Getting O2 during exericse...

coltsfan715 · Aug 11, 2007

When I first started having issues with sleep my FEV1 was around 28%. When I actually had the overnight test and started the O2 my FEV1 was around 23-25%.

Also to add I forgot about this before - I had severe anxiety at night when I needed O2 at night. I would wake up feeling like I was suffocating or not getting enough air. I would force myself to stay awake until I was so tired I just fell asleep. I ended up desatting into the 70s according to the test I had done - so I am thinking I felt I was suffocating because I kind of was lol. (not funny then but yeah kind of amusing to me now).

Take Care,
Linds

Also to add - sometimes people have issues with desatting in their sleep when their PFTs are still decent. My dad does not even have CF and he has issues with his saturation at night while he sleeps - he had a lot of the same issues fatigue, almost fell asleep while driving, always tired, difficulty waking up. I would talk to your doc about it if you are concerned and see what they think.

coltsfan715 · Aug 11, 2007

When I first started having issues with sleep my FEV1 was around 28%. When I actually had the overnight test and started the O2 my FEV1 was around 23-25%.

Also to add I forgot about this before - I had severe anxiety at night when I needed O2 at night. I would wake up feeling like I was suffocating or not getting enough air. I would force myself to stay awake until I was so tired I just fell asleep. I ended up desatting into the 70s according to the test I had done - so I am thinking I felt I was suffocating because I kind of was lol. (not funny then but yeah kind of amusing to me now).

Take Care,
Linds

Also to add - sometimes people have issues with desatting in their sleep when their PFTs are still decent. My dad does not even have CF and he has issues with his saturation at night while he sleeps - he had a lot of the same issues fatigue, almost fell asleep while driving, always tired, difficulty waking up. I would talk to your doc about it if you are concerned and see what they think.

coltsfan715 · Aug 11, 2007

When I first started having issues with sleep my FEV1 was around 28%. When I actually had the overnight test and started the O2 my FEV1 was around 23-25%.

Also to add I forgot about this before - I had severe anxiety at night when I needed O2 at night. I would wake up feeling like I was suffocating or not getting enough air. I would force myself to stay awake until I was so tired I just fell asleep. I ended up desatting into the 70s according to the test I had done - so I am thinking I felt I was suffocating because I kind of was lol. (not funny then but yeah kind of amusing to me now).

Take Care,
Linds

Also to add - sometimes people have issues with desatting in their sleep when their PFTs are still decent. My dad does not even have CF and he has issues with his saturation at night while he sleeps - he had a lot of the same issues fatigue, almost fell asleep while driving, always tired, difficulty waking up. I would talk to your doc about it if you are concerned and see what they think.

coltsfan715 · Aug 11, 2007

When I first started having issues with sleep my FEV1 was around 28%. When I actually had the overnight test and started the O2 my FEV1 was around 23-25%.

Also to add I forgot about this before - I had severe anxiety at night when I needed O2 at night. I would wake up feeling like I was suffocating or not getting enough air. I would force myself to stay awake until I was so tired I just fell asleep. I ended up desatting into the 70s according to the test I had done - so I am thinking I felt I was suffocating because I kind of was lol. (not funny then but yeah kind of amusing to me now).

Take Care,
Linds

Also to add - sometimes people have issues with desatting in their sleep when their PFTs are still decent. My dad does not even have CF and he has issues with his saturation at night while he sleeps - he had a lot of the same issues fatigue, almost fell asleep while driving, always tired, difficulty waking up. I would talk to your doc about it if you are concerned and see what they think.

coltsfan715 · Aug 11, 2007

When I first started having issues with sleep my FEV1 was around 28%. When I actually had the overnight test and started the O2 my FEV1 was around 23-25%.

Also to add I forgot about this before - I had severe anxiety at night when I needed O2 at night. I would wake up feeling like I was suffocating or not getting enough air. I would force myself to stay awake until I was so tired I just fell asleep. I ended up desatting into the 70s according to the test I had done - so I am thinking I felt I was suffocating because I kind of was lol. (not funny then but yeah kind of amusing to me now).

