I just wanted to echo the thoughts about the glucose monitoring test. I think having your Endo set up the 3 day glucose test is the correct step. It is a sensor that sits below your skin and monitors my glucose levels via interstitial fluid every 5 minutes, which shows patterns in your blood sugar levels. These sensors do NOT test your blood, and there could be as large as a 20% variance between your actual blood sugar and what the sensor is reading out - so you still must check your blood sugar via a finger prick to calibrate.
However, even analyzing the interstitial fluid and seeing patterns in your blood sugar will give your Endo the information he needs to treat your diabetes and your lows. My endo also had me do fasting blood sugars at HOME, so there was no need for me to be an inpatient for that. Did your Endo prescribe the quick acting pen that if you pass out from low sugars, someone can shoot you with this needle and it wakes you up enough to drink something highly sugary? Do you think you need a new Endo more familiar with CF?
I have an insulin pump and when you have a pump, you can actually get your own sensor that you insert yourself every 3 days to keep monitoring your glucose at home and bring your results to your doctor's appointments - so that is one benefit of the insulin pump. Another benefit is my sugars are much more in control, especially after eating and you don't have to poke yourself every time you eat and carry around all those annoying supplies!
As for your doctor not hearing your concerns - I think you're doing the right thing by researching things yourself and reaching out to the community for knowledge. Knowledge is your best defense to being your own advocate. I found that the doctors don't think of everything and bringing all of this to his attention is what you need to do. If your doctor still does not listen - I suggest finding another doctor that will listen and that you feel comfortable with. I have gone through 3 CF doctors before I found one that fit me and it was worth switching!!!
Oh, and HTS is awesome! I can't believe how much better I feel after starting the HTS. When I skip a dose (rarely) I really feel the negative impact to not doing it. At first it really makes your throat itch and brings on a lot of coughing, but you'll get used to it after a few days and those symptoms go away =)
Good luck!
However, even analyzing the interstitial fluid and seeing patterns in your blood sugar will give your Endo the information he needs to treat your diabetes and your lows. My endo also had me do fasting blood sugars at HOME, so there was no need for me to be an inpatient for that. Did your Endo prescribe the quick acting pen that if you pass out from low sugars, someone can shoot you with this needle and it wakes you up enough to drink something highly sugary? Do you think you need a new Endo more familiar with CF?
I have an insulin pump and when you have a pump, you can actually get your own sensor that you insert yourself every 3 days to keep monitoring your glucose at home and bring your results to your doctor's appointments - so that is one benefit of the insulin pump. Another benefit is my sugars are much more in control, especially after eating and you don't have to poke yourself every time you eat and carry around all those annoying supplies!
As for your doctor not hearing your concerns - I think you're doing the right thing by researching things yourself and reaching out to the community for knowledge. Knowledge is your best defense to being your own advocate. I found that the doctors don't think of everything and bringing all of this to his attention is what you need to do. If your doctor still does not listen - I suggest finding another doctor that will listen and that you feel comfortable with. I have gone through 3 CF doctors before I found one that fit me and it was worth switching!!!
Oh, and HTS is awesome! I can't believe how much better I feel after starting the HTS. When I skip a dose (rarely) I really feel the negative impact to not doing it. At first it really makes your throat itch and brings on a lot of coughing, but you'll get used to it after a few days and those symptoms go away =)
Good luck!