<P>Tomorrow the national CFF arrives for a day of videotapping my son and I. We were chosen because of my involvement with the Vertex 770 trial. The video is being made for the NACFC conference to show scientists behind the scenes in the search for a cure for cf what a day in the life of someone with cf is like (or a 2 for one in the case of our family). I'll be sure to place a link of it here once it is published. You may have seen last years with Capri and her mother and in 2009 was Emily Schaler. They are arriving at 6:30am and shooting until 3pm!! I think one of the most exciting things about us being chosen is that the CFF is choosing to acknowledge a person with cf who passes the sweat test and has no definite symptoms just 2 cf genes (my son). It will be interesting to see how it comes out...hopefully accurate. Wish us luck! </P>
foundation to shoot video on son & I - very excited!
- Thread starter LouLou
- Start date
<P>Tomorrow the national CFF arrives for a day of videotapping my son and I. We were chosen because of my involvement with the Vertex 770 trial. The video is being made for the NACFC conferencetoshow scientists behind the scenes in the search fora cure for cf what a day in the life of someone with cf is like (ora 2 for one in the case of our family).I'll be sure to place a link of it here once it is published. You may have seen last years with Capri and her motherand in 2009 was Emily Schaler.Theyare arriving at6:30am and shooting until 3pm!! I think one of the most exciting things about us being chosen is that the CFF is choosing to acknowledge a person with cf who passes the sweat test and has no definite symptoms just 2 cf genes (my son). It will be interesting to see how it comes out...hopefully accurate. Wish us luck!</P>
<P>Tomorrow the national CFF arrives for a day of videotapping my son and I. We were chosen because of my involvement with the Vertex 770 trial. The video is being made for the NACFC conferencetoshow scientists behind the scenes in the search fora cure for cf what a day in the life of someone with cf is like (ora 2 for one in the case of our family).I'll be sure to place a link of it here once it is published. You may have seen last years with Capri and her motherand in 2009 was Emily Schaler.Theyare arriving at6:30am and shooting until 3pm!! I think one of the most exciting things about us being chosen is that the CFF is choosing to acknowledge a person with cf who passes the sweat test and has no definite symptoms just 2 cf genes (my son). It will be interesting to see how it comes out...hopefully accurate. Wish us luck!<BR></P>
beautifulsoul
Super Moderator
Very excited for you and your son! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Best of luck!
Hugs to you
Hugs to you
beautifulsoul
Super Moderator
Very excited for you and your son! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Best of luck!
Hugs to you
Hugs to you
beautifulsoul
Super Moderator
Very excited for you and your son! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Best of luck!
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<br />Hugs to you
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<br />Hugs to you