Take Care,
Linds

Also to add - sometimes people have issues with desatting in their sleep when their PFTs are still decent. My dad does not even have CF and he has issues with his saturation at night while he sleeps - he had a lot of the same issues fatigue, almost fell asleep while driving, always tired, difficulty waking up. I would talk to your doc about it if you are concerned and see what they think.

Breezy · Aug 11, 2007

Yep i had the suffocation issue too! Except mine wasn't trouble falling asleep (not always anyways) but it manifested itself in dreams.

I had one dream (and this was when it got really bad) I was skating on ice on a pond (in the middle of June!) and i fell through. I didn't float - i sank and sank and sank in spirals straight to the bottome, my skates weighing my down. The water was so so cold and my eyes were open and the water was murky. The most vivid thing I remember is the feeling that I couldn't breathe, and that no one had seen me fall through and that I wouldn't get rescued and that I would just die....

And then I woke up and i could barely breathe. I had several dreams like this, some i can't remember at this moment, but i'd always have dreams where I couldn't breathe.

Breezy · Aug 11, 2007

Yep i had the suffocation issue too! Except mine wasn't trouble falling asleep (not always anyways) but it manifested itself in dreams.

I had one dream (and this was when it got really bad) I was skating on ice on a pond (in the middle of June!) and i fell through. I didn't float - i sank and sank and sank in spirals straight to the bottome, my skates weighing my down. The water was so so cold and my eyes were open and the water was murky. The most vivid thing I remember is the feeling that I couldn't breathe, and that no one had seen me fall through and that I wouldn't get rescued and that I would just die....

And then I woke up and i could barely breathe. I had several dreams like this, some i can't remember at this moment, but i'd always have dreams where I couldn't breathe.

Breezy · Aug 11, 2007

Yep i had the suffocation issue too! Except mine wasn't trouble falling asleep (not always anyways) but it manifested itself in dreams.

I had one dream (and this was when it got really bad) I was skating on ice on a pond (in the middle of June!) and i fell through. I didn't float - i sank and sank and sank in spirals straight to the bottome, my skates weighing my down. The water was so so cold and my eyes were open and the water was murky. The most vivid thing I remember is the feeling that I couldn't breathe, and that no one had seen me fall through and that I wouldn't get rescued and that I would just die....

And then I woke up and i could barely breathe. I had several dreams like this, some i can't remember at this moment, but i'd always have dreams where I couldn't breathe.

Breezy · Aug 11, 2007

Yep i had the suffocation issue too! Except mine wasn't trouble falling asleep (not always anyways) but it manifested itself in dreams.

I had one dream (and this was when it got really bad) I was skating on ice on a pond (in the middle of June!) and i fell through. I didn't float - i sank and sank and sank in spirals straight to the bottome, my skates weighing my down. The water was so so cold and my eyes were open and the water was murky. The most vivid thing I remember is the feeling that I couldn't breathe, and that no one had seen me fall through and that I wouldn't get rescued and that I would just die....

And then I woke up and i could barely breathe. I had several dreams like this, some i can't remember at this moment, but i'd always have dreams where I couldn't breathe.

Breezy · Aug 11, 2007

Yep i had the suffocation issue too! Except mine wasn't trouble falling asleep (not always anyways) but it manifested itself in dreams.

I had one dream (and this was when it got really bad) I was skating on ice on a pond (in the middle of June!) and i fell through. I didn't float - i sank and sank and sank in spirals straight to the bottome, my skates weighing my down. The water was so so cold and my eyes were open and the water was murky. The most vivid thing I remember is the feeling that I couldn't breathe, and that no one had seen me fall through and that I wouldn't get rescued and that I would just die....

