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First CF clinic visit
- Thread starter babyluke
- Start date
He is taking creon 5 before each bottle, pulmicort 2 x per day and pulmizyme 1 x per day and albuterol as needed. We do cpt after breathing treatments. He takes vitamins too. They switched us to a different kind at clinic b/c he kept throwing up the other ones.
He honestly looks better to me than he ever has--chubbier and better color. He smiles and laughs all the time now.
We had a genetics appt. today. The results were not back yet about his exact mutations--should be early next week. It was a good appointment though. The genetics dr. we saw said that she feels that the experts will find a cure for CF in our son's lifetime. Maybe they say that just to make you feel better, but I'll take it.
Thanks to all for your support and encouragement!!!
Angela, Mommy to Luke, 3 mo., newly diagnosed
He honestly looks better to me than he ever has--chubbier and better color. He smiles and laughs all the time now.
We had a genetics appt. today. The results were not back yet about his exact mutations--should be early next week. It was a good appointment though. The genetics dr. we saw said that she feels that the experts will find a cure for CF in our son's lifetime. Maybe they say that just to make you feel better, but I'll take it.
Thanks to all for your support and encouragement!!!
Angela, Mommy to Luke, 3 mo., newly diagnosed
He is taking creon 5 before each bottle, pulmicort 2 x per day and pulmizyme 1 x per day and albuterol as needed. We do cpt after breathing treatments. He takes vitamins too. They switched us to a different kind at clinic b/c he kept throwing up the other ones.
He honestly looks better to me than he ever has--chubbier and better color. He smiles and laughs all the time now.
We had a genetics appt. today. The results were not back yet about his exact mutations--should be early next week. It was a good appointment though. The genetics dr. we saw said that she feels that the experts will find a cure for CF in our son's lifetime. Maybe they say that just to make you feel better, but I'll take it.
Thanks to all for your support and encouragement!!!
Angela, Mommy to Luke, 3 mo., newly diagnosed
He honestly looks better to me than he ever has--chubbier and better color. He smiles and laughs all the time now.
We had a genetics appt. today. The results were not back yet about his exact mutations--should be early next week. It was a good appointment though. The genetics dr. we saw said that she feels that the experts will find a cure for CF in our son's lifetime. Maybe they say that just to make you feel better, but I'll take it.
Thanks to all for your support and encouragement!!!
Angela, Mommy to Luke, 3 mo., newly diagnosed
He is taking creon 5 before each bottle, pulmicort 2 x per day and pulmizyme 1 x per day and albuterol as needed. We do cpt after breathing treatments. He takes vitamins too. They switched us to a different kind at clinic b/c he kept throwing up the other ones.
He honestly looks better to me than he ever has--chubbier and better color. He smiles and laughs all the time now.
We had a genetics appt. today. The results were not back yet about his exact mutations--should be early next week. It was a good appointment though. The genetics dr. we saw said that she feels that the experts will find a cure for CF in our son's lifetime. Maybe they say that just to make you feel better, but I'll take it.
Thanks to all for your support and encouragement!!!
Angela, Mommy to Luke, 3 mo., newly diagnosed
He honestly looks better to me than he ever has--chubbier and better color. He smiles and laughs all the time now.
We had a genetics appt. today. The results were not back yet about his exact mutations--should be early next week. It was a good appointment though. The genetics dr. we saw said that she feels that the experts will find a cure for CF in our son's lifetime. Maybe they say that just to make you feel better, but I'll take it.
Thanks to all for your support and encouragement!!!
Angela, Mommy to Luke, 3 mo., newly diagnosed
He is taking creon 5 before each bottle, pulmicort 2 x per day and pulmizyme 1 x per day and albuterol as needed. We do cpt after breathing treatments. He takes vitamins too. They switched us to a different kind at clinic b/c he kept throwing up the other ones.
He honestly looks better to me than he ever has--chubbier and better color. He smiles and laughs all the time now.
We had a genetics appt. today. The results were not back yet about his exact mutations--should be early next week. It was a good appointment though. The genetics dr. we saw said that she feels that the experts will find a cure for CF in our son's lifetime. Maybe they say that just to make you feel better, but I'll take it.
Thanks to all for your support and encouragement!!!
Angela, Mommy to Luke, 3 mo., newly diagnosed
He honestly looks better to me than he ever has--chubbier and better color. He smiles and laughs all the time now.
We had a genetics appt. today. The results were not back yet about his exact mutations--should be early next week. It was a good appointment though. The genetics dr. we saw said that she feels that the experts will find a cure for CF in our son's lifetime. Maybe they say that just to make you feel better, but I'll take it.
Thanks to all for your support and encouragement!!!
Angela, Mommy to Luke, 3 mo., newly diagnosed
He is taking creon 5 before each bottle, pulmicort 2 x per day and pulmizyme 1 x per day and albuterol as needed. We do cpt after breathing treatments. He takes vitamins too. They switched us to a different kind at clinic b/c he kept throwing up the other ones.
He honestly looks better to me than he ever has--chubbier and better color. He smiles and laughs all the time now.
We had a genetics appt. today. The results were not back yet about his exact mutations--should be early next week. It was a good appointment though. The genetics dr. we saw said that she feels that the experts will find a cure for CF in our son's lifetime. Maybe they say that just to make you feel better, but I'll take it.
Thanks to all for your support and encouragement!!!
Angela, Mommy to Luke, 3 mo., newly diagnosed
He honestly looks better to me than he ever has--chubbier and better color. He smiles and laughs all the time now.
We had a genetics appt. today. The results were not back yet about his exact mutations--should be early next week. It was a good appointment though. The genetics dr. we saw said that she feels that the experts will find a cure for CF in our son's lifetime. Maybe they say that just to make you feel better, but I'll take it.
Thanks to all for your support and encouragement!!!
Angela, Mommy to Luke, 3 mo., newly diagnosed