Frustrated, scared, alone....

ladybug · Feb 24, 2008

Hello everyone.

Well today I hit a bottom I hadn't hit in a long time. Really just spent time feeling sorry for myself and sulking cause to be honest, I feel like NOTHING I do is going to effect me bouncing back anymore from these "exacerbations". I feel kinda helpless, which I don't usually feel. I'm usually very proactive and very "strong" (I think) and do things like I should, but the past few days have been extremely trying for me.

First, I was put on IV meds on Feb. 14. I got a small amount of relief and coughed a bit less within about 4 days, but not the usual "dry" feeling I have gotten in the past from them. This in and of itself discouraged me. I had posted a question about how long it usually takes everyone to start feeling "good" on IV meds and most responded with 2-3 days (which I usually also would respond, except for this time). Well, about days 4-7 I started to feel my mucus thin and turn from green to yellow (sorry if TMI). I had a bit more energy and made it to the gym. Although I still was coughing occasionally the thick stuff (which usually when I'm on IVs doesn't happen at all), most of it was thinning, which I found a positive turn of events.

Well, about day 7-8 now I'm coughing nearly my "usual" amount and consistency. It is back to thicker and greener and I feel lethargic. I'm feeling a bit better than when I initially went on IVs, but not a progressively upward trend (as is usually the case for me and most I would assume?) Now, I feel even as the days go on my mucus is getting thicker, I'm coughing more, etc.

I'm totally bummed. I know I'm on meds I'm sensitive to, cause my nurse said they'd call if changes needed to be made, and I never heard from them or the home health pharmacy. So, what is going on? Why would I be on antibiotics for 4 days and finally start seeing a small amount of improvement and then go straight back to the "same ol same ol crap" 2 days after I improved??? I have been doing my treatments and drinking water and if anything even being more active. Yet, I feel worse and worse. I'm really feeling alone right now and like I can't even be excited for IV meds to work anymore. I usually only feel "dry" from them for about 2-3 days once I'm off of them, but this is ridiculous to feel worse in the MIDDLE of a course of them.

I know everyone will tell me to call my doc and explain it to her. I do already plan on doing this first thing on Monday. I was just hoping in the meantime someone has some advice or possibly has gone through this and still seen positive results. I'm just really depressed right now and hate feeling this way.

Sorry to rant. If anyone has experienced this or has any comments, ideas, etc. PLEASE share. I just feel really alone right now since it seems most on this site who are on antibiotics are seeing relief (not everyone, but most) and I'm doing all I can and not seeing relief. Urgh.....

Thanks for any messages you may have. I know down deep I'm not alone in my fears and frustrations and I thank God I have people like you who do understand.

<img src="i/expressions/heart.gif" border="0">

ladybug · Feb 24, 2008

Hello everyone.

Well today I hit a bottom I hadn't hit in a long time. Really just spent time feeling sorry for myself and sulking cause to be honest, I feel like NOTHING I do is going to effect me bouncing back anymore from these "exacerbations". I feel kinda helpless, which I don't usually feel. I'm usually very proactive and very "strong" (I think) and do things like I should, but the past few days have been extremely trying for me.

First, I was put on IV meds on Feb. 14. I got a small amount of relief and coughed a bit less within about 4 days, but not the usual "dry" feeling I have gotten in the past from them. This in and of itself discouraged me. I had posted a question about how long it usually takes everyone to start feeling "good" on IV meds and most responded with 2-3 days (which I usually also would respond, except for this time). Well, about days 4-7 I started to feel my mucus thin and turn from green to yellow (sorry if TMI). I had a bit more energy and made it to the gym. Although I still was coughing occasionally the thick stuff (which usually when I'm on IVs doesn't happen at all), most of it was thinning, which I found a positive turn of events.

Well, about day 7-8 now I'm coughing nearly my "usual" amount and consistency. It is back to thicker and greener and I feel lethargic. I'm feeling a bit better than when I initially went on IVs, but not a progressively upward trend (as is usually the case for me and most I would assume?) Now, I feel even as the days go on my mucus is getting thicker, I'm coughing more, etc.