And then I woke up and i could barely breathe. I had several dreams like this, some i can't remember at this moment, but i'd always have dreams where I couldn't breathe.

ladybug · Aug 11, 2007

CowTown:

I may be at where you're at with this issue. Actually, at the gym I jog and feel pretty good doing it. I mean I sweat like a pig and I DO feel a little SOB after 15 minutes ++, but I don't experience anything else that would indicate a low O2 sat.

The problem is my little finger monitor DOES show me going way down to like 85%... I feel I SHOULD be able to FEEL this. But, I don't think I do. I get off the treadmill and lift weights for another half hour and don't get headaches, tingling, SOB, numbness, etc. that should accompany low O2. So, I'm perplexed.

I just did a stress test and it was such a joke. First of all, they had me only walk fast at incline (I NEVER really do this) and then ran all of 1 minute until my HR reached 165 (my "target" rate), which I also NEVER do. They had me keep my hands on the bar at all times (even with my run, which is a NO NO) and had me running at an incline. So, when my HR reached 165, it FELT like crap. I usually reach around 178-180 and though I'm tired, I don't feel too bad. So, my O2 did drop to 93% almost right away with a brisk uphill walk and then 85% when I ran for the minute UPHILL at 16%!!! So, obviously, this "stress" test was nothing at all like what I usually do. I dont' know if that is what the 6 minute test is that you're referring to, but I personally do not put much faith in that.

What I had wanted done was me to actually do my normal exercise and see what happens with my heart and lungs. Apparently they don't do this anywhere. They also seemed a little shocked when I told them I needed my O2 sats monitored during exercise. My cardiologist kinda said, "Well, if you are running and doing it fine and without symptoms you SHOULDN"T need oxygen, cause your body is obviously keeping up." So, who knows. This is all very frustrating to me too.

Good luck getting the answers you seek.

(oh, and I also wanted to mention that I too sometimes wake up with that "choking" feeling, but for me, it seems to be related to post-nasal drip and crap getting caught in the back of my throat. and, immediately upon waking in these cases, my finger O2 will read 96+. so, though its possible the choking feeling is low sats, nasal drip and congestion will also give this feeling. and, its a terrible terrible feeling. deff. check with your doc) <img src="i/expressions/face-icon-small-sad.gif" border="0">

ladybug · Aug 11, 2007

CowTown:

I may be at where you're at with this issue. Actually, at the gym I jog and feel pretty good doing it. I mean I sweat like a pig and I DO feel a little SOB after 15 minutes ++, but I don't experience anything else that would indicate a low O2 sat.

The problem is my little finger monitor DOES show me going way down to like 85%... I feel I SHOULD be able to FEEL this. But, I don't think I do. I get off the treadmill and lift weights for another half hour and don't get headaches, tingling, SOB, numbness, etc. that should accompany low O2. So, I'm perplexed.

I just did a stress test and it was such a joke. First of all, they had me only walk fast at incline (I NEVER really do this) and then ran all of 1 minute until my HR reached 165 (my "target" rate), which I also NEVER do. They had me keep my hands on the bar at all times (even with my run, which is a NO NO) and had me running at an incline. So, when my HR reached 165, it FELT like crap. I usually reach around 178-180 and though I'm tired, I don't feel too bad. So, my O2 did drop to 93% almost right away with a brisk uphill walk and then 85% when I ran for the minute UPHILL at 16%!!! So, obviously, this "stress" test was nothing at all like what I usually do. I dont' know if that is what the 6 minute test is that you're referring to, but I personally do not put much faith in that.

What I had wanted done was me to actually do my normal exercise and see what happens with my heart and lungs. Apparently they don't do this anywhere. They also seemed a little shocked when I told them I needed my O2 sats monitored during exercise. My cardiologist kinda said, "Well, if you are running and doing it fine and without symptoms you SHOULDN"T need oxygen, cause your body is obviously keeping up." So, who knows. This is all very frustrating to me too.

Good luck getting the answers you seek.

