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fevers
- Thread starter paysmom
- Start date
Hi,
How old is your CF child?
Yes, Nathan use to get fevers like that. I have chosen to home school him for many reasons, this being one of them. For about 2 years while home-schooling we did a program where the kids went to school on Fridays with other home-schooled kids and every Friday, without fail, Nathan would come home exhausted and running a fever as high as 102.5. We would go home, he would rest, go to bed early, sleep in on Saturday, do next to nothing on Saturday, and would be fine come Sunday morning, the rest of the week he would be just fine and then Friday would come and we would do it all over again. He wasn't enjoying going to Friday school so he quite and was fine.
However, now we are running fevers beginning sometime after dinner 4 to 5 times a week, by morning he is fine. Though I should tell you that he did grow mycobacterium abscessus in Oct and if he truly has this bug it is likely the source of the fevers now. He has to grow it 2 more times before he officially is diagnosed with the NTMA (Non-Turbuculosis Mycobacterium Abscessus) and are currently waiting on the results of his Dec culture and Jan culture.
I would definetly report it to your CF center and ask if they have done cultures for mycobacterium specifically. I know that there is a high rate of the NTM's being cultured lately then in the past and you might want to rule that out as being the cause. But know that you techniqually have to have 3 cultures at least a month apart before you can officially say that it is the source of the fevers. Plus, it is a bug you really do not want to have and is very good if it isn't that.
I am not sure that you can say that fevers are a typical CF thing or not, but I have a friend who has a daughter with CF who also ran "unexplained" fevers as well.
Not sure I am helping or making things worse for you. Check with your doc for sure.
How old is your CF child?
Yes, Nathan use to get fevers like that. I have chosen to home school him for many reasons, this being one of them. For about 2 years while home-schooling we did a program where the kids went to school on Fridays with other home-schooled kids and every Friday, without fail, Nathan would come home exhausted and running a fever as high as 102.5. We would go home, he would rest, go to bed early, sleep in on Saturday, do next to nothing on Saturday, and would be fine come Sunday morning, the rest of the week he would be just fine and then Friday would come and we would do it all over again. He wasn't enjoying going to Friday school so he quite and was fine.
However, now we are running fevers beginning sometime after dinner 4 to 5 times a week, by morning he is fine. Though I should tell you that he did grow mycobacterium abscessus in Oct and if he truly has this bug it is likely the source of the fevers now. He has to grow it 2 more times before he officially is diagnosed with the NTMA (Non-Turbuculosis Mycobacterium Abscessus) and are currently waiting on the results of his Dec culture and Jan culture.
I would definetly report it to your CF center and ask if they have done cultures for mycobacterium specifically. I know that there is a high rate of the NTM's being cultured lately then in the past and you might want to rule that out as being the cause. But know that you techniqually have to have 3 cultures at least a month apart before you can officially say that it is the source of the fevers. Plus, it is a bug you really do not want to have and is very good if it isn't that.
I am not sure that you can say that fevers are a typical CF thing or not, but I have a friend who has a daughter with CF who also ran "unexplained" fevers as well.
Not sure I am helping or making things worse for you. Check with your doc for sure.
Hi,
How old is your CF child?
Yes, Nathan use to get fevers like that. I have chosen to home school him for many reasons, this being one of them. For about 2 years while home-schooling we did a program where the kids went to school on Fridays with other home-schooled kids and every Friday, without fail, Nathan would come home exhausted and running a fever as high as 102.5. We would go home, he would rest, go to bed early, sleep in on Saturday, do next to nothing on Saturday, and would be fine come Sunday morning, the rest of the week he would be just fine and then Friday would come and we would do it all over again. He wasn't enjoying going to Friday school so he quite and was fine.
However, now we are running fevers beginning sometime after dinner 4 to 5 times a week, by morning he is fine. Though I should tell you that he did grow mycobacterium abscessus in Oct and if he truly has this bug it is likely the source of the fevers now. He has to grow it 2 more times before he officially is diagnosed with the NTMA (Non-Turbuculosis Mycobacterium Abscessus) and are currently waiting on the results of his Dec culture and Jan culture.
I would definetly report it to your CF center and ask if they have done cultures for mycobacterium specifically. I know that there is a high rate of the NTM's being cultured lately then in the past and you might want to rule that out as being the cause. But know that you techniqually have to have 3 cultures at least a month apart before you can officially say that it is the source of the fevers. Plus, it is a bug you really do not want to have and is very good if it isn't that.