I'm totally bummed. I know I'm on meds I'm sensitive to, cause my nurse said they'd call if changes needed to be made, and I never heard from them or the home health pharmacy. So, what is going on? Why would I be on antibiotics for 4 days and finally start seeing a small amount of improvement and then go straight back to the "same ol same ol crap" 2 days after I improved??? I have been doing my treatments and drinking water and if anything even being more active. Yet, I feel worse and worse. I'm really feeling alone right now and like I can't even be excited for IV meds to work anymore. I usually only feel "dry" from them for about 2-3 days once I'm off of them, but this is ridiculous to feel worse in the MIDDLE of a course of them.

I know everyone will tell me to call my doc and explain it to her. I do already plan on doing this first thing on Monday. I was just hoping in the meantime someone has some advice or possibly has gone through this and still seen positive results. I'm just really depressed right now and hate feeling this way.

Sorry to rant. If anyone has experienced this or has any comments, ideas, etc. PLEASE share. I just feel really alone right now since it seems most on this site who are on antibiotics are seeing relief (not everyone, but most) and I'm doing all I can and not seeing relief. Urgh.....

Thanks for any messages you may have. I know down deep I'm not alone in my fears and frustrations and I thank God I have people like you who do understand.

<img src="i/expressions/heart.gif" border="0">

ladybug · Feb 24, 2008

Hello everyone.

Well today I hit a bottom I hadn't hit in a long time. Really just spent time feeling sorry for myself and sulking cause to be honest, I feel like NOTHING I do is going to effect me bouncing back anymore from these "exacerbations". I feel kinda helpless, which I don't usually feel. I'm usually very proactive and very "strong" (I think) and do things like I should, but the past few days have been extremely trying for me.

First, I was put on IV meds on Feb. 14. I got a small amount of relief and coughed a bit less within about 4 days, but not the usual "dry" feeling I have gotten in the past from them. This in and of itself discouraged me. I had posted a question about how long it usually takes everyone to start feeling "good" on IV meds and most responded with 2-3 days (which I usually also would respond, except for this time). Well, about days 4-7 I started to feel my mucus thin and turn from green to yellow (sorry if TMI). I had a bit more energy and made it to the gym. Although I still was coughing occasionally the thick stuff (which usually when I'm on IVs doesn't happen at all), most of it was thinning, which I found a positive turn of events.

Well, about day 7-8 now I'm coughing nearly my "usual" amount and consistency. It is back to thicker and greener and I feel lethargic. I'm feeling a bit better than when I initially went on IVs, but not a progressively upward trend (as is usually the case for me and most I would assume?) Now, I feel even as the days go on my mucus is getting thicker, I'm coughing more, etc.

I'm totally bummed. I know I'm on meds I'm sensitive to, cause my nurse said they'd call if changes needed to be made, and I never heard from them or the home health pharmacy. So, what is going on? Why would I be on antibiotics for 4 days and finally start seeing a small amount of improvement and then go straight back to the "same ol same ol crap" 2 days after I improved??? I have been doing my treatments and drinking water and if anything even being more active. Yet, I feel worse and worse. I'm really feeling alone right now and like I can't even be excited for IV meds to work anymore. I usually only feel "dry" from them for about 2-3 days once I'm off of them, but this is ridiculous to feel worse in the MIDDLE of a course of them.

I know everyone will tell me to call my doc and explain it to her. I do already plan on doing this first thing on Monday. I was just hoping in the meantime someone has some advice or possibly has gone through this and still seen positive results. I'm just really depressed right now and hate feeling this way.

Sorry to rant. If anyone has experienced this or has any comments, ideas, etc. PLEASE share. I just feel really alone right now since it seems most on this site who are on antibiotics are seeing relief (not everyone, but most) and I'm doing all I can and not seeing relief. Urgh.....

Thanks for any messages you may have. I know down deep I'm not alone in my fears and frustrations and I thank God I have people like you who do understand.

<img src="i/expressions/heart.gif" border="0">

ladybug · Feb 24, 2008

Hello everyone.

Well today I hit a bottom I hadn't hit in a long time. Really just spent time feeling sorry for myself and sulking cause to be honest, I feel like NOTHING I do is going to effect me bouncing back anymore from these "exacerbations". I feel kinda helpless, which I don't usually feel. I'm usually very proactive and very "strong" (I think) and do things like I should, but the past few days have been extremely trying for me.

