FEV1 Validity

[Nightwriter]

Lex,

This is what I'm talking about. Febreeze moments. The triggers that bring on exacerbations, SOB, hospitalizations, and declining lung function. I know I have an asthma component. I asked my doctor if she thought most CFers do also. She thinks so because she said our airways are hypersensitive.

The way I look at it is -- it's not as if I have CF <i>and</i> Asthma. Asthma is part of my CF... and for me it's a good thing. Because I can do something about asthma. I can't drill new sodium chloride paths in my lungs. If you have an asthma component that is not being addressed, you may have room for improvement. If there is less inflammation, your airways can open up more and you can get more air through.

Look for the Febreeze moments. It's one aspect you can help. There is much you can learn. In my own case, I use meds, plus a holistic approach (including supplements), avoidance of triggers, clean environment, dietary changes, use of charcoal masks...so much more. And yes, sometimes I cheat, and I end up paying for it. No one's perfect.

 

[Nightwriter]

Lex,

This is what I'm talking about. Febreeze moments. The triggers that bring on exacerbations, SOB, hospitalizations, and declining lung function. I know I have an asthma component. I asked my doctor if she thought most CFers do also. She thinks so because she said our airways are hypersensitive.

The way I look at it is -- it's not as if I have CF <i>and</i> Asthma. Asthma is part of my CF... and for me it's a good thing. Because I can do something about asthma. I can't drill new sodium chloride paths in my lungs. If you have an asthma component that is not being addressed, you may have room for improvement. If there is less inflammation, your airways can open up more and you can get more air through.

Look for the Febreeze moments. It's one aspect you can help. There is much you can learn. In my own case, I use meds, plus a holistic approach (including supplements), avoidance of triggers, clean environment, dietary changes, use of charcoal masks...so much more. And yes, sometimes I cheat, and I end up paying for it. No one's perfect.

 

[Nightwriter]

Lex,

This is what I'm talking about. Febreeze moments. The triggers that bring on exacerbations, SOB, hospitalizations, and declining lung function. I know I have an asthma component. I asked my doctor if she thought most CFers do also. She thinks so because she said our airways are hypersensitive.

The way I look at it is -- it's not as if I have CF <i>and</i> Asthma. Asthma is part of my CF... and for me it's a good thing. Because I can do something about asthma. I can't drill new sodium chloride paths in my lungs. If you have an asthma component that is not being addressed, you may have room for improvement. If there is less inflammation, your airways can open up more and you can get more air through.

Look for the Febreeze moments. It's one aspect you can help. There is much you can learn. In my own case, I use meds, plus a holistic approach (including supplements), avoidance of triggers, clean environment, dietary changes, use of charcoal masks...so much more. And yes, sometimes I cheat, and I end up paying for it. No one's perfect.

 

[Nightwriter]

Lex,

This is what I'm talking about. Febreeze moments. The triggers that bring on exacerbations, SOB, hospitalizations, and declining lung function. I know I have an asthma component. I asked my doctor if she thought most CFers do also. She thinks so because she said our airways are hypersensitive.

The way I look at it is -- it's not as if I have CF <i>and</i> Asthma. Asthma is part of my CF... and for me it's a good thing. Because I can do something about asthma. I can't drill new sodium chloride paths in my lungs. If you have an asthma component that is not being addressed, you may have room for improvement. If there is less inflammation, your airways can open up more and you can get more air through.

Look for the Febreeze moments. It's one aspect you can help. There is much you can learn. In my own case, I use meds, plus a holistic approach (including supplements), avoidance of triggers, clean environment, dietary changes, use of charcoal masks...so much more. And yes, sometimes I cheat, and I end up paying for it. No one's perfect.

 

[Nightwriter]

Lex,
<br />
<br />This is what I'm talking about. Febreeze moments. The triggers that bring on exacerbations, SOB, hospitalizations, and declining lung function. I know I have an asthma component. I asked my doctor if she thought most CFers do also. She thinks so because she said our airways are hypersensitive.
<br />
<br />The way I look at it is -- it's not as if I have CF <i>and</i> Asthma. Asthma is part of my CF... and for me it's a good thing. Because I can do something about asthma. I can't drill new sodium chloride paths in my lungs. If you have an asthma component that is not being addressed, you may have room for improvement. If there is less inflammation, your airways can open up more and you can get more air through.
<br />
<br />Look for the Febreeze moments. It's one aspect you can help. There is much you can learn. In my own case, I use meds, plus a holistic approach (including supplements), avoidance of triggers, clean environment, dietary changes, use of charcoal masks...so much more. And yes, sometimes I cheat, and I end up paying for it. No one's perfect.
<br />
<br />

 

[Melissa75]

Nightwriter & Lex,

I hear you loud and clear about the Febreze moments!!!!!!!!!!!