I am not sure that you can say that fevers are a typical CF thing or not, but I have a friend who has a daughter with CF who also ran "unexplained" fevers as well.
Not sure I am helping or making things worse for you. Check with your doc for sure.
How old is your CF child?
Yes, Nathan use to get fevers like that. I have chosen to home school him for many reasons, this being one of them. For about 2 years while home-schooling we did a program where the kids went to school on Fridays with other home-schooled kids and every Friday, without fail, Nathan would come home exhausted and running a fever as high as 102.5. We would go home, he would rest, go to bed early, sleep in on Saturday, do next to nothing on Saturday, and would be fine come Sunday morning, the rest of the week he would be just fine and then Friday would come and we would do it all over again. He wasn't enjoying going to Friday school so he quite and was fine.
However, now we are running fevers beginning sometime after dinner 4 to 5 times a week, by morning he is fine. Though I should tell you that he did grow mycobacterium abscessus in Oct and if he truly has this bug it is likely the source of the fevers now. He has to grow it 2 more times before he officially is diagnosed with the NTMA (Non-Turbuculosis Mycobacterium Abscessus) and are currently waiting on the results of his Dec culture and Jan culture.
I would definetly report it to your CF center and ask if they have done cultures for mycobacterium specifically. I know that there is a high rate of the NTM's being cultured lately then in the past and you might want to rule that out as being the cause. But know that you techniqually have to have 3 cultures at least a month apart before you can officially say that it is the source of the fevers. Plus, it is a bug you really do not want to have and is very good if it isn't that.
I am not sure that you can say that fevers are a typical CF thing or not, but I have a friend who has a daughter with CF who also ran "unexplained" fevers as well.
Not sure I am helping or making things worse for you. Check with your doc for sure.
Hi,
How old is your CF child?
Yes, Nathan use to get fevers like that. I have chosen to home school him for many reasons, this being one of them. For about 2 years while home-schooling we did a program where the kids went to school on Fridays with other home-schooled kids and every Friday, without fail, Nathan would come home exhausted and running a fever as high as 102.5. We would go home, he would rest, go to bed early, sleep in on Saturday, do next to nothing on Saturday, and would be fine come Sunday morning, the rest of the week he would be just fine and then Friday would come and we would do it all over again. He wasn't enjoying going to Friday school so he quite and was fine.
However, now we are running fevers beginning sometime after dinner 4 to 5 times a week, by morning he is fine. Though I should tell you that he did grow mycobacterium abscessus in Oct and if he truly has this bug it is likely the source of the fevers now. He has to grow it 2 more times before he officially is diagnosed with the NTMA (Non-Turbuculosis Mycobacterium Abscessus) and are currently waiting on the results of his Dec culture and Jan culture.
I would definetly report it to your CF center and ask if they have done cultures for mycobacterium specifically. I know that there is a high rate of the NTM's being cultured lately then in the past and you might want to rule that out as being the cause. But know that you techniqually have to have 3 cultures at least a month apart before you can officially say that it is the source of the fevers. Plus, it is a bug you really do not want to have and is very good if it isn't that.
I am not sure that you can say that fevers are a typical CF thing or not, but I have a friend who has a daughter with CF who also ran "unexplained" fevers as well.
Not sure I am helping or making things worse for you. Check with your doc for sure.
How old is your CF child?
Yes, Nathan use to get fevers like that. I have chosen to home school him for many reasons, this being one of them. For about 2 years while home-schooling we did a program where the kids went to school on Fridays with other home-schooled kids and every Friday, without fail, Nathan would come home exhausted and running a fever as high as 102.5. We would go home, he would rest, go to bed early, sleep in on Saturday, do next to nothing on Saturday, and would be fine come Sunday morning, the rest of the week he would be just fine and then Friday would come and we would do it all over again. He wasn't enjoying going to Friday school so he quite and was fine.
However, now we are running fevers beginning sometime after dinner 4 to 5 times a week, by morning he is fine. Though I should tell you that he did grow mycobacterium abscessus in Oct and if he truly has this bug it is likely the source of the fevers now. He has to grow it 2 more times before he officially is diagnosed with the NTMA (Non-Turbuculosis Mycobacterium Abscessus) and are currently waiting on the results of his Dec culture and Jan culture.
I would definetly report it to your CF center and ask if they have done cultures for mycobacterium specifically. I know that there is a high rate of the NTM's being cultured lately then in the past and you might want to rule that out as being the cause. But know that you techniqually have to have 3 cultures at least a month apart before you can officially say that it is the source of the fevers. Plus, it is a bug you really do not want to have and is very good if it isn't that.