First, I was put on IV meds on Feb. 14. I got a small amount of relief and coughed a bit less within about 4 days, but not the usual "dry" feeling I have gotten in the past from them. This in and of itself discouraged me. I had posted a question about how long it usually takes everyone to start feeling "good" on IV meds and most responded with 2-3 days (which I usually also would respond, except for this time). Well, about days 4-7 I started to feel my mucus thin and turn from green to yellow (sorry if TMI). I had a bit more energy and made it to the gym. Although I still was coughing occasionally the thick stuff (which usually when I'm on IVs doesn't happen at all), most of it was thinning, which I found a positive turn of events.

Well, about day 7-8 now I'm coughing nearly my "usual" amount and consistency. It is back to thicker and greener and I feel lethargic. I'm feeling a bit better than when I initially went on IVs, but not a progressively upward trend (as is usually the case for me and most I would assume?) Now, I feel even as the days go on my mucus is getting thicker, I'm coughing more, etc.

I'm totally bummed. I know I'm on meds I'm sensitive to, cause my nurse said they'd call if changes needed to be made, and I never heard from them or the home health pharmacy. So, what is going on? Why would I be on antibiotics for 4 days and finally start seeing a small amount of improvement and then go straight back to the "same ol same ol crap" 2 days after I improved??? I have been doing my treatments and drinking water and if anything even being more active. Yet, I feel worse and worse. I'm really feeling alone right now and like I can't even be excited for IV meds to work anymore. I usually only feel "dry" from them for about 2-3 days once I'm off of them, but this is ridiculous to feel worse in the MIDDLE of a course of them.

I know everyone will tell me to call my doc and explain it to her. I do already plan on doing this first thing on Monday. I was just hoping in the meantime someone has some advice or possibly has gone through this and still seen positive results. I'm just really depressed right now and hate feeling this way.

Sorry to rant. If anyone has experienced this or has any comments, ideas, etc. PLEASE share. I just feel really alone right now since it seems most on this site who are on antibiotics are seeing relief (not everyone, but most) and I'm doing all I can and not seeing relief. Urgh.....

Thanks for any messages you may have. I know down deep I'm not alone in my fears and frustrations and I thank God I have people like you who do understand.

<img src="i/expressions/heart.gif" border="0">

ladybug · Feb 24, 2008

Hello everyone.
 
 Well today I hit a bottom I hadn't hit in a long time. Really just spent time feeling sorry for myself and sulking cause to be honest, I feel like NOTHING I do is going to effect me bouncing back anymore from these "exacerbations". I feel kinda helpless, which I don't usually feel. I'm usually very proactive and very "strong" (I think) and do things like I should, but the past few days have been extremely trying for me.
 
 First, I was put on IV meds on Feb. 14. I got a small amount of relief and coughed a bit less within about 4 days, but not the usual "dry" feeling I have gotten in the past from them. This in and of itself discouraged me. I had posted a question about how long it usually takes everyone to start feeling "good" on IV meds and most responded with 2-3 days (which I usually also would respond, except for this time). Well, about days 4-7 I started to feel my mucus thin and turn from green to yellow (sorry if TMI). I had a bit more energy and made it to the gym. Although I still was coughing occasionally the thick stuff (which usually when I'm on IVs doesn't happen at all), most of it was thinning, which I found a positive turn of events.
 
 Well, about day 7-8 now I'm coughing nearly my "usual" amount and consistency. It is back to thicker and greener and I feel lethargic. I'm feeling a bit better than when I initially went on IVs, but not a progressively upward trend (as is usually the case for me and most I would assume?) Now, I feel even as the days go on my mucus is getting thicker, I'm coughing more, etc.
 
 I'm totally bummed. I know I'm on meds I'm sensitive to, cause my nurse said they'd call if changes needed to be made, and I never heard from them or the home health pharmacy. So, what is going on? Why would I be on antibiotics for 4 days and finally start seeing a small amount of improvement and then go straight back to the "same ol same ol crap" 2 days after I improved??? I have been doing my treatments and drinking water and if anything even being more active. Yet, I feel worse and worse. I'm really feeling alone right now and like I can't even be excited for IV meds to work anymore. I usually only feel "dry" from them for about 2-3 days once I'm off of them, but this is ridiculous to feel worse in the MIDDLE of a course of them.
 
