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Getting Older...
- Thread starter abloedel
- Start date
Thankfully, I am in excellent health for someone who will be 29yo in May. I have had a combination of early Dx and very good care and a bit of luck. I wonder though, how hard it will be when the health I do have fades.
It seems that when one enjoys good health ( or relative good health) the loss of that is much harder to bear. While it does probably suck to be rather sick at an early age, you at least have the benefit of not knowing any better. I guess one could compare it to being born into poverty, rather than falling into poverty late in life. Likely those of you on this site who were diagnosed later in life can attest to this.
Having said all that, I think most about losing the health I have and having to cut down on a lot of the activities I enjoy now, or drastically increase the amount of medications/treatments I do.
It seems that when one enjoys good health ( or relative good health) the loss of that is much harder to bear. While it does probably suck to be rather sick at an early age, you at least have the benefit of not knowing any better. I guess one could compare it to being born into poverty, rather than falling into poverty late in life. Likely those of you on this site who were diagnosed later in life can attest to this.
Having said all that, I think most about losing the health I have and having to cut down on a lot of the activities I enjoy now, or drastically increase the amount of medications/treatments I do.
Thankfully, I am in excellent health for someone who will be 29yo in May. I have had a combination of early Dx and very good care and a bit of luck. I wonder though, how hard it will be when the health I do have fades.
It seems that when one enjoys good health ( or relative good health) the loss of that is much harder to bear. While it does probably suck to be rather sick at an early age, you at least have the benefit of not knowing any better. I guess one could compare it to being born into poverty, rather than falling into poverty late in life. Likely those of you on this site who were diagnosed later in life can attest to this.
Having said all that, I think most about losing the health I have and having to cut down on a lot of the activities I enjoy now, or drastically increase the amount of medications/treatments I do.
It seems that when one enjoys good health ( or relative good health) the loss of that is much harder to bear. While it does probably suck to be rather sick at an early age, you at least have the benefit of not knowing any better. I guess one could compare it to being born into poverty, rather than falling into poverty late in life. Likely those of you on this site who were diagnosed later in life can attest to this.
Having said all that, I think most about losing the health I have and having to cut down on a lot of the activities I enjoy now, or drastically increase the amount of medications/treatments I do.
Thankfully, I am in excellent health for someone who will be 29yo in May. I have had a combination of early Dx and very good care and a bit of luck. I wonder though, how hard it will be when the health I do have fades.
It seems that when one enjoys good health ( or relative good health) the loss of that is much harder to bear. While it does probably suck to be rather sick at an early age, you at least have the benefit of not knowing any better. I guess one could compare it to being born into poverty, rather than falling into poverty late in life. Likely those of you on this site who were diagnosed later in life can attest to this.
Having said all that, I think most about losing the health I have and having to cut down on a lot of the activities I enjoy now, or drastically increase the amount of medications/treatments I do.
It seems that when one enjoys good health ( or relative good health) the loss of that is much harder to bear. While it does probably suck to be rather sick at an early age, you at least have the benefit of not knowing any better. I guess one could compare it to being born into poverty, rather than falling into poverty late in life. Likely those of you on this site who were diagnosed later in life can attest to this.
Having said all that, I think most about losing the health I have and having to cut down on a lot of the activities I enjoy now, or drastically increase the amount of medications/treatments I do.
Thankfully, I am in excellent health for someone who will be 29yo in May. I have had a combination of early Dx and very good care and a bit of luck. I wonder though, how hard it will be when the health I do have fades.
It seems that when one enjoys good health ( or relative good health) the loss of that is much harder to bear. While it does probably suck to be rather sick at an early age, you at least have the benefit of not knowing any better. I guess one could compare it to being born into poverty, rather than falling into poverty late in life. Likely those of you on this site who were diagnosed later in life can attest to this.
Having said all that, I think most about losing the health I have and having to cut down on a lot of the activities I enjoy now, or drastically increase the amount of medications/treatments I do.
It seems that when one enjoys good health ( or relative good health) the loss of that is much harder to bear. While it does probably suck to be rather sick at an early age, you at least have the benefit of not knowing any better. I guess one could compare it to being born into poverty, rather than falling into poverty late in life. Likely those of you on this site who were diagnosed later in life can attest to this.
Having said all that, I think most about losing the health I have and having to cut down on a lot of the activities I enjoy now, or drastically increase the amount of medications/treatments I do.
Thankfully, I am in excellent health for someone who will be 29yo in May. I have had a combination of early Dx and very good care and a bit of luck. I wonder though, how hard it will be when the health I do have fades.
<br />
<br />It seems that when one enjoys good health ( or relative good health) the loss of that is much harder to bear. While it does probably suck to be rather sick at an early age, you at least have the benefit of not knowing any better. I guess one could compare it to being born into poverty, rather than falling into poverty late in life. Likely those of you on this site who were diagnosed later in life can attest to this.
