G Tube questions

rhonda21

New member
nanas reson is the best reason for gtube. My son had one and it really didnt do anything for him. He was a ver picky eater and allergic to dairy. I believe diet should work if your child loves milk cheese eggs and can drink ensure she will be great!! dont let her get picky. start young, and hope you will have great luck with food. let her eat five to six times a day and she will go far!! oh and dont forget enzymes!! they are key to wait gain....very important.
 

rhonda21

New member
nanas reson is the best reason for gtube. My son had one and it really didnt do anything for him. He was a ver picky eater and allergic to dairy. I believe diet should work if your child loves milk cheese eggs and can drink ensure she will be great!! dont let her get picky. start young, and hope you will have great luck with food. let her eat five to six times a day and she will go far!! oh and dont forget enzymes!! they are key to wait gain....very important.
 

rhonda21

New member
nanas reson is the best reason for gtube. My son had one and it really didnt do anything for him. He was a ver picky eater and allergic to dairy. I believe diet should work if your child loves milk cheese eggs and can drink ensure she will be great!! dont let her get picky. start young, and hope you will have great luck with food. let her eat five to six times a day and she will go far!! oh and dont forget enzymes!! they are key to wait gain....very important.
 

rhonda21

New member
nanas reson is the best reason for gtube. My son had one and it really didnt do anything for him. He was a ver picky eater and allergic to dairy. I believe diet should work if your child loves milk cheese eggs and can drink ensure she will be great!! dont let her get picky. start young, and hope you will have great luck with food. let her eat five to six times a day and she will go far!! oh and dont forget enzymes!! they are key to wait gain....very important.
 

rhonda21

New member
nanas reson is the best reason for gtube. My son had one and it really didnt do anything for him. He was a ver picky eater and allergic to dairy. I believe diet should work if your child loves milk cheese eggs and can drink ensure she will be great!! dont let her get picky. start young, and hope you will have great luck with food. let her eat five to six times a day and she will go far!! oh and dont forget enzymes!! they are key to wait gain....very important.
 

jbrandonAW

New member
What is her BMI - that is more important than her stat on the growth chart. I would suggest to keep breastfeeding or keep giving formula until 2.

My daughter is dx'ed failure to thrive. My husband and I are both little and right now she is 3% on the growth chart (20 months old, 20.12lbs and 32inches tall) but she eats everything.

Avocado is a very fattening and healthy food - mix it with some banana or infant cereal or somehting and its great. Also try yobaby yogart (mix it with the avocado or baby cereal).

For kids/adults with CF having a good weight can mean the difference in fighting on infection before you even need IV's or being sick for a month. I got down to 97lbs this year and I was really really really sick. I got my gtube in august and its the best thing I ever did. My weight is now 114 (5'3) and I am feeling great b/c of it. I know that if I get sick and don't wanna eat that I won't suffer b/c of it. Its definitely lowered my stress factor in regards to my health.

I think that you have to do what feel right for you. If you think she is just tiny, is following her own growth curve, and eats well(and isn't sick) then for now you can probably hold off. But don't think of needing a gtube as something bad. Think of it as a step in the right direction for great health.

-O have you looked into a different brand of enzymes? I know that sometimes this can make a big difference with weight gain.
 

jbrandonAW

New member
What is her BMI - that is more important than her stat on the growth chart. I would suggest to keep breastfeeding or keep giving formula until 2.

My daughter is dx'ed failure to thrive. My husband and I are both little and right now she is 3% on the growth chart (20 months old, 20.12lbs and 32inches tall) but she eats everything.

Avocado is a very fattening and healthy food - mix it with some banana or infant cereal or somehting and its great. Also try yobaby yogart (mix it with the avocado or baby cereal).

For kids/adults with CF having a good weight can mean the difference in fighting on infection before you even need IV's or being sick for a month. I got down to 97lbs this year and I was really really really sick. I got my gtube in august and its the best thing I ever did. My weight is now 114 (5'3) and I am feeling great b/c of it. I know that if I get sick and don't wanna eat that I won't suffer b/c of it. Its definitely lowered my stress factor in regards to my health.

I think that you have to do what feel right for you. If you think she is just tiny, is following her own growth curve, and eats well(and isn't sick) then for now you can probably hold off. But don't think of needing a gtube as something bad. Think of it as a step in the right direction for great health.

