Food Allergies - I am becoming allergic to EVERYTHING!

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Mrkdale

Guest
About 5 years ago I started having very loose stools, stopped absorbing my food and had a burning irritated stomach. I started noticing a correlation with milk and eventually figured out that I had a dairy allergy. Once I cut dairy out of my diet the burning in my stomach went away, I began absorbing my food again and everything went back to normal.


Since then I have slowly but surely become allergic to just about all foods including rice, soy, chicken/egg, beef, pork, fish/seafood, wheat, nuts, potatoes etc. I am basically living on two foods now, corn and quinoa. I can also have some green vegetables such as broccoli, asparagus and leafy greens. However, with history as a guide I know it is only a matter of time (maybe months) before I become allergic to these foods as well. I am beginning to get quite scared about what is going to happen in 12 months or so.


I have seen several Dr.s regarding this, including GI docs, Primary Care docs, an allergist and I mention it to every doctor I come in contact with including my Diabetes and Rheumatoid Arthritis doctor and I seem to get the same response from all of them, something like "hmm, don't know", then they shrug their shoulders and remind me to schedule another appointment.


The most recent Allergist I visited did take me serious and did all kinds of testing. All the Igg testing came back negative but then that is not a surprise as I haven't eaten most of these foods in several months and some even years. Once I figure out a new allergy I stop eating it, permanently. I did have one skin test come back positive for Soy but that was it. He is not convinced that these reactions to the foods are truly allergic responses. I know a good number of the reactions are allergic reactions because after consuming them I get what feels like a fever, red ears, itchy sinuses and my stomach becomes quite irritated and I stop absorbing food for about 36 hours . However there are some foods that still cause loose stools and upset stomach but don't have the true allergy symptoms. I refer to these as "irritation reactions". Things that are highly acidic such as citrus fruits are a good example of these. The allergist went on to say that he thinks the best thing I could do would be to find a great GI doctor who focuses on CF patients.




Is there anyone out there who has battled food allergies successfully? Or found good doctors for this? Any good tips or things you have learned in dealing with this? ANY information, advise or referrals for a good GI Dr. would be GREATLY appreciated!!


Kevin
 
B

bookworm

Guest
You may want to investigate No-Fenol Enzymes by Houston Enzymes. http://www.houston-enzymes.com/store/product.php?c=1&p=7

I didn't really respond to the usual CF enzymes, but find I can tolerate foods better with these. Makes the red cheek/fever/problematic stools/fatigue/sore stomach/itchy neck/poor digestion thing much better for me. However, I also found that I have to pay attention to the worst offenders and just avoid those. But it does greatly expand what I can eat without pain, and being able to digest them gives me a lot more nutrition.

You might want to add foods back slowly and determine which are the worst offenders while still taking the enzymes.
 

kristenj

New member
Hi Mrkdale, It is SO FRUSTRATING to have so many food allergies and I can definitely relate. I started to see a naturopath to address mine and it was very helpful. I have been walking the road of blending naturopathic medicine with conventional medicine for many years now. It may be possible that you have "leaky gut" syndrome. Many conventional medicine doctors don't even acknowledge this as a diagnosis but it is definitely legitimate especially considering all of the meds we CFers have been on. Basically what has happened with many of us CFers is that all of the antibiotics we have been on over the years has damaged our intestinal lining. The good news is that it can be repaired. You are smart to cut out the foods, at least for a time until your body clears them all out. What my naturopath had me do was cut out the foods for 3 months. Then you can start adding them back in one by one very slowly to see if there is any reaction. Typically, once you clear the food and heal your gut, the foods can often times be re-introduced. The things he had me take to heal my gut were not exactly cheap, but they seem to have worked. One is called Ultra-Inflammx (you can buy this on-line), the other is Biogenesis Intestinial Repair (you can also buy this on-line) and also a really intensive pro-biotic (I get mine from his office but you can look it up and see if you can get it on-line...It is called MicroFlora). Best of luck to you, and I can definitely relate. Sorry you have to deal with this also.
 

kristenj

New member
http://store.healthcoach7.com/prestashop/product.php?id_product=11 (Microflora)
http://www.bio-genesis.com/productpages/intestinal-repair-complex/intestinal-repair-complex.html (Intestinal Repair Complex) You can probably find it cheapest on Pure Formulas.com or Amazon
http://www.metagenics.com/mp/medical-foods/ultrainflamx

Shop around on line and see what prices you can find. These are the brands my naturopath carries in his office, but they are more expensive there so that is why I go on-line. I never buy anything that he wouldn't himself sell based on the questionable quality of supplements out there.

Like I said, in my personal opinion, I would go to a naturopath for healing of the gut! My CF docs don't seem to have as much knowledge in this area.
 
B

bookworm

Guest
Kristen has the right idea about investigating leaky gut. But I also want to let you know that if you don't get results with a practitioner after a reasonable trial, to move on.

I tried a number of naturopaths, including some famous ones, and found I got sicker because I was sensitive to the supplements and herb combinations -- which can be an issue if you have reactions to a lot of things.

However, there is a Chinese Medicine/Functional Medicine approach that has been practiced by a leading Chinese Medicine Doctor, who trains people who practice Chinese Medicine and has written textbooks for the profession. Here's his leaky gut information, that is aimed at practitioners, but will give you an understanding of the genesis and some of the treatments:
http://drjakefratkin.com/articles/leaky-gut-syndrome-a-modern-epidemic
http://drjakefratkin.com/wp-content/uploads/2012/12/Understanding-Leaky-Gut-Syndrome.pdf

The enzymes I suggested above are helpful for Candida, which can be part of the Leaky Gut problem.
 
