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First Admission
- Thread starter Kimber1
- Start date
M
Mommafirst
Guest
Are they calling it a CF exacerbation? I only know what happens during those.
Things happen very slowly at the hospital. People show up at odd hours with very little predictability, and whenever it is you choose to leave to get a shower or a drink, that will be when the doctor will appear and you will miss your chance for the day to ask all the questions you have.
I know, that's not really what you are asking for.
They will probably get an IV started and give fluids and then get her on a schedule for IV antibiotics (usually 2x or 4x per day and it runs about 30 minutes to get it in). After about 6 hours, they'll come do blood work do ensure the drug amounts are ok.
While there they will probably run a lung CT to see what is going on and get a lung culture to see what she is culturing. We've always been allowed to go home with a picc line and home IVs after about 5 days, providing that she has shown improvement with her cough. Knowing that your dd is so small, they might want to keep her longer.
I know it is scary and really emotional. Bring yourself lots of snacks and things to keep occupied. I hope that the admission will make a difference and that you can see a healthier little girl afterwards.
Things happen very slowly at the hospital. People show up at odd hours with very little predictability, and whenever it is you choose to leave to get a shower or a drink, that will be when the doctor will appear and you will miss your chance for the day to ask all the questions you have.
I know, that's not really what you are asking for.
They will probably get an IV started and give fluids and then get her on a schedule for IV antibiotics (usually 2x or 4x per day and it runs about 30 minutes to get it in). After about 6 hours, they'll come do blood work do ensure the drug amounts are ok.
While there they will probably run a lung CT to see what is going on and get a lung culture to see what she is culturing. We've always been allowed to go home with a picc line and home IVs after about 5 days, providing that she has shown improvement with her cough. Knowing that your dd is so small, they might want to keep her longer.
I know it is scary and really emotional. Bring yourself lots of snacks and things to keep occupied. I hope that the admission will make a difference and that you can see a healthier little girl afterwards.
M
Mommafirst
Guest
Are they calling it a CF exacerbation? I only know what happens during those.
Things happen very slowly at the hospital. People show up at odd hours with very little predictability, and whenever it is you choose to leave to get a shower or a drink, that will be when the doctor will appear and you will miss your chance for the day to ask all the questions you have.
I know, that's not really what you are asking for.
They will probably get an IV started and give fluids and then get her on a schedule for IV antibiotics (usually 2x or 4x per day and it runs about 30 minutes to get it in). After about 6 hours, they'll come do blood work do ensure the drug amounts are ok.
While there they will probably run a lung CT to see what is going on and get a lung culture to see what she is culturing. We've always been allowed to go home with a picc line and home IVs after about 5 days, providing that she has shown improvement with her cough. Knowing that your dd is so small, they might want to keep her longer.
I know it is scary and really emotional. Bring yourself lots of snacks and things to keep occupied. I hope that the admission will make a difference and that you can see a healthier little girl afterwards.
Things happen very slowly at the hospital. People show up at odd hours with very little predictability, and whenever it is you choose to leave to get a shower or a drink, that will be when the doctor will appear and you will miss your chance for the day to ask all the questions you have.
I know, that's not really what you are asking for.
They will probably get an IV started and give fluids and then get her on a schedule for IV antibiotics (usually 2x or 4x per day and it runs about 30 minutes to get it in). After about 6 hours, they'll come do blood work do ensure the drug amounts are ok.
While there they will probably run a lung CT to see what is going on and get a lung culture to see what she is culturing. We've always been allowed to go home with a picc line and home IVs after about 5 days, providing that she has shown improvement with her cough. Knowing that your dd is so small, they might want to keep her longer.
I know it is scary and really emotional. Bring yourself lots of snacks and things to keep occupied. I hope that the admission will make a difference and that you can see a healthier little girl afterwards.
M
Mommafirst
Guest
Are they calling it a CF exacerbation? I only know what happens during those.
Things happen very slowly at the hospital. People show up at odd hours with very little predictability, and whenever it is you choose to leave to get a shower or a drink, that will be when the doctor will appear and you will miss your chance for the day to ask all the questions you have.
I know, that's not really what you are asking for.
They will probably get an IV started and give fluids and then get her on a schedule for IV antibiotics (usually 2x or 4x per day and it runs about 30 minutes to get it in). After about 6 hours, they'll come do blood work do ensure the drug amounts are ok.