-O have you looked into a different brand of enzymes? I know that sometimes this can make a big difference with weight gain.
 

jbrandonAW

New member
What is her BMI - that is more important than her stat on the growth chart. I would suggest to keep breastfeeding or keep giving formula until 2.

My daughter is dx'ed failure to thrive. My husband and I are both little and right now she is 3% on the growth chart (20 months old, 20.12lbs and 32inches tall) but she eats everything.

Avocado is a very fattening and healthy food - mix it with some banana or infant cereal or somehting and its great. Also try yobaby yogart (mix it with the avocado or baby cereal).

For kids/adults with CF having a good weight can mean the difference in fighting on infection before you even need IV's or being sick for a month. I got down to 97lbs this year and I was really really really sick. I got my gtube in august and its the best thing I ever did. My weight is now 114 (5'3) and I am feeling great b/c of it. I know that if I get sick and don't wanna eat that I won't suffer b/c of it. Its definitely lowered my stress factor in regards to my health.

I think that you have to do what feel right for you. If you think she is just tiny, is following her own growth curve, and eats well(and isn't sick) then for now you can probably hold off. But don't think of needing a gtube as something bad. Think of it as a step in the right direction for great health.

-O have you looked into a different brand of enzymes? I know that sometimes this can make a big difference with weight gain.
 

jbrandonAW

New member
What is her BMI - that is more important than her stat on the growth chart. I would suggest to keep breastfeeding or keep giving formula until 2.

My daughter is dx'ed failure to thrive. My husband and I are both little and right now she is 3% on the growth chart (20 months old, 20.12lbs and 32inches tall) but she eats everything.

Avocado is a very fattening and healthy food - mix it with some banana or infant cereal or somehting and its great. Also try yobaby yogart (mix it with the avocado or baby cereal).

For kids/adults with CF having a good weight can mean the difference in fighting on infection before you even need IV's or being sick for a month. I got down to 97lbs this year and I was really really really sick. I got my gtube in august and its the best thing I ever did. My weight is now 114 (5'3) and I am feeling great b/c of it. I know that if I get sick and don't wanna eat that I won't suffer b/c of it. Its definitely lowered my stress factor in regards to my health.

I think that you have to do what feel right for you. If you think she is just tiny, is following her own growth curve, and eats well(and isn't sick) then for now you can probably hold off. But don't think of needing a gtube as something bad. Think of it as a step in the right direction for great health.

-O have you looked into a different brand of enzymes? I know that sometimes this can make a big difference with weight gain.
 

jbrandonAW

New member
What is her BMI - that is more important than her stat on the growth chart. I would suggest to keep breastfeeding or keep giving formula until 2.
<br />
<br />My daughter is dx'ed failure to thrive. My husband and I are both little and right now she is 3% on the growth chart (20 months old, 20.12lbs and 32inches tall) but she eats everything.
<br />
<br />Avocado is a very fattening and healthy food - mix it with some banana or infant cereal or somehting and its great. Also try yobaby yogart (mix it with the avocado or baby cereal).
<br />
<br />For kids/adults with CF having a good weight can mean the difference in fighting on infection before you even need IV's or being sick for a month. I got down to 97lbs this year and I was really really really sick. I got my gtube in august and its the best thing I ever did. My weight is now 114 (5'3) and I am feeling great b/c of it. I know that if I get sick and don't wanna eat that I won't suffer b/c of it. Its definitely lowered my stress factor in regards to my health.
<br />
<br />I think that you have to do what feel right for you. If you think she is just tiny, is following her own growth curve, and eats well(and isn't sick) then for now you can probably hold off. But don't think of needing a gtube as something bad. Think of it as a step in the right direction for great health.
<br />
<br />-O have you looked into a different brand of enzymes? I know that sometimes this can make a big difference with weight gain.
 

crickit715

New member
my daughters gtube at 4months of age put her from below 5th percentile to a steady 75th percentile!!! it has been wonderful. it has made a huge difference in her weight gain. not to mention i can stick her "yucky" tasting meds right in her tube and if she is sick i dont have to worry about her dehydrating because if she doesnt want to drink i can bolus her pedialyte thru her tube (that saved us a hospital stay a few months back!!). it was a very hard decision and the first 6 weeks were the toughest, but she is 21 months old now and i am so glad i made the choice!!
 

