One of the wisest doctors I ever saw (from 2005-2008) put what he referred to as a "hemoptysis plan" in place after seeing me the first day and me telling him my history of being a bleeder. While I never had had a bleed that required an emergency procedure, he wanted me, and more importantly my caretaker, to know what to do with me if I was bleeding badly. It was quite simple. If I had uncontrolled bleeding that wasn't stopping and had amounted to 1 cup (though between you and I would start the process of getting there if you have 1/2 c.). Call pager or cell and let him know I am in route to IR (interventional radiology) and call doctor on call and report same thing (ie. CF patient, your name, DOB, cell phone to reach your caregiver, hosp you are reporting to, and that you have uncontrolled, massive hemoptysis). Then proceed to IR (don't drive yourself as you may black out from lack of blood), go right to IR, skip ER. Sadly, it was reported on this site, that massive hemopytsis is one of the leading causes of death in cfers so lesson learned is be prepared!
