Getting a Job

vickysmommy

New member
What does everyone think about working even though you qualify for SSI/Disability? Me, Im the type that wants to do something with my life besides sitting around being sick. I am now on SSI but am a trained Vet Assistant and I am looking for a job, but there is always the issue of "what if I do get sick" some employers just dont understand.
 

cfgirl38

New member
I beleive if I can work I should work, I have been on a leave from work since March 04. I really want to go back. I can always go to part time if necessary. If I get sick , go on another leave. What else can you do when you have a disease. I am on SSI as well. Just started in Sept. Because my leave has been extended so long. I don't know if I can ever go back. But I will try like heck to do something. The staying home thing is getting under my skin. I do volunteer work so keeps me busy a couple days a week. So try that first maybe. I like it.
 

ClashPunk82

New member
I would love to be able to work but with my declining health I can't. I am on disability also but I have been feeling better so hopefully soon I want to take some fun classes like painting and knitting. I did go to college and became a Surgical Technician, but haven't been able to work since I graduated. Maybe after my TX I will be able to work at something!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

cfgirl38

New member
It's really a great time to learn something new. Because once you start working there's no such thing as free time. HeeHee.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 

ClashPunk82

New member
HAHA, ya my boyfriend says hey be glad you don't have to work, it's no fun. He tells me this when I get down on myself because I feel like a lazy slug that does nothing. But he tells me that I need to focus on getting healthy, so it helps make me feel better! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

anonymous

New member
Sarah,

I was on disability once and came off it to work. I think it is important to do what you can do. As for employers understanding, there are laws that will make them understand, of course there is the problem of having them enforced. If money is the issue I would encourage you to work, if happiness is your issue I would encourage you to work. I do not know your specific situation but just make sure your medical coverage isn't jeopardized by your decision.


luke
 

cfgirl38

New member
The good thing about volunteering is you usually make your own schedule, then when you really feel as if your health is up to par you can work at a regular job. My boyfriend does the same thing. It's nice to have support even if they think there funny.
 

Joblazer86

New member
I am on disability but do not want to do it forever. Even though i should until I get a transplant I want to do something with my life. So I am going to school for medical billing and coding. I was going to be a surgical tech but do not want to get people sick b/c of my mrsa and pseudo. Also the doc persuaded me not too also. I can not stay home and just do nothing even if my lung functions are low (18%-20%).
 

Emily65Roses

New member
I am on disability also. It's only really while I'm in school because I can't work and be a fulltime student simultaneously. It's impossible, and I still have bills to pay, you know. After I graduate, I intend on getting a job as an ASL interpreter. Given that the job (depending on where I choose to work) might be on an on-call type-basis, I won't necessarily be working fulltime. But trust me, I don't wish to just sit on my butt on disability forever, and not work. I can't wait to graduate and be able to work. As it is, during my summer, I work for 5 weeks at the American School for the Deaf. That's a more regular job (Mon-Fri from 8:30-3:30), and by the time each day is done, I'm beat as all hell, but it's worth it. It's only a 5 week job, and I love it.
 

anonymous

New member
I agree with the notion that if you can work, you should work. Ugh do any of your remember the girl who had CF on the real world who was saying she couldn't go out on a boat and "work too hard" because of her CF. Are you kidding me? A day out in the fresh air on the ocean and a little exercise would be a dream day. (not to mention the fact that when she sat at home she SMOKED!)

anyway, i am in school at BC and work part time at Bloomingdales and also at a Museum once a week. It is difficult but I feel the best when I am busy. It just really sucks when I have to do my courses of meds, which is about every 4-6 months, and leave work. I knwo there are laws and they have to be nice and everything, but it is so annoying to have to get people to understand that I am fine normally and then have to leave for 2-3 weeks mysteriously.

Out of curiosity, how does disability work? Do you get a check each month, do you have to prove that you aren't supported by other people (i.e. parents) or can you get it even if you are. I am still on my parents insurance b/c i am a full-time student.
If you have a job you cant get disability right?
Is the amount based upon things, or does everyone get the same amount of money? I know these are a lot of questions but I am just curious. Thanks!
 

Emily65Roses

New member
It depends a lot on what your job is, etc. But you can get disability and still have a job. I get disability year-round, but I'm still going to work my 5-week-long job this June/July. You just have to let them know when your work schedule changes. You get a check each month, yes. I am a student and still on my parents' insurance, but I have car bills, gas bills, TV bills, phone bills, etc. It's based on each individual's need. I get a certain amount based on my living expenses during the school year, my phone bills, my car/gas bills, and that I pay for a lot of my own food and stuff.

Mind you, they like to weed as many people out as possible, so it can be a real pain to get approved for disability. I was denied for more than two years, with a lawyer (who has CF) fighting for me. Finally this past December they approved me. The good point to be denied for two years is that I got back pay for all the time my case was going through the courts. I got half this January and will be getting the other half this June. In the meantime, I am still getting my monthly checks, but the two big back-pay checks that I got are worth about $15,000. So my only major advice would be... if they deny you (really, WHEN they deny you), keep going. They don't like to approve anyone if they can avoid it. So they're going to try denying you first. They figure if you quit fighting there, then you don't really need the money. It's a pain in the butt, but it's worth it. It took more than two years to fight it, but I finally got approved and now my parents aren't drowning in my bills.
 

JennaB

New member
I tried to get SSI, but I was too healthy. I even didn't do so hot in my breathing test they sent me for. I know that's awful, but I could have really benefited from it at the time...

I don't get why some people get it but I can't???
 

JennaB

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Emily65Roses</b></i><br>How long did you try to fight it, Jenna? And were you doing it yourself, or did you have a lawyer?<hr></blockquote>


I really didn't try to fight it. It was all by myself, too - no lawyers. I was basically told that it was for people who just could not work anymore, and apparently I could work, so I should get no assistance...
 

Emily65Roses

New member
Yeah, they weed out anyone and everyone they can on the first try. If you really need it, you need to grab a lawyer and appeal, appeal, appeal. They'll deny more than once if I had to guess, you need to just keep going. The first 10 times, they told me I was too healthy too. Then two years + later, I got approved.
 

ClashPunk82

New member
I was denied about 3 times before I was approved. Even though my PFT's were 18% and I was told I needed a lung transplant and a g-tube they decided I wasn't sick enough. What a laugh, LOL! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

vickysmommy

New member
I think the reason why I got on was not cause I was sick at the time but my doctor knew I was in a bad situation. I got kicked out of my home and was living from house to house so basically he was doing me a favor by getting me on because the people that determine whether you get it or not have to go by what your doctors say. Thanks for all of your replies, by the way. I still plan on looking for work, the only thing thats slowing me down right now though is my new baby. My doctor is always asking me "have you found a job yet?"
 
Top