I am not sure that you can say that fevers are a typical CF thing or not, but I have a friend who has a daughter with CF who also ran "unexplained" fevers as well.
Not sure I am helping or making things worse for you. Check with your doc for sure.
Hi,
How old is your CF child?
Yes, Nathan use to get fevers like that. I have chosen to home school him for many reasons, this being one of them. For about 2 years while home-schooling we did a program where the kids went to school on Fridays with other home-schooled kids and every Friday, without fail, Nathan would come home exhausted and running a fever as high as 102.5. We would go home, he would rest, go to bed early, sleep in on Saturday, do next to nothing on Saturday, and would be fine come Sunday morning, the rest of the week he would be just fine and then Friday would come and we would do it all over again. He wasn't enjoying going to Friday school so he quite and was fine.
However, now we are running fevers beginning sometime after dinner 4 to 5 times a week, by morning he is fine. Though I should tell you that he did grow mycobacterium abscessus in Oct and if he truly has this bug it is likely the source of the fevers now. He has to grow it 2 more times before he officially is diagnosed with the NTMA (Non-Turbuculosis Mycobacterium Abscessus) and are currently waiting on the results of his Dec culture and Jan culture.
I would definetly report it to your CF center and ask if they have done cultures for mycobacterium specifically. I know that there is a high rate of the NTM's being cultured lately then in the past and you might want to rule that out as being the cause. But know that you techniqually have to have 3 cultures at least a month apart before you can officially say that it is the source of the fevers. Plus, it is a bug you really do not want to have and is very good if it isn't that.
I am not sure that you can say that fevers are a typical CF thing or not, but I have a friend who has a daughter with CF who also ran "unexplained" fevers as well.
Not sure I am helping or making things worse for you. Check with your doc for sure.
How old is your CF child?
Yes, Nathan use to get fevers like that. I have chosen to home school him for many reasons, this being one of them. For about 2 years while home-schooling we did a program where the kids went to school on Fridays with other home-schooled kids and every Friday, without fail, Nathan would come home exhausted and running a fever as high as 102.5. We would go home, he would rest, go to bed early, sleep in on Saturday, do next to nothing on Saturday, and would be fine come Sunday morning, the rest of the week he would be just fine and then Friday would come and we would do it all over again. He wasn't enjoying going to Friday school so he quite and was fine.
However, now we are running fevers beginning sometime after dinner 4 to 5 times a week, by morning he is fine. Though I should tell you that he did grow mycobacterium abscessus in Oct and if he truly has this bug it is likely the source of the fevers now. He has to grow it 2 more times before he officially is diagnosed with the NTMA (Non-Turbuculosis Mycobacterium Abscessus) and are currently waiting on the results of his Dec culture and Jan culture.
I would definetly report it to your CF center and ask if they have done cultures for mycobacterium specifically. I know that there is a high rate of the NTM's being cultured lately then in the past and you might want to rule that out as being the cause. But know that you techniqually have to have 3 cultures at least a month apart before you can officially say that it is the source of the fevers. Plus, it is a bug you really do not want to have and is very good if it isn't that.
I am not sure that you can say that fevers are a typical CF thing or not, but I have a friend who has a daughter with CF who also ran "unexplained" fevers as well.
Not sure I am helping or making things worse for you. Check with your doc for sure.
Hi,
How old is your CF child?
Yes, Nathan use to get fevers like that. I have chosen to home school him for many reasons, this being one of them. For about 2 years while home-schooling we did a program where the kids went to school on Fridays with other home-schooled kids and every Friday, without fail, Nathan would come home exhausted and running a fever as high as 102.5. We would go home, he would rest, go to bed early, sleep in on Saturday, do next to nothing on Saturday, and would be fine come Sunday morning, the rest of the week he would be just fine and then Friday would come and we would do it all over again. He wasn't enjoying going to Friday school so he quite and was fine.
However, now we are running fevers beginning sometime after dinner 4 to 5 times a week, by morning he is fine. Though I should tell you that he did grow mycobacterium abscessus in Oct and if he truly has this bug it is likely the source of the fevers now. He has to grow it 2 more times before he officially is diagnosed with the NTMA (Non-Turbuculosis Mycobacterium Abscessus) and are currently waiting on the results of his Dec culture and Jan culture.
I would definetly report it to your CF center and ask if they have done cultures for mycobacterium specifically. I know that there is a high rate of the NTM's being cultured lately then in the past and you might want to rule that out as being the cause. But know that you techniqually have to have 3 cultures at least a month apart before you can officially say that it is the source of the fevers. Plus, it is a bug you really do not want to have and is very good if it isn't that.
