First time for Home IVs...

J

Juliet

New member
OK, My docs have finally convinced me that it's time to do the IV ABX thing. After 1 flight of stairs, wicked SOB and a major coughing attack, plus after coughing up blood in my sputum even my husband (who is the one in perpetual denail about all things medical!) admits that it's probably time. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I've never had to have IV ABX before in my life and I'm having a hard time accepting this milestone. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I guess I really do have CF. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Oh well, I'll just have to adjust to it I guess...

Out of fear of catching some nasty bug at the hospital, I've managed to convince them to let me do them at home. Actually, it was more of an, "OK, I'll agree to it but only if I can do them at home." <evil grin> Thanks to all of you I knew about that option!! I'll get my PICC placed and get started at the local outpatient infusion center. Then I'll go home with the meds, have a home nurse train me and all that.

I've got lots of questions rolling around in my head. They say I'll be on a battery operated pump for the meds that comes with some sort of a carrying bag thing - the idea being that I'll be mobile. The docs even said that if I'm feeling well enough I can go to a lampworking class I'm taking 2 weekends from now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you usually own these pumps outright or are they 'borrowed' for the duration of the IV treatment? Is there fear of cross infection from them? What should I look for to make sure things are properly cleaned? Is there a certain brand or type or what not that I should ask for or avoid?

When getting the PICC line placed they said I'd be numbed at the insertion spot - I think she said using creme, but that can't be right is it??? I've read the threads about PICC lines and nerves.... Ugh. Not looking forward to this part. If they hit a nerve do I request that they move it elsewhere? Also can they put them in your left arm or does it have to be the right arm? Any other advise about PICC lines?

The nurse also told me about timing of taking the Tobi out of the fridge in advance so it warms up and the pressure ball works better. How much time do you guys use for warm-up? I'm thinking maybe DH can get it out of the fridge when he leaves for work so I can sleep more. Ha Ha. I'm trying to figure out the schedule. I think they said every 8 hours for Tobi. Is that what you guys do? Also they mentioned the first dosage I'll be getting blood work before, one and a few hours afterwards to check my blood levels, kidneys and so forth.

The other 3 that they're considering - not sure which other one I'll get yet are: Cefepime, Tmetin, Zosyn. Just curious what dosing you all have with those meds. Do they have side effects? Which ones take longer to infuse than others?

Eeek, I'm so not looking forward to this. But hopefully it will help kick the butts off these damn CF bugs. <img src="i/expressions/face-icon-small-sad.gif" border="0"> TIA for any advise or suggestions or comiseration! <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~Juliet
 
J

Juliet

New member
OK, My docs have finally convinced me that it's time to do the IV ABX thing. After 1 flight of stairs, wicked SOB and a major coughing attack, plus after coughing up blood in my sputum even my husband (who is the one in perpetual denail about all things medical!) admits that it's probably time. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I've never had to have IV ABX before in my life and I'm having a hard time accepting this milestone. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I guess I really do have CF. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Oh well, I'll just have to adjust to it I guess...

Out of fear of catching some nasty bug at the hospital, I've managed to convince them to let me do them at home. Actually, it was more of an, "OK, I'll agree to it but only if I can do them at home." <evil grin> Thanks to all of you I knew about that option!! I'll get my PICC placed and get started at the local outpatient infusion center. Then I'll go home with the meds, have a home nurse train me and all that.

I've got lots of questions rolling around in my head. They say I'll be on a battery operated pump for the meds that comes with some sort of a carrying bag thing - the idea being that I'll be mobile. The docs even said that if I'm feeling well enough I can go to a lampworking class I'm taking 2 weekends from now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you usually own these pumps outright or are they 'borrowed' for the duration of the IV treatment? Is there fear of cross infection from them? What should I look for to make sure things are properly cleaned? Is there a certain brand or type or what not that I should ask for or avoid?

When getting the PICC line placed they said I'd be numbed at the insertion spot - I think she said using creme, but that can't be right is it??? I've read the threads about PICC lines and nerves.... Ugh. Not looking forward to this part. If they hit a nerve do I request that they move it elsewhere? Also can they put them in your left arm or does it have to be the right arm? Any other advise about PICC lines?

The nurse also told me about timing of taking the Tobi out of the fridge in advance so it warms up and the pressure ball works better. How much time do you guys use for warm-up? I'm thinking maybe DH can get it out of the fridge when he leaves for work so I can sleep more. Ha Ha. I'm trying to figure out the schedule. I think they said every 8 hours for Tobi. Is that what you guys do? Also they mentioned the first dosage I'll be getting blood work before, one and a few hours afterwards to check my blood levels, kidneys and so forth.

The other 3 that they're considering - not sure which other one I'll get yet are: Cefepime, Tmetin, Zosyn. Just curious what dosing you all have with those meds. Do they have side effects? Which ones take longer to infuse than others?

Eeek, I'm so not looking forward to this. But hopefully it will help kick the butts off these damn CF bugs. <img src="i/expressions/face-icon-small-sad.gif" border="0"> TIA for any advise or suggestions or comiseration! <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~Juliet
 
J

Juliet

New member
OK, My docs have finally convinced me that it's time to do the IV ABX thing. After 1 flight of stairs, wicked SOB and a major coughing attack, plus after coughing up blood in my sputum even my husband (who is the one in perpetual denail about all things medical!) admits that it's probably time. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I've never had to have IV ABX before in my life and I'm having a hard time accepting this milestone. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I guess I really do have CF. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Oh well, I'll just have to adjust to it I guess...