<br />
<br />Having said all that, I think most about losing the health I have and having to cut down on a lot of the activities I enjoy now, or drastically increase the amount of medications/treatments I do.
<br />
<br />It seems that when one enjoys good health ( or relative good health) the loss of that is much harder to bear. While it does probably suck to be rather sick at an early age, you at least have the benefit of not knowing any better. I guess one could compare it to being born into poverty, rather than falling into poverty late in life. Likely those of you on this site who were diagnosed later in life can attest to this.
<br />
<br />Having said all that, I think most about losing the health I have and having to cut down on a lot of the activities I enjoy now, or drastically increase the amount of medications/treatments I do.
gracebazzle
New member
I worry about my parents and them losing another child to CF. I worry about my brothers and them losing their only sister. I worry about my boyfriend and close friends. I worry about getting sicker and not being able to do everything I want to do in life like have a career and maybe even children.
But like most of you, I snap myself out of that and realize I have to live in the present and be thankful for every moment I am given. I have no problem with dying because I know I will meet my brother and we will run around and play like we did when we were little for all of eternity.
I hope I can live to see 41! That is amazing and inspiring! <img src="i/expressions/face-icon-small-smile.gif" border="0">
But like most of you, I snap myself out of that and realize I have to live in the present and be thankful for every moment I am given. I have no problem with dying because I know I will meet my brother and we will run around and play like we did when we were little for all of eternity.
I hope I can live to see 41! That is amazing and inspiring! <img src="i/expressions/face-icon-small-smile.gif" border="0">
gracebazzle
New member
I worry about my parents and them losing another child to CF. I worry about my brothers and them losing their only sister. I worry about my boyfriend and close friends. I worry about getting sicker and not being able to do everything I want to do in life like have a career and maybe even children.
But like most of you, I snap myself out of that and realize I have to live in the present and be thankful for every moment I am given. I have no problem with dying because I know I will meet my brother and we will run around and play like we did when we were little for all of eternity.
I hope I can live to see 41! That is amazing and inspiring! <img src="i/expressions/face-icon-small-smile.gif" border="0">
But like most of you, I snap myself out of that and realize I have to live in the present and be thankful for every moment I am given. I have no problem with dying because I know I will meet my brother and we will run around and play like we did when we were little for all of eternity.
I hope I can live to see 41! That is amazing and inspiring! <img src="i/expressions/face-icon-small-smile.gif" border="0">
gracebazzle
New member
I worry about my parents and them losing another child to CF. I worry about my brothers and them losing their only sister. I worry about my boyfriend and close friends. I worry about getting sicker and not being able to do everything I want to do in life like have a career and maybe even children.
But like most of you, I snap myself out of that and realize I have to live in the present and be thankful for every moment I am given. I have no problem with dying because I know I will meet my brother and we will run around and play like we did when we were little for all of eternity.
I hope I can live to see 41! That is amazing and inspiring! <img src="i/expressions/face-icon-small-smile.gif" border="0">
But like most of you, I snap myself out of that and realize I have to live in the present and be thankful for every moment I am given. I have no problem with dying because I know I will meet my brother and we will run around and play like we did when we were little for all of eternity.
I hope I can live to see 41! That is amazing and inspiring! <img src="i/expressions/face-icon-small-smile.gif" border="0">
gracebazzle
New member
I worry about my parents and them losing another child to CF. I worry about my brothers and them losing their only sister. I worry about my boyfriend and close friends. I worry about getting sicker and not being able to do everything I want to do in life like have a career and maybe even children.
But like most of you, I snap myself out of that and realize I have to live in the present and be thankful for every moment I am given. I have no problem with dying because I know I will meet my brother and we will run around and play like we did when we were little for all of eternity.
I hope I can live to see 41! That is amazing and inspiring! <img src="i/expressions/face-icon-small-smile.gif" border="0">
But like most of you, I snap myself out of that and realize I have to live in the present and be thankful for every moment I am given. I have no problem with dying because I know I will meet my brother and we will run around and play like we did when we were little for all of eternity.
I hope I can live to see 41! That is amazing and inspiring! <img src="i/expressions/face-icon-small-smile.gif" border="0">
gracebazzle
New member
I worry about my parents and them losing another child to CF. I worry about my brothers and them losing their only sister. I worry about my boyfriend and close friends. I worry about getting sicker and not being able to do everything I want to do in life like have a career and maybe even children.
<br />
<br />But like most of you, I snap myself out of that and realize I have to live in the present and be thankful for every moment I am given. I have no problem with dying because I know I will meet my brother and we will run around and play like we did when we were little for all of eternity.
<br />
<br />I hope I can live to see 41! That is amazing and inspiring! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />But like most of you, I snap myself out of that and realize I have to live in the present and be thankful for every moment I am given. I have no problem with dying because I know I will meet my brother and we will run around and play like we did when we were little for all of eternity.
