Flovent question

T

Terry

Guest
"that the flovent doesnt reach all the way out to the outer bronchi where it needs to be treated by the flovent."

I'm not a doctor, but that is why we have to do Marissa' meds in this order:

Albuterol (To make sure she is as open as she can get)
Pulmozyme
Vest
Tobi (if she is on it)
Flovent

Everything before hand is supposed to clear her out and open her up for the Flovent.

Just be vigilant,
Terry
 
T

Terry

Guest
"that the flovent doesnt reach all the way out to the outer bronchi where it needs to be treated by the flovent."

I'm not a doctor, but that is why we have to do Marissa' meds in this order:

Albuterol (To make sure she is as open as she can get)
Pulmozyme
Vest
Tobi (if she is on it)
Flovent

Everything before hand is supposed to clear her out and open her up for the Flovent.

Just be vigilant,
Terry
 
T

Terry

Guest
"that the flovent doesnt reach all the way out to the outer bronchi where it needs to be treated by the flovent."

I'm not a doctor, but that is why we have to do Marissa' meds in this order:

Albuterol (To make sure she is as open as she can get)
Pulmozyme
Vest
Tobi (if she is on it)
Flovent

Everything before hand is supposed to clear her out and open her up for the Flovent.

Just be vigilant,
Terry
 
T

Terry

Guest
"that the flovent doesnt reach all the way out to the outer bronchi where it needs to be treated by the flovent."

I'm not a doctor, but that is why we have to do Marissa' meds in this order:

Albuterol (To make sure she is as open as she can get)
Pulmozyme
Vest
Tobi (if she is on it)
Flovent

Everything before hand is supposed to clear her out and open her up for the Flovent.

Just be vigilant,
Terry
 
T

Terry

Guest
"that the flovent doesnt reach all the way out to the outer bronchi where it needs to be treated by the flovent."
<br />
<br />I'm not a doctor, but that is why we have to do Marissa' meds in this order:
<br />
<br />Albuterol (To make sure she is as open as she can get)
<br />Pulmozyme
<br />Vest
<br />Tobi (if she is on it)
<br />Flovent
<br />
<br />Everything before hand is supposed to clear her out and open her up for the Flovent.
<br />
<br />Just be vigilant,
<br />Terry
 
C

Chilemom

New member
my daughter has flovent before her DX. with the DX after a couple of month, with her weight in good shape, and in the middle of the summer, me and the doctor decided to cut it for a couple of weeks just to see what happen... Nothing happen, she is perfectly ok without it, and the good thing is that what i remember one of the component of this med is cortisona...
I am not a doctor but I think that the body get use to medicines, so if Aidan dont need it at the moment, you can safe this for next time.
but, nothing is better than a mom´s heart to know what to do.
trust yourself
 
C

Chilemom

New member
my daughter has flovent before her DX. with the DX after a couple of month, with her weight in good shape, and in the middle of the summer, me and the doctor decided to cut it for a couple of weeks just to see what happen... Nothing happen, she is perfectly ok without it, and the good thing is that what i remember one of the component of this med is cortisona...
I am not a doctor but I think that the body get use to medicines, so if Aidan dont need it at the moment, you can safe this for next time.
but, nothing is better than a mom´s heart to know what to do.
trust yourself
 
C

Chilemom

New member
my daughter has flovent before her DX. with the DX after a couple of month, with her weight in good shape, and in the middle of the summer, me and the doctor decided to cut it for a couple of weeks just to see what happen... Nothing happen, she is perfectly ok without it, and the good thing is that what i remember one of the component of this med is cortisona...
I am not a doctor but I think that the body get use to medicines, so if Aidan dont need it at the moment, you can safe this for next time.
but, nothing is better than a mom´s heart to know what to do.
trust yourself
 
C

Chilemom

New member
my daughter has flovent before her DX. with the DX after a couple of month, with her weight in good shape, and in the middle of the summer, me and the doctor decided to cut it for a couple of weeks just to see what happen... Nothing happen, she is perfectly ok without it, and the good thing is that what i remember one of the component of this med is cortisona...
I am not a doctor but I think that the body get use to medicines, so if Aidan dont need it at the moment, you can safe this for next time.
but, nothing is better than a mom´s heart to know what to do.
trust yourself
 
C

Chilemom

New member
my daughter has flovent before her DX. with the DX after a couple of month, with her weight in good shape, and in the middle of the summer, me and the doctor decided to cut it for a couple of weeks just to see what happen... Nothing happen, she is perfectly ok without it, and the good thing is that what i remember one of the component of this med is cortisona...
<br />I am not a doctor but I think that the body get use to medicines, so if Aidan dont need it at the moment, you can safe this for next time.
<br />but, nothing is better than a mom´s heart to know what to do.
<br />trust yourself
 
N

Nightwriter

New member
Hi Elizabeth,

I think your common sense makes more sense than what this doctor is advising you to do regarding your son. She says that Flovent is an asthma medicine. Well, so is Albuterol. Albuterol opens the airways (which are swollen because of Asthma). Flovent is a cortosteroid that works by reducing the inflammatory reactions in the airways in response to allergens and irritants. Flovent is used to prevent bronchial asthma attacks.