Out of fear of catching some nasty bug at the hospital, I've managed to convince them to let me do them at home. Actually, it was more of an, "OK, I'll agree to it but only if I can do them at home." <evil grin> Thanks to all of you I knew about that option!! I'll get my PICC placed and get started at the local outpatient infusion center. Then I'll go home with the meds, have a home nurse train me and all that.

I've got lots of questions rolling around in my head. They say I'll be on a battery operated pump for the meds that comes with some sort of a carrying bag thing - the idea being that I'll be mobile. The docs even said that if I'm feeling well enough I can go to a lampworking class I'm taking 2 weekends from now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you usually own these pumps outright or are they 'borrowed' for the duration of the IV treatment? Is there fear of cross infection from them? What should I look for to make sure things are properly cleaned? Is there a certain brand or type or what not that I should ask for or avoid?

When getting the PICC line placed they said I'd be numbed at the insertion spot - I think she said using creme, but that can't be right is it??? I've read the threads about PICC lines and nerves.... Ugh. Not looking forward to this part. If they hit a nerve do I request that they move it elsewhere? Also can they put them in your left arm or does it have to be the right arm? Any other advise about PICC lines?

The nurse also told me about timing of taking the Tobi out of the fridge in advance so it warms up and the pressure ball works better. How much time do you guys use for warm-up? I'm thinking maybe DH can get it out of the fridge when he leaves for work so I can sleep more. Ha Ha. I'm trying to figure out the schedule. I think they said every 8 hours for Tobi. Is that what you guys do? Also they mentioned the first dosage I'll be getting blood work before, one and a few hours afterwards to check my blood levels, kidneys and so forth.

The other 3 that they're considering - not sure which other one I'll get yet are: Cefepime, Tmetin, Zosyn. Just curious what dosing you all have with those meds. Do they have side effects? Which ones take longer to infuse than others?

Eeek, I'm so not looking forward to this. But hopefully it will help kick the butts off these damn CF bugs. <img src="i/expressions/face-icon-small-sad.gif" border="0"> TIA for any advise or suggestions or comiseration! <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~Juliet
 
J

Juliet

New member
OK, My docs have finally convinced me that it's time to do the IV ABX thing. After 1 flight of stairs, wicked SOB and a major coughing attack, plus after coughing up blood in my sputum even my husband (who is the one in perpetual denail about all things medical!) admits that it's probably time. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I've never had to have IV ABX before in my life and I'm having a hard time accepting this milestone. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I guess I really do have CF. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Oh well, I'll just have to adjust to it I guess...

Out of fear of catching some nasty bug at the hospital, I've managed to convince them to let me do them at home. Actually, it was more of an, "OK, I'll agree to it but only if I can do them at home." <evil grin> Thanks to all of you I knew about that option!! I'll get my PICC placed and get started at the local outpatient infusion center. Then I'll go home with the meds, have a home nurse train me and all that.

I've got lots of questions rolling around in my head. They say I'll be on a battery operated pump for the meds that comes with some sort of a carrying bag thing - the idea being that I'll be mobile. The docs even said that if I'm feeling well enough I can go to a lampworking class I'm taking 2 weekends from now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you usually own these pumps outright or are they 'borrowed' for the duration of the IV treatment? Is there fear of cross infection from them? What should I look for to make sure things are properly cleaned? Is there a certain brand or type or what not that I should ask for or avoid?

When getting the PICC line placed they said I'd be numbed at the insertion spot - I think she said using creme, but that can't be right is it??? I've read the threads about PICC lines and nerves.... Ugh. Not looking forward to this part. If they hit a nerve do I request that they move it elsewhere? Also can they put them in your left arm or does it have to be the right arm? Any other advise about PICC lines?

The nurse also told me about timing of taking the Tobi out of the fridge in advance so it warms up and the pressure ball works better. How much time do you guys use for warm-up? I'm thinking maybe DH can get it out of the fridge when he leaves for work so I can sleep more. Ha Ha. I'm trying to figure out the schedule. I think they said every 8 hours for Tobi. Is that what you guys do? Also they mentioned the first dosage I'll be getting blood work before, one and a few hours afterwards to check my blood levels, kidneys and so forth.

The other 3 that they're considering - not sure which other one I'll get yet are: Cefepime, Tmetin, Zosyn. Just curious what dosing you all have with those meds. Do they have side effects? Which ones take longer to infuse than others?