My allergy testing showed cats, tree mold and dust. These things make my nose run and my eyes itch. Not the end of the world for me. I actually hang out at a friend's house with cats with no problem.

However, when my lungs get tight and mucusy, then plugged and bronchopneumonia-y--That sucks! And for me that is caused by totally different "allergies": standing downwind of a fire, carwash, smoker; being in a leather or new car, going to the mall, being near perfume or air freshener, fried cooking smells, fabric softener, fresh paint, drywall, mulch. Heck, I don't even stand in the kitchen when my husband is grinding coffee beans. It is ridiculous.

I think I should rent myself out to companies doing safety testing. I could be the canary in the coal mines. If they had had me, the poor microwave-popcorn-factory employees would not have ended up with lung disease. I could have told them from the get-go that the air was not safe.

The way I see it is if you had a raw, open wound on your leg, something as innocuous as bathwater would be painful and irritating. So, most of the environment is irritating to my raw, post- and current-infection lungs.

Yup, my house is filled with unscented, organic stuff, and few rugs. I am not looking forward to winter because when the house is closed up, I do worse. I am trying to pick a gym based on smell
__________
Melissa 33 yrs, bronchiectasis (no cf)

 

[Melissa75]

Nightwriter & Lex,

I hear you loud and clear about the Febreze moments!!!!!!!!!!!

My allergy testing showed cats, tree mold and dust. These things make my nose run and my eyes itch. Not the end of the world for me. I actually hang out at a friend's house with cats with no problem.

However, when my lungs get tight and mucusy, then plugged and bronchopneumonia-y--That sucks! And for me that is caused by totally different "allergies": standing downwind of a fire, carwash, smoker; being in a leather or new car, going to the mall, being near perfume or air freshener, fried cooking smells, fabric softener, fresh paint, drywall, mulch. Heck, I don't even stand in the kitchen when my husband is grinding coffee beans. It is ridiculous.

I think I should rent myself out to companies doing safety testing. I could be the canary in the coal mines. If they had had me, the poor microwave-popcorn-factory employees would not have ended up with lung disease. I could have told them from the get-go that the air was not safe.

The way I see it is if you had a raw, open wound on your leg, something as innocuous as bathwater would be painful and irritating. So, most of the environment is irritating to my raw, post- and current-infection lungs.

Yup, my house is filled with unscented, organic stuff, and few rugs. I am not looking forward to winter because when the house is closed up, I do worse. I am trying to pick a gym based on smell
__________
Melissa 33 yrs, bronchiectasis (no cf)

 

[Melissa75]

Nightwriter & Lex,

I hear you loud and clear about the Febreze moments!!!!!!!!!!!

My allergy testing showed cats, tree mold and dust. These things make my nose run and my eyes itch. Not the end of the world for me. I actually hang out at a friend's house with cats with no problem.

However, when my lungs get tight and mucusy, then plugged and bronchopneumonia-y--That sucks! And for me that is caused by totally different "allergies": standing downwind of a fire, carwash, smoker; being in a leather or new car, going to the mall, being near perfume or air freshener, fried cooking smells, fabric softener, fresh paint, drywall, mulch. Heck, I don't even stand in the kitchen when my husband is grinding coffee beans. It is ridiculous.

I think I should rent myself out to companies doing safety testing. I could be the canary in the coal mines. If they had had me, the poor microwave-popcorn-factory employees would not have ended up with lung disease. I could have told them from the get-go that the air was not safe.

The way I see it is if you had a raw, open wound on your leg, something as innocuous as bathwater would be painful and irritating. So, most of the environment is irritating to my raw, post- and current-infection lungs.

Yup, my house is filled with unscented, organic stuff, and few rugs. I am not looking forward to winter because when the house is closed up, I do worse. I am trying to pick a gym based on smell
__________
Melissa 33 yrs, bronchiectasis (no cf)

 

[Melissa75]

Nightwriter & Lex,

I hear you loud and clear about the Febreze moments!!!!!!!!!!!

My allergy testing showed cats, tree mold and dust. These things make my nose run and my eyes itch. Not the end of the world for me. I actually hang out at a friend's house with cats with no problem.

However, when my lungs get tight and mucusy, then plugged and bronchopneumonia-y--That sucks! And for me that is caused by totally different "allergies": standing downwind of a fire, carwash, smoker; being in a leather or new car, going to the mall, being near perfume or air freshener, fried cooking smells, fabric softener, fresh paint, drywall, mulch. Heck, I don't even stand in the kitchen when my husband is grinding coffee beans. It is ridiculous.

I think I should rent myself out to companies doing safety testing. I could be the canary in the coal mines. If they had had me, the poor microwave-popcorn-factory employees would not have ended up with lung disease. I could have told them from the get-go that the air was not safe.