I am not sure that you can say that fevers are a typical CF thing or not, but I have a friend who has a daughter with CF who also ran "unexplained" fevers as well.
Not sure I am helping or making things worse for you. Check with your doc for sure.
How old is your CF child?
Yes, Nathan use to get fevers like that. I have chosen to home school him for many reasons, this being one of them. For about 2 years while home-schooling we did a program where the kids went to school on Fridays with other home-schooled kids and every Friday, without fail, Nathan would come home exhausted and running a fever as high as 102.5. We would go home, he would rest, go to bed early, sleep in on Saturday, do next to nothing on Saturday, and would be fine come Sunday morning, the rest of the week he would be just fine and then Friday would come and we would do it all over again. He wasn't enjoying going to Friday school so he quite and was fine.
However, now we are running fevers beginning sometime after dinner 4 to 5 times a week, by morning he is fine. Though I should tell you that he did grow mycobacterium abscessus in Oct and if he truly has this bug it is likely the source of the fevers now. He has to grow it 2 more times before he officially is diagnosed with the NTMA (Non-Turbuculosis Mycobacterium Abscessus) and are currently waiting on the results of his Dec culture and Jan culture.
I would definetly report it to your CF center and ask if they have done cultures for mycobacterium specifically. I know that there is a high rate of the NTM's being cultured lately then in the past and you might want to rule that out as being the cause. But know that you techniqually have to have 3 cultures at least a month apart before you can officially say that it is the source of the fevers. Plus, it is a bug you really do not want to have and is very good if it isn't that.
I am not sure that you can say that fevers are a typical CF thing or not, but I have a friend who has a daughter with CF who also ran "unexplained" fevers as well.
Not sure I am helping or making things worse for you. Check with your doc for sure.
My son is six and is home schooled due to lack of energy if he over does it and because it works for us . He has grown staph in the past but has been clean scince his last tune-up in march. Your sons fevers sound just like my sons by the second day he is back to him self it was starting to bug me but they said if it goes away buy letting him rest then let him rest till it is gone. looks like this time might be more than normal because it still hasnt goon away so i am taking him for a culter thank you Patty.
My son is six and is home schooled due to lack of energy if he over does it and because it works for us . He has grown staph in the past but has been clean scince his last tune-up in march. Your sons fevers sound just like my sons by the second day he is back to him self it was starting to bug me but they said if it goes away buy letting him rest then let him rest till it is gone. looks like this time might be more than normal because it still hasnt goon away so i am taking him for a culter thank you Patty.
My son is six and is home schooled due to lack of energy if he over does it and because it works for us . He has grown staph in the past but has been clean scince his last tune-up in march. Your sons fevers sound just like my sons by the second day he is back to him self it was starting to bug me but they said if it goes away buy letting him rest then let him rest till it is gone. looks like this time might be more than normal because it still hasnt goon away so i am taking him for a culter thank you Patty.
My son is six and is home schooled due to lack of energy if he over does it and because it works for us . He has grown staph in the past but has been clean scince his last tune-up in march. Your sons fevers sound just like my sons by the second day he is back to him self it was starting to bug me but they said if it goes away buy letting him rest then let him rest till it is gone. looks like this time might be more than normal because it still hasnt goon away so i am taking him for a culter thank you Patty.
My son is six and is home schooled due to lack of energy if he over does it and because it works for us . He has grown staph in the past but has been clean scince his last tune-up in march. Your sons fevers sound just like my sons by the second day he is back to him self it was starting to bug me but they said if it goes away buy letting him rest then let him rest till it is gone. looks like this time might be more than normal because it still hasnt goon away so i am taking him for a culter thank you Patty.
I am glad it was helpful to you. I am guessing by your sons age, mine when he started, and my friends kidos that this maybe a CF thing that some of them go through. Just what you needed hugh? something else to make it difficult to know if he is really sick, having a cf flare up, or a phase that just needs waiting out. I am glad that you are taking him in because even if it is a cf phase thing, its important to make sure there isn't something growing that needs treating. I always get frustrated when we go to the clinic, have a culture, nothing grows, he looks good, and no sooner does the cultures come back negative and he gets sick and something is growing, whether it got overlooked or the timing of the culture was just wrong. These kids are perfectly healthy one day with nothing growing just to wake up in the morning with stuff growing and sick, which is a phase that all toddlers go through, but the cfer's never seem to outgrow that phase, or at least mine hasn't.
