Friends

craigsmum

New member
Hi liz here
I can't believe that some of your friends would behave like this. I must say my best friend has been great. My family wanted to learn all the treatments we have to do for craig. I wouldn't take craig anywere were there will be smoking going on. Have you told them in plain english what smoking in the same place as your child will do to there lungs etc.At least you have some good friends who put the health of your child first.
 

craigsmum

New member
Hi liz here
I can't believe that some of your friends would behave like this. I must say my best friend has been great. My family wanted to learn all the treatments we have to do for craig. I wouldn't take craig anywere were there will be smoking going on. Have you told them in plain english what smoking in the same place as your child will do to there lungs etc.At least you have some good friends who put the health of your child first.
 

craigsmum

New member
Hi liz here
I can't believe that some of your friends would behave like this. I must say my best friend has been great. My family wanted to learn all the treatments we have to do for craig. I wouldn't take craig anywere were there will be smoking going on. Have you told them in plain english what smoking in the same place as your child will do to there lungs etc.At least you have some good friends who put the health of your child first.
 

craigsmum

New member
Hi liz here
I can't believe that some of your friends would behave like this. I must say my best friend has been great. My family wanted to learn all the treatments we have to do for craig. I wouldn't take craig anywere were there will be smoking going on. Have you told them in plain english what smoking in the same place as your child will do to there lungs etc.At least you have some good friends who put the health of your child first.
 

craigsmum

New member
Hi liz here
<br />I can't believe that some of your friends would behave like this. I must say my best friend has been great. My family wanted to learn all the treatments we have to do for craig. I wouldn't take craig anywere were there will be smoking going on. Have you told them in plain english what smoking in the same place as your child will do to there lungs etc.At least you have some good friends who put the health of your child first.
 

Liza

New member
All too often it's the tough times that true friendship surfaces. All these people that you have mentioned are mere acquantences (sp) in your life. Some may have seemed like real friends but have proven otherwise. Somewhere I read that a person only truelly has a handful of true life long friend in their life. Those are the ones you can count on for anything and everything.

Family on the otherhand... not trying to make excuses, but sometimes they just need time to adjust. I don't recall anyone in my family other than my parents asking "what is CF". It was completely new to our family, my girls were and still are the only ones on both sides of our family with CF. And we have a HUGE family. 13 aunts and uncles on my dad's side alone. Later I found out that my aunts had done their own research to learn a little about CF. As one would learn they'd share it with the others. As the years have gone by some have learned way more, others just know the basics. What they all know is the importance of keeping the lungs as healthy as possible.

Sometimes people just don't want to know/hear/learn too much about a fatal disease. Fear? Who knows. Some people just don't want to know and you can't make them want to know. Keep it simple and if you have explained that smoke is not an option for your child and still they don't care, then simply keep him away. There are going to be times though that you will notice and wish, like the bonfire, that he could partake.

I have no idea about your church though. Well the people in the nursery are usually volunteers. They are just uneasy about the enzymes, afraid to give them to him wrong, too much, not enough, what if he doesn't swallow them etc. They just don't want the responsibility. Myself, I wouldn't ask them, then again, we didn't have a nursery.

Embrace the friends you have that are wanting to know and learn, the others are just passing through your life.
 

Liza

New member
All too often it's the tough times that true friendship surfaces. All these people that you have mentioned are mere acquantences (sp) in your life. Some may have seemed like real friends but have proven otherwise. Somewhere I read that a person only truelly has a handful of true life long friend in their life. Those are the ones you can count on for anything and everything.

Family on the otherhand... not trying to make excuses, but sometimes they just need time to adjust. I don't recall anyone in my family other than my parents asking "what is CF". It was completely new to our family, my girls were and still are the only ones on both sides of our family with CF. And we have a HUGE family. 13 aunts and uncles on my dad's side alone. Later I found out that my aunts had done their own research to learn a little about CF. As one would learn they'd share it with the others. As the years have gone by some have learned way more, others just know the basics. What they all know is the importance of keeping the lungs as healthy as possible.

Sometimes people just don't want to know/hear/learn too much about a fatal disease. Fear? Who knows. Some people just don't want to know and you can't make them want to know. Keep it simple and if you have explained that smoke is not an option for your child and still they don't care, then simply keep him away. There are going to be times though that you will notice and wish, like the bonfire, that he could partake.

I have no idea about your church though. Well the people in the nursery are usually volunteers. They are just uneasy about the enzymes, afraid to give them to him wrong, too much, not enough, what if he doesn't swallow them etc. They just don't want the responsibility. Myself, I wouldn't ask them, then again, we didn't have a nursery.