The way I see it is if you had a raw, open wound on your leg, something as innocuous as bathwater would be painful and irritating. So, most of the environment is irritating to my raw, post- and current-infection lungs.

Yup, my house is filled with unscented, organic stuff, and few rugs. I am not looking forward to winter because when the house is closed up, I do worse. I am trying to pick a gym based on smell
__________
Melissa 33 yrs, bronchiectasis (no cf)

 

[Melissa75]

Nightwriter & Lex,
<br />
<br />I hear you loud and clear about the Febreze moments!!!!!!!!!!!
<br />
<br />My allergy testing showed cats, tree mold and dust. These things make my nose run and my eyes itch. Not the end of the world for me. I actually hang out at a friend's house with cats with no problem.
<br />
<br />However, when my lungs get tight and mucusy, then plugged and bronchopneumonia-y--That sucks! And for me that is caused by totally different "allergies": standing downwind of a fire, carwash, smoker; being in a leather or new car, going to the mall, being near perfume or air freshener, fried cooking smells, fabric softener, fresh paint, drywall, mulch. Heck, I don't even stand in the kitchen when my husband is grinding coffee beans. It is ridiculous.
<br />
<br />I think I should rent myself out to companies doing safety testing. I could be the canary in the coal mines. If they had had me, the poor microwave-popcorn-factory employees would not have ended up with lung disease. I could have told them from the get-go that the air was not safe.
<br />
<br />The way I see it is if you had a raw, open wound on your leg, something as innocuous as bathwater would be painful and irritating. So, most of the environment is irritating to my raw, post- and current-infection lungs.
<br />
<br />Yup, my house is filled with unscented, organic stuff, and few rugs. I am not looking forward to winter because when the house is closed up, I do worse. I am trying to pick a gym based on smell
<br />__________
<br />Melissa 33 yrs, bronchiectasis (no cf)

 

[Nightwriter]

Melissa,

I love what you wrote. And the gym? Ohmigod. My gym that I love, replaced all the carpets. It smelled like a carpet store. So I asked them if I could go to one of their other gyms. After 2 days, they replaced all the carpets there too! So now I go back to the first gym, slap on a charcoal mask, walk through this giant carpeted gym, looking pretty stupid, to a back room that has wood floors and like some kind of pariah, work out by myself.

But there's a happy ending. One day while I was in there, the door bursts open and 30 people rush in and start doing some weird dance/fitness class. I can't grab my mat, weights, exercise ball fast enough to get out of there, so I start dancing around with them. I hate dance. But then, I start having the best time. So now I go to these classes (called Zumba) that I would have never in a million year have gone to. So I have my bad lungs to thank.

By the way, closed windows are really the best. But you have to have a really good air purifyer. It's really helped me in smoggy L.A.

 

[Nightwriter]

Melissa,

I love what you wrote. And the gym? Ohmigod. My gym that I love, replaced all the carpets. It smelled like a carpet store. So I asked them if I could go to one of their other gyms. After 2 days, they replaced all the carpets there too! So now I go back to the first gym, slap on a charcoal mask, walk through this giant carpeted gym, looking pretty stupid, to a back room that has wood floors and like some kind of pariah, work out by myself.

But there's a happy ending. One day while I was in there, the door bursts open and 30 people rush in and start doing some weird dance/fitness class. I can't grab my mat, weights, exercise ball fast enough to get out of there, so I start dancing around with them. I hate dance. But then, I start having the best time. So now I go to these classes (called Zumba) that I would have never in a million year have gone to. So I have my bad lungs to thank.

By the way, closed windows are really the best. But you have to have a really good air purifyer. It's really helped me in smoggy L.A.

 

[Nightwriter]

Melissa,

I love what you wrote. And the gym? Ohmigod. My gym that I love, replaced all the carpets. It smelled like a carpet store. So I asked them if I could go to one of their other gyms. After 2 days, they replaced all the carpets there too! So now I go back to the first gym, slap on a charcoal mask, walk through this giant carpeted gym, looking pretty stupid, to a back room that has wood floors and like some kind of pariah, work out by myself.

But there's a happy ending. One day while I was in there, the door bursts open and 30 people rush in and start doing some weird dance/fitness class. I can't grab my mat, weights, exercise ball fast enough to get out of there, so I start dancing around with them. I hate dance. But then, I start having the best time. So now I go to these classes (called Zumba) that I would have never in a million year have gone to. So I have my bad lungs to thank.

By the way, closed windows are really the best. But you have to have a really good air purifyer. It's really helped me in smoggy L.A.

