First month with the Vest

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anonymous

New member
Hi everyone,

Our daughter is two and recently started a trial run with the vest. We have noticed increased coughing and for the first time in her life, she is actually coughing things up. She rarely would cough after manual CPT even in the midst of a lung infection.

I'm hoping that this means that the vest is effectively moving and breaking down the mucous from her smaller airways. (Her infant PFT's have shown air trapping and lower numbers for the smaller airways.)

My question to parents of young CF children who have started the vest: Did you notice more coughing/and or sputum upon initiation of the vest?

(Actually, anyone who uses the vest can probably answer the question.)

Maria (mother of Samantha w/cf)
 
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seasprite

New member
Yes, we did. Jordan started on the Vest when he was 11. His cough went up, just as Samantha's did, but within a month or so his small- airway measures improved and they remain high to date. But we also find he does best if we alternate the Vest with manual PT. Jordan says being upside down moves stuff out in a way that the Vest alone does not.

Bambi, mom of Jordan, 16 w cf
 
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anonymous

New member
Bambi,

Thanks for the reply. I'm hoping for improved numbers also. Thanks for also commenting on CPT. I have been wondering if the vest gets the lower lobes as well as CPT. I am trying to still do manual CPT once a day along with the two vest treatments.

Maria
 
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NoDayButToday

New member
Bambi, you are right about being upside down being helpful. I was at a friends house earlier, and was laying on my stomach with a pillow around my stomach, and just being in that position (not doing CPT or trying to be clearing out, just hanging around) made me cough.
 
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anonymous

New member
Hi,
We have a 2 year old and live in England.
We are very pleased to here that it looks like the vest works but i wonder if anyone can help us. We would like to trial this vest but no one in England seems to know anything about it. If you can help or just want a chat please email truman@blueyonder.co.uk Thank you and good luck to you all
 
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anonymous

New member
My 3 year old has been using the vest for about a month and he has not coughed any more than he did with manual cppd
 
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anonymous

New member
I use the vest for the 5 year old I take care of. He is not coughing anything more up. Although the Tobi is seeming to cause him to cough.(He is not on the vest during Tobi nebulizer). I also do pats at random times when he sits by me. He likes them. He will lay on my lap sometimes in a way that I he knows I will do them. I think it is a comfort for him, since he was having them done since just under 2 years old. I will be excited to see how his #'s turn out in the next CF clinic.
-Christine (nanny to 5 year old w/CF and his 7 year old brother without)
 
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