Embrace the friends you have that are wanting to know and learn, the others are just passing through your life.
 

Liza

New member
All too often it's the tough times that true friendship surfaces. All these people that you have mentioned are mere acquantences (sp) in your life. Some may have seemed like real friends but have proven otherwise. Somewhere I read that a person only truelly has a handful of true life long friend in their life. Those are the ones you can count on for anything and everything.

Family on the otherhand... not trying to make excuses, but sometimes they just need time to adjust. I don't recall anyone in my family other than my parents asking "what is CF". It was completely new to our family, my girls were and still are the only ones on both sides of our family with CF. And we have a HUGE family. 13 aunts and uncles on my dad's side alone. Later I found out that my aunts had done their own research to learn a little about CF. As one would learn they'd share it with the others. As the years have gone by some have learned way more, others just know the basics. What they all know is the importance of keeping the lungs as healthy as possible.

Sometimes people just don't want to know/hear/learn too much about a fatal disease. Fear? Who knows. Some people just don't want to know and you can't make them want to know. Keep it simple and if you have explained that smoke is not an option for your child and still they don't care, then simply keep him away. There are going to be times though that you will notice and wish, like the bonfire, that he could partake.

I have no idea about your church though. Well the people in the nursery are usually volunteers. They are just uneasy about the enzymes, afraid to give them to him wrong, too much, not enough, what if he doesn't swallow them etc. They just don't want the responsibility. Myself, I wouldn't ask them, then again, we didn't have a nursery.

Embrace the friends you have that are wanting to know and learn, the others are just passing through your life.
 

Liza

New member
All too often it's the tough times that true friendship surfaces. All these people that you have mentioned are mere acquantences (sp) in your life. Some may have seemed like real friends but have proven otherwise. Somewhere I read that a person only truelly has a handful of true life long friend in their life. Those are the ones you can count on for anything and everything.

Family on the otherhand... not trying to make excuses, but sometimes they just need time to adjust. I don't recall anyone in my family other than my parents asking "what is CF". It was completely new to our family, my girls were and still are the only ones on both sides of our family with CF. And we have a HUGE family. 13 aunts and uncles on my dad's side alone. Later I found out that my aunts had done their own research to learn a little about CF. As one would learn they'd share it with the others. As the years have gone by some have learned way more, others just know the basics. What they all know is the importance of keeping the lungs as healthy as possible.

Sometimes people just don't want to know/hear/learn too much about a fatal disease. Fear? Who knows. Some people just don't want to know and you can't make them want to know. Keep it simple and if you have explained that smoke is not an option for your child and still they don't care, then simply keep him away. There are going to be times though that you will notice and wish, like the bonfire, that he could partake.

I have no idea about your church though. Well the people in the nursery are usually volunteers. They are just uneasy about the enzymes, afraid to give them to him wrong, too much, not enough, what if he doesn't swallow them etc. They just don't want the responsibility. Myself, I wouldn't ask them, then again, we didn't have a nursery.

Embrace the friends you have that are wanting to know and learn, the others are just passing through your life.
 

Liza

New member
All too often it's the tough times that true friendship surfaces. All these people that you have mentioned are mere acquantences (sp) in your life. Some may have seemed like real friends but have proven otherwise. Somewhere I read that a person only truelly has a handful of true life long friend in their life. Those are the ones you can count on for anything and everything.
<br />
<br />Family on the otherhand... not trying to make excuses, but sometimes they just need time to adjust. I don't recall anyone in my family other than my parents asking "what is CF". It was completely new to our family, my girls were and still are the only ones on both sides of our family with CF. And we have a HUGE family. 13 aunts and uncles on my dad's side alone. Later I found out that my aunts had done their own research to learn a little about CF. As one would learn they'd share it with the others. As the years have gone by some have learned way more, others just know the basics. What they all know is the importance of keeping the lungs as healthy as possible.
<br />
<br />Sometimes people just don't want to know/hear/learn too much about a fatal disease. Fear? Who knows. Some people just don't want to know and you can't make them want to know. Keep it simple and if you have explained that smoke is not an option for your child and still they don't care, then simply keep him away. There are going to be times though that you will notice and wish, like the bonfire, that he could partake.
<br />
<br />I have no idea about your church though. Well the people in the nursery are usually volunteers. They are just uneasy about the enzymes, afraid to give them to him wrong, too much, not enough, what if he doesn't swallow them etc. They just don't want the responsibility. Myself, I wouldn't ask them, then again, we didn't have a nursery.
<br />
<br />Embrace the friends you have that are wanting to know and learn, the others are just passing through your life.
<br />
<br />
<br />
<br />
 

BabyBeauty

New member
I am sorry you have to deal with this. I went through the same thing. This disease really does show who your real friends are. Some of my best friends don't know and don't ask anything about CF - but others...have been amazing! I have taken those people that care and brought them closer to us.