 

[Nightwriter]

Melissa,

I love what you wrote. And the gym? Ohmigod. My gym that I love, replaced all the carpets. It smelled like a carpet store. So I asked them if I could go to one of their other gyms. After 2 days, they replaced all the carpets there too! So now I go back to the first gym, slap on a charcoal mask, walk through this giant carpeted gym, looking pretty stupid, to a back room that has wood floors and like some kind of pariah, work out by myself.

But there's a happy ending. One day while I was in there, the door bursts open and 30 people rush in and start doing some weird dance/fitness class. I can't grab my mat, weights, exercise ball fast enough to get out of there, so I start dancing around with them. I hate dance. But then, I start having the best time. So now I go to these classes (called Zumba) that I would have never in a million year have gone to. So I have my bad lungs to thank.

By the way, closed windows are really the best. But you have to have a really good air purifyer. It's really helped me in smoggy L.A.

 

[Nightwriter]

Melissa,
<br />
<br />I love what you wrote. And the gym? Ohmigod. My gym that I love, replaced all the carpets. It smelled like a carpet store. So I asked them if I could go to one of their other gyms. After 2 days, they replaced all the carpets there too! So now I go back to the first gym, slap on a charcoal mask, walk through this giant carpeted gym, looking pretty stupid, to a back room that has wood floors and like some kind of pariah, work out by myself.
<br />
<br />But there's a happy ending. One day while I was in there, the door bursts open and 30 people rush in and start doing some weird dance/fitness class. I can't grab my mat, weights, exercise ball fast enough to get out of there, so I start dancing around with them. I hate dance. But then, I start having the best time. So now I go to these classes (called Zumba) that I would have never in a million year have gone to. So I have my bad lungs to thank.
<br />
<br />By the way, closed windows are really the best. But you have to have a really good air purifyer. It's really helped me in smoggy L.A.

 

[Melissa75]

LOL at your unwilling intro to Zumba dancing
I so feel for you with the new carpet smell. Even years ago, when I was healthier, I found the smell of new carpet pretty mind-blowingly awful.
My air purifier is an ALEN something-or-other. I think it ranks well. I need to keep it at a higher setting, but it is noisy.
I live right outside NYC, so I doubt the outside air is great. But I still prefer it to the winter-long smell of burning money--I mean oil--in my 80 yr old house. This winter we'll decide whether to convert to natural gas.
_________
Melissa 33 yrs, bronchiectasis (no cf)

 

[Melissa75]

LOL at your unwilling intro to Zumba dancing
I so feel for you with the new carpet smell. Even years ago, when I was healthier, I found the smell of new carpet pretty mind-blowingly awful.
My air purifier is an ALEN something-or-other. I think it ranks well. I need to keep it at a higher setting, but it is noisy.
I live right outside NYC, so I doubt the outside air is great. But I still prefer it to the winter-long smell of burning money--I mean oil--in my 80 yr old house. This winter we'll decide whether to convert to natural gas.
_________
Melissa 33 yrs, bronchiectasis (no cf)

 

[Melissa75]

LOL at your unwilling intro to Zumba dancing
I so feel for you with the new carpet smell. Even years ago, when I was healthier, I found the smell of new carpet pretty mind-blowingly awful.
My air purifier is an ALEN something-or-other. I think it ranks well. I need to keep it at a higher setting, but it is noisy.
I live right outside NYC, so I doubt the outside air is great. But I still prefer it to the winter-long smell of burning money--I mean oil--in my 80 yr old house. This winter we'll decide whether to convert to natural gas.
_________
Melissa 33 yrs, bronchiectasis (no cf)

 

[Melissa75]

LOL at your unwilling intro to Zumba dancing
I so feel for you with the new carpet smell. Even years ago, when I was healthier, I found the smell of new carpet pretty mind-blowingly awful.
My air purifier is an ALEN something-or-other. I think it ranks well. I need to keep it at a higher setting, but it is noisy.
I live right outside NYC, so I doubt the outside air is great. But I still prefer it to the winter-long smell of burning money--I mean oil--in my 80 yr old house. This winter we'll decide whether to convert to natural gas.
_________
Melissa 33 yrs, bronchiectasis (no cf)

 

[Melissa75]

LOL at your unwilling intro to Zumba dancing
<br />I so feel for you with the new carpet smell. Even years ago, when I was healthier, I found the smell of new carpet pretty mind-blowingly awful.
<br />My air purifier is an ALEN something-or-other. I think it ranks well. I need to keep it at a higher setting, but it is noisy.
<br />I live right outside NYC, so I doubt the outside air is great. But I still prefer it to the winter-long smell of burning money--I mean oil--in my 80 yr old house. This winter we'll decide whether to convert to natural gas.
<br />_________
<br />Melissa 33 yrs, bronchiectasis (no cf)
<br />