While there they will probably run a lung CT to see what is going on and get a lung culture to see what she is culturing. We've always been allowed to go home with a picc line and home IVs after about 5 days, providing that she has shown improvement with her cough. Knowing that your dd is so small, they might want to keep her longer.
I know it is scary and really emotional. Bring yourself lots of snacks and things to keep occupied. I hope that the admission will make a difference and that you can see a healthier little girl afterwards.
Things happen very slowly at the hospital. People show up at odd hours with very little predictability, and whenever it is you choose to leave to get a shower or a drink, that will be when the doctor will appear and you will miss your chance for the day to ask all the questions you have.
I know, that's not really what you are asking for.
They will probably get an IV started and give fluids and then get her on a schedule for IV antibiotics (usually 2x or 4x per day and it runs about 30 minutes to get it in). After about 6 hours, they'll come do blood work do ensure the drug amounts are ok.
While there they will probably run a lung CT to see what is going on and get a lung culture to see what she is culturing. We've always been allowed to go home with a picc line and home IVs after about 5 days, providing that she has shown improvement with her cough. Knowing that your dd is so small, they might want to keep her longer.
I know it is scary and really emotional. Bring yourself lots of snacks and things to keep occupied. I hope that the admission will make a difference and that you can see a healthier little girl afterwards.
M
Mommafirst
Guest
Are they calling it a CF exacerbation? I only know what happens during those.
Things happen very slowly at the hospital. People show up at odd hours with very little predictability, and whenever it is you choose to leave to get a shower or a drink, that will be when the doctor will appear and you will miss your chance for the day to ask all the questions you have.
I know, that's not really what you are asking for.
They will probably get an IV started and give fluids and then get her on a schedule for IV antibiotics (usually 2x or 4x per day and it runs about 30 minutes to get it in). After about 6 hours, they'll come do blood work do ensure the drug amounts are ok.
While there they will probably run a lung CT to see what is going on and get a lung culture to see what she is culturing. We've always been allowed to go home with a picc line and home IVs after about 5 days, providing that she has shown improvement with her cough. Knowing that your dd is so small, they might want to keep her longer.
I know it is scary and really emotional. Bring yourself lots of snacks and things to keep occupied. I hope that the admission will make a difference and that you can see a healthier little girl afterwards.
Things happen very slowly at the hospital. People show up at odd hours with very little predictability, and whenever it is you choose to leave to get a shower or a drink, that will be when the doctor will appear and you will miss your chance for the day to ask all the questions you have.
I know, that's not really what you are asking for.
They will probably get an IV started and give fluids and then get her on a schedule for IV antibiotics (usually 2x or 4x per day and it runs about 30 minutes to get it in). After about 6 hours, they'll come do blood work do ensure the drug amounts are ok.
While there they will probably run a lung CT to see what is going on and get a lung culture to see what she is culturing. We've always been allowed to go home with a picc line and home IVs after about 5 days, providing that she has shown improvement with her cough. Knowing that your dd is so small, they might want to keep her longer.
I know it is scary and really emotional. Bring yourself lots of snacks and things to keep occupied. I hope that the admission will make a difference and that you can see a healthier little girl afterwards.
M
Mommafirst
Guest
Are they calling it a CF exacerbation? I only know what happens during those.
<br />
<br />Things happen very slowly at the hospital. People show up at odd hours with very little predictability, and whenever it is you choose to leave to get a shower or a drink, that will be when the doctor will appear and you will miss your chance for the day to ask all the questions you have.
<br />
<br />I know, that's not really what you are asking for.
<br />
<br />They will probably get an IV started and give fluids and then get her on a schedule for IV antibiotics (usually 2x or 4x per day and it runs about 30 minutes to get it in). After about 6 hours, they'll come do blood work do ensure the drug amounts are ok.
<br />
<br />While there they will probably run a lung CT to see what is going on and get a lung culture to see what she is culturing. We've always been allowed to go home with a picc line and home IVs after about 5 days, providing that she has shown improvement with her cough. Knowing that your dd is so small, they might want to keep her longer.
<br />
<br />I know it is scary and really emotional. Bring yourself lots of snacks and things to keep occupied. I hope that the admission will make a difference and that you can see a healthier little girl afterwards.
<br />
<br />Things happen very slowly at the hospital. People show up at odd hours with very little predictability, and whenever it is you choose to leave to get a shower or a drink, that will be when the doctor will appear and you will miss your chance for the day to ask all the questions you have.