Good luck and let me know how he does. I will keep him in my prayers! If nothing else, I hope it helps you to know that you are not the only one expiercing this with your child.
Good luck and let me know how he does. I will keep him in my prayers! If nothing else, I hope it helps you to know that you are not the only one expiercing this with your child.
I am glad it was helpful to you. I am guessing by your sons age, mine when he started, and my friends kidos that this maybe a CF thing that some of them go through. Just what you needed hugh? something else to make it difficult to know if he is really sick, having a cf flare up, or a phase that just needs waiting out. I am glad that you are taking him in because even if it is a cf phase thing, its important to make sure there isn't something growing that needs treating. I always get frustrated when we go to the clinic, have a culture, nothing grows, he looks good, and no sooner does the cultures come back negative and he gets sick and something is growing, whether it got overlooked or the timing of the culture was just wrong. These kids are perfectly healthy one day with nothing growing just to wake up in the morning with stuff growing and sick, which is a phase that all toddlers go through, but the cfer's never seem to outgrow that phase, or at least mine hasn't.
Good luck and let me know how he does. I will keep him in my prayers! If nothing else, I hope it helps you to know that you are not the only one expiercing this with your child.
Good luck and let me know how he does. I will keep him in my prayers! If nothing else, I hope it helps you to know that you are not the only one expiercing this with your child.
I am glad it was helpful to you. I am guessing by your sons age, mine when he started, and my friends kidos that this maybe a CF thing that some of them go through. Just what you needed hugh? something else to make it difficult to know if he is really sick, having a cf flare up, or a phase that just needs waiting out. I am glad that you are taking him in because even if it is a cf phase thing, its important to make sure there isn't something growing that needs treating. I always get frustrated when we go to the clinic, have a culture, nothing grows, he looks good, and no sooner does the cultures come back negative and he gets sick and something is growing, whether it got overlooked or the timing of the culture was just wrong. These kids are perfectly healthy one day with nothing growing just to wake up in the morning with stuff growing and sick, which is a phase that all toddlers go through, but the cfer's never seem to outgrow that phase, or at least mine hasn't.
Good luck and let me know how he does. I will keep him in my prayers! If nothing else, I hope it helps you to know that you are not the only one expiercing this with your child.
Good luck and let me know how he does. I will keep him in my prayers! If nothing else, I hope it helps you to know that you are not the only one expiercing this with your child.
I am glad it was helpful to you. I am guessing by your sons age, mine when he started, and my friends kidos that this maybe a CF thing that some of them go through. Just what you needed hugh? something else to make it difficult to know if he is really sick, having a cf flare up, or a phase that just needs waiting out. I am glad that you are taking him in because even if it is a cf phase thing, its important to make sure there isn't something growing that needs treating. I always get frustrated when we go to the clinic, have a culture, nothing grows, he looks good, and no sooner does the cultures come back negative and he gets sick and something is growing, whether it got overlooked or the timing of the culture was just wrong. These kids are perfectly healthy one day with nothing growing just to wake up in the morning with stuff growing and sick, which is a phase that all toddlers go through, but the cfer's never seem to outgrow that phase, or at least mine hasn't.
Good luck and let me know how he does. I will keep him in my prayers! If nothing else, I hope it helps you to know that you are not the only one expiercing this with your child.
Good luck and let me know how he does. I will keep him in my prayers! If nothing else, I hope it helps you to know that you are not the only one expiercing this with your child.
I am glad it was helpful to you. I am guessing by your sons age, mine when he started, and my friends kidos that this maybe a CF thing that some of them go through. Just what you needed hugh? something else to make it difficult to know if he is really sick, having a cf flare up, or a phase that just needs waiting out. I am glad that you are taking him in because even if it is a cf phase thing, its important to make sure there isn't something growing that needs treating. I always get frustrated when we go to the clinic, have a culture, nothing grows, he looks good, and no sooner does the cultures come back negative and he gets sick and something is growing, whether it got overlooked or the timing of the culture was just wrong. These kids are perfectly healthy one day with nothing growing just to wake up in the morning with stuff growing and sick, which is a phase that all toddlers go through, but the cfer's never seem to outgrow that phase, or at least mine hasn't.
Good luck and let me know how he does. I will keep him in my prayers! If nothing else, I hope it helps you to know that you are not the only one expiercing this with your child.
Good luck and let me know how he does. I will keep him in my prayers! If nothing else, I hope it helps you to know that you are not the only one expiercing this with your child.