crickit715

New member
my daughters gtube at 4months of age put her from below 5th percentile to a steady 75th percentile!!! it has been wonderful. it has made a huge difference in her weight gain. not to mention i can stick her "yucky" tasting meds right in her tube and if she is sick i dont have to worry about her dehydrating because if she doesnt want to drink i can bolus her pedialyte thru her tube (that saved us a hospital stay a few months back!!). it was a very hard decision and the first 6 weeks were the toughest, but she is 21 months old now and i am so glad i made the choice!!
 

crickit715

New member
my daughters gtube at 4months of age put her from below 5th percentile to a steady 75th percentile!!! it has been wonderful. it has made a huge difference in her weight gain. not to mention i can stick her "yucky" tasting meds right in her tube and if she is sick i dont have to worry about her dehydrating because if she doesnt want to drink i can bolus her pedialyte thru her tube (that saved us a hospital stay a few months back!!). it was a very hard decision and the first 6 weeks were the toughest, but she is 21 months old now and i am so glad i made the choice!!
 

crickit715

New member
my daughters gtube at 4months of age put her from below 5th percentile to a steady 75th percentile!!! it has been wonderful. it has made a huge difference in her weight gain. not to mention i can stick her "yucky" tasting meds right in her tube and if she is sick i dont have to worry about her dehydrating because if she doesnt want to drink i can bolus her pedialyte thru her tube (that saved us a hospital stay a few months back!!). it was a very hard decision and the first 6 weeks were the toughest, but she is 21 months old now and i am so glad i made the choice!!
 

crickit715

New member
my daughters gtube at 4months of age put her from below 5th percentile to a steady 75th percentile!!! it has been wonderful. it has made a huge difference in her weight gain. not to mention i can stick her "yucky" tasting meds right in her tube and if she is sick i dont have to worry about her dehydrating because if she doesnt want to drink i can bolus her pedialyte thru her tube (that saved us a hospital stay a few months back!!). it was a very hard decision and the first 6 weeks were the toughest, but she is 21 months old now and i am so glad i made the choice!!
 

amityvsvenom

New member
My daughter had a g tube placed a day after she was born. I didnt have a say whether or not to put it in or not. It was an emergency surgery. And the surgeon said heplaced it as a just in case because he wasnt sure what was really wrong with her at the time.
If it wasnt for the g tube right now, she wouldn't be here. She has a very hard time gaining weight even with me pumping her full of calories through her g tube AND her over night feed. I think, if they are suggesting it...you should go with it. You barely notice it, and its just one more thing to make things easier for her and you in this journey we all have been given.
 

amityvsvenom

New member
My daughter had a g tube placed a day after she was born. I didnt have a say whether or not to put it in or not. It was an emergency surgery. And the surgeon said heplaced it as a just in case because he wasnt sure what was really wrong with her at the time.
If it wasnt for the g tube right now, she wouldn't be here. She has a very hard time gaining weight even with me pumping her full of calories through her g tube AND her over night feed. I think, if they are suggesting it...you should go with it. You barely notice it, and its just one more thing to make things easier for her and you in this journey we all have been given.
 

amityvsvenom

New member
My daughter had a g tube placed a day after she was born. I didnt have a say whether or not to put it in or not. It was an emergency surgery. And the surgeon said heplaced it as a just in case because he wasnt sure what was really wrong with her at the time.
If it wasnt for the g tube right now, she wouldn't be here. She has a very hard time gaining weight even with me pumping her full of calories through her g tube AND her over night feed. I think, if they are suggesting it...you should go with it. You barely notice it, and its just one more thing to make things easier for her and you in this journey we all have been given.
 

amityvsvenom

New member
My daughter had a g tube placed a day after she was born. I didnt have a say whether or not to put it in or not. It was an emergency surgery. And the surgeon said heplaced it as a just in case because he wasnt sure what was really wrong with her at the time.
If it wasnt for the g tube right now, she wouldn't be here. She has a very hard time gaining weight even with me pumping her full of calories through her g tube AND her over night feed. I think, if they are suggesting it...you should go with it. You barely notice it, and its just one more thing to make things easier for her and you in this journey we all have been given.
 

amityvsvenom

New member
My daughter had a g tube placed a day after she was born. I didnt have a say whether or not to put it in or not. It was an emergency surgery. And the surgeon said heplaced it as a just in case because he wasnt sure what was really wrong with her at the time.
<br />If it wasnt for the g tube right now, she wouldn't be here. She has a very hard time gaining weight even with me pumping her full of calories through her g tube AND her over night feed. I think, if they are suggesting it...you should go with it. You barely notice it, and its just one more thing to make things easier for her and you in this journey we all have been given.
 
Top