<br />
<br />I know, that's not really what you are asking for.
<br />
<br />They will probably get an IV started and give fluids and then get her on a schedule for IV antibiotics (usually 2x or 4x per day and it runs about 30 minutes to get it in). After about 6 hours, they'll come do blood work do ensure the drug amounts are ok.
<br />
<br />While there they will probably run a lung CT to see what is going on and get a lung culture to see what she is culturing. We've always been allowed to go home with a picc line and home IVs after about 5 days, providing that she has shown improvement with her cough. Knowing that your dd is so small, they might want to keep her longer.
<br />
<br />I know it is scary and really emotional. Bring yourself lots of snacks and things to keep occupied. I hope that the admission will make a difference and that you can see a healthier little girl afterwards.
Hey Heather
Thanks for the tips, I appreciate it. I am hoping we don't need the admission but it's not looking good. How has Alyssa been? What do you do with Richie and Reese if she has to be admitted? Do you live close to the hospital?
I have another daughter Brooke she will be three in June, I am not really sure what I will do with her if Charlotte is admitted. We live a plane flight from the specialising hospital and my husband will have to stay and work. I do have family near the hospital but I don't know how Brooke will go and they have to work also. I guess I will just have to manage. I hope this is not the start of a very rough road.
Thanks Jane
Thanks for the tips, I appreciate it. I am hoping we don't need the admission but it's not looking good. How has Alyssa been? What do you do with Richie and Reese if she has to be admitted? Do you live close to the hospital?
I have another daughter Brooke she will be three in June, I am not really sure what I will do with her if Charlotte is admitted. We live a plane flight from the specialising hospital and my husband will have to stay and work. I do have family near the hospital but I don't know how Brooke will go and they have to work also. I guess I will just have to manage. I hope this is not the start of a very rough road.
Thanks Jane
Hey Heather
Thanks for the tips, I appreciate it. I am hoping we don't need the admission but it's not looking good. How has Alyssa been? What do you do with Richie and Reese if she has to be admitted? Do you live close to the hospital?
I have another daughter Brooke she will be three in June, I am not really sure what I will do with her if Charlotte is admitted. We live a plane flight from the specialising hospital and my husband will have to stay and work. I do have family near the hospital but I don't know how Brooke will go and they have to work also. I guess I will just have to manage. I hope this is not the start of a very rough road.
Thanks Jane
Thanks for the tips, I appreciate it. I am hoping we don't need the admission but it's not looking good. How has Alyssa been? What do you do with Richie and Reese if she has to be admitted? Do you live close to the hospital?
I have another daughter Brooke she will be three in June, I am not really sure what I will do with her if Charlotte is admitted. We live a plane flight from the specialising hospital and my husband will have to stay and work. I do have family near the hospital but I don't know how Brooke will go and they have to work also. I guess I will just have to manage. I hope this is not the start of a very rough road.
Thanks Jane
Hey Heather
Thanks for the tips, I appreciate it. I am hoping we don't need the admission but it's not looking good. How has Alyssa been? What do you do with Richie and Reese if she has to be admitted? Do you live close to the hospital?
I have another daughter Brooke she will be three in June, I am not really sure what I will do with her if Charlotte is admitted. We live a plane flight from the specialising hospital and my husband will have to stay and work. I do have family near the hospital but I don't know how Brooke will go and they have to work also. I guess I will just have to manage. I hope this is not the start of a very rough road.
Thanks Jane
Thanks for the tips, I appreciate it. I am hoping we don't need the admission but it's not looking good. How has Alyssa been? What do you do with Richie and Reese if she has to be admitted? Do you live close to the hospital?
I have another daughter Brooke she will be three in June, I am not really sure what I will do with her if Charlotte is admitted. We live a plane flight from the specialising hospital and my husband will have to stay and work. I do have family near the hospital but I don't know how Brooke will go and they have to work also. I guess I will just have to manage. I hope this is not the start of a very rough road.
Thanks Jane
Hey Heather
Thanks for the tips, I appreciate it. I am hoping we don't need the admission but it's not looking good. How has Alyssa been? What do you do with Richie and Reese if she has to be admitted? Do you live close to the hospital?
