Frustrated

babyluke

New member
Saveferris2009: Thanks for posting that link to the article in the New Yorker! Good info. and motivated me to keep "fighting the good fight" for Luke.
 

babyluke

New member
Saveferris2009: Thanks for posting that link to the article in the New Yorker! Good info. and motivated me to keep "fighting the good fight" for Luke.
 

babyluke

New member
Saveferris2009: Thanks for posting that link to the article in the New Yorker! Good info. and motivated me to keep "fighting the good fight" for Luke.
 

babyluke

New member
Saveferris2009: Thanks for posting that link to the article in the New Yorker! Good info. and motivated me to keep "fighting the good fight" for Luke.
 

babyluke

New member
Saveferris2009: Thanks for posting that link to the article in the New Yorker! Good info. and motivated me to keep "fighting the good fight" for Luke.
 

reagansmom

New member
It's great that your daughter is so healthy. My daugther was not diagnosed until 14 months old. She seemed really healthy too until around her first bday and she began to wheeze. Several visits to the Pediatrician later, she was admitted to the hospital and diagnosed with CF. I would give anything to have had those preventative treatments. It is necessary, don't let anyone tell you otherwise.
It's good that you are questioning your center's decision, we all just want whats best for our kids.
 

reagansmom

New member
It's great that your daughter is so healthy. My daugther was not diagnosed until 14 months old. She seemed really healthy too until around her first bday and she began to wheeze. Several visits to the Pediatrician later, she was admitted to the hospital and diagnosed with CF. I would give anything to have had those preventative treatments. It is necessary, don't let anyone tell you otherwise.
It's good that you are questioning your center's decision, we all just want whats best for our kids.
 

reagansmom

New member
It's great that your daughter is so healthy. My daugther was not diagnosed until 14 months old. She seemed really healthy too until around her first bday and she began to wheeze. Several visits to the Pediatrician later, she was admitted to the hospital and diagnosed with CF. I would give anything to have had those preventative treatments. It is necessary, don't let anyone tell you otherwise.
It's good that you are questioning your center's decision, we all just want whats best for our kids.
 

reagansmom

New member
It's great that your daughter is so healthy. My daugther was not diagnosed until 14 months old. She seemed really healthy too until around her first bday and she began to wheeze. Several visits to the Pediatrician later, she was admitted to the hospital and diagnosed with CF. I would give anything to have had those preventative treatments. It is necessary, don't let anyone tell you otherwise.
It's good that you are questioning your center's decision, we all just want whats best for our kids.
 

reagansmom

New member
It's great that your daughter is so healthy. My daugther was not diagnosed until 14 months old. She seemed really healthy too until around her first bday and she began to wheeze. Several visits to the Pediatrician later, she was admitted to the hospital and diagnosed with CF. I would give anything to have had those preventative treatments. It is necessary, don't let anyone tell you otherwise.
<br />It's good that you are questioning your center's decision, we all just want whats best for our kids.
 

JosephinesMommy

New member
Thank you to everyone. I think I am just going to have to get "aggressive" with my daughter's CF team and get the ball rolling. I know that Mother's guilt is neverending... but this would take the cake.

I have brought up to them the thought that I would like CPT or whatever to be routine. I am only working part-time right now, but if I were to have to go back full time and then start additional therapies afterwards, just UGH!

I really, really hate CF <img src="i/expressions/face-icon-small-happy.gif" border="0"> BUT I love my daughter and will do anything for her.
 

JosephinesMommy

New member
Thank you to everyone. I think I am just going to have to get "aggressive" with my daughter's CF team and get the ball rolling. I know that Mother's guilt is neverending... but this would take the cake.

I have brought up to them the thought that I would like CPT or whatever to be routine. I am only working part-time right now, but if I were to have to go back full time and then start additional therapies afterwards, just UGH!

I really, really hate CF <img src="i/expressions/face-icon-small-happy.gif" border="0"> BUT I love my daughter and will do anything for her.
 

JosephinesMommy

New member
Thank you to everyone. I think I am just going to have to get "aggressive" with my daughter's CF team and get the ball rolling. I know that Mother's guilt is neverending... but this would take the cake.

I have brought up to them the thought that I would like CPT or whatever to be routine. I am only working part-time right now, but if I were to have to go back full time and then start additional therapies afterwards, just UGH!

I really, really hate CF <img src="i/expressions/face-icon-small-happy.gif" border="0"> BUT I love my daughter and will do anything for her.
 

JosephinesMommy

New member
Thank you to everyone. I think I am just going to have to get "aggressive" with my daughter's CF team and get the ball rolling. I know that Mother's guilt is neverending... but this would take the cake.

I have brought up to them the thought that I would like CPT or whatever to be routine. I am only working part-time right now, but if I were to have to go back full time and then start additional therapies afterwards, just UGH!

I really, really hate CF <img src="i/expressions/face-icon-small-happy.gif" border="0"> BUT I love my daughter and will do anything for her.
 

JosephinesMommy

New member
Thank you to everyone. I think I am just going to have to get "aggressive" with my daughter's CF team and get the ball rolling. I know that Mother's guilt is neverending... but this would take the cake.
<br />
<br />I have brought up to them the thought that I would like CPT or whatever to be routine. I am only working part-time right now, but if I were to have to go back full time and then start additional therapies afterwards, just UGH!
<br />
<br />I really, really hate CF <img src="i/expressions/face-icon-small-happy.gif" border="0"> BUT I love my daughter and will do anything for her.
 

Ratatosk

Administrator
Staff member
I know a parent from our area, who was a nurse, had heard that we've done CPT since day one and went to the RT department and asked them to show her how to do it, since the local cf clinic viewed it as necessary only IF there are symptoms.
 

Ratatosk

Administrator
Staff member
I know a parent from our area, who was a nurse, had heard that we've done CPT since day one and went to the RT department and asked them to show her how to do it, since the local cf clinic viewed it as necessary only IF there are symptoms.
 

Ratatosk

Administrator
Staff member
I know a parent from our area, who was a nurse, had heard that we've done CPT since day one and went to the RT department and asked them to show her how to do it, since the local cf clinic viewed it as necessary only IF there are symptoms.
 

Ratatosk

Administrator
Staff member
I know a parent from our area, who was a nurse, had heard that we've done CPT since day one and went to the RT department and asked them to show her how to do it, since the local cf clinic viewed it as necessary only IF there are symptoms.
 

Ratatosk

Administrator
Staff member
I know a parent from our area, who was a nurse, had heard that we've done CPT since day one and went to the RT department and asked them to show her how to do it, since the local cf clinic viewed it as necessary only IF there are symptoms.
 
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