(oh, and I also wanted to mention that I too sometimes wake up with that "choking" feeling, but for me, it seems to be related to post-nasal drip and crap getting caught in the back of my throat. and, immediately upon waking in these cases, my finger O2 will read 96+. so, though its possible the choking feeling is low sats, nasal drip and congestion will also give this feeling. and, its a terrible terrible feeling. deff. check with your doc) <img src="i/expressions/face-icon-small-sad.gif" border="0">

ladybug · Aug 11, 2007

CowTown:

I may be at where you're at with this issue. Actually, at the gym I jog and feel pretty good doing it. I mean I sweat like a pig and I DO feel a little SOB after 15 minutes ++, but I don't experience anything else that would indicate a low O2 sat.

The problem is my little finger monitor DOES show me going way down to like 85%... I feel I SHOULD be able to FEEL this. But, I don't think I do. I get off the treadmill and lift weights for another half hour and don't get headaches, tingling, SOB, numbness, etc. that should accompany low O2. So, I'm perplexed.

I just did a stress test and it was such a joke. First of all, they had me only walk fast at incline (I NEVER really do this) and then ran all of 1 minute until my HR reached 165 (my "target" rate), which I also NEVER do. They had me keep my hands on the bar at all times (even with my run, which is a NO NO) and had me running at an incline. So, when my HR reached 165, it FELT like crap. I usually reach around 178-180 and though I'm tired, I don't feel too bad. So, my O2 did drop to 93% almost right away with a brisk uphill walk and then 85% when I ran for the minute UPHILL at 16%!!! So, obviously, this "stress" test was nothing at all like what I usually do. I dont' know if that is what the 6 minute test is that you're referring to, but I personally do not put much faith in that.

What I had wanted done was me to actually do my normal exercise and see what happens with my heart and lungs. Apparently they don't do this anywhere. They also seemed a little shocked when I told them I needed my O2 sats monitored during exercise. My cardiologist kinda said, "Well, if you are running and doing it fine and without symptoms you SHOULDN"T need oxygen, cause your body is obviously keeping up." So, who knows. This is all very frustrating to me too.

Good luck getting the answers you seek.

(oh, and I also wanted to mention that I too sometimes wake up with that "choking" feeling, but for me, it seems to be related to post-nasal drip and crap getting caught in the back of my throat. and, immediately upon waking in these cases, my finger O2 will read 96+. so, though its possible the choking feeling is low sats, nasal drip and congestion will also give this feeling. and, its a terrible terrible feeling. deff. check with your doc) <img src="i/expressions/face-icon-small-sad.gif" border="0">

ladybug · Aug 11, 2007

CowTown:

I may be at where you're at with this issue. Actually, at the gym I jog and feel pretty good doing it. I mean I sweat like a pig and I DO feel a little SOB after 15 minutes ++, but I don't experience anything else that would indicate a low O2 sat.

The problem is my little finger monitor DOES show me going way down to like 85%... I feel I SHOULD be able to FEEL this. But, I don't think I do. I get off the treadmill and lift weights for another half hour and don't get headaches, tingling, SOB, numbness, etc. that should accompany low O2. So, I'm perplexed.

I just did a stress test and it was such a joke. First of all, they had me only walk fast at incline (I NEVER really do this) and then ran all of 1 minute until my HR reached 165 (my "target" rate), which I also NEVER do. They had me keep my hands on the bar at all times (even with my run, which is a NO NO) and had me running at an incline. So, when my HR reached 165, it FELT like crap. I usually reach around 178-180 and though I'm tired, I don't feel too bad. So, my O2 did drop to 93% almost right away with a brisk uphill walk and then 85% when I ran for the minute UPHILL at 16%!!! So, obviously, this "stress" test was nothing at all like what I usually do. I dont' know if that is what the 6 minute test is that you're referring to, but I personally do not put much faith in that.