I have another daughter Brooke she will be three in June, I am not really sure what I will do with her if Charlotte is admitted. We live a plane flight from the specialising hospital and my husband will have to stay and work. I do have family near the hospital but I don't know how Brooke will go and they have to work also. I guess I will just have to manage. I hope this is not the start of a very rough road.
Thanks Jane
Thanks for the tips, I appreciate it. I am hoping we don't need the admission but it's not looking good. How has Alyssa been? What do you do with Richie and Reese if she has to be admitted? Do you live close to the hospital?
I have another daughter Brooke she will be three in June, I am not really sure what I will do with her if Charlotte is admitted. We live a plane flight from the specialising hospital and my husband will have to stay and work. I do have family near the hospital but I don't know how Brooke will go and they have to work also. I guess I will just have to manage. I hope this is not the start of a very rough road.
Thanks Jane
Hey Heather
<br />
<br />Thanks for the tips, I appreciate it. I am hoping we don't need the admission but it's not looking good. How has Alyssa been? What do you do with Richie and Reese if she has to be admitted? Do you live close to the hospital?
<br />I have another daughter Brooke she will be three in June, I am not really sure what I will do with her if Charlotte is admitted. We live a plane flight from the specialising hospital and my husband will have to stay and work. I do have family near the hospital but I don't know how Brooke will go and they have to work also. I guess I will just have to manage. I hope this is not the start of a very rough road.
<br />
<br />Thanks Jane
<br />
<br />Thanks for the tips, I appreciate it. I am hoping we don't need the admission but it's not looking good. How has Alyssa been? What do you do with Richie and Reese if she has to be admitted? Do you live close to the hospital?
<br />I have another daughter Brooke she will be three in June, I am not really sure what I will do with her if Charlotte is admitted. We live a plane flight from the specialising hospital and my husband will have to stay and work. I do have family near the hospital but I don't know how Brooke will go and they have to work also. I guess I will just have to manage. I hope this is not the start of a very rough road.
<br />
<br />Thanks Jane
M
Mommafirst
Guest
Ugh, Jane, I really feel your pain here.
We do live close to the hospital, about 15 minutes. And my husband's job is very flexible, so usually we do a lot of shuffling. We have a bunch of different friends and sitters that the boys wind up shuffling between while we are in-patient.
You might want to contact the hospital to see if they have a Ronald McDonald House there. YOu could get a room there, as I don't know if they will let you bring Brooke for overnights into the hospital -- but I'm really not sure.
Does your CF center have a social worker? Ours is fabulous and she has helped a great deal. You may be able to track down some services that can help.
My suggestion would be either to bring a sitter/friend/family member who can help entertain Brooke -- or see if your family near the hospital would be willing to rotate taking a day off of work so that Brooke can be with them. I know its a sacrifice for them to do -- but really what are you supposed to do?? Possibly there is a day care program that might allow some drop in days for Brooke?
Alyssa does pretty well. We've had three hospitalizations in her three years. One was for surgery, the other two were for CF stuff. WE had a rocky beginning, but it stabalized. I hope it stabalizes for you soon. Its VERY stressful, I know!!!
(((HUGS)))
Heather
We do live close to the hospital, about 15 minutes. And my husband's job is very flexible, so usually we do a lot of shuffling. We have a bunch of different friends and sitters that the boys wind up shuffling between while we are in-patient.
You might want to contact the hospital to see if they have a Ronald McDonald House there. YOu could get a room there, as I don't know if they will let you bring Brooke for overnights into the hospital -- but I'm really not sure.
Does your CF center have a social worker? Ours is fabulous and she has helped a great deal. You may be able to track down some services that can help.
My suggestion would be either to bring a sitter/friend/family member who can help entertain Brooke -- or see if your family near the hospital would be willing to rotate taking a day off of work so that Brooke can be with them. I know its a sacrifice for them to do -- but really what are you supposed to do?? Possibly there is a day care program that might allow some drop in days for Brooke?
Alyssa does pretty well. We've had three hospitalizations in her three years. One was for surgery, the other two were for CF stuff. WE had a rocky beginning, but it stabalized. I hope it stabalizes for you soon. Its VERY stressful, I know!!!
(((HUGS)))
Heather
M
Mommafirst
Guest
Ugh, Jane, I really feel your pain here.
We do live close to the hospital, about 15 minutes. And my husband's job is very flexible, so usually we do a lot of shuffling. We have a bunch of different friends and sitters that the boys wind up shuffling between while we are in-patient.