Since most CFer's do have an asthma component and since inflammation can cause exacerbations, this drug is very useful. My doctor says that she doesn't understand how doctors prescribe albuterol and not Flovent (or something similar). She said by just prescribing a bronchodilator alone, without a cortosteroid, it is also possible for a person to end up with a bad asthma attack.

You may not notice any difference in Aiden, but that doesn't mean he shouldn't be on Flovent. I have Asthma, but I don't wheeze or cough. But when my asthma is controlled, I don't have exacerbations -- like Aiden who has probably done so well because the asthma component has been so well controlled. It is so great that Aiden is so stable...I would want a second opinion.
 
N

Nightwriter

New member
Hi Elizabeth,

I think your common sense makes more sense than what this doctor is advising you to do regarding your son. She says that Flovent is an asthma medicine. Well, so is Albuterol. Albuterol opens the airways (which are swollen because of Asthma). Flovent is a cortosteroid that works by reducing the inflammatory reactions in the airways in response to allergens and irritants. Flovent is used to prevent bronchial asthma attacks.

Since most CFer's do have an asthma component and since inflammation can cause exacerbations, this drug is very useful. My doctor says that she doesn't understand how doctors prescribe albuterol and not Flovent (or something similar). She said by just prescribing a bronchodilator alone, without a cortosteroid, it is also possible for a person to end up with a bad asthma attack.

You may not notice any difference in Aiden, but that doesn't mean he shouldn't be on Flovent. I have Asthma, but I don't wheeze or cough. But when my asthma is controlled, I don't have exacerbations -- like Aiden who has probably done so well because the asthma component has been so well controlled. It is so great that Aiden is so stable...I would want a second opinion.
 
N

Nightwriter

New member
Hi Elizabeth,

I think your common sense makes more sense than what this doctor is advising you to do regarding your son. She says that Flovent is an asthma medicine. Well, so is Albuterol. Albuterol opens the airways (which are swollen because of Asthma). Flovent is a cortosteroid that works by reducing the inflammatory reactions in the airways in response to allergens and irritants. Flovent is used to prevent bronchial asthma attacks.

Since most CFer's do have an asthma component and since inflammation can cause exacerbations, this drug is very useful. My doctor says that she doesn't understand how doctors prescribe albuterol and not Flovent (or something similar). She said by just prescribing a bronchodilator alone, without a cortosteroid, it is also possible for a person to end up with a bad asthma attack.

You may not notice any difference in Aiden, but that doesn't mean he shouldn't be on Flovent. I have Asthma, but I don't wheeze or cough. But when my asthma is controlled, I don't have exacerbations -- like Aiden who has probably done so well because the asthma component has been so well controlled. It is so great that Aiden is so stable...I would want a second opinion.
 
N

Nightwriter

New member
Hi Elizabeth,

I think your common sense makes more sense than what this doctor is advising you to do regarding your son. She says that Flovent is an asthma medicine. Well, so is Albuterol. Albuterol opens the airways (which are swollen because of Asthma). Flovent is a cortosteroid that works by reducing the inflammatory reactions in the airways in response to allergens and irritants. Flovent is used to prevent bronchial asthma attacks.

Since most CFer's do have an asthma component and since inflammation can cause exacerbations, this drug is very useful. My doctor says that she doesn't understand how doctors prescribe albuterol and not Flovent (or something similar). She said by just prescribing a bronchodilator alone, without a cortosteroid, it is also possible for a person to end up with a bad asthma attack.

You may not notice any difference in Aiden, but that doesn't mean he shouldn't be on Flovent. I have Asthma, but I don't wheeze or cough. But when my asthma is controlled, I don't have exacerbations -- like Aiden who has probably done so well because the asthma component has been so well controlled. It is so great that Aiden is so stable...I would want a second opinion.
 
