FEV 1, Exercise (eliptical machine), Pulmonary Hypertension.

H

hopesiris

Guest
Sarah,

It sounds like you need to take it really easy with the exercise until you have that testing in Jan. Exercise increases your O2 needs. Maybe instead of 10 minutes at a higher intensity you can do 15 minutes at low intensity for now. That may reduce your risk of injury too if you don't normally work out.

I have asthma and have difficulty sustaining cardio. I'm also a crusty old former ballet dancer with bad joints so I have to be careful not to injure myself. What I do is alternate between speeds/intensity. For example, I just bought a treadmill and my workout is 15 minutes long but done alternating 2 minutes walking- 1 minute very slow jogging. If your elliptical allows you to do a manual workout you can adjust the speed and resistance and see how long it takes you to catch your breath and slow down your heart rate between bursts. I can't do 10 minutes on an elliptical so that's what I did when I used one recently.

Jerry Cahill did a fantastic podcast on exercise if you haven't seen it.

Bonnie
 
H

hopesiris

Guest
Sarah,

It sounds like you need to take it really easy with the exercise until you have that testing in Jan. Exercise increases your O2 needs. Maybe instead of 10 minutes at a higher intensity you can do 15 minutes at low intensity for now. That may reduce your risk of injury too if you don't normally work out.

I have asthma and have difficulty sustaining cardio. I'm also a crusty old former ballet dancer with bad joints so I have to be careful not to injure myself. What I do is alternate between speeds/intensity. For example, I just bought a treadmill and my workout is 15 minutes long but done alternating 2 minutes walking- 1 minute very slow jogging. If your elliptical allows you to do a manual workout you can adjust the speed and resistance and see how long it takes you to catch your breath and slow down your heart rate between bursts. I can't do 10 minutes on an elliptical so that's what I did when I used one recently.

Jerry Cahill did a fantastic podcast on exercise if you haven't seen it.

Bonnie
 
H

hopesiris

Guest
Sarah,

It sounds like you need to take it really easy with the exercise until you have that testing in Jan. Exercise increases your O2 needs. Maybe instead of 10 minutes at a higher intensity you can do 15 minutes at low intensity for now. That may reduce your risk of injury too if you don't normally work out.

I have asthma and have difficulty sustaining cardio. I'm also a crusty old former ballet dancer with bad joints so I have to be careful not to injure myself. What I do is alternate between speeds/intensity. For example, I just bought a treadmill and my workout is 15 minutes long but done alternating 2 minutes walking- 1 minute very slow jogging. If your elliptical allows you to do a manual workout you can adjust the speed and resistance and see how long it takes you to catch your breath and slow down your heart rate between bursts. I can't do 10 minutes on an elliptical so that's what I did when I used one recently.

Jerry Cahill did a fantastic podcast on exercise if you haven't seen it.

Bonnie
 
H

hopesiris

Guest
Sarah,

It sounds like you need to take it really easy with the exercise until you have that testing in Jan. Exercise increases your O2 needs. Maybe instead of 10 minutes at a higher intensity you can do 15 minutes at low intensity for now. That may reduce your risk of injury too if you don't normally work out.

I have asthma and have difficulty sustaining cardio. I'm also a crusty old former ballet dancer with bad joints so I have to be careful not to injure myself. What I do is alternate between speeds/intensity. For example, I just bought a treadmill and my workout is 15 minutes long but done alternating 2 minutes walking- 1 minute very slow jogging. If your elliptical allows you to do a manual workout you can adjust the speed and resistance and see how long it takes you to catch your breath and slow down your heart rate between bursts. I can't do 10 minutes on an elliptical so that's what I did when I used one recently.

Jerry Cahill did a fantastic podcast on exercise if you haven't seen it.

Bonnie
 
H

hopesiris

Guest
Sarah,

It sounds like you need to take it really easy with the exercise until you have that testing in Jan. Exercise increases your O2 needs. Maybe instead of 10 minutes at a higher intensity you can do 15 minutes at low intensity for now. That may reduce your risk of injury too if you don't normally work out.

I have asthma and have difficulty sustaining cardio. I'm also a crusty old former ballet dancer with bad joints so I have to be careful not to injure myself. What I do is alternate between speeds/intensity. For example, I just bought a treadmill and my workout is 15 minutes long but done alternating 2 minutes walking- 1 minute very slow jogging. If your elliptical allows you to do a manual workout you can adjust the speed and resistance and see how long it takes you to catch your breath and slow down your heart rate between bursts. I can't do 10 minutes on an elliptical so that's what I did when I used one recently.

Jerry Cahill did a fantastic podcast on exercise if you haven't seen it.