You might want to contact the hospital to see if they have a Ronald McDonald House there. YOu could get a room there, as I don't know if they will let you bring Brooke for overnights into the hospital -- but I'm really not sure.
Does your CF center have a social worker? Ours is fabulous and she has helped a great deal. You may be able to track down some services that can help.
My suggestion would be either to bring a sitter/friend/family member who can help entertain Brooke -- or see if your family near the hospital would be willing to rotate taking a day off of work so that Brooke can be with them. I know its a sacrifice for them to do -- but really what are you supposed to do?? Possibly there is a day care program that might allow some drop in days for Brooke?
Alyssa does pretty well. We've had three hospitalizations in her three years. One was for surgery, the other two were for CF stuff. WE had a rocky beginning, but it stabalized. I hope it stabalizes for you soon. Its VERY stressful, I know!!!
(((HUGS)))
Heather
We do live close to the hospital, about 15 minutes. And my husband's job is very flexible, so usually we do a lot of shuffling. We have a bunch of different friends and sitters that the boys wind up shuffling between while we are in-patient.
You might want to contact the hospital to see if they have a Ronald McDonald House there. YOu could get a room there, as I don't know if they will let you bring Brooke for overnights into the hospital -- but I'm really not sure.
Does your CF center have a social worker? Ours is fabulous and she has helped a great deal. You may be able to track down some services that can help.
My suggestion would be either to bring a sitter/friend/family member who can help entertain Brooke -- or see if your family near the hospital would be willing to rotate taking a day off of work so that Brooke can be with them. I know its a sacrifice for them to do -- but really what are you supposed to do?? Possibly there is a day care program that might allow some drop in days for Brooke?
Alyssa does pretty well. We've had three hospitalizations in her three years. One was for surgery, the other two were for CF stuff. WE had a rocky beginning, but it stabalized. I hope it stabalizes for you soon. Its VERY stressful, I know!!!
(((HUGS)))
Heather
M
Mommafirst
Guest
Ugh, Jane, I really feel your pain here.
We do live close to the hospital, about 15 minutes. And my husband's job is very flexible, so usually we do a lot of shuffling. We have a bunch of different friends and sitters that the boys wind up shuffling between while we are in-patient.
You might want to contact the hospital to see if they have a Ronald McDonald House there. YOu could get a room there, as I don't know if they will let you bring Brooke for overnights into the hospital -- but I'm really not sure.
Does your CF center have a social worker? Ours is fabulous and she has helped a great deal. You may be able to track down some services that can help.
My suggestion would be either to bring a sitter/friend/family member who can help entertain Brooke -- or see if your family near the hospital would be willing to rotate taking a day off of work so that Brooke can be with them. I know its a sacrifice for them to do -- but really what are you supposed to do?? Possibly there is a day care program that might allow some drop in days for Brooke?
Alyssa does pretty well. We've had three hospitalizations in her three years. One was for surgery, the other two were for CF stuff. WE had a rocky beginning, but it stabalized. I hope it stabalizes for you soon. Its VERY stressful, I know!!!
(((HUGS)))
Heather
We do live close to the hospital, about 15 minutes. And my husband's job is very flexible, so usually we do a lot of shuffling. We have a bunch of different friends and sitters that the boys wind up shuffling between while we are in-patient.
You might want to contact the hospital to see if they have a Ronald McDonald House there. YOu could get a room there, as I don't know if they will let you bring Brooke for overnights into the hospital -- but I'm really not sure.
Does your CF center have a social worker? Ours is fabulous and she has helped a great deal. You may be able to track down some services that can help.
My suggestion would be either to bring a sitter/friend/family member who can help entertain Brooke -- or see if your family near the hospital would be willing to rotate taking a day off of work so that Brooke can be with them. I know its a sacrifice for them to do -- but really what are you supposed to do?? Possibly there is a day care program that might allow some drop in days for Brooke?
Alyssa does pretty well. We've had three hospitalizations in her three years. One was for surgery, the other two were for CF stuff. WE had a rocky beginning, but it stabalized. I hope it stabalizes for you soon. Its VERY stressful, I know!!!
(((HUGS)))
Heather
M
Mommafirst
Guest
Ugh, Jane, I really feel your pain here.
We do live close to the hospital, about 15 minutes. And my husband's job is very flexible, so usually we do a lot of shuffling. We have a bunch of different friends and sitters that the boys wind up shuffling between while we are in-patient.
