Food Allergies

[CFHockeyMom]

I've been doing some research on food allergies because Sean has had a "rash" forever. The Dr.'s thought it was just eczema but it's not going away. The rash really looks more like little blisters and Sean says they itch like crazy. Anyway, I found that a gluten allergy can cause this exact type of skin condition (dermatitis herpetiformis). I also suspect Sean is allergic to milk - a common affliction in my family.

I'm wondering how many of you are allergic to dairy and/or gluten and what the heck you eat to keep your caloric intake up? Sean is a huge milk drinker, yogurt, cheese, bread, and cereal eater so I'm worried that if we eliminate them, we'll be cutting off the main sources of his calories.

Any suggestions/ideas would be great!

Thanks.

 

[CFHockeyMom]

I've been doing some research on food allergies because Sean has had a "rash" forever. The Dr.'s thought it was just eczema but it's not going away. The rash really looks more like little blisters and Sean says they itch like crazy. Anyway, I found that a gluten allergy can cause this exact type of skin condition (dermatitis herpetiformis). I also suspect Sean is allergic to milk - a common affliction in my family.

I'm wondering how many of you are allergic to dairy and/or gluten and what the heck you eat to keep your caloric intake up? Sean is a huge milk drinker, yogurt, cheese, bread, and cereal eater so I'm worried that if we eliminate them, we'll be cutting off the main sources of his calories.

Any suggestions/ideas would be great!

Thanks.

 

[CFHockeyMom]

I've been doing some research on food allergies because Sean has had a "rash" forever. The Dr.'s thought it was just eczema but it's not going away. The rash really looks more like little blisters and Sean says they itch like crazy. Anyway, I found that a gluten allergy can cause this exact type of skin condition (dermatitis herpetiformis). I also suspect Sean is allergic to milk - a common affliction in my family.

I'm wondering how many of you are allergic to dairy and/or gluten and what the heck you eat to keep your caloric intake up? Sean is a huge milk drinker, yogurt, cheese, bread, and cereal eater so I'm worried that if we eliminate them, we'll be cutting off the main sources of his calories.

Any suggestions/ideas would be great!

Thanks.

 

[lightNlife]

Sorry to hear about the food allergies. They can be a real challenge, especially with CF. Goodness, what a nightmare.

My sister struggles with food allergies, (mostly corn and wheat, which are in SO many things) but she doesn't have CF. Still, I've learned a lot about how to keep eating for CF needs when the cupboards mostly had other foods in it.

Here are a few things that worked well in terms of calories:
Baked potatoes with lots of canola spread (margarine) on it
Grilled chicken
AVOCADOS!!!!

Something else that made a big difference was that I kept a shaker of ScandiCal on hand. Normally I'm not a fan of Scandi products, but being able to add the little calorie granules to so many foods helped a lot.

That's all I can think of at the moment, but if I happen to remember any good recipes, I'll let you know.

-Lauren
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/2006/08/cf-and-nutrition-recommended-reading.html">CF and Nutrition--Recommended Reading</a>

 

[lightNlife]

Sorry to hear about the food allergies. They can be a real challenge, especially with CF. Goodness, what a nightmare.

My sister struggles with food allergies, (mostly corn and wheat, which are in SO many things) but she doesn't have CF. Still, I've learned a lot about how to keep eating for CF needs when the cupboards mostly had other foods in it.

Here are a few things that worked well in terms of calories:
Baked potatoes with lots of canola spread (margarine) on it
Grilled chicken
AVOCADOS!!!!

Something else that made a big difference was that I kept a shaker of ScandiCal on hand. Normally I'm not a fan of Scandi products, but being able to add the little calorie granules to so many foods helped a lot.

That's all I can think of at the moment, but if I happen to remember any good recipes, I'll let you know.

-Lauren
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/2006/08/cf-and-nutrition-recommended-reading.html">CF and Nutrition--Recommended Reading</a>

 

[lightNlife]

Sorry to hear about the food allergies. They can be a real challenge, especially with CF. Goodness, what a nightmare.