Bonnie
 
I

idajune

New member
Thank you all for responding. I guess I am so not ready to accept O2, just makes me sad. My pulmonary - CF doc doesn't want me to have the Right Heart Catheterization done in Jan. just yet. The Cardio docs did not talk to him before setting up this appointment. He wants me to have another ECHO before deciding to do the procedure for sure. He doesn't like to put my body through unnecessary procedures. I don't have most of the symptoms of Pulm Hyp, only SOB when I really exert myself. But I just figured that is because my FEV1 and other things are low.

The elliptical has made me feel so good the last few days. I am mostly at the base level, I did resistance this morning but only up to 4, so it wasn't much. But I felt really good afterward. I am trying not to kill myself on it but it is such a good feeling. I wish I would have had one of these 5 years ago.

I will keep you posted as my life seems to be getting more interesting lately - and not like I would prefer.

Thanks all!
 
I

idajune

New member
Thank you all for responding. I guess I am so not ready to accept O2, just makes me sad. My pulmonary - CF doc doesn't want me to have the Right Heart Catheterization done in Jan. just yet. The Cardio docs did not talk to him before setting up this appointment. He wants me to have another ECHO before deciding to do the procedure for sure. He doesn't like to put my body through unnecessary procedures. I don't have most of the symptoms of Pulm Hyp, only SOB when I really exert myself. But I just figured that is because my FEV1 and other things are low.

The elliptical has made me feel so good the last few days. I am mostly at the base level, I did resistance this morning but only up to 4, so it wasn't much. But I felt really good afterward. I am trying not to kill myself on it but it is such a good feeling. I wish I would have had one of these 5 years ago.

I will keep you posted as my life seems to be getting more interesting lately - and not like I would prefer.

Thanks all!
 
I

idajune

New member
Thank you all for responding. I guess I am so not ready to accept O2, just makes me sad. My pulmonary - CF doc doesn't want me to have the Right Heart Catheterization done in Jan. just yet. The Cardio docs did not talk to him before setting up this appointment. He wants me to have another ECHO before deciding to do the procedure for sure. He doesn't like to put my body through unnecessary procedures. I don't have most of the symptoms of Pulm Hyp, only SOB when I really exert myself. But I just figured that is because my FEV1 and other things are low.

The elliptical has made me feel so good the last few days. I am mostly at the base level, I did resistance this morning but only up to 4, so it wasn't much. But I felt really good afterward. I am trying not to kill myself on it but it is such a good feeling. I wish I would have had one of these 5 years ago.

I will keep you posted as my life seems to be getting more interesting lately - and not like I would prefer.

Thanks all!
 
I

idajune

New member
Thank you all for responding. I guess I am so not ready to accept O2, just makes me sad. My pulmonary - CF doc doesn't want me to have the Right Heart Catheterization done in Jan. just yet. The Cardio docs did not talk to him before setting up this appointment. He wants me to have another ECHO before deciding to do the procedure for sure. He doesn't like to put my body through unnecessary procedures. I don't have most of the symptoms of Pulm Hyp, only SOB when I really exert myself. But I just figured that is because my FEV1 and other things are low.

The elliptical has made me feel so good the last few days. I am mostly at the base level, I did resistance this morning but only up to 4, so it wasn't much. But I felt really good afterward. I am trying not to kill myself on it but it is such a good feeling. I wish I would have had one of these 5 years ago.

I will keep you posted as my life seems to be getting more interesting lately - and not like I would prefer.

Thanks all!
 
I

idajune

New member
Thank you all for responding. I guess I am so not ready to accept O2, just makes me sad. My pulmonary - CF doc doesn't want me to have the Right Heart Catheterization done in Jan. just yet. The Cardio docs did not talk to him before setting up this appointment. He wants me to have another ECHO before deciding to do the procedure for sure. He doesn't like to put my body through unnecessary procedures. I don't have most of the symptoms of Pulm Hyp, only SOB when I really exert myself. But I just figured that is because my FEV1 and other things are low.

The elliptical has made me feel so good the last few days. I am mostly at the base level, I did resistance this morning but only up to 4, so it wasn't much. But I felt really good afterward. I am trying not to kill myself on it but it is such a good feeling. I wish I would have had one of these 5 years ago.

I will keep you posted as my life seems to be getting more interesting lately - and not like I would prefer.

Thanks all!
 
S

Skye

New member
idajune,
You have a great attitude and a great spirit to get in and start working. As others have said, just know what your limits are. Take heart, CF is different for everyone and there are many people on this forum with "not so great FEV1's". Myself being one of them<img src="i/expressions/face-icon-small-smile.gif" border="0"> I have what I consider a very normal life though and can do all of the things I enjoy. I just have to know what my limits are and tune into when my body needs a little extra care.
 
