Friend w/CF

[sky]

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<br />This is my first time writting in this I guess this is a newsletter. I was diagnosed at 21 and knew something was wrong,but never knew something this serious.I grew up on the streets of NYC and have been in the 12 step fellowship(N.A.) for the past 27 years. I was using illicet drugs until I was 27, had a pretty bad habbit and smoked for about 18 years and then had to stop for apparent reasons. I I am now 55 and am now starting to do treatments. I am a skydiver,and bodybuilder. I did anything I want until I got the T.B.. I was on world record attemps and jumped using oxygen like the rest. We all need oxygen when jumping over 16000 feet. I have been in compitions and really never gave this disease any of the attention the doctors told had me to. I am now suffering with MRSA and TB,,,so guess what,, I am doing what the doctor tells me to now,cause I do not want to croak,but croaking is a reality and need to face the fact that I am probably comming to the end of a great life that I was fortunate to have been able to live. My wife tells me that I will probably out live her,, but in reality,, I do not think so.I am writting this cause I just can't figure this disease out.I am familar with many other types of diseases and understand them because they follow some kind of pattern,yet this disease is a tricky 1 for me. I always wonder why God gave me a break. I guess I haven't done the job I was sent here to do yet. Take care and keep up what it is you are doing, it seems to be working. It is always good to hear about someone older than I that also has this disease, so maybe with this new attitude,I may just beat this

 

[D]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sarabeth87</b></i>

We even share nebulizers sometimes.</end quote></div>


Not to be a jerk or anything but that is really unwise. I would strongly suggest you stop doing that. My CF doc looked horrified when he found out a patient at my clinic was sharing her nebs with another CF patient.

 

[D]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sarabeth87</b></i>

We even share nebulizers sometimes.</end quote>


Not to be a jerk or anything but that is really unwise. I would strongly suggest you stop doing that. My CF doc looked horrified when he found out a patient at my clinic was sharing her nebs with another CF patient.

 

[D]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sarabeth87</b></i>
<br />
<br /> We even share nebulizers sometimes.</end quote>
<br />
<br />
<br />Not to be a jerk or anything but that is really unwise. I would strongly suggest you stop doing that. My CF doc looked horrified when he found out a patient at my clinic was sharing her nebs with another CF patient.

 

[rubyroselee]

Hi Sara,

Since this post came back up, I'll put in my $0.02. I have attended CF camps since I was 13 years old. I never really knew or understood anything about the 3-foot rule and never paid any attention to that when I was at camp. Even though I don't attend camp anymore, I am still friends with a few of them and see them from time to time. Nowadays, I pay more attention to the 3-foot rule. I think it is GREAT to have CF friends and I think it really does a lot for a CFers well-being to be friends and to be able to talk to one another face-to-face. So, as long as you're cautious, I think it should be just fine (and as long as no one has cepacia and/or MRSA).

 

[rubyroselee]

Hi Sara,

Since this post came back up, I'll put in my $0.02. I have attended CF camps since I was 13 years old. I never really knew or understood anything about the 3-foot rule and never paid any attention to that when I was at camp. Even though I don't attend camp anymore, I am still friends with a few of them and see them from time to time. Nowadays, I pay more attention to the 3-foot rule. I think it is GREAT to have CF friends and I think it really does a lot for a CFers well-being to be friends and to be able to talk to one another face-to-face. So, as long as you're cautious, I think it should be just fine (and as long as no one has cepacia and/or MRSA).

 

[rubyroselee]

Hi Sara,
<br />
<br />Since this post came back up, I'll put in my $0.02. I have attended CF camps since I was 13 years old. I never really knew or understood anything about the 3-foot rule and never paid any attention to that when I was at camp. Even though I don't attend camp anymore, I am still friends with a few of them and see them from time to time. Nowadays, I pay more attention to the 3-foot rule. I think it is GREAT to have CF friends and I think it really does a lot for a CFers well-being to be friends and to be able to talk to one another face-to-face. So, as long as you're cautious, I think it should be just fine (and as long as no one has cepacia and/or MRSA).