 I know everyone will tell me to call my doc and explain it to her. I do already plan on doing this first thing on Monday. I was just hoping in the meantime someone has some advice or possibly has gone through this and still seen positive results. I'm just really depressed right now and hate feeling this way.
 
 Sorry to rant. If anyone has experienced this or has any comments, ideas, etc. PLEASE share. I just feel really alone right now since it seems most on this site who are on antibiotics are seeing relief (not everyone, but most) and I'm doing all I can and not seeing relief. Urgh.....
 
 Thanks for any messages you may have. I know down deep I'm not alone in my fears and frustrations and I thank God I have people like you who do understand.
 
 <img src="i/expressions/heart.gif" border="0">

Ricky123 · Feb 24, 2008

although i cant directly offer you words of advice in relation to ivs(as i dont have them often) i can say however that you have to see things from a philosophical perspective in that you are not alone in your suffering and realise know matter how hard you think things are for ya there are always people worser of than you and others that are suffering as well like you and in some cases more than you,so your not alone in your suffering a lot of people out there are in the same boat

secondly be positive no matter how ***** things seem for ya,ive had a lot of probs with this disease especially the stomach(cf related) and when i have sank into bouts of depression i feel like 10 times worse ,being positive does wonders for the mind and the way,and the key is try to have a positive outlook no matter what

a song i love that is famous over here in england and is associated with a famous football club liverpool is youll never walk alone by jerry and the pacemakers
words in this song are a inspiration to all those who have it ***** in this life

all the best

Ricky123 · Feb 24, 2008

although i cant directly offer you words of advice in relation to ivs(as i dont have them often) i can say however that you have to see things from a philosophical perspective in that you are not alone in your suffering and realise know matter how hard you think things are for ya there are always people worser of than you and others that are suffering as well like you and in some cases more than you,so your not alone in your suffering a lot of people out there are in the same boat

secondly be positive no matter how ***** things seem for ya,ive had a lot of probs with this disease especially the stomach(cf related) and when i have sank into bouts of depression i feel like 10 times worse ,being positive does wonders for the mind and the way,and the key is try to have a positive outlook no matter what

a song i love that is famous over here in england and is associated with a famous football club liverpool is youll never walk alone by jerry and the pacemakers
words in this song are a inspiration to all those who have it ***** in this life

all the best

Ricky123 · Feb 24, 2008

although i cant directly offer you words of advice in relation to ivs(as i dont have them often) i can say however that you have to see things from a philosophical perspective in that you are not alone in your suffering and realise know matter how hard you think things are for ya there are always people worser of than you and others that are suffering as well like you and in some cases more than you,so your not alone in your suffering a lot of people out there are in the same boat

secondly be positive no matter how ***** things seem for ya,ive had a lot of probs with this disease especially the stomach(cf related) and when i have sank into bouts of depression i feel like 10 times worse ,being positive does wonders for the mind and the way,and the key is try to have a positive outlook no matter what

a song i love that is famous over here in england and is associated with a famous football club liverpool is youll never walk alone by jerry and the pacemakers
words in this song are a inspiration to all those who have it ***** in this life

all the best

Ricky123 · Feb 24, 2008

although i cant directly offer you words of advice in relation to ivs(as i dont have them often) i can say however that you have to see things from a philosophical perspective in that you are not alone in your suffering and realise know matter how hard you think things are for ya there are always people worser of than you and others that are suffering as well like you and in some cases more than you,so your not alone in your suffering a lot of people out there are in the same boat

secondly be positive no matter how ***** things seem for ya,ive had a lot of probs with this disease especially the stomach(cf related) and when i have sank into bouts of depression i feel like 10 times worse ,being positive does wonders for the mind and the way,and the key is try to have a positive outlook no matter what

a song i love that is famous over here in england and is associated with a famous football club liverpool is youll never walk alone by jerry and the pacemakers
words in this song are a inspiration to all those who have it ***** in this life