S

Skye

New member
idajune,
You have a great attitude and a great spirit to get in and start working. As others have said, just know what your limits are. Take heart, CF is different for everyone and there are many people on this forum with "not so great FEV1's". Myself being one of them<img src="i/expressions/face-icon-small-smile.gif" border="0"> I have what I consider a very normal life though and can do all of the things I enjoy. I just have to know what my limits are and tune into when my body needs a little extra care.
 
S

Skye

New member
idajune,
You have a great attitude and a great spirit to get in and start working. As others have said, just know what your limits are. Take heart, CF is different for everyone and there are many people on this forum with "not so great FEV1's". Myself being one of them<img src="i/expressions/face-icon-small-smile.gif" border="0"> I have what I consider a very normal life though and can do all of the things I enjoy. I just have to know what my limits are and tune into when my body needs a little extra care.
 
S

Skye

New member
idajune,
You have a great attitude and a great spirit to get in and start working. As others have said, just know what your limits are. Take heart, CF is different for everyone and there are many people on this forum with "not so great FEV1's". Myself being one of them<img src="i/expressions/face-icon-small-smile.gif" border="0"> I have what I consider a very normal life though and can do all of the things I enjoy. I just have to know what my limits are and tune into when my body needs a little extra care.
 
S

Skye

New member
idajune,
You have a great attitude and a great spirit to get in and start working. As others have said, just know what your limits are. Take heart, CF is different for everyone and there are many people on this forum with "not so great FEV1's". Myself being one of them<img src="i/expressions/face-icon-small-smile.gif" border="0"> I have what I consider a very normal life though and can do all of the things I enjoy. I just have to know what my limits are and tune into when my body needs a little extra care.
 
L

LouLou

New member
Isn't 30% when it's time to get eval'ed for tx listing? Don't mean to be a "downer debbie" but with an FEV1 of 35% the doctors are probably having thoughts more along these lines. FEV1 of 50% is usually the cut off and cfers then have enough lung capacity to experience preg. like a non cfer. It's not the pregnancy that will be hard, although with an FEV1 of 35 it might be and as you know some non-cfers _itch about pregnancy being difficult (not my experience but it was for such people as mom2lillian) it's the mothering and doing everything you need to do to care for yourself. Many cfers, including myself, actually had less cf problems while pregnant. I can't say the same for post pregnancy and I'm a good time manager and I have a dream child that sleeps 12 hours through the night at 4 months old. THERE'S A LOT THAT GOES ON IN OUR BODIES - I BELIEVE POST PREGO THAT IS COMPLETELY OUT OF OUR CONTROL. I bolded this because no one ever told me that. I'm assuming you are home full time and possibly on disability. If you are still working WOW.

It helped my husband and I to have the talk of "would you rather be able to move on and remarry foot loose and fancy free when I die (granted we don't usually talk this way - we are both very upbeat about my cf but this is no time to sugarcoat things) or forever to have a child to link you to your past with me.... and to care for as a single parent." For us it had to ultimately be his decision because there are no promises with my health. I've spelled out my planning discussion and research I did in much detail on here somewhere. If you have further interest let me know. I feel like I might be barking up a dead tree. I don't want to irritate anyone.

Good luck.
 
L

LouLou

New member
Isn't 30% when it's time to get eval'ed for tx listing? Don't mean to be a "downer debbie" but with an FEV1 of 35% the doctors are probably having thoughts more along these lines. FEV1 of 50% is usually the cut off and cfers then have enough lung capacity to experience preg. like a non cfer. It's not the pregnancy that will be hard, although with an FEV1 of 35 it might be and as you know some non-cfers _itch about pregnancy being difficult (not my experience but it was for such people as mom2lillian) it's the mothering and doing everything you need to do to care for yourself. Many cfers, including myself, actually had less cf problems while pregnant. I can't say the same for post pregnancy and I'm a good time manager and I have a dream child that sleeps 12 hours through the night at 4 months old. THERE'S A LOT THAT GOES ON IN OUR BODIES - I BELIEVE POST PREGO THAT IS COMPLETELY OUT OF OUR CONTROL. I bolded this because no one ever told me that. I'm assuming you are home full time and possibly on disability. If you are still working WOW.

It helped my husband and I to have the talk of "would you rather be able to move on and remarry foot loose and fancy free when I die (granted we don't usually talk this way - we are both very upbeat about my cf but this is no time to sugarcoat things) or forever to have a child to link you to your past with me.... and to care for as a single parent." For us it had to ultimately be his decision because there are no promises with my health. I've spelled out my planning discussion and research I did in much detail on here somewhere. If you have further interest let me know. I feel like I might be barking up a dead tree. I don't want to irritate anyone.