N

Nightwriter

New member
Hi Elizabeth,
<br />
<br />I think your common sense makes more sense than what this doctor is advising you to do regarding your son. She says that Flovent is an asthma medicine. Well, so is Albuterol. Albuterol opens the airways (which are swollen because of Asthma). Flovent is a cortosteroid that works by reducing the inflammatory reactions in the airways in response to allergens and irritants. Flovent is used to prevent bronchial asthma attacks.
<br />
<br />Since most CFer's do have an asthma component and since inflammation can cause exacerbations, this drug is very useful. My doctor says that she doesn't understand how doctors prescribe albuterol and not Flovent (or something similar). She said by just prescribing a bronchodilator alone, without a cortosteroid, it is also possible for a person to end up with a bad asthma attack.
<br />
<br />You may not notice any difference in Aiden, but that doesn't mean he shouldn't be on Flovent. I have Asthma, but I don't wheeze or cough. But when my asthma is controlled, I don't have exacerbations -- like Aiden who has probably done so well because the asthma component has been so well controlled. It is so great that Aiden is so stable...I would want a second opinion.
<br />
 
F

folione

New member
We've run in to this sort of situation when different doctors at the same clinic/hospital have seen our son. I chalk it up to the fact that a bunch of the treatments for CF patients are off-label uses of drugs that were created and tested for other health problems...so the basis for our CF doctors prescribing them has a large personal-opinion factor involved; more so than something like tobi when pseudomonas is cultured, for example. What I've done in these situations is to be completely direct and tell Dr. A that Dr. B has been prescribing/advising something different which seems to work and I'd like to hear more about the pro/con of sticking with the old plan, etc. Maybe pushing more into the "what's the worst that can happen if we just keep doing flovent" can get the Dr. to say go ahead and keep it. You'll need a Rx to keep the flovent so if you think it is helpful you'll eventually have to get the Dr. to at least agree it does no harm.
 
F

folione

New member
We've run in to this sort of situation when different doctors at the same clinic/hospital have seen our son. I chalk it up to the fact that a bunch of the treatments for CF patients are off-label uses of drugs that were created and tested for other health problems...so the basis for our CF doctors prescribing them has a large personal-opinion factor involved; more so than something like tobi when pseudomonas is cultured, for example. What I've done in these situations is to be completely direct and tell Dr. A that Dr. B has been prescribing/advising something different which seems to work and I'd like to hear more about the pro/con of sticking with the old plan, etc. Maybe pushing more into the "what's the worst that can happen if we just keep doing flovent" can get the Dr. to say go ahead and keep it. You'll need a Rx to keep the flovent so if you think it is helpful you'll eventually have to get the Dr. to at least agree it does no harm.
 
F

folione

New member
We've run in to this sort of situation when different doctors at the same clinic/hospital have seen our son. I chalk it up to the fact that a bunch of the treatments for CF patients are off-label uses of drugs that were created and tested for other health problems...so the basis for our CF doctors prescribing them has a large personal-opinion factor involved; more so than something like tobi when pseudomonas is cultured, for example. What I've done in these situations is to be completely direct and tell Dr. A that Dr. B has been prescribing/advising something different which seems to work and I'd like to hear more about the pro/con of sticking with the old plan, etc. Maybe pushing more into the "what's the worst that can happen if we just keep doing flovent" can get the Dr. to say go ahead and keep it. You'll need a Rx to keep the flovent so if you think it is helpful you'll eventually have to get the Dr. to at least agree it does no harm.
 
F

folione

New member
We've run in to this sort of situation when different doctors at the same clinic/hospital have seen our son. I chalk it up to the fact that a bunch of the treatments for CF patients are off-label uses of drugs that were created and tested for other health problems...so the basis for our CF doctors prescribing them has a large personal-opinion factor involved; more so than something like tobi when pseudomonas is cultured, for example. What I've done in these situations is to be completely direct and tell Dr. A that Dr. B has been prescribing/advising something different which seems to work and I'd like to hear more about the pro/con of sticking with the old plan, etc. Maybe pushing more into the "what's the worst that can happen if we just keep doing flovent" can get the Dr. to say go ahead and keep it. You'll need a Rx to keep the flovent so if you think it is helpful you'll eventually have to get the Dr. to at least agree it does no harm.
 
F

folione

New member
We've run in to this sort of situation when different doctors at the same clinic/hospital have seen our son. I chalk it up to the fact that a bunch of the treatments for CF patients are off-label uses of drugs that were created and tested for other health problems...so the basis for our CF doctors prescribing them has a large personal-opinion factor involved; more so than something like tobi when pseudomonas is cultured, for example. What I've done in these situations is to be completely direct and tell Dr. A that Dr. B has been prescribing/advising something different which seems to work and I'd like to hear more about the pro/con of sticking with the old plan, etc. Maybe pushing more into the "what's the worst that can happen if we just keep doing flovent" can get the Dr. to say go ahead and keep it. You'll need a Rx to keep the flovent so if you think it is helpful you'll eventually have to get the Dr. to at least agree it does no harm.
 
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