Eeek, I'm so not looking forward to this. But hopefully it will help kick the butts off these damn CF bugs. <img src="i/expressions/face-icon-small-sad.gif" border="0"> TIA for any advise or suggestions or comiseration! <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~Juliet
 
J

Juliet

New member
OK, My docs have finally convinced me that it's time to do the IV ABX thing. After 1 flight of stairs, wicked SOB and a major coughing attack, plus after coughing up blood in my sputum even my husband (who is the one in perpetual denail about all things medical!) admits that it's probably time. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I've never had to have IV ABX before in my life and I'm having a hard time accepting this milestone. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I guess I really do have CF. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Oh well, I'll just have to adjust to it I guess...
<br />
<br />Out of fear of catching some nasty bug at the hospital, I've managed to convince them to let me do them at home. Actually, it was more of an, "OK, I'll agree to it but only if I can do them at home." <evil grin> Thanks to all of you I knew about that option!! I'll get my PICC placed and get started at the local outpatient infusion center. Then I'll go home with the meds, have a home nurse train me and all that.
<br />
<br />I've got lots of questions rolling around in my head. They say I'll be on a battery operated pump for the meds that comes with some sort of a carrying bag thing - the idea being that I'll be mobile. The docs even said that if I'm feeling well enough I can go to a lampworking class I'm taking 2 weekends from now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Do you usually own these pumps outright or are they 'borrowed' for the duration of the IV treatment? Is there fear of cross infection from them? What should I look for to make sure things are properly cleaned? Is there a certain brand or type or what not that I should ask for or avoid?
<br />
<br />When getting the PICC line placed they said I'd be numbed at the insertion spot - I think she said using creme, but that can't be right is it??? I've read the threads about PICC lines and nerves.... Ugh. Not looking forward to this part. If they hit a nerve do I request that they move it elsewhere? Also can they put them in your left arm or does it have to be the right arm? Any other advise about PICC lines?
<br />
<br />The nurse also told me about timing of taking the Tobi out of the fridge in advance so it warms up and the pressure ball works better. How much time do you guys use for warm-up? I'm thinking maybe DH can get it out of the fridge when he leaves for work so I can sleep more. Ha Ha. I'm trying to figure out the schedule. I think they said every 8 hours for Tobi. Is that what you guys do? Also they mentioned the first dosage I'll be getting blood work before, one and a few hours afterwards to check my blood levels, kidneys and so forth.
<br />
<br />The other 3 that they're considering - not sure which other one I'll get yet are: Cefepime, Tmetin, Zosyn. Just curious what dosing you all have with those meds. Do they have side effects? Which ones take longer to infuse than others?
<br />
<br />Eeek, I'm so not looking forward to this. But hopefully it will help kick the butts off these damn CF bugs. <img src="i/expressions/face-icon-small-sad.gif" border="0"> TIA for any advise or suggestions or comiseration! <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~Juliet
 
R

Ready2Dance

New member
Ok, so I've done plenty of home IVs (more than I'd like to admit...) and have used several different home care companies. I will tell you that each one varies, but overall, they should have similar procedures.

The pumps are usually "rented" so you have to return them at the end of treatment. I have never thought of cross contamination with the pumps... hmm... but I have never had a problem with them. They are suppose to be sterilized after each patient, just like they would be if they were in the hospital. In general, if it looked clean, I went with it. If I went out in public with it, I'd wipe it down with some alcohol pads when I got home, but that may be overkill. My choice of the pumps are the prism pump and the bard syringe pump. They're just smaller and don't have that ancient look to them <img src="i/expressions/face-icon-small-smile.gif" border="0"> I usually ask for "home pumps" which are the little pressure balls which you talked about. Those are just wonderful and disposable so NO worries about germs hiding from other patients.

I've had 14 PICCs but now have a port (wonder why... lol). Some PICCs were really easy, some were bad. I was able to choose which arm and yes, they numb the site with a cream. I still use the cream when I access my port. It's basically a topical lidocaine and has to be on the site for at least 30minutes before hand. My best advice is to relax. If you get yourself too worked up it can be harder to place the line (the vein can constrict, not painful... just makes the procedure longer)

The way I work warming the meds is that after each dose, I take the next one out. and yes, for tobramycin they do have to check blood levels. It's called the peak and the trough. I usually have them do a trough a few times during the IV course as well as check a renal. Basically, IVs mean at least weekly bloodwork for me. This is up to your doctor though. Each one does this part a little different.

I've been on Cefepime and Zosyn. I believe both are every 8 hours as well. The strength of the dose will determine the schedule. I have done the Tobramycin ever 24hrs and I have done it every 8. Right now I'm actually on Tobra and Cefepime. Tobra is every 12 and Cefepime is every 8. But I've had some kidney issues, so this is the schedule that the docs decided would work best. Most of the drugs they're considering for you take about 30 minutes to infuse (each one that is) but that is dependent on which pump they use.

I think I answered your questions... but honestly, probably gave you more. Feel free to PM me and good luck with everything!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ready2Dance

New member
Ok, so I've done plenty of home IVs (more than I'd like to admit...) and have used several different home care companies. I will tell you that each one varies, but overall, they should have similar procedures.

The pumps are usually "rented" so you have to return them at the end of treatment. I have never thought of cross contamination with the pumps... hmm... but I have never had a problem with them. They are suppose to be sterilized after each patient, just like they would be if they were in the hospital. In general, if it looked clean, I went with it. If I went out in public with it, I'd wipe it down with some alcohol pads when I got home, but that may be overkill. My choice of the pumps are the prism pump and the bard syringe pump. They're just smaller and don't have that ancient look to them <img src="i/expressions/face-icon-small-smile.gif" border="0"> I usually ask for "home pumps" which are the little pressure balls which you talked about. Those are just wonderful and disposable so NO worries about germs hiding from other patients.