Good luck.
 
L

LouLou

New member
Isn't 30% when it's time to get eval'ed for tx listing? Don't mean to be a "downer debbie" but with an FEV1 of 35% the doctors are probably having thoughts more along these lines. FEV1 of 50% is usually the cut off and cfers then have enough lung capacity to experience preg. like a non cfer. It's not the pregnancy that will be hard, although with an FEV1 of 35 it might be and as you know some non-cfers _itch about pregnancy being difficult (not my experience but it was for such people as mom2lillian) it's the mothering and doing everything you need to do to care for yourself. Many cfers, including myself, actually had less cf problems while pregnant. I can't say the same for post pregnancy and I'm a good time manager and I have a dream child that sleeps 12 hours through the night at 4 months old. THERE'S A LOT THAT GOES ON IN OUR BODIES - I BELIEVE POST PREGO THAT IS COMPLETELY OUT OF OUR CONTROL. I bolded this because no one ever told me that. I'm assuming you are home full time and possibly on disability. If you are still working WOW.

It helped my husband and I to have the talk of "would you rather be able to move on and remarry foot loose and fancy free when I die (granted we don't usually talk this way - we are both very upbeat about my cf but this is no time to sugarcoat things) or forever to have a child to link you to your past with me.... and to care for as a single parent." For us it had to ultimately be his decision because there are no promises with my health. I've spelled out my planning discussion and research I did in much detail on here somewhere. If you have further interest let me know. I feel like I might be barking up a dead tree. I don't want to irritate anyone.

Good luck.
 
L

LouLou

New member
Isn't 30% when it's time to get eval'ed for tx listing? Don't mean to be a "downer debbie" but with an FEV1 of 35% the doctors are probably having thoughts more along these lines. FEV1 of 50% is usually the cut off and cfers then have enough lung capacity to experience preg. like a non cfer. It's not the pregnancy that will be hard, although with an FEV1 of 35 it might be and as you know some non-cfers _itch about pregnancy being difficult (not my experience but it was for such people as mom2lillian) it's the mothering and doing everything you need to do to care for yourself. Many cfers, including myself, actually had less cf problems while pregnant. I can't say the same for post pregnancy and I'm a good time manager and I have a dream child that sleeps 12 hours through the night at 4 months old. THERE'S A LOT THAT GOES ON IN OUR BODIES - I BELIEVE POST PREGO THAT IS COMPLETELY OUT OF OUR CONTROL. I bolded this because no one ever told me that. I'm assuming you are home full time and possibly on disability. If you are still working WOW.

It helped my husband and I to have the talk of "would you rather be able to move on and remarry foot loose and fancy free when I die (granted we don't usually talk this way - we are both very upbeat about my cf but this is no time to sugarcoat things) or forever to have a child to link you to your past with me.... and to care for as a single parent." For us it had to ultimately be his decision because there are no promises with my health. I've spelled out my planning discussion and research I did in much detail on here somewhere. If you have further interest let me know. I feel like I might be barking up a dead tree. I don't want to irritate anyone.

Good luck.
 
L

LouLou

New member
Isn't 30% when it's time to get eval'ed for tx listing? Don't mean to be a "downer debbie" but with an FEV1 of 35% the doctors are probably having thoughts more along these lines. FEV1 of 50% is usually the cut off and cfers then have enough lung capacity to experience preg. like a non cfer. It's not the pregnancy that will be hard, although with an FEV1 of 35 it might be and as you know some non-cfers _itch about pregnancy being difficult (not my experience but it was for such people as mom2lillian) it's the mothering and doing everything you need to do to care for yourself. Many cfers, including myself, actually had less cf problems while pregnant. I can't say the same for post pregnancy and I'm a good time manager and I have a dream child that sleeps 12 hours through the night at 4 months old. THERE'S A LOT THAT GOES ON IN OUR BODIES - I BELIEVE POST PREGO THAT IS COMPLETELY OUT OF OUR CONTROL. I bolded this because no one ever told me that. I'm assuming you are home full time and possibly on disability. If you are still working WOW.

It helped my husband and I to have the talk of "would you rather be able to move on and remarry foot loose and fancy free when I die (granted we don't usually talk this way - we are both very upbeat about my cf but this is no time to sugarcoat things) or forever to have a child to link you to your past with me.... and to care for as a single parent." For us it had to ultimately be his decision because there are no promises with my health. I've spelled out my planning discussion and research I did in much detail on here somewhere. If you have further interest let me know. I feel like I might be barking up a dead tree. I don't want to irritate anyone.

Good luck.
 
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