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FEV1
- Thread starter hbollotte
- Start date
I am at 53. I have stayed pretty close to that for the last few months. I go up about 3 or 4 after antibiotics, but then when I go back down they get me started again. Guess it is just a vicious cycle. I think where I am is pretty good considering my age and everything. I'm just thankful for everyday that I can still do most of what I want,hope you can too.
I am at 53. I have stayed pretty close to that for the last few months. I go up about 3 or 4 after antibiotics, but then when I go back down they get me started again. Guess it is just a vicious cycle. I think where I am is pretty good considering my age and everything. I'm just thankful for everyday that I can still do most of what I want,hope you can too.
I am at 53. I have stayed pretty close to that for the last few months. I go up about 3 or 4 after antibiotics, but then when I go back down they get me started again. Guess it is just a vicious cycle. I think where I am is pretty good considering my age and everything. I'm just thankful for everyday that I can still do most of what I want,hope you can too.
I am at 53. I have stayed pretty close to that for the last few months. I go up about 3 or 4 after antibiotics, but then when I go back down they get me started again. Guess it is just a vicious cycle. I think where I am is pretty good considering my age and everything. I'm just thankful for everyday that I can still do most of what I want,hope you can too.
I am at 53. I have stayed pretty close to that for the last few months. I go up about 3 or 4 after antibiotics, but then when I go back down they get me started again. Guess it is just a vicious cycle. I think where I am is pretty good considering my age and everything. I'm just thankful for everyday that I can still do most of what I want,hope you can too.
M
mneville
Guest
I am totally naive as to the FEV #'s. Aidan at age 4 just did his first and had a # of 151% so I was psyched. We are beyond compliant with his treatments and do the hour daily at top pressure everyday of his VEST, Mucomyst, Pulmozyne and a slew of others...
But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
Megan
But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
Megan
M
mneville
Guest
I am totally naive as to the FEV #'s. Aidan at age 4 just did his first and had a # of 151% so I was psyched. We are beyond compliant with his treatments and do the hour daily at top pressure everyday of his VEST, Mucomyst, Pulmozyne and a slew of others...
But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
Megan
But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
Megan
M
mneville
Guest
I am totally naive as to the FEV #'s. Aidan at age 4 just did his first and had a # of 151% so I was psyched. We are beyond compliant with his treatments and do the hour daily at top pressure everyday of his VEST, Mucomyst, Pulmozyne and a slew of others...
But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
Megan
But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
Megan
M
mneville
Guest
I am totally naive as to the FEV #'s. Aidan at age 4 just did his first and had a # of 151% so I was psyched. We are beyond compliant with his treatments and do the hour daily at top pressure everyday of his VEST, Mucomyst, Pulmozyne and a slew of others...
But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
Megan
But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
Megan
M
mneville
Guest
I am totally naive as to the FEV #'s. Aidan at age 4 just did his first and had a # of 151% so I was psyched. We are beyond compliant with his treatments and do the hour daily at top pressure everyday of his VEST, Mucomyst, Pulmozyne and a slew of others...
<br />
<br />But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
<br />
<br />Megan
<br />
<br />But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
<br />
<br />Megan
jbrandonAW
New member
Yah it basically like living with one lung (as I see it). When min goes below 40% I feel out of breath and tired alot. But in a way you get used to it.
jbrandonAW
New member
Yah it basically like living with one lung (as I see it). When min goes below 40% I feel out of breath and tired alot. But in a way you get used to it.
jbrandonAW
New member
Yah it basically like living with one lung (as I see it). When min goes below 40% I feel out of breath and tired alot. But in a way you get used to it.
jbrandonAW
New member
Yah it basically like living with one lung (as I see it). When min goes below 40% I feel out of breath and tired alot. But in a way you get used to it.
jbrandonAW
New member
Yah it basically like living with one lung (as I see it). When min goes below 40% I feel out of breath and tired alot. But in a way you get used to it.