For those with tube feeders

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grantsmom

Guest
At our clinic I practiced using the zenpep with mayonaise and applesauce. They showed me to cut the end of the tube(the one that comes with the mickey button set)and place the tip on the end of the large syringe and then put the mixture directly into the mickey. The zenpep do look huge compared to the pancrecarb but I didn't have a problem with the beads getting clogged. I havn't tried it yet on Grant. I'm savoring my last bit of pancrecarb.
 
T

theLostMiler

New member
For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?

I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.
 
T

theLostMiler

New member
For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?

I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.
 
T

theLostMiler

New member
For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?
<br />
<br />I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.
<br />
<br />
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>theLostMiler</b></i>

For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?



I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.</end quote></div>

Alyssa could just swallow them (definitely easier), but she goes to sleep at 8:30 and I don't start running the tube until 11:00. So we push them through.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>theLostMiler</b></i>

For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?



I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.</end quote>

Alyssa could just swallow them (definitely easier), but she goes to sleep at 8:30 and I don't start running the tube until 11:00. So we push them through.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>theLostMiler</b></i>
<br />
<br />For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?
<br />
<br />
<br />
<br />I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.</end quote>
<br />
<br />Alyssa could just swallow them (definitely easier), but she goes to sleep at 8:30 and I don't start running the tube until 11:00. So we push them through.
<br />
<br />
 
R

Rebjane

Super Moderator
Zenpep did not work for Maggie. If possible, try getting free samples from your CF clinic before getting a script for the Zenpep; that way you can try it out before wasting $ on it. The beads are big inside the capsule, not like Pancrecarb.
 
R

Rebjane

Super Moderator
Zenpep did not work for Maggie. If possible, try getting free samples from your CF clinic before getting a script for the Zenpep; that way you can try it out before wasting $ on it. The beads are big inside the capsule, not like Pancrecarb.
 
R

Rebjane

Super Moderator
Zenpep did not work for Maggie. If possible, try getting free samples from your CF clinic before getting a script for the Zenpep; that way you can try it out before wasting $ on it. The beads are big inside the capsule, not like Pancrecarb.
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?

I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.</end quote></div>

For some kids one dose of enzymes is not enough for a whole night's worth of formula (just like you wouldn't take enzymes at breakfast and expect them to cover you for lunch too.) We hope using a formula made with mct fat (easier for those with cf to digest) and broken down protein will make it unnecessary for her to take more than one dose at bedtime and another when she wakes up, but there is a chance this may not work out. We'll have to see.

We plan on starting her feeds as soon as possible after she takes her enzymes to avoid the tube issue vs. waking her up at the beginning... hopefully it won't be an issue having to start the feed before she's asleep. In the morning though, the feed is scheduled to be done before she normally gets up, so we'll see how that goes, waking her up enough to take enzymes when we disconnect her.
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?

I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.</end quote>

For some kids one dose of enzymes is not enough for a whole night's worth of formula (just like you wouldn't take enzymes at breakfast and expect them to cover you for lunch too.) We hope using a formula made with mct fat (easier for those with cf to digest) and broken down protein will make it unnecessary for her to take more than one dose at bedtime and another when she wakes up, but there is a chance this may not work out. We'll have to see.

We plan on starting her feeds as soon as possible after she takes her enzymes to avoid the tube issue vs. waking her up at the beginning... hopefully it won't be an issue having to start the feed before she's asleep. In the morning though, the feed is scheduled to be done before she normally gets up, so we'll see how that goes, waking her up enough to take enzymes when we disconnect her.
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?
<br />
<br />I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.</end quote>
<br />
<br />For some kids one dose of enzymes is not enough for a whole night's worth of formula (just like you wouldn't take enzymes at breakfast and expect them to cover you for lunch too.) We hope using a formula made with mct fat (easier for those with cf to digest) and broken down protein will make it unnecessary for her to take more than one dose at bedtime and another when she wakes up, but there is a chance this may not work out. We'll have to see.
<br />
<br />We plan on starting her feeds as soon as possible after she takes her enzymes to avoid the tube issue vs. waking her up at the beginning... hopefully it won't be an issue having to start the feed before she's asleep. In the morning though, the feed is scheduled to be done before she normally gets up, so we'll see how that goes, waking her up enough to take enzymes when we disconnect her.
 
T

theLostMiler

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>theLostMiler</b></i>



For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?







I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.</end quote></div>



Alyssa could just swallow them (definitely easier), but she goes to sleep at 8:30 and I don't start running the tube until 11:00. So we push them through.</end quote></div>



Thanks to you and Harriett,

I forgot about the difference children need to sleep. Thanks for clearing that up. It is hard to wake up enough to take enzymes though haha.
 
T

theLostMiler

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>theLostMiler</b></i>



For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?







I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.</end quote>



Alyssa could just swallow them (definitely easier), but she goes to sleep at 8:30 and I don't start running the tube until 11:00. So we push them through.</end quote>



Thanks to you and Harriett,

I forgot about the difference children need to sleep. Thanks for clearing that up. It is hard to wake up enough to take enzymes though haha.
 
T

theLostMiler

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>
<br />
<br /><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>theLostMiler</b></i>
<br />
<br />
<br />
<br />For the kids on g-tubes? Why are the enzymes being pushed into the tube? Couldnt they swallow them?
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />I am just wondering if I am supposed to be doing something different? I take my zen pep dose before bed and when I wake up, and I just swallow them, I dont take any in the middle of the night and I dont mix any into the food.</end quote>
<br />
<br />
<br />
<br />Alyssa could just swallow them (definitely easier), but she goes to sleep at 8:30 and I don't start running the tube until 11:00. So we push them through.</end quote>
<br />
<br />
<br />
<br />Thanks to you and Harriett,
<br />
<br />I forgot about the difference children need to sleep. Thanks for clearing that up. It is hard to wake up enough to take enzymes though haha.
<br />
 
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