<br />
<br />I hope I can live to see 41! That is amazing and inspiring! <img src="i/expressions/face-icon-small-smile.gif" border="0">
skydiverchic
New member
I worry about my parents losing all their kidos to cf. I have lost two brothers to it already. I want to pull away from people so that they aren't sad when I am gone. I worry that the next flare up will be the end.
It is frustrating to c yur health deteriorate right before your eyes.
I DO enjoy working with my school kids. That's encouraging. My parents are adopting 4 little ones and that's a double edge sword. I love being a big sister yet I dread them seeing their sis deteriorate.
I do try to have fun though and enjoy the days I do have. We just have to pack more fun in a smaller amount of time<img src="i/expressions/face-icon-small-smile.gif" border="0">
It is frustrating to c yur health deteriorate right before your eyes.
I DO enjoy working with my school kids. That's encouraging. My parents are adopting 4 little ones and that's a double edge sword. I love being a big sister yet I dread them seeing their sis deteriorate.
I do try to have fun though and enjoy the days I do have. We just have to pack more fun in a smaller amount of time<img src="i/expressions/face-icon-small-smile.gif" border="0">
skydiverchic
New member
I worry about my parents losing all their kidos to cf. I have lost two brothers to it already. I want to pull away from people so that they aren't sad when I am gone. I worry that the next flare up will be the end.
It is frustrating to c yur health deteriorate right before your eyes.
I DO enjoy working with my school kids. That's encouraging. My parents are adopting 4 little ones and that's a double edge sword. I love being a big sister yet I dread them seeing their sis deteriorate.
I do try to have fun though and enjoy the days I do have. We just have to pack more fun in a smaller amount of time<img src="i/expressions/face-icon-small-smile.gif" border="0">
It is frustrating to c yur health deteriorate right before your eyes.
I DO enjoy working with my school kids. That's encouraging. My parents are adopting 4 little ones and that's a double edge sword. I love being a big sister yet I dread them seeing their sis deteriorate.
I do try to have fun though and enjoy the days I do have. We just have to pack more fun in a smaller amount of time<img src="i/expressions/face-icon-small-smile.gif" border="0">
skydiverchic
New member
I worry about my parents losing all their kidos to cf. I have lost two brothers to it already. I want to pull away from people so that they aren't sad when I am gone. I worry that the next flare up will be the end.
It is frustrating to c yur health deteriorate right before your eyes.
I DO enjoy working with my school kids. That's encouraging. My parents are adopting 4 little ones and that's a double edge sword. I love being a big sister yet I dread them seeing their sis deteriorate.
I do try to have fun though and enjoy the days I do have. We just have to pack more fun in a smaller amount of time<img src="i/expressions/face-icon-small-smile.gif" border="0">
It is frustrating to c yur health deteriorate right before your eyes.
I DO enjoy working with my school kids. That's encouraging. My parents are adopting 4 little ones and that's a double edge sword. I love being a big sister yet I dread them seeing their sis deteriorate.
I do try to have fun though and enjoy the days I do have. We just have to pack more fun in a smaller amount of time<img src="i/expressions/face-icon-small-smile.gif" border="0">
skydiverchic
New member
I worry about my parents losing all their kidos to cf. I have lost two brothers to it already. I want to pull away from people so that they aren't sad when I am gone. I worry that the next flare up will be the end.
It is frustrating to c yur health deteriorate right before your eyes.
I DO enjoy working with my school kids. That's encouraging. My parents are adopting 4 little ones and that's a double edge sword. I love being a big sister yet I dread them seeing their sis deteriorate.
I do try to have fun though and enjoy the days I do have. We just have to pack more fun in a smaller amount of time<img src="i/expressions/face-icon-small-smile.gif" border="0">
It is frustrating to c yur health deteriorate right before your eyes.
I DO enjoy working with my school kids. That's encouraging. My parents are adopting 4 little ones and that's a double edge sword. I love being a big sister yet I dread them seeing their sis deteriorate.
I do try to have fun though and enjoy the days I do have. We just have to pack more fun in a smaller amount of time<img src="i/expressions/face-icon-small-smile.gif" border="0">
skydiverchic
New member
I worry about my parents losing all their kidos to cf. I have lost two brothers to it already. I want to pull away from people so that they aren't sad when I am gone. I worry that the next flare up will be the end.
<br />It is frustrating to c yur health deteriorate right before your eyes.
<br />I DO enjoy working with my school kids. That's encouraging. My parents are adopting 4 little ones and that's a double edge sword. I love being a big sister yet I dread them seeing their sis deteriorate.
<br />I do try to have fun though and enjoy the days I do have. We just have to pack more fun in a smaller amount of time<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />It is frustrating to c yur health deteriorate right before your eyes.
<br />I DO enjoy working with my school kids. That's encouraging. My parents are adopting 4 little ones and that's a double edge sword. I love being a big sister yet I dread them seeