Fighting The Social Security Office

Vampy · Oct 18, 2008

I know each case of Cystic fibrosis is different in each person. My case is pretty mild except for the fact i have Scheuermanns Scoliosis. A rare case of Scoliosis. And I also have a lot of mental problems including Bipolar, Depression and OCD and all kinds of other fun stuff <img src="i/expressions/face-icon-small-sad.gif" border="0">. For years I have tried fighting with the Social Security for my disability. And I want to work but its the simple fact that I am not physically able to work. I have tried a lot of Jobs, from Busser, Secretary and Crew Member at Wendys. Each time I have gotten seriously sick, even called for a spinal tap at the er. And after a couple days severe back pain has set in, and i cant move in the mornings when i get up. Right now im living with some friends till i get my Disability back, and my soon to be ex husband has custody of my son, till i can get settled in to a home and i can properly provide for him. <img src="i/expressions/praying.gif" border="0">
When I was 3 months old, my Disability was shut off because someone reported ME as "working", i've been fighting for years, once i successfully gotten it back, and i had a judge court date for the SSI to go to and they said bc i had good weight and my PFTs were good (70 something i think) that i was no longer classified as disabled by government standards. Now with the diagnosis of Scheuermanns and Bipolar and Depression, ADHD and all that junk, I am still having horrible trouble??
Do you or your loved ones with CF have trouble with the SSI office and their disability claim? (for the record, i have every possible medical record from every hospital and dr ive been too, poor woman at the office had to copy everyone of them) Anything else I can do to help my case? I have talked with a lawyer for disability and i have to be denied another time before he will take my case.
<img src="i/expressions/neb.gif" border="0"><img src="i/expressions/pills.gif" border="0"><img src="i/expressions/vest.gif" border="0"><img src="i/expressions/noseblow.gif" border="0"><img src="i/expressions/iv.gif" border="0"><img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/bathroom.gif" border="0"><img src="i/expressions/heart.gif" border="0">
My love to you all,
Vampy aka Momo

Vampy · Oct 18, 2008

I know each case of Cystic fibrosis is different in each person. My case is pretty mild except for the fact i have Scheuermanns Scoliosis. A rare case of Scoliosis. And I also have a lot of mental problems including Bipolar, Depression and OCD and all kinds of other fun stuff <img src="i/expressions/face-icon-small-sad.gif" border="0">. For years I have tried fighting with the Social Security for my disability. And I want to work but its the simple fact that I am not physically able to work. I have tried a lot of Jobs, from Busser, Secretary and Crew Member at Wendys. Each time I have gotten seriously sick, even called for a spinal tap at the er. And after a couple days severe back pain has set in, and i cant move in the mornings when i get up. Right now im living with some friends till i get my Disability back, and my soon to be ex husband has custody of my son, till i can get settled in to a home and i can properly provide for him. <img src="i/expressions/praying.gif" border="0">
When I was 3 months old, my Disability was shut off because someone reported ME as "working", i've been fighting for years, once i successfully gotten it back, and i had a judge court date for the SSI to go to and they said bc i had good weight and my PFTs were good (70 something i think) that i was no longer classified as disabled by government standards. Now with the diagnosis of Scheuermanns and Bipolar and Depression, ADHD and all that junk, I am still having horrible trouble??
Do you or your loved ones with CF have trouble with the SSI office and their disability claim? (for the record, i have every possible medical record from every hospital and dr ive been too, poor woman at the office had to copy everyone of them) Anything else I can do to help my case? I have talked with a lawyer for disability and i have to be denied another time before he will take my case.
<img src="i/expressions/neb.gif" border="0"><img src="i/expressions/pills.gif" border="0"><img src="i/expressions/vest.gif" border="0"><img src="i/expressions/noseblow.gif" border="0"><img src="i/expressions/iv.gif" border="0"><img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/bathroom.gif" border="0"><img src="i/expressions/heart.gif" border="0">
My love to you all,
Vampy aka Momo

Vampy · Oct 18, 2008

I know each case of Cystic fibrosis is different in each person. My case is pretty mild except for the fact i have Scheuermanns Scoliosis. A rare case of Scoliosis. And I also have a lot of mental problems including Bipolar, Depression and OCD and all kinds of other fun stuff <img src="i/expressions/face-icon-small-sad.gif" border="0">. For years I have tried fighting with the Social Security for my disability. And I want to work but its the simple fact that I am not physically able to work. I have tried a lot of Jobs, from Busser, Secretary and Crew Member at Wendys. Each time I have gotten seriously sick, even called for a spinal tap at the er. And after a couple days severe back pain has set in, and i cant move in the mornings when i get up. Right now im living with some friends till i get my Disability back, and my soon to be ex husband has custody of my son, till i can get settled in to a home and i can properly provide for him. <img src="i/expressions/praying.gif" border="0">
When I was 3 months old, my Disability was shut off because someone reported ME as "working", i've been fighting for years, once i successfully gotten it back, and i had a judge court date for the SSI to go to and they said bc i had good weight and my PFTs were good (70 something i think) that i was no longer classified as disabled by government standards. Now with the diagnosis of Scheuermanns and Bipolar and Depression, ADHD and all that junk, I am still having horrible trouble??
Do you or your loved ones with CF have trouble with the SSI office and their disability claim? (for the record, i have every possible medical record from every hospital and dr ive been too, poor woman at the office had to copy everyone of them) Anything else I can do to help my case? I have talked with a lawyer for disability and i have to be denied another time before he will take my case.
<img src="i/expressions/neb.gif" border="0"><img src="i/expressions/pills.gif" border="0"><img src="i/expressions/vest.gif" border="0"><img src="i/expressions/noseblow.gif" border="0"><img src="i/expressions/iv.gif" border="0"><img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/bathroom.gif" border="0"><img src="i/expressions/heart.gif" border="0">
My love to you all,
Vampy aka Momo

Vampy · Oct 18, 2008

I know each case of Cystic fibrosis is different in each person. My case is pretty mild except for the fact i have Scheuermanns Scoliosis. A rare case of Scoliosis. And I also have a lot of mental problems including Bipolar, Depression and OCD and all kinds of other fun stuff <img src="i/expressions/face-icon-small-sad.gif" border="0">. For years I have tried fighting with the Social Security for my disability. And I want to work but its the simple fact that I am not physically able to work. I have tried a lot of Jobs, from Busser, Secretary and Crew Member at Wendys. Each time I have gotten seriously sick, even called for a spinal tap at the er. And after a couple days severe back pain has set in, and i cant move in the mornings when i get up. Right now im living with some friends till i get my Disability back, and my soon to be ex husband has custody of my son, till i can get settled in to a home and i can properly provide for him. <img src="i/expressions/praying.gif" border="0">
When I was 3 months old, my Disability was shut off because someone reported ME as "working", i've been fighting for years, once i successfully gotten it back, and i had a judge court date for the SSI to go to and they said bc i had good weight and my PFTs were good (70 something i think) that i was no longer classified as disabled by government standards. Now with the diagnosis of Scheuermanns and Bipolar and Depression, ADHD and all that junk, I am still having horrible trouble??
Do you or your loved ones with CF have trouble with the SSI office and their disability claim? (for the record, i have every possible medical record from every hospital and dr ive been too, poor woman at the office had to copy everyone of them) Anything else I can do to help my case? I have talked with a lawyer for disability and i have to be denied another time before he will take my case.
<img src="i/expressions/neb.gif" border="0"><img src="i/expressions/pills.gif" border="0"><img src="i/expressions/vest.gif" border="0"><img src="i/expressions/noseblow.gif" border="0"><img src="i/expressions/iv.gif" border="0"><img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/bathroom.gif" border="0"><img src="i/expressions/heart.gif" border="0">
My love to you all,
Vampy aka Momo

Vampy · Oct 18, 2008

I know each case of Cystic fibrosis is different in each person. My case is pretty mild except for the fact i have Scheuermanns Scoliosis. A rare case of Scoliosis. And I also have a lot of mental problems including Bipolar, Depression and OCD and all kinds of other fun stuff <img src="i/expressions/face-icon-small-sad.gif" border="0">. For years I have tried fighting with the Social Security for my disability. And I want to work but its the simple fact that I am not physically able to work. I have tried a lot of Jobs, from Busser, Secretary and Crew Member at Wendys. Each time I have gotten seriously sick, even called for a spinal tap at the er. And after a couple days severe back pain has set in, and i cant move in the mornings when i get up. Right now im living with some friends till i get my Disability back, and my soon to be ex husband has custody of my son, till i can get settled in to a home and i can properly provide for him. <img src="i/expressions/praying.gif" border="0">
 When I was 3 months old, my Disability was shut off because someone reported ME as "working", i've been fighting for years, once i successfully gotten it back, and i had a judge court date for the SSI to go to and they said bc i had good weight and my PFTs were good (70 something i think) that i was no longer classified as disabled by government standards. Now with the diagnosis of Scheuermanns and Bipolar and Depression, ADHD and all that junk, I am still having horrible trouble??
 Do you or your loved ones with CF have trouble with the SSI office and their disability claim? (for the record, i have every possible medical record from every hospital and dr ive been too, poor woman at the office had to copy everyone of them) Anything else I can do to help my case? I have talked with a lawyer for disability and i have to be denied another time before he will take my case.
 <img src="i/expressions/neb.gif" border="0"><img src="i/expressions/pills.gif" border="0"><img src="i/expressions/vest.gif" border="0"><img src="i/expressions/noseblow.gif" border="0"><img src="i/expressions/iv.gif" border="0"><img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/bathroom.gif" border="0"><img src="i/expressions/heart.gif" border="0">
 My love to you all,
 Vampy aka Momo

ladybug · Oct 19, 2008

Hi Vampy...

Since I was just recently awarded SSDI, and have in the past been denied up to the federal level, I am familiar with how frustrating the system can be. I met the criteria back when I was denied all the way "up the chain", but because I didn't have a lawyer who was knowledgable with CF, I didn't win my case. 7 years later I reapplied and got it, but for those 7 years I should have been getting it, I didn't. Its very frustrating.

Anyway, with regard to your case... Are you talking about SSI? That would be the only social security you can get without working. It is based on income and has nothing to do with how much you've worked.

SSDI (disability) is based solely on how much you've paid into the system (i.e. how much you've worked). So, if you've never worked, even if you have CF and qualify, you would never get SSDI payments.

Julie on this site is amazing and a source of great information. I suggest you PM her or visit her new non-profit site that offers FREE help with questions or cases such as yours:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dafcf.org">Disability Advocates For Cystic Fibrosis</a>

You may also want to just PM her on this site with your questions and specifics and see what she has to offer.

Beth Sufian (out of Houston) also has a toll free line that offers general information regarding social security and disability for CF cases. Just google her and you will find her.

Best of luck!

ladybug · Oct 19, 2008

Hi Vampy...

Since I was just recently awarded SSDI, and have in the past been denied up to the federal level, I am familiar with how frustrating the system can be. I met the criteria back when I was denied all the way "up the chain", but because I didn't have a lawyer who was knowledgable with CF, I didn't win my case. 7 years later I reapplied and got it, but for those 7 years I should have been getting it, I didn't. Its very frustrating.

Anyway, with regard to your case... Are you talking about SSI? That would be the only social security you can get without working. It is based on income and has nothing to do with how much you've worked.

SSDI (disability) is based solely on how much you've paid into the system (i.e. how much you've worked). So, if you've never worked, even if you have CF and qualify, you would never get SSDI payments.

Julie on this site is amazing and a source of great information. I suggest you PM her or visit her new non-profit site that offers FREE help with questions or cases such as yours:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dafcf.org">Disability Advocates For Cystic Fibrosis</a>

You may also want to just PM her on this site with your questions and specifics and see what she has to offer.

Beth Sufian (out of Houston) also has a toll free line that offers general information regarding social security and disability for CF cases. Just google her and you will find her.

Best of luck!

ladybug · Oct 19, 2008

Hi Vampy...

Since I was just recently awarded SSDI, and have in the past been denied up to the federal level, I am familiar with how frustrating the system can be. I met the criteria back when I was denied all the way "up the chain", but because I didn't have a lawyer who was knowledgable with CF, I didn't win my case. 7 years later I reapplied and got it, but for those 7 years I should have been getting it, I didn't. Its very frustrating.

Anyway, with regard to your case... Are you talking about SSI? That would be the only social security you can get without working. It is based on income and has nothing to do with how much you've worked.

SSDI (disability) is based solely on how much you've paid into the system (i.e. how much you've worked). So, if you've never worked, even if you have CF and qualify, you would never get SSDI payments.

Julie on this site is amazing and a source of great information. I suggest you PM her or visit her new non-profit site that offers FREE help with questions or cases such as yours:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dafcf.org">Disability Advocates For Cystic Fibrosis</a>

You may also want to just PM her on this site with your questions and specifics and see what she has to offer.

Beth Sufian (out of Houston) also has a toll free line that offers general information regarding social security and disability for CF cases. Just google her and you will find her.

Best of luck!

ladybug · Oct 19, 2008

Hi Vampy...

Since I was just recently awarded SSDI, and have in the past been denied up to the federal level, I am familiar with how frustrating the system can be. I met the criteria back when I was denied all the way "up the chain", but because I didn't have a lawyer who was knowledgable with CF, I didn't win my case. 7 years later I reapplied and got it, but for those 7 years I should have been getting it, I didn't. Its very frustrating.

Anyway, with regard to your case... Are you talking about SSI? That would be the only social security you can get without working. It is based on income and has nothing to do with how much you've worked.

SSDI (disability) is based solely on how much you've paid into the system (i.e. how much you've worked). So, if you've never worked, even if you have CF and qualify, you would never get SSDI payments.

Julie on this site is amazing and a source of great information. I suggest you PM her or visit her new non-profit site that offers FREE help with questions or cases such as yours:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dafcf.org">Disability Advocates For Cystic Fibrosis</a>

You may also want to just PM her on this site with your questions and specifics and see what she has to offer.

Beth Sufian (out of Houston) also has a toll free line that offers general information regarding social security and disability for CF cases. Just google her and you will find her.

Best of luck!

ladybug · Oct 19, 2008

Hi Vampy...
 
 Since I was just recently awarded SSDI, and have in the past been denied up to the federal level, I am familiar with how frustrating the system can be. I met the criteria back when I was denied all the way "up the chain", but because I didn't have a lawyer who was knowledgable with CF, I didn't win my case. 7 years later I reapplied and got it, but for those 7 years I should have been getting it, I didn't. Its very frustrating.
 
 Anyway, with regard to your case... Are you talking about SSI? That would be the only social security you can get without working. It is based on income and has nothing to do with how much you've worked.
 
 SSDI (disability) is based solely on how much you've paid into the system (i.e. how much you've worked). So, if you've never worked, even if you have CF and qualify, you would never get SSDI payments.
 
 Julie on this site is amazing and a source of great information. I suggest you PM her or visit her new non-profit site that offers FREE help with questions or cases such as yours:
 
 <a target=_blank class=ftalternatingbarlinklarge href="http://www.dafcf.org">Disability Advocates For Cystic Fibrosis</a>
 
 You may also want to just PM her on this site with your questions and specifics and see what she has to offer.
 
 Beth Sufian (out of Houston) also has a toll free line that offers general information regarding social security and disability for CF cases. Just google her and you will find her.
 
 Best of luck!

ladybug · Oct 19, 2008

One more thing...

I only mention the difference between SSI and SSDI since you mentioned you were getting "disability" at age 3. That would have only been SSI since at age 3 you wouldn't have paid into the system.

I may be wrong, but at this time I'm assuming you're looking into getting SSDI (based on what you've paid in when you have worked)?

You may still be able to get SSI if your income level is within limits (and they're very low). And you may also be elligible for SSDI. However in both cases, you have to meet their criteria for disability under cystic fibrosis OR your other disabilities. If you do not, they may deny you, BUT you may be able to prove (since you have FEV1 in the 70's, that does not qualify under CF criteria) that all of your illnesses together DO prevent you from working. So, just cause you are "mild" CF, you may still qualify when all of your issues are taken into account.

Does that make sense? Sorry if not, I sorta type like I talk and that doesn't always translate into clear answers. <img src="i/expressions/face-icon-small-confused.gif" border="0">

Good luck!

ladybug · Oct 19, 2008

One more thing...

I only mention the difference between SSI and SSDI since you mentioned you were getting "disability" at age 3. That would have only been SSI since at age 3 you wouldn't have paid into the system.

I may be wrong, but at this time I'm assuming you're looking into getting SSDI (based on what you've paid in when you have worked)?

You may still be able to get SSI if your income level is within limits (and they're very low). And you may also be elligible for SSDI. However in both cases, you have to meet their criteria for disability under cystic fibrosis OR your other disabilities. If you do not, they may deny you, BUT you may be able to prove (since you have FEV1 in the 70's, that does not qualify under CF criteria) that all of your illnesses together DO prevent you from working. So, just cause you are "mild" CF, you may still qualify when all of your issues are taken into account.

Does that make sense? Sorry if not, I sorta type like I talk and that doesn't always translate into clear answers. <img src="i/expressions/face-icon-small-confused.gif" border="0">

Good luck!

ladybug · Oct 19, 2008

One more thing...

I only mention the difference between SSI and SSDI since you mentioned you were getting "disability" at age 3. That would have only been SSI since at age 3 you wouldn't have paid into the system.

I may be wrong, but at this time I'm assuming you're looking into getting SSDI (based on what you've paid in when you have worked)?

You may still be able to get SSI if your income level is within limits (and they're very low). And you may also be elligible for SSDI. However in both cases, you have to meet their criteria for disability under cystic fibrosis OR your other disabilities. If you do not, they may deny you, BUT you may be able to prove (since you have FEV1 in the 70's, that does not qualify under CF criteria) that all of your illnesses together DO prevent you from working. So, just cause you are "mild" CF, you may still qualify when all of your issues are taken into account.

Does that make sense? Sorry if not, I sorta type like I talk and that doesn't always translate into clear answers. <img src="i/expressions/face-icon-small-confused.gif" border="0">

Good luck!

ladybug · Oct 19, 2008

One more thing...

I only mention the difference between SSI and SSDI since you mentioned you were getting "disability" at age 3. That would have only been SSI since at age 3 you wouldn't have paid into the system.

I may be wrong, but at this time I'm assuming you're looking into getting SSDI (based on what you've paid in when you have worked)?

You may still be able to get SSI if your income level is within limits (and they're very low). And you may also be elligible for SSDI. However in both cases, you have to meet their criteria for disability under cystic fibrosis OR your other disabilities. If you do not, they may deny you, BUT you may be able to prove (since you have FEV1 in the 70's, that does not qualify under CF criteria) that all of your illnesses together DO prevent you from working. So, just cause you are "mild" CF, you may still qualify when all of your issues are taken into account.

Does that make sense? Sorry if not, I sorta type like I talk and that doesn't always translate into clear answers. <img src="i/expressions/face-icon-small-confused.gif" border="0">

Good luck!

ladybug · Oct 19, 2008

One more thing...
 
 I only mention the difference between SSI and SSDI since you mentioned you were getting "disability" at age 3. That would have only been SSI since at age 3 you wouldn't have paid into the system.
 
 I may be wrong, but at this time I'm assuming you're looking into getting SSDI (based on what you've paid in when you have worked)?
 
 You may still be able to get SSI if your income level is within limits (and they're very low). And you may also be elligible for SSDI. However in both cases, you have to meet their criteria for disability under cystic fibrosis OR your other disabilities. If you do not, they may deny you, BUT you may be able to prove (since you have FEV1 in the 70's, that does not qualify under CF criteria) that all of your illnesses together DO prevent you from working. So, just cause you are "mild" CF, you may still qualify when all of your issues are taken into account.
 
 Does that make sense? Sorry if not, I sorta type like I talk and that doesn't always translate into clear answers. <img src="i/expressions/face-icon-small-confused.gif" border="0">
 
 Good luck!

Fighting The Social Security Office

Vampy

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ladybug

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