all the best

Ricky123 · Feb 24, 2008

although i cant directly offer you words of advice in relation to ivs(as i dont have them often) i can say however that you have to see things from a philosophical perspective in that you are not alone in your suffering and realise know matter how hard you think things are for ya there are always people worser of than you and others that are suffering as well like you and in some cases more than you,so your not alone in your suffering a lot of people out there are in the same boat
 
 
 secondly be positive no matter how ***** things seem for ya,ive had a lot of probs with this disease especially the stomach(cf related) and when i have sank into bouts of depression i feel like 10 times worse ,being positive does wonders for the mind and the way,and the key is try to have a positive outlook no matter what
 
 a song i love that is famous over here in england and is associated with a famous football club liverpool is youll never walk alone by jerry and the pacemakers
 words in this song are a inspiration to all those who have it ***** in this life
 
 
 all the best

Sevenstars · Feb 24, 2008

Sometimes I don't bounce right back on IV meds... so I wouldn't necessarily worry just yet. Sometimes I even feel WORSE for a while, before I get better.

Did your doc do a new sputum culture when you started IVs? Maybe the results are back and your sensitivies indicate you need a slightly different lineup of meds. I know you said your nurse would call you back but well.. sometimes they get busy and that stuff falls through the cracks. Or, it might show you are sensitive to the meds you're on, but you might do better on different ones anyway. What works in the lab doesn't always work in our bodies for one reason or another.

I do think it's very good news that your sputum went from green to yellow. That's a step in the right direction. Hopefully in a few days you'll start to feel good on your own OR your doc can add something else to the mix and it will work for you. Maybe a nebulized med? Maybe prednisone? Just talk to him (you know that already <img src="i/expressions/face-icon-small-wink.gif" border="0">) and see what he says.

And don't worry about ranting, we've all been there. <img src="i/expressions/heart.gif" border="0">

Sevenstars · Feb 24, 2008

Sometimes I don't bounce right back on IV meds... so I wouldn't necessarily worry just yet. Sometimes I even feel WORSE for a while, before I get better.

Did your doc do a new sputum culture when you started IVs? Maybe the results are back and your sensitivies indicate you need a slightly different lineup of meds. I know you said your nurse would call you back but well.. sometimes they get busy and that stuff falls through the cracks. Or, it might show you are sensitive to the meds you're on, but you might do better on different ones anyway. What works in the lab doesn't always work in our bodies for one reason or another.

I do think it's very good news that your sputum went from green to yellow. That's a step in the right direction. Hopefully in a few days you'll start to feel good on your own OR your doc can add something else to the mix and it will work for you. Maybe a nebulized med? Maybe prednisone? Just talk to him (you know that already <img src="i/expressions/face-icon-small-wink.gif" border="0">) and see what he says.

And don't worry about ranting, we've all been there. <img src="i/expressions/heart.gif" border="0">

Sevenstars · Feb 24, 2008

Sometimes I don't bounce right back on IV meds... so I wouldn't necessarily worry just yet. Sometimes I even feel WORSE for a while, before I get better.

Did your doc do a new sputum culture when you started IVs? Maybe the results are back and your sensitivies indicate you need a slightly different lineup of meds. I know you said your nurse would call you back but well.. sometimes they get busy and that stuff falls through the cracks. Or, it might show you are sensitive to the meds you're on, but you might do better on different ones anyway. What works in the lab doesn't always work in our bodies for one reason or another.

I do think it's very good news that your sputum went from green to yellow. That's a step in the right direction. Hopefully in a few days you'll start to feel good on your own OR your doc can add something else to the mix and it will work for you. Maybe a nebulized med? Maybe prednisone? Just talk to him (you know that already <img src="i/expressions/face-icon-small-wink.gif" border="0">) and see what he says.

And don't worry about ranting, we've all been there. <img src="i/expressions/heart.gif" border="0">

Sevenstars · Feb 24, 2008

Sometimes I don't bounce right back on IV meds... so I wouldn't necessarily worry just yet. Sometimes I even feel WORSE for a while, before I get better.

Did your doc do a new sputum culture when you started IVs? Maybe the results are back and your sensitivies indicate you need a slightly different lineup of meds. I know you said your nurse would call you back but well.. sometimes they get busy and that stuff falls through the cracks. Or, it might show you are sensitive to the meds you're on, but you might do better on different ones anyway. What works in the lab doesn't always work in our bodies for one reason or another.