I've had 14 PICCs but now have a port (wonder why... lol). Some PICCs were really easy, some were bad. I was able to choose which arm and yes, they numb the site with a cream. I still use the cream when I access my port. It's basically a topical lidocaine and has to be on the site for at least 30minutes before hand. My best advice is to relax. If you get yourself too worked up it can be harder to place the line (the vein can constrict, not painful... just makes the procedure longer)

The way I work warming the meds is that after each dose, I take the next one out. and yes, for tobramycin they do have to check blood levels. It's called the peak and the trough. I usually have them do a trough a few times during the IV course as well as check a renal. Basically, IVs mean at least weekly bloodwork for me. This is up to your doctor though. Each one does this part a little different.

I've been on Cefepime and Zosyn. I believe both are every 8 hours as well. The strength of the dose will determine the schedule. I have done the Tobramycin ever 24hrs and I have done it every 8. Right now I'm actually on Tobra and Cefepime. Tobra is every 12 and Cefepime is every 8. But I've had some kidney issues, so this is the schedule that the docs decided would work best. Most of the drugs they're considering for you take about 30 minutes to infuse (each one that is) but that is dependent on which pump they use.

I think I answered your questions... but honestly, probably gave you more. Feel free to PM me and good luck with everything!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ready2Dance

New member
Ok, so I've done plenty of home IVs (more than I'd like to admit...) and have used several different home care companies. I will tell you that each one varies, but overall, they should have similar procedures.

The pumps are usually "rented" so you have to return them at the end of treatment. I have never thought of cross contamination with the pumps... hmm... but I have never had a problem with them. They are suppose to be sterilized after each patient, just like they would be if they were in the hospital. In general, if it looked clean, I went with it. If I went out in public with it, I'd wipe it down with some alcohol pads when I got home, but that may be overkill. My choice of the pumps are the prism pump and the bard syringe pump. They're just smaller and don't have that ancient look to them <img src="i/expressions/face-icon-small-smile.gif" border="0"> I usually ask for "home pumps" which are the little pressure balls which you talked about. Those are just wonderful and disposable so NO worries about germs hiding from other patients.

I've had 14 PICCs but now have a port (wonder why... lol). Some PICCs were really easy, some were bad. I was able to choose which arm and yes, they numb the site with a cream. I still use the cream when I access my port. It's basically a topical lidocaine and has to be on the site for at least 30minutes before hand. My best advice is to relax. If you get yourself too worked up it can be harder to place the line (the vein can constrict, not painful... just makes the procedure longer)

The way I work warming the meds is that after each dose, I take the next one out. and yes, for tobramycin they do have to check blood levels. It's called the peak and the trough. I usually have them do a trough a few times during the IV course as well as check a renal. Basically, IVs mean at least weekly bloodwork for me. This is up to your doctor though. Each one does this part a little different.

I've been on Cefepime and Zosyn. I believe both are every 8 hours as well. The strength of the dose will determine the schedule. I have done the Tobramycin ever 24hrs and I have done it every 8. Right now I'm actually on Tobra and Cefepime. Tobra is every 12 and Cefepime is every 8. But I've had some kidney issues, so this is the schedule that the docs decided would work best. Most of the drugs they're considering for you take about 30 minutes to infuse (each one that is) but that is dependent on which pump they use.

I think I answered your questions... but honestly, probably gave you more. Feel free to PM me and good luck with everything!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ready2Dance

New member
Ok, so I've done plenty of home IVs (more than I'd like to admit...) and have used several different home care companies. I will tell you that each one varies, but overall, they should have similar procedures.

The pumps are usually "rented" so you have to return them at the end of treatment. I have never thought of cross contamination with the pumps... hmm... but I have never had a problem with them. They are suppose to be sterilized after each patient, just like they would be if they were in the hospital. In general, if it looked clean, I went with it. If I went out in public with it, I'd wipe it down with some alcohol pads when I got home, but that may be overkill. My choice of the pumps are the prism pump and the bard syringe pump. They're just smaller and don't have that ancient look to them <img src="i/expressions/face-icon-small-smile.gif" border="0"> I usually ask for "home pumps" which are the little pressure balls which you talked about. Those are just wonderful and disposable so NO worries about germs hiding from other patients.

I've had 14 PICCs but now have a port (wonder why... lol). Some PICCs were really easy, some were bad. I was able to choose which arm and yes, they numb the site with a cream. I still use the cream when I access my port. It's basically a topical lidocaine and has to be on the site for at least 30minutes before hand. My best advice is to relax. If you get yourself too worked up it can be harder to place the line (the vein can constrict, not painful... just makes the procedure longer)

The way I work warming the meds is that after each dose, I take the next one out. and yes, for tobramycin they do have to check blood levels. It's called the peak and the trough. I usually have them do a trough a few times during the IV course as well as check a renal. Basically, IVs mean at least weekly bloodwork for me. This is up to your doctor though. Each one does this part a little different.

I've been on Cefepime and Zosyn. I believe both are every 8 hours as well. The strength of the dose will determine the schedule. I have done the Tobramycin ever 24hrs and I have done it every 8. Right now I'm actually on Tobra and Cefepime. Tobra is every 12 and Cefepime is every 8. But I've had some kidney issues, so this is the schedule that the docs decided would work best. Most of the drugs they're considering for you take about 30 minutes to infuse (each one that is) but that is dependent on which pump they use.

