Purplelungz
New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Has anyone else had the issue of calling the regular doctor because your child is sick and they tell you to call the CF doctors and then the CF doctors tell you to call your pediatrician, and then you end up in the ER because no one wants to see them. The only time the CF doctors want to see them is for their research, they dont want sick kids in the doctors office.<hr></blockquote>
If this is true for your docs find a new one. There are plenty of cf docs out there that will treat a sick child. I have been lucky that my cf docs treat me like a real person and are always there when i need them. In fact i treat them more like my primary doc. Seriously if you can find a new one I would. Sometimes travel is worth it. For me traveling really isnt a choice, the two clinics i have to choose from are both hours away. But I still love my clinic. Yes sometimes I get agravated but I let them know and they try to fix it.
To farmfamily....I have the same problem. I think I will do horrible in clinic and my weight and pft numbers are all up, in fact every things "says" im doing better than the last clinic...which i guess is good to be feeling bad but the numbers are good, maybe means some sort of improvement? I dunno. or when im feeling great numbers are down. But dont hesitate in telling them how your son feels. If you do you maybe just calling the doc again in a week or two anyway with him really feeling bad. Sometimes it could just be a start of something they can kick real fast at home.
If this is true for your docs find a new one. There are plenty of cf docs out there that will treat a sick child. I have been lucky that my cf docs treat me like a real person and are always there when i need them. In fact i treat them more like my primary doc. Seriously if you can find a new one I would. Sometimes travel is worth it. For me traveling really isnt a choice, the two clinics i have to choose from are both hours away. But I still love my clinic. Yes sometimes I get agravated but I let them know and they try to fix it.
To farmfamily....I have the same problem. I think I will do horrible in clinic and my weight and pft numbers are all up, in fact every things "says" im doing better than the last clinic...which i guess is good to be feeling bad but the numbers are good, maybe means some sort of improvement? I dunno. or when im feeling great numbers are down. But dont hesitate in telling them how your son feels. If you do you maybe just calling the doc again in a week or two anyway with him really feeling bad. Sometimes it could just be a start of something they can kick real fast at home.