I do think it's very good news that your sputum went from green to yellow. That's a step in the right direction. Hopefully in a few days you'll start to feel good on your own OR your doc can add something else to the mix and it will work for you. Maybe a nebulized med? Maybe prednisone? Just talk to him (you know that already <img src="i/expressions/face-icon-small-wink.gif" border="0">) and see what he says.

And don't worry about ranting, we've all been there. <img src="i/expressions/heart.gif" border="0">

Sevenstars · Feb 24, 2008

Sometimes I don't bounce right back on IV meds... so I wouldn't necessarily worry just yet. Sometimes I even feel WORSE for a while, before I get better.
 
 Did your doc do a new sputum culture when you started IVs? Maybe the results are back and your sensitivies indicate you need a slightly different lineup of meds. I know you said your nurse would call you back but well.. sometimes they get busy and that stuff falls through the cracks. Or, it might show you are sensitive to the meds you're on, but you might do better on different ones anyway. What works in the lab doesn't always work in our bodies for one reason or another.
 
 I do think it's very good news that your sputum went from green to yellow. That's a step in the right direction. Hopefully in a few days you'll start to feel good on your own OR your doc can add something else to the mix and it will work for you. Maybe a nebulized med? Maybe prednisone? Just talk to him (you know that already <img src="i/expressions/face-icon-small-wink.gif" border="0">) and see what he says.
 
 And don't worry about ranting, we've all been there. <img src="i/expressions/heart.gif" border="0">

Aspiemom · Feb 24, 2008

I know where you are coming from. I don't seem to "spring back" like so many others do. Sometimes you need longer IV's, sometimes a change of meds, or something else thrown into the mix. It's hard to know.

It does get discouraging when you are doing everything in your own power to be aggressive and positive and you don't see results. Some of us probably just have to do that for a little longer, unfortunately.

I hope things improve for you soon and rant on here anytime because most of us know what you are going through!<img src="i/expressions/heart.gif" border="0">

Aspiemom · Feb 24, 2008

I know where you are coming from. I don't seem to "spring back" like so many others do. Sometimes you need longer IV's, sometimes a change of meds, or something else thrown into the mix. It's hard to know.

It does get discouraging when you are doing everything in your own power to be aggressive and positive and you don't see results. Some of us probably just have to do that for a little longer, unfortunately.

I hope things improve for you soon and rant on here anytime because most of us know what you are going through!<img src="i/expressions/heart.gif" border="0">

Aspiemom · Feb 24, 2008

I know where you are coming from. I don't seem to "spring back" like so many others do. Sometimes you need longer IV's, sometimes a change of meds, or something else thrown into the mix. It's hard to know.

It does get discouraging when you are doing everything in your own power to be aggressive and positive and you don't see results. Some of us probably just have to do that for a little longer, unfortunately.

I hope things improve for you soon and rant on here anytime because most of us know what you are going through!<img src="i/expressions/heart.gif" border="0">

Aspiemom · Feb 24, 2008

I know where you are coming from. I don't seem to "spring back" like so many others do. Sometimes you need longer IV's, sometimes a change of meds, or something else thrown into the mix. It's hard to know.

It does get discouraging when you are doing everything in your own power to be aggressive and positive and you don't see results. Some of us probably just have to do that for a little longer, unfortunately.

I hope things improve for you soon and rant on here anytime because most of us know what you are going through!<img src="i/expressions/heart.gif" border="0">

Aspiemom · Feb 24, 2008

I know where you are coming from. I don't seem to "spring back" like so many others do. Sometimes you need longer IV's, sometimes a change of meds, or something else thrown into the mix. It's hard to know.
 
 It does get discouraging when you are doing everything in your own power to be aggressive and positive and you don't see results. Some of us probably just have to do that for a little longer, unfortunately.
 
 I hope things improve for you soon and rant on here anytime because most of us know what you are going through!<img src="i/expressions/heart.gif" border="0">

Frustrated, scared, alone....

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

New member

Aspiemom

Guest

Aspiemom

Guest

Aspiemom

Guest

Aspiemom

Guest

Aspiemom

Guest