I think I answered your questions... but honestly, probably gave you more. Feel free to PM me and good luck with everything!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ready2Dance

New member
Ok, so I've done plenty of home IVs (more than I'd like to admit...) and have used several different home care companies. I will tell you that each one varies, but overall, they should have similar procedures.
<br />
<br />The pumps are usually "rented" so you have to return them at the end of treatment. I have never thought of cross contamination with the pumps... hmm... but I have never had a problem with them. They are suppose to be sterilized after each patient, just like they would be if they were in the hospital. In general, if it looked clean, I went with it. If I went out in public with it, I'd wipe it down with some alcohol pads when I got home, but that may be overkill. My choice of the pumps are the prism pump and the bard syringe pump. They're just smaller and don't have that ancient look to them <img src="i/expressions/face-icon-small-smile.gif" border="0"> I usually ask for "home pumps" which are the little pressure balls which you talked about. Those are just wonderful and disposable so NO worries about germs hiding from other patients.
<br />
<br />I've had 14 PICCs but now have a port (wonder why... lol). Some PICCs were really easy, some were bad. I was able to choose which arm and yes, they numb the site with a cream. I still use the cream when I access my port. It's basically a topical lidocaine and has to be on the site for at least 30minutes before hand. My best advice is to relax. If you get yourself too worked up it can be harder to place the line (the vein can constrict, not painful... just makes the procedure longer)
<br />
<br />The way I work warming the meds is that after each dose, I take the next one out. and yes, for tobramycin they do have to check blood levels. It's called the peak and the trough. I usually have them do a trough a few times during the IV course as well as check a renal. Basically, IVs mean at least weekly bloodwork for me. This is up to your doctor though. Each one does this part a little different.
<br />
<br />I've been on Cefepime and Zosyn. I believe both are every 8 hours as well. The strength of the dose will determine the schedule. I have done the Tobramycin ever 24hrs and I have done it every 8. Right now I'm actually on Tobra and Cefepime. Tobra is every 12 and Cefepime is every 8. But I've had some kidney issues, so this is the schedule that the docs decided would work best. Most of the drugs they're considering for you take about 30 minutes to infuse (each one that is) but that is dependent on which pump they use.
<br />
<br />I think I answered your questions... but honestly, probably gave you more. Feel free to PM me and good luck with everything!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
 
J

JazzysMom

New member
My first picc line & home IV therapy was in 2000. I did ok except that it was gravity fed so if it kinked because I fell asleep the med wouldnt administer.

After that I asked for an infusion pump like in the hospital. No one told me of any alternatives, but I knew of this from all my hospital admits. It was a rental & paid for by my insurance.

One thing I learned over the years is to try & keep to the schedule as much as possible to have the meds at therapeutic levels. BUT dont make yourself sick over it. I deprived myself of necessary sleep trying to keep exactly on schedule & then the meds werent able to be as beneficial.

Another thing I would mention is depending on how mobile you need/want to be is to request the Eclipse Balls which is a pressure induced way of adminstering the meds. It comes in a compact ball that you can stick in your coat pocket & go anywhere as long as you have your flushes with you.

My home health agency comes & does weekly draws for tobra levels, bandage changes etc. The first time was rough because the guy was new & although I knew what to do...he had to go through the procedure.

I used Cefepime both in traditional iv bags & a giant syringe. The syringe makes you more mobil. I also have used Zosyn. For me Zosyn caused my liver enzymes to skyrocket with severe pain. They put me on actigal for that & it stabilized. Anytime I use Zosyn it is an issue with my liver enzymes, but it works great combined with Tobra for me.

That is the only real problem I have ever had with meds. Besides the tiredness & achiness that is common when starting powerful drugs, but that always gets better.

Making sure you are hydrated is imperative.

OH In the hospital they had my doses closer together, but at home I did every 8 hours with both cefipime & zosyn. Tobra (not Tobi as you said because that is the inhaled version) was done very 12 hours. I know a young CFer that gets it every 8, but not sure if that is standard for older patients.
 
J

JazzysMom

New member
My first picc line & home IV therapy was in 2000. I did ok except that it was gravity fed so if it kinked because I fell asleep the med wouldnt administer.

After that I asked for an infusion pump like in the hospital. No one told me of any alternatives, but I knew of this from all my hospital admits. It was a rental & paid for by my insurance.

One thing I learned over the years is to try & keep to the schedule as much as possible to have the meds at therapeutic levels. BUT dont make yourself sick over it. I deprived myself of necessary sleep trying to keep exactly on schedule & then the meds werent able to be as beneficial.

Another thing I would mention is depending on how mobile you need/want to be is to request the Eclipse Balls which is a pressure induced way of adminstering the meds. It comes in a compact ball that you can stick in your coat pocket & go anywhere as long as you have your flushes with you.

My home health agency comes & does weekly draws for tobra levels, bandage changes etc. The first time was rough because the guy was new & although I knew what to do...he had to go through the procedure.

I used Cefepime both in traditional iv bags & a giant syringe. The syringe makes you more mobil. I also have used Zosyn. For me Zosyn caused my liver enzymes to skyrocket with severe pain. They put me on actigal for that & it stabilized. Anytime I use Zosyn it is an issue with my liver enzymes, but it works great combined with Tobra for me.

That is the only real problem I have ever had with meds. Besides the tiredness & achiness that is common when starting powerful drugs, but that always gets better.

Making sure you are hydrated is imperative.

OH In the hospital they had my doses closer together, but at home I did every 8 hours with both cefipime & zosyn. Tobra (not Tobi as you said because that is the inhaled version) was done very 12 hours. I know a young CFer that gets it every 8, but not sure if that is standard for older patients.
 
J

JazzysMom

New member
My first picc line & home IV therapy was in 2000. I did ok except that it was gravity fed so if it kinked because I fell asleep the med wouldnt administer.

After that I asked for an infusion pump like in the hospital. No one told me of any alternatives, but I knew of this from all my hospital admits. It was a rental & paid for by my insurance.

One thing I learned over the years is to try & keep to the schedule as much as possible to have the meds at therapeutic levels. BUT dont make yourself sick over it. I deprived myself of necessary sleep trying to keep exactly on schedule & then the meds werent able to be as beneficial.

Another thing I would mention is depending on how mobile you need/want to be is to request the Eclipse Balls which is a pressure induced way of adminstering the meds. It comes in a compact ball that you can stick in your coat pocket & go anywhere as long as you have your flushes with you.

My home health agency comes & does weekly draws for tobra levels, bandage changes etc. The first time was rough because the guy was new & although I knew what to do...he had to go through the procedure.

I used Cefepime both in traditional iv bags & a giant syringe. The syringe makes you more mobil. I also have used Zosyn. For me Zosyn caused my liver enzymes to skyrocket with severe pain. They put me on actigal for that & it stabilized. Anytime I use Zosyn it is an issue with my liver enzymes, but it works great combined with Tobra for me.

That is the only real problem I have ever had with meds. Besides the tiredness & achiness that is common when starting powerful drugs, but that always gets better.

Making sure you are hydrated is imperative.

OH In the hospital they had my doses closer together, but at home I did every 8 hours with both cefipime & zosyn. Tobra (not Tobi as you said because that is the inhaled version) was done very 12 hours. I know a young CFer that gets it every 8, but not sure if that is standard for older patients.
 
J

JazzysMom

New member
My first picc line & home IV therapy was in 2000. I did ok except that it was gravity fed so if it kinked because I fell asleep the med wouldnt administer.

After that I asked for an infusion pump like in the hospital. No one told me of any alternatives, but I knew of this from all my hospital admits. It was a rental & paid for by my insurance.

One thing I learned over the years is to try & keep to the schedule as much as possible to have the meds at therapeutic levels. BUT dont make yourself sick over it. I deprived myself of necessary sleep trying to keep exactly on schedule & then the meds werent able to be as beneficial.

Another thing I would mention is depending on how mobile you need/want to be is to request the Eclipse Balls which is a pressure induced way of adminstering the meds. It comes in a compact ball that you can stick in your coat pocket & go anywhere as long as you have your flushes with you.

My home health agency comes & does weekly draws for tobra levels, bandage changes etc. The first time was rough because the guy was new & although I knew what to do...he had to go through the procedure.

I used Cefepime both in traditional iv bags & a giant syringe. The syringe makes you more mobil. I also have used Zosyn. For me Zosyn caused my liver enzymes to skyrocket with severe pain. They put me on actigal for that & it stabilized. Anytime I use Zosyn it is an issue with my liver enzymes, but it works great combined with Tobra for me.

That is the only real problem I have ever had with meds. Besides the tiredness & achiness that is common when starting powerful drugs, but that always gets better.

Making sure you are hydrated is imperative.

OH In the hospital they had my doses closer together, but at home I did every 8 hours with both cefipime & zosyn. Tobra (not Tobi as you said because that is the inhaled version) was done very 12 hours. I know a young CFer that gets it every 8, but not sure if that is standard for older patients.
 
J

JazzysMom

New member
My first picc line & home IV therapy was in 2000. I did ok except that it was gravity fed so if it kinked because I fell asleep the med wouldnt administer.
<br />
<br />After that I asked for an infusion pump like in the hospital. No one told me of any alternatives, but I knew of this from all my hospital admits. It was a rental & paid for by my insurance.
<br />
<br />One thing I learned over the years is to try & keep to the schedule as much as possible to have the meds at therapeutic levels. BUT dont make yourself sick over it. I deprived myself of necessary sleep trying to keep exactly on schedule & then the meds werent able to be as beneficial.
<br />
<br />Another thing I would mention is depending on how mobile you need/want to be is to request the Eclipse Balls which is a pressure induced way of adminstering the meds. It comes in a compact ball that you can stick in your coat pocket & go anywhere as long as you have your flushes with you.
<br />
<br />My home health agency comes & does weekly draws for tobra levels, bandage changes etc. The first time was rough because the guy was new & although I knew what to do...he had to go through the procedure.
<br />
<br />I used Cefepime both in traditional iv bags & a giant syringe. The syringe makes you more mobil. I also have used Zosyn. For me Zosyn caused my liver enzymes to skyrocket with severe pain. They put me on actigal for that & it stabilized. Anytime I use Zosyn it is an issue with my liver enzymes, but it works great combined with Tobra for me.
<br />
<br />That is the only real problem I have ever had with meds. Besides the tiredness & achiness that is common when starting powerful drugs, but that always gets better.
<br />
<br />Making sure you are hydrated is imperative.
<br />
<br />OH In the hospital they had my doses closer together, but at home I did every 8 hours with both cefipime & zosyn. Tobra (not Tobi as you said because that is the inhaled version) was done very 12 hours. I know a young CFer that gets it every 8, but not sure if that is standard for older patients.
 
