped me too. I have also noticed over the years how often I hear such positive perpectives from cfers, whether it's in the hospital or in thes forums or in the news. I think that's something cf gives us, is an incredibly enlightened view of life, and I think that's a nice thing.
 
C

CowTown

New member
This is my first post on here and wanted to say how great it is to feel the comradre. My whole life I have tried to stay away from my cf side of life (so to speak) because it gets me down. For the past year I have just started to seak out reading cf forums and taking an interest in cf newsletters and what other cfers go through. I think I've started to do this to make sure that I'm not alone. That's my guess. I've just started to become scared in the last year. I struggle with my "normal" life, ie: love being newly married, 8-12 hour work days, playing with the dogs, tring to be active VS. me trying to care of myself everyday. For some reason I have such a hard time mixing the two. They feel very separate, which gets me into trouble.

I did want to say that staying positive has always been my modo and has always helped me too. I have also noticed over the years how often I hear such positive perpectives from cfers, whether it's in the hospital or in thes forums or in the news. I think that's something cf gives us, is an incredibly enlightened view of life, and I think that's a nice thing.
 
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