What I had wanted done was me to actually do my normal exercise and see what happens with my heart and lungs. Apparently they don't do this anywhere. They also seemed a little shocked when I told them I needed my O2 sats monitored during exercise. My cardiologist kinda said, "Well, if you are running and doing it fine and without symptoms you SHOULDN"T need oxygen, cause your body is obviously keeping up." So, who knows. This is all very frustrating to me too.

Good luck getting the answers you seek.

(oh, and I also wanted to mention that I too sometimes wake up with that "choking" feeling, but for me, it seems to be related to post-nasal drip and crap getting caught in the back of my throat. and, immediately upon waking in these cases, my finger O2 will read 96+. so, though its possible the choking feeling is low sats, nasal drip and congestion will also give this feeling. and, its a terrible terrible feeling. deff. check with your doc) <img src="i/expressions/face-icon-small-sad.gif" border="0">

ladybug · Aug 11, 2007

CowTown:

I may be at where you're at with this issue. Actually, at the gym I jog and feel pretty good doing it. I mean I sweat like a pig and I DO feel a little SOB after 15 minutes ++, but I don't experience anything else that would indicate a low O2 sat.

The problem is my little finger monitor DOES show me going way down to like 85%... I feel I SHOULD be able to FEEL this. But, I don't think I do. I get off the treadmill and lift weights for another half hour and don't get headaches, tingling, SOB, numbness, etc. that should accompany low O2. So, I'm perplexed.

I just did a stress test and it was such a joke. First of all, they had me only walk fast at incline (I NEVER really do this) and then ran all of 1 minute until my HR reached 165 (my "target" rate), which I also NEVER do. They had me keep my hands on the bar at all times (even with my run, which is a NO NO) and had me running at an incline. So, when my HR reached 165, it FELT like crap. I usually reach around 178-180 and though I'm tired, I don't feel too bad. So, my O2 did drop to 93% almost right away with a brisk uphill walk and then 85% when I ran for the minute UPHILL at 16%!!! So, obviously, this "stress" test was nothing at all like what I usually do. I dont' know if that is what the 6 minute test is that you're referring to, but I personally do not put much faith in that.

What I had wanted done was me to actually do my normal exercise and see what happens with my heart and lungs. Apparently they don't do this anywhere. They also seemed a little shocked when I told them I needed my O2 sats monitored during exercise. My cardiologist kinda said, "Well, if you are running and doing it fine and without symptoms you SHOULDN"T need oxygen, cause your body is obviously keeping up." So, who knows. This is all very frustrating to me too.

Good luck getting the answers you seek.

(oh, and I also wanted to mention that I too sometimes wake up with that "choking" feeling, but for me, it seems to be related to post-nasal drip and crap getting caught in the back of my throat. and, immediately upon waking in these cases, my finger O2 will read 96+. so, though its possible the choking feeling is low sats, nasal drip and congestion will also give this feeling. and, its a terrible terrible feeling. deff. check with your doc) <img src="i/expressions/face-icon-small-sad.gif" border="0">

CowTown · Aug 11, 2007

These are interesting. I've looked into this topic before here, and it seems like I have reocurring symptoms. I seem fine for a whie and then the symptoms start coming back and make me wonder, like now. Since I was little, I've always had vivid nightmeres of people trying to get me and I'd always be trying to defend myself or hide from danger. Occasionally I'll wake up with really bad headaches, sometimes after I exercise I am extremely tired for 1-2 days afterward my limbs could feel very heavy too. This doesn't happen consistently though so maybe it's okay.

I am curious to know whether your fev1 #s play a role in when someone might start needing O2 at night or during exercise. I'm in the mid 40s% but my little finger pulse ox reads that I go low, so I'm not sure. Hopefully Monday I'll take that exericse test to see.

I want to stay on top of this and not wait until my fev1 drop a lot lower to check it out then. That's how the doctors seem to approach it which is not the way I want to do it. I think of O2 now as maintenance if you need it, and don't want to wait until the text book says it might be time. I don't know if this is right or not.

