Hello and happy thanksgiving everyone! I'm a first time poster and have some questions, could use some input/advice! I'll try to keep this short...
I have three sons. My middle one has always been the "sick one", although nothing really serious. Most of the time we chalked it up to allergies/sinus issues or there was no real explanation. A couple months ago he started waking up in the early morning hours feeling sick to his stomach and vomiting mucous. No food, just clear mucous. We thought maybe he was having post nasal drip, or something similar, which was causing his nausea as well. He was also feeling sick throughout the day, and would ask to come home from school alot. I kept telling him he couldn't come home due to something as minor as that, and would make him stay. We took him to the ENT, thinking he'd tell us it was allergies. Instead, he found nasal polyps. While he told me it's not impossible for a kid to have these, he said it's very uncommon in "healthy kids" and recommended we get a few things done: allergy tests, pediatrician thorough exam, CT scan, and sweat test. Of course, I went home and googled CF and started freaking out immediately. This was a month ago. Below I'll describe what we've been through and the results since then.
Allergy tests - Negative. He was tested twice, both times they came up with nothing. This was shocking, since we've been treating him for allergies all his life.
CT scan - Luckily, he has no other polyps, and the nasacort he's been taking is shrinking them down, so as of right now, no surgery is needed. What the scan showed was that his sinuses have a thick wall of mucous around them. I guess this isn't normal...
Pediatrician - We just moved to this state 5 months ago, so he didn't have one yet. So this was a first time visit and I feel so lucky I found her, she's the best doctor my kids have ever had! She was very thorough, asked a million questions about his history and did an exam. And I wasn't expecting what she found. It appears his body is going through puberty in different stages. Certain areas appear to have not even started, while others are much further along (she called it stage one/stage 3). So she ordered a bone age scan.
Bone age scan - Wasn't too bad, was found to be about a year behind. He's 14 1/2, it came up 13 1/2. She spoke to a pediatric endo who gave her a list of what to get checked through labwork.
Labwork - All hormone levels came out good, nothing alarming. Still waiting to hear if the endo still wants to see him. She can't get him in until January, so we'll see what she says.
Sweat test - So as a lot of you know, I'm sure, this was a very nerve-wrecking day. I've done a ton of research about CF, so I knew what to expect and was hoping for low numbers. And yes, it was at a CF-accredited center, done by a woman who's been doing this her whole life! I felt confident in her. His number came back at 41. Borderline. Ugh. We waited two and a half weeks, and two days ago he went back for sweat test #2. He got a 42. Ugh.
So my question is, now what? With it being the holiday weekend, no one is around until Monday. She told me she'll talk to the dr, and there's a couple options he may suggest. Wait 6 months and do another sweat test, or come in to see the CF doctor, go through his whole medical history, and order genetics testing. I'm trying to stay calm through this whole thing, but it's hard!
I have three sons. My middle one has always been the "sick one", although nothing really serious. Most of the time we chalked it up to allergies/sinus issues or there was no real explanation. A couple months ago he started waking up in the early morning hours feeling sick to his stomach and vomiting mucous. No food, just clear mucous. We thought maybe he was having post nasal drip, or something similar, which was causing his nausea as well. He was also feeling sick throughout the day, and would ask to come home from school alot. I kept telling him he couldn't come home due to something as minor as that, and would make him stay. We took him to the ENT, thinking he'd tell us it was allergies. Instead, he found nasal polyps. While he told me it's not impossible for a kid to have these, he said it's very uncommon in "healthy kids" and recommended we get a few things done: allergy tests, pediatrician thorough exam, CT scan, and sweat test. Of course, I went home and googled CF and started freaking out immediately. This was a month ago. Below I'll describe what we've been through and the results since then.
Allergy tests - Negative. He was tested twice, both times they came up with nothing. This was shocking, since we've been treating him for allergies all his life.
CT scan - Luckily, he has no other polyps, and the nasacort he's been taking is shrinking them down, so as of right now, no surgery is needed. What the scan showed was that his sinuses have a thick wall of mucous around them. I guess this isn't normal...
Pediatrician - We just moved to this state 5 months ago, so he didn't have one yet. So this was a first time visit and I feel so lucky I found her, she's the best doctor my kids have ever had! She was very thorough, asked a million questions about his history and did an exam. And I wasn't expecting what she found. It appears his body is going through puberty in different stages. Certain areas appear to have not even started, while others are much further along (she called it stage one/stage 3). So she ordered a bone age scan.
Bone age scan - Wasn't too bad, was found to be about a year behind. He's 14 1/2, it came up 13 1/2. She spoke to a pediatric endo who gave her a list of what to get checked through labwork.
Labwork - All hormone levels came out good, nothing alarming. Still waiting to hear if the endo still wants to see him. She can't get him in until January, so we'll see what she says.
Sweat test - So as a lot of you know, I'm sure, this was a very nerve-wrecking day. I've done a ton of research about CF, so I knew what to expect and was hoping for low numbers. And yes, it was at a CF-accredited center, done by a woman who's been doing this her whole life! I felt confident in her. His number came back at 41. Borderline. Ugh. We waited two and a half weeks, and two days ago he went back for sweat test #2. He got a 42. Ugh.
So my question is, now what? With it being the holiday weekend, no one is around until Monday. She told me she'll talk to the dr, and there's a couple options he may suggest. Wait 6 months and do another sweat test, or come in to see the CF doctor, go through his whole medical history, and order genetics testing. I'm trying to stay calm through this whole thing, but it's hard!