You might want to contact the hospital to see if they have a Ronald McDonald House there. YOu could get a room there, as I don't know if they will let you bring Brooke for overnights into the hospital -- but I'm really not sure.
Does your CF center have a social worker? Ours is fabulous and she has helped a great deal. You may be able to track down some services that can help.
My suggestion would be either to bring a sitter/friend/family member who can help entertain Brooke -- or see if your family near the hospital would be willing to rotate taking a day off of work so that Brooke can be with them. I know its a sacrifice for them to do -- but really what are you supposed to do?? Possibly there is a day care program that might allow some drop in days for Brooke?
Alyssa does pretty well. We've had three hospitalizations in her three years. One was for surgery, the other two were for CF stuff. WE had a rocky beginning, but it stabalized. I hope it stabalizes for you soon. Its VERY stressful, I know!!!
(((HUGS)))
Heather
We do live close to the hospital, about 15 minutes. And my husband's job is very flexible, so usually we do a lot of shuffling. We have a bunch of different friends and sitters that the boys wind up shuffling between while we are in-patient.
You might want to contact the hospital to see if they have a Ronald McDonald House there. YOu could get a room there, as I don't know if they will let you bring Brooke for overnights into the hospital -- but I'm really not sure.
Does your CF center have a social worker? Ours is fabulous and she has helped a great deal. You may be able to track down some services that can help.
My suggestion would be either to bring a sitter/friend/family member who can help entertain Brooke -- or see if your family near the hospital would be willing to rotate taking a day off of work so that Brooke can be with them. I know its a sacrifice for them to do -- but really what are you supposed to do?? Possibly there is a day care program that might allow some drop in days for Brooke?
Alyssa does pretty well. We've had three hospitalizations in her three years. One was for surgery, the other two were for CF stuff. WE had a rocky beginning, but it stabalized. I hope it stabalizes for you soon. Its VERY stressful, I know!!!
(((HUGS)))
Heather
M
Mommafirst
Guest
Ugh, Jane, I really feel your pain here.
<br />
<br />We do live close to the hospital, about 15 minutes. And my husband's job is very flexible, so usually we do a lot of shuffling. We have a bunch of different friends and sitters that the boys wind up shuffling between while we are in-patient.
<br />
<br />You might want to contact the hospital to see if they have a Ronald McDonald House there. YOu could get a room there, as I don't know if they will let you bring Brooke for overnights into the hospital -- but I'm really not sure.
<br />
<br />Does your CF center have a social worker? Ours is fabulous and she has helped a great deal. You may be able to track down some services that can help.
<br />
<br />My suggestion would be either to bring a sitter/friend/family member who can help entertain Brooke -- or see if your family near the hospital would be willing to rotate taking a day off of work so that Brooke can be with them. I know its a sacrifice for them to do -- but really what are you supposed to do?? Possibly there is a day care program that might allow some drop in days for Brooke?
<br />
<br />Alyssa does pretty well. We've had three hospitalizations in her three years. One was for surgery, the other two were for CF stuff. WE had a rocky beginning, but it stabalized. I hope it stabalizes for you soon. Its VERY stressful, I know!!!
<br />
<br />(((HUGS)))
<br />Heather
<br />
<br />We do live close to the hospital, about 15 minutes. And my husband's job is very flexible, so usually we do a lot of shuffling. We have a bunch of different friends and sitters that the boys wind up shuffling between while we are in-patient.
<br />
<br />You might want to contact the hospital to see if they have a Ronald McDonald House there. YOu could get a room there, as I don't know if they will let you bring Brooke for overnights into the hospital -- but I'm really not sure.
<br />
<br />Does your CF center have a social worker? Ours is fabulous and she has helped a great deal. You may be able to track down some services that can help.
<br />
<br />My suggestion would be either to bring a sitter/friend/family member who can help entertain Brooke -- or see if your family near the hospital would be willing to rotate taking a day off of work so that Brooke can be with them. I know its a sacrifice for them to do -- but really what are you supposed to do?? Possibly there is a day care program that might allow some drop in days for Brooke?
<br />
<br />Alyssa does pretty well. We've had three hospitalizations in her three years. One was for surgery, the other two were for CF stuff. WE had a rocky beginning, but it stabalized. I hope it stabalizes for you soon. Its VERY stressful, I know!!!
<br />
<br />(((HUGS)))
<br />Heather