CowTown · Aug 11, 2007

These are interesting. I've looked into this topic before here, and it seems like I have reocurring symptoms. I seem fine for a whie and then the symptoms start coming back and make me wonder, like now. Since I was little, I've always had vivid nightmeres of people trying to get me and I'd always be trying to defend myself or hide from danger. Occasionally I'll wake up with really bad headaches, sometimes after I exercise I am extremely tired for 1-2 days afterward my limbs could feel very heavy too. This doesn't happen consistently though so maybe it's okay.

I am curious to know whether your fev1 #s play a role in when someone might start needing O2 at night or during exercise. I'm in the mid 40s% but my little finger pulse ox reads that I go low, so I'm not sure. Hopefully Monday I'll take that exericse test to see.

I want to stay on top of this and not wait until my fev1 drop a lot lower to check it out then. That's how the doctors seem to approach it which is not the way I want to do it. I think of O2 now as maintenance if you need it, and don't want to wait until the text book says it might be time. I don't know if this is right or not.

CowTown · Aug 11, 2007

These are interesting. I've looked into this topic before here, and it seems like I have reocurring symptoms. I seem fine for a whie and then the symptoms start coming back and make me wonder, like now. Since I was little, I've always had vivid nightmeres of people trying to get me and I'd always be trying to defend myself or hide from danger. Occasionally I'll wake up with really bad headaches, sometimes after I exercise I am extremely tired for 1-2 days afterward my limbs could feel very heavy too. This doesn't happen consistently though so maybe it's okay.

I am curious to know whether your fev1 #s play a role in when someone might start needing O2 at night or during exercise. I'm in the mid 40s% but my little finger pulse ox reads that I go low, so I'm not sure. Hopefully Monday I'll take that exericse test to see.

I want to stay on top of this and not wait until my fev1 drop a lot lower to check it out then. That's how the doctors seem to approach it which is not the way I want to do it. I think of O2 now as maintenance if you need it, and don't want to wait until the text book says it might be time. I don't know if this is right or not.

CowTown · Aug 11, 2007

These are interesting. I've looked into this topic before here, and it seems like I have reocurring symptoms. I seem fine for a whie and then the symptoms start coming back and make me wonder, like now. Since I was little, I've always had vivid nightmeres of people trying to get me and I'd always be trying to defend myself or hide from danger. Occasionally I'll wake up with really bad headaches, sometimes after I exercise I am extremely tired for 1-2 days afterward my limbs could feel very heavy too. This doesn't happen consistently though so maybe it's okay.

I am curious to know whether your fev1 #s play a role in when someone might start needing O2 at night or during exercise. I'm in the mid 40s% but my little finger pulse ox reads that I go low, so I'm not sure. Hopefully Monday I'll take that exericse test to see.

I want to stay on top of this and not wait until my fev1 drop a lot lower to check it out then. That's how the doctors seem to approach it which is not the way I want to do it. I think of O2 now as maintenance if you need it, and don't want to wait until the text book says it might be time. I don't know if this is right or not.

CowTown · Aug 11, 2007

These are interesting. I've looked into this topic before here, and it seems like I have reocurring symptoms. I seem fine for a whie and then the symptoms start coming back and make me wonder, like now. Since I was little, I've always had vivid nightmeres of people trying to get me and I'd always be trying to defend myself or hide from danger. Occasionally I'll wake up with really bad headaches, sometimes after I exercise I am extremely tired for 1-2 days afterward my limbs could feel very heavy too. This doesn't happen consistently though so maybe it's okay.

I am curious to know whether your fev1 #s play a role in when someone might start needing O2 at night or during exercise. I'm in the mid 40s% but my little finger pulse ox reads that I go low, so I'm not sure. Hopefully Monday I'll take that exericse test to see.

I want to stay on top of this and not wait until my fev1 drop a lot lower to check it out then. That's how the doctors seem to approach it which is not the way I want to do it. I think of O2 now as maintenance if you need it, and don't want to wait until the text book says it might be time. I don't know if this is right or not.

Getting O2 during exericse...

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