My sister struggles with food allergies, (mostly corn and wheat, which are in SO many things) but she doesn't have CF. Still, I've learned a lot about how to keep eating for CF needs when the cupboards mostly had other foods in it.

Here are a few things that worked well in terms of calories:
Baked potatoes with lots of canola spread (margarine) on it
Grilled chicken
AVOCADOS!!!!

Something else that made a big difference was that I kept a shaker of ScandiCal on hand. Normally I'm not a fan of Scandi products, but being able to add the little calorie granules to so many foods helped a lot.

That's all I can think of at the moment, but if I happen to remember any good recipes, I'll let you know.

-Lauren
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/2006/08/cf-and-nutrition-recommended-reading.html">CF and Nutrition--Recommended Reading</a>

 

[thelizardqueen]

Boost Plus Calories is Lactose and Gluten free. Each 237 ml serving has 360 calories. It also comes in an assortment of flavors: strawberry, chocolate, vanilla, mocha, and I believe there are even juice versions of it as well. Scandishake is Gluten free, but it does contain Lactose (powdered low fat milk).

<a target=_blank class=ftalternatingbarlinklarge href="http://www.boostbenefiber.com/boostproducts.php
">http://www.boostbenefiber.com/boostproducts.php
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.boost.com/recipes.html
">http://www.boost.com/recipes.html
</a>
Here is a link to all the Boost products, as well as recipes. Hope this helps.

 

[thelizardqueen]

Boost Plus Calories is Lactose and Gluten free. Each 237 ml serving has 360 calories. It also comes in an assortment of flavors: strawberry, chocolate, vanilla, mocha, and I believe there are even juice versions of it as well. Scandishake is Gluten free, but it does contain Lactose (powdered low fat milk).

<a target=_blank class=ftalternatingbarlinklarge href="http://www.boostbenefiber.com/boostproducts.php
">http://www.boostbenefiber.com/boostproducts.php
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.boost.com/recipes.html
">http://www.boost.com/recipes.html
</a>
Here is a link to all the Boost products, as well as recipes. Hope this helps.

 

[thelizardqueen]

Boost Plus Calories is Lactose and Gluten free. Each 237 ml serving has 360 calories. It also comes in an assortment of flavors: strawberry, chocolate, vanilla, mocha, and I believe there are even juice versions of it as well. Scandishake is Gluten free, but it does contain Lactose (powdered low fat milk).

<a target=_blank class=ftalternatingbarlinklarge href="http://www.boostbenefiber.com/boostproducts.php
">http://www.boostbenefiber.com/boostproducts.php
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.boost.com/recipes.html
">http://www.boost.com/recipes.html
</a>
Here is a link to all the Boost products, as well as recipes. Hope this helps.

 

[tammykrumrey]

Wow, food allergies and CF are a challenge. My nephew with CF is highly allergic to milk. Like throat swell up and not breath allergic. They said he would outgrow it, but here he is 15 years later and still struggling! He is 15 and has NEVER tasted ice cream!
He lives on baked potatoes. Breakfast, Lunch and Dinner. And for snacks too! Parkay butter has a squeeze type that he can have without butter in it. Everyone in our family keeps some on stock just for him. My sister uses Rice Milk when preparing meals, although he doesn't care for drinking it now that he is older. He used to when he was little. He loves a big bowl of Beef Stew or Chili. It is just amazing what all has milk in it! He tried a peice of cake at a CF fundraiser we had this past Saturday, and within seconds his lips and tongue started tingling.
He did have a g-tube put in about three years ago which has helped maintain his weight. But even at that he is only about 3% body fat<img src="i/expressions/face-icon-small-sad.gif" border="0"> And insurance will not cover the special formula needed for his tube feedings (one without milk) because he is still physically able to eat!
I do know it can be very challenging. Any of the items that we get from CF clinic to help with maintaining or gaining weight all have milk products in them. Ok for my kids, but not for my nephew.
Peanut butter is also a good calorie booster!
This is difficult, and I hope he is not allergic to foods. I have just seen my nephew really struggle with weight gain. Will they be running allergy test on him to determine if in fact this is the problem? If he is, I will ask my sister for more suggestions other than the ones you are getting.