B

beleache

New member
Hey Juliet,

I'm sorry you have to do IV's, but it seems when we get to the point of really needing them, and knowing it, it makes it a little easier.. <img src="i/expressions/hugging.gif" border="0">

I haven't used a pump for home infusion, i use the old gravity (if thats what it is called) method..
I've only had a pump in hosp. All tubing is used for one patient, so no cross contamination.
I do clean all equipment, at home or in hosp.
Also dont let anyone put their hands on you w/o washing/gloves first, home healthcare included!!! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">


Good for you for asking to do home IV's if that's what you feel is best for you..
I always have my picc placed in interventional Radiology. I have terrible veins and wouldn't do it any other way..
I would ask if that is a possibility at the infusion center, just in case need be..
As far as the cream goes , i think they are talking about Emla (sp) it numbs an area somewhat, not like lidocane (sp) numbing injection.
Either way they do a picc insertion, they can hit a nerve, but as far as my experience goes, more times than often they have NOT hit a nerve..
Picc lines can go in either arm. It's a little nerve wracking when you get a first anything, but once its in it usually goes well..
Oh i would also ask your C/F dr. for something ahead of time for anxiety if you feel you need it.. You can take it before the picc placement. I have found this very helpful as i am the biggest chicken..<img src="i/expressions/face-icon-small-tongue.gif" border="0">

I'm sure the drs. are ordering your meds according to what bugs your grow.
Certain meds are used for specific bugs, so if you do not have a bug that lets say Tobramycin (it is toxic, thats why the blood draws) then i would question that.
If you are going to be doing Tobramycin, please, please drink plenty of water, like 8 glasses.
I had renal failure due to tobramycin ( i was vomiting, having diarrhea and NO IV's fluids).. I also have constant ringing in my ears due to Tobra.
I don't want to scare you, i just wish someone would have warned me.
I'm sure my outcome would have been much different..


I hope i have helped you somewhat and not scared the cr*p out of you.. If you have any questions please PM me..

I hope and prayer all will go smooth and that you are feeling tip top in no time at all ~ <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hey Juliet,

I'm sorry you have to do IV's, but it seems when we get to the point of really needing them, and knowing it, it makes it a little easier.. <img src="i/expressions/hugging.gif" border="0">

I haven't used a pump for home infusion, i use the old gravity (if thats what it is called) method..
I've only had a pump in hosp. All tubing is used for one patient, so no cross contamination.
I do clean all equipment, at home or in hosp.
Also dont let anyone put their hands on you w/o washing/gloves first, home healthcare included!!! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">


Good for you for asking to do home IV's if that's what you feel is best for you..
I always have my picc placed in interventional Radiology. I have terrible veins and wouldn't do it any other way..
I would ask if that is a possibility at the infusion center, just in case need be..
As far as the cream goes , i think they are talking about Emla (sp) it numbs an area somewhat, not like lidocane (sp) numbing injection.
Either way they do a picc insertion, they can hit a nerve, but as far as my experience goes, more times than often they have NOT hit a nerve..
Picc lines can go in either arm. It's a little nerve wracking when you get a first anything, but once its in it usually goes well..
Oh i would also ask your C/F dr. for something ahead of time for anxiety if you feel you need it.. You can take it before the picc placement. I have found this very helpful as i am the biggest chicken..<img src="i/expressions/face-icon-small-tongue.gif" border="0">

I'm sure the drs. are ordering your meds according to what bugs your grow.
Certain meds are used for specific bugs, so if you do not have a bug that lets say Tobramycin (it is toxic, thats why the blood draws) then i would question that.
If you are going to be doing Tobramycin, please, please drink plenty of water, like 8 glasses.
I had renal failure due to tobramycin ( i was vomiting, having diarrhea and NO IV's fluids).. I also have constant ringing in my ears due to Tobra.
I don't want to scare you, i just wish someone would have warned me.
I'm sure my outcome would have been much different..


I hope i have helped you somewhat and not scared the cr*p out of you.. If you have any questions please PM me..

I hope and prayer all will go smooth and that you are feeling tip top in no time at all ~ <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hey Juliet,

I'm sorry you have to do IV's, but it seems when we get to the point of really needing them, and knowing it, it makes it a little easier.. <img src="i/expressions/hugging.gif" border="0">

I haven't used a pump for home infusion, i use the old gravity (if thats what it is called) method..
I've only had a pump in hosp. All tubing is used for one patient, so no cross contamination.
I do clean all equipment, at home or in hosp.
Also dont let anyone put their hands on you w/o washing/gloves first, home healthcare included!!! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">


Good for you for asking to do home IV's if that's what you feel is best for you..
I always have my picc placed in interventional Radiology. I have terrible veins and wouldn't do it any other way..
I would ask if that is a possibility at the infusion center, just in case need be..
As far as the cream goes , i think they are talking about Emla (sp) it numbs an area somewhat, not like lidocane (sp) numbing injection.
Either way they do a picc insertion, they can hit a nerve, but as far as my experience goes, more times than often they have NOT hit a nerve..
Picc lines can go in either arm. It's a little nerve wracking when you get a first anything, but once its in it usually goes well..
Oh i would also ask your C/F dr. for something ahead of time for anxiety if you feel you need it.. You can take it before the picc placement. I have found this very helpful as i am the biggest chicken..<img src="i/expressions/face-icon-small-tongue.gif" border="0">

I'm sure the drs. are ordering your meds according to what bugs your grow.
Certain meds are used for specific bugs, so if you do not have a bug that lets say Tobramycin (it is toxic, thats why the blood draws) then i would question that.
If you are going to be doing Tobramycin, please, please drink plenty of water, like 8 glasses.
I had renal failure due to tobramycin ( i was vomiting, having diarrhea and NO IV's fluids).. I also have constant ringing in my ears due to Tobra.
I don't want to scare you, i just wish someone would have warned me.
I'm sure my outcome would have been much different..