That is a shame about the church. I hope you find a group at the church that gets excited to raise awareness.
 

BabyBeauty

New member
I am sorry you have to deal with this. I went through the same thing. This disease really does show who your real friends are. Some of my best friends don't know and don't ask anything about CF - but others...have been amazing! I have taken those people that care and brought them closer to us.

That is a shame about the church. I hope you find a group at the church that gets excited to raise awareness.
 

BabyBeauty

New member
I am sorry you have to deal with this. I went through the same thing. This disease really does show who your real friends are. Some of my best friends don't know and don't ask anything about CF - but others...have been amazing! I have taken those people that care and brought them closer to us.

That is a shame about the church. I hope you find a group at the church that gets excited to raise awareness.
 

BabyBeauty

New member
I am sorry you have to deal with this. I went through the same thing. This disease really does show who your real friends are. Some of my best friends don't know and don't ask anything about CF - but others...have been amazing! I have taken those people that care and brought them closer to us.

That is a shame about the church. I hope you find a group at the church that gets excited to raise awareness.
 

BabyBeauty

New member
I am sorry you have to deal with this. I went through the same thing. This disease really does show who your real friends are. Some of my best friends don't know and don't ask anything about CF - but others...have been amazing! I have taken those people that care and brought them closer to us.
<br />
<br />That is a shame about the church. I hope you find a group at the church that gets excited to raise awareness.
 

PlumPerfect

New member
thank for all the reply s I know over time i will get better and I will see the true faces of real and unreal friends.

the thing with administering the enzymes at church everyone was fine a first and one day the director came in and they had paged me that day because they had a question, so then I gave it to him while I was there and explained to the girl what this does for him and the director heard it looked like she wanted to cry and by Monday I had a call from the director. I am sure it a fear and liability thing, if they only knew what anything about it. I am hopeing I get someone excited too. I won't give up that is for sure, and if they don't want to participate i will find someone who ill..
 

PlumPerfect

New member
thank for all the reply s I know over time i will get better and I will see the true faces of real and unreal friends.

the thing with administering the enzymes at church everyone was fine a first and one day the director came in and they had paged me that day because they had a question, so then I gave it to him while I was there and explained to the girl what this does for him and the director heard it looked like she wanted to cry and by Monday I had a call from the director. I am sure it a fear and liability thing, if they only knew what anything about it. I am hopeing I get someone excited too. I won't give up that is for sure, and if they don't want to participate i will find someone who ill..
 

PlumPerfect

New member
thank for all the reply s I know over time i will get better and I will see the true faces of real and unreal friends.

the thing with administering the enzymes at church everyone was fine a first and one day the director came in and they had paged me that day because they had a question, so then I gave it to him while I was there and explained to the girl what this does for him and the director heard it looked like she wanted to cry and by Monday I had a call from the director. I am sure it a fear and liability thing, if they only knew what anything about it. I am hopeing I get someone excited too. I won't give up that is for sure, and if they don't want to participate i will find someone who ill..
 

PlumPerfect

New member
thank for all the reply s I know over time i will get better and I will see the true faces of real and unreal friends.

the thing with administering the enzymes at church everyone was fine a first and one day the director came in and they had paged me that day because they had a question, so then I gave it to him while I was there and explained to the girl what this does for him and the director heard it looked like she wanted to cry and by Monday I had a call from the director. I am sure it a fear and liability thing, if they only knew what anything about it. I am hopeing I get someone excited too. I won't give up that is for sure, and if they don't want to participate i will find someone who ill..
 

PlumPerfect

New member
thank for all the reply s I know over time i will get better and I will see the true faces of real and unreal friends.
<br />
<br />the thing with administering the enzymes at church everyone was fine a first and one day the director came in and they had paged me that day because they had a question, so then I gave it to him while I was there and explained to the girl what this does for him and the director heard it looked like she wanted to cry and by Monday I had a call from the director. I am sure it a fear and liability thing, if they only knew what anything about it. I am hopeing I get someone excited too. I won't give up that is for sure, and if they don't want to participate i will find someone who ill..
 
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