This discusses measuring quality of life for patients with COPD <a target=_blank class=ftalternatingbarlinklarge href="http://painconsortium.nih.gov/symptomresearch/chapter_23/sec33/cahs33pg1.htm">http://painconsortium.nih.gov/...23/sec33/cahs33pg1.htm</a> but I think much applies to folks with CF as well.
Also Dr. Bartolome R. Celli who is associated with Tufts hospital has developed a scale (the BODE index) that measures other things <a target=_blank class=ftalternatingbarlinklarge href="http://www.eperc.mcw.edu/fastFact/ff_141.htm">http://www.eperc.mcw.edu/fastFact/ff_141.htm</a> to help predict prognosis of COPD patients.
Even though I am sure that the numbers are different for folks with CF, it is my observation that all of these factors do feed into a person's view of their quality of life.
So I'd be interested in how things with CF map to not only % of predicted FEV1, but also dinstance walked in 6 minutes, MMRC dyspnea scale, and BMI.
Also Dr. Bartolome R. Celli who is associated with Tufts hospital has developed a scale (the BODE index) that measures other things <a target=_blank class=ftalternatingbarlinklarge href="http://www.eperc.mcw.edu/fastFact/ff_141.htm">http://www.eperc.mcw.edu/fastFact/ff_141.htm</a> to help predict prognosis of COPD patients.
Even though I am sure that the numbers are different for folks with CF, it is my observation that all of these factors do feed into a person's view of their quality of life.
So I'd be interested in how things with CF map to not only % of predicted FEV1, but also dinstance walked in 6 minutes, MMRC dyspnea scale, and BMI.