I hope i have helped you somewhat and not scared the cr*p out of you.. If you have any questions please PM me..

I hope and prayer all will go smooth and that you are feeling tip top in no time at all ~ <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hey Juliet,

I'm sorry you have to do IV's, but it seems when we get to the point of really needing them, and knowing it, it makes it a little easier.. <img src="i/expressions/hugging.gif" border="0">

I haven't used a pump for home infusion, i use the old gravity (if thats what it is called) method..
I've only had a pump in hosp. All tubing is used for one patient, so no cross contamination.
I do clean all equipment, at home or in hosp.
Also dont let anyone put their hands on you w/o washing/gloves first, home healthcare included!!! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">


Good for you for asking to do home IV's if that's what you feel is best for you..
I always have my picc placed in interventional Radiology. I have terrible veins and wouldn't do it any other way..
I would ask if that is a possibility at the infusion center, just in case need be..
As far as the cream goes , i think they are talking about Emla (sp) it numbs an area somewhat, not like lidocane (sp) numbing injection.
Either way they do a picc insertion, they can hit a nerve, but as far as my experience goes, more times than often they have NOT hit a nerve..
Picc lines can go in either arm. It's a little nerve wracking when you get a first anything, but once its in it usually goes well..
Oh i would also ask your C/F dr. for something ahead of time for anxiety if you feel you need it.. You can take it before the picc placement. I have found this very helpful as i am the biggest chicken..<img src="i/expressions/face-icon-small-tongue.gif" border="0">

I'm sure the drs. are ordering your meds according to what bugs your grow.
Certain meds are used for specific bugs, so if you do not have a bug that lets say Tobramycin (it is toxic, thats why the blood draws) then i would question that.
If you are going to be doing Tobramycin, please, please drink plenty of water, like 8 glasses.
I had renal failure due to tobramycin ( i was vomiting, having diarrhea and NO IV's fluids).. I also have constant ringing in my ears due to Tobra.
I don't want to scare you, i just wish someone would have warned me.
I'm sure my outcome would have been much different..


I hope i have helped you somewhat and not scared the cr*p out of you.. If you have any questions please PM me..

I hope and prayer all will go smooth and that you are feeling tip top in no time at all ~ <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hey Juliet,
<br />
<br /> I'm sorry you have to do IV's, but it seems when we get to the point of really needing them, and knowing it, it makes it a little easier.. <img src="i/expressions/hugging.gif" border="0">
<br />
<br />I haven't used a pump for home infusion, i use the old gravity (if thats what it is called) method..
<br />I've only had a pump in hosp. All tubing is used for one patient, so no cross contamination.
<br /> I do clean all equipment, at home or in hosp.
<br /> Also dont let anyone put their hands on you w/o washing/gloves first, home healthcare included!!! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
<br />
<br />
<br />Good for you for asking to do home IV's if that's what you feel is best for you..
<br /> I always have my picc placed in interventional Radiology. I have terrible veins and wouldn't do it any other way..
<br /> I would ask if that is a possibility at the infusion center, just in case need be..
<br /> As far as the cream goes , i think they are talking about Emla (sp) it numbs an area somewhat, not like lidocane (sp) numbing injection.
<br />Either way they do a picc insertion, they can hit a nerve, but as far as my experience goes, more times than often they have NOT hit a nerve..
<br />Picc lines can go in either arm. It's a little nerve wracking when you get a first anything, but once its in it usually goes well..
<br />Oh i would also ask your C/F dr. for something ahead of time for anxiety if you feel you need it.. You can take it before the picc placement. I have found this very helpful as i am the biggest chicken..<img src="i/expressions/face-icon-small-tongue.gif" border="0">
<br />
<br />I'm sure the drs. are ordering your meds according to what bugs your grow.
<br /> Certain meds are used for specific bugs, so if you do not have a bug that lets say Tobramycin (it is toxic, thats why the blood draws) then i would question that.
<br />If you are going to be doing Tobramycin, please, please drink plenty of water, like 8 glasses.
<br /> I had renal failure due to tobramycin ( i was vomiting, having diarrhea and NO IV's fluids).. I also have constant ringing in my ears due to Tobra.
<br /> I don't want to scare you, i just wish someone would have warned me.
<br /> I'm sure my outcome would have been much different..
<br />
<br />
<br />I hope i have helped you somewhat and not scared the cr*p out of you.. If you have any questions please PM me..
<br />
<br />I hope and prayer all will go smooth and that you are feeling tip top in no time at all ~ <img src="i/expressions/heart.gif" border="0"> joni
 
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