M

Mrkdale

Guest
Thanks so much Kristen for all the info. Lots to "digest" and research. It is astonishing to me how little my cf docs seem to know about gut issues as well. And even more frightening how little they seem to care!
 
M

Mrkdale

Guest
Thanks for the info bookworm

You answered my next question. I was just looking at the supplements that Kristen mentioned and noticed the first two contain rice flower which is a significant allergen for me so your info is a great help!
 
M

Mrkdale

Guest
TCM Follow Up

So bookworm, did you see dr. Fratkin or did you find a local traditional Chinese medicine (TCM) practitioner? I have been looking here in my area (the San Francisco Bay Area) for someone and have found MANY local practitioners (we have a highly rated TCM school in SF) but most are generalists advertising to help with whatever the fashionable current health issues are. I would much prefer someone who is a specialist in the GI realm. Do you know of a good resource to find TCM practitioners?

And thanks so much for the information. I spent all weekend investigating this stuff, very interesting.

Kristen has the right idea about investigating leaky gut. But I also want to let you know that if you don't get results with a practitioner after a reasonable trial, to move on.

I tried a number of naturopaths, including some famous ones, and found I got sicker because I was sensitive to the supplements and herb combinations -- which can be an issue if you have reactions to a lot of things.

However, there is a Chinese Medicine/Functional Medicine approach that has been practiced by a leading Chinese Medicine Doctor, who trains people who practice Chinese Medicine and has written textbooks for the profession. Here's his leaky gut information, that is aimed at practitioners, but will give you an understanding of the genesis and some of the treatments:
http://drjakefratkin.com/articles/leaky-gut-syndrome-a-modern-epidemic
http://drjakefratkin.com/wp-content/uploads/2012/12/Understanding-Leaky-Gut-Syndrome.pdf

The enzymes I suggested above are helpful for Candida, which can be part of the Leaky Gut problem.
 

Epona

New member
Looks like people in this forum are well educated on leaky gut syndrome! I am so glad this issue is finally being discussed in the CF community - it really ties all of our symptoms together and encourages an understanding of the body as a whole system that cannot be reduced or separated by its parts. FYI, any G.I. that actually reads scientific literature once in a while will acknowledge that leaky gut syndrome exists, however, you must use their language: "increased intestinal permeability". You've gotten some good advice here in this thread, but I have a couple of additional suggestions for you.

The basic issue with leaky gut is that an imbalance in the populations of beneficial and pathogenic bacteria in the gut cause inflammation and increased permeability of the intestinal lining, allowing undigested food particles (mainly proteins), toxins, and pathogens to get into the blood and cause an immune or autoimmune reaction. This would explain any food allergies you have as well as any joint pain, inflammation, or degeneration (i.e. rheumatoid arthritis). The solution is the GAPS diet (gut and psychology syndrome), which eliminates the foods that contribute to the bacterial imbalance in the gut and heals the gut through supplementation with healing foods, fermented foods, powerful probiotics, and other things like Betaine HCl and fermented cod liver oil. I would HIGHLY recommend you get the book "Gut and Psychology Syndrome" by Dr. Natasha Campbell-McBride. It explains the science behind how all of this happens to us and how we can fix it.

It also seems that you are high risk for a small intestinal bacterial overgrowth (SIBO), and likely that you have very low stomach acid, making protein digestion very difficult. You can ask your GI doc to test for SIBO with a very simple hydrogen breath test, however beware that if you test positive they will likely just put you on more antibiotics which will make the whole issue worse in the long run. So that test may not be worth it, unless you want to "label" what you've got. The solution regardless of the test result would be the GAPS protocol to rebalance the gut flora. The other thing I would highly recommend is looking into supplementation with Betaine HCL. This is essentially a stomach acid supplement. If you have any regular stomach upset, trouble digesting proteins, or heartburn/acid reflux issues, then you very likely have low stomach acid. This can make your leaky gut issues a whole lot worse. I would think HCL supplementation could be a first and easy step here. And it's relatively cheap (online). I wrote an article about it if you're interested: http://cfnaturalhealth.weebly.com/1...lux-and-gut-infections-its-all-connected.html

I have much more info on nutrition, CF, and other GI issues on my website: www.cfnaturalhealth.weebly.com

Hope this helps a bit.

-Mikayla
 

LittleLab4CF

Super Moderator
Epona,

I was surprised at the remark about CFers potentially having low stomach acid. I didn’t know that low stomach acid either by volume or concentration was common in CF. Can you check on that? My impression is gastritis and GERD are common problems with CF.


LL
 

Epona

New member
Hi LL. Yes, GERD is caused by low stomach acid, as is any problem with heartburn or acid reflux. The main gist is that having low stomach acid (which is suppressed by a variety of things including antibiotics, yeast infections, GI infections, many drugs, and of course anti-acids) causes a pressure imbalance in the upper GI tract, causing the sphincter connecting the stomach and the esophagus to open and allow stomach acid to move up into the esophagus, irritating the lining and causing burning. High stomach acid is rare or non-existent, contrary to what anti-acid commercials want you to believe. The solution to this problem is NOT anti-acids or proton-pump inhibitors, it is supplementation with stomach acid (Betaine HCL) to kill a gut infection and correct the upper GI digestive process, and also supplementing with probiotics to restore beneficial flora and get the GI pressure back under control. And of course, a change in diet to reduce carbs and other substances that feed proliferation of pathogenic bacteria.

Please read my article for more info on this topic: http://cfnaturalhealth.weebly.com/1/...connected.html
 
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