 

[tammykrumrey]

Wow, food allergies and CF are a challenge. My nephew with CF is highly allergic to milk. Like throat swell up and not breath allergic. They said he would outgrow it, but here he is 15 years later and still struggling! He is 15 and has NEVER tasted ice cream!
He lives on baked potatoes. Breakfast, Lunch and Dinner. And for snacks too! Parkay butter has a squeeze type that he can have without butter in it. Everyone in our family keeps some on stock just for him. My sister uses Rice Milk when preparing meals, although he doesn't care for drinking it now that he is older. He used to when he was little. He loves a big bowl of Beef Stew or Chili. It is just amazing what all has milk in it! He tried a peice of cake at a CF fundraiser we had this past Saturday, and within seconds his lips and tongue started tingling.
He did have a g-tube put in about three years ago which has helped maintain his weight. But even at that he is only about 3% body fat<img src="i/expressions/face-icon-small-sad.gif" border="0"> And insurance will not cover the special formula needed for his tube feedings (one without milk) because he is still physically able to eat!
I do know it can be very challenging. Any of the items that we get from CF clinic to help with maintaining or gaining weight all have milk products in them. Ok for my kids, but not for my nephew.
Peanut butter is also a good calorie booster!
This is difficult, and I hope he is not allergic to foods. I have just seen my nephew really struggle with weight gain. Will they be running allergy test on him to determine if in fact this is the problem? If he is, I will ask my sister for more suggestions other than the ones you are getting.

 

[tammykrumrey]

Wow, food allergies and CF are a challenge. My nephew with CF is highly allergic to milk. Like throat swell up and not breath allergic. They said he would outgrow it, but here he is 15 years later and still struggling! He is 15 and has NEVER tasted ice cream!
He lives on baked potatoes. Breakfast, Lunch and Dinner. And for snacks too! Parkay butter has a squeeze type that he can have without butter in it. Everyone in our family keeps some on stock just for him. My sister uses Rice Milk when preparing meals, although he doesn't care for drinking it now that he is older. He used to when he was little. He loves a big bowl of Beef Stew or Chili. It is just amazing what all has milk in it! He tried a peice of cake at a CF fundraiser we had this past Saturday, and within seconds his lips and tongue started tingling.
He did have a g-tube put in about three years ago which has helped maintain his weight. But even at that he is only about 3% body fat<img src="i/expressions/face-icon-small-sad.gif" border="0"> And insurance will not cover the special formula needed for his tube feedings (one without milk) because he is still physically able to eat!
I do know it can be very challenging. Any of the items that we get from CF clinic to help with maintaining or gaining weight all have milk products in them. Ok for my kids, but not for my nephew.
Peanut butter is also a good calorie booster!
This is difficult, and I hope he is not allergic to foods. I have just seen my nephew really struggle with weight gain. Will they be running allergy test on him to determine if in fact this is the problem? If he is, I will ask my sister for more suggestions other than the ones you are getting.

 

[CFHockeyMom]

Thanks for the suggestions everyone.

We have a clinic appointment at the end of the month. I'm going to ask the dietician/Dr. then about getting Sean allergy tested. I think we could probably avoid one or the other with a little effort but avoiding both dairy and gluten is going to be next to impossible.

I'll keep you posted.

 

[CFHockeyMom]

Thanks for the suggestions everyone.

We have a clinic appointment at the end of the month. I'm going to ask the dietician/Dr. then about getting Sean allergy tested. I think we could probably avoid one or the other with a little effort but avoiding both dairy and gluten is going to be next to impossible.

I'll keep you posted.

 

[CFHockeyMom]

Thanks for the suggestions everyone.

We have a clinic appointment at the end of the month. I'm going to ask the dietician/Dr. then about getting Sean allergy tested. I think we could probably avoid one or the other with a little effort but avoiding both dairy and gluten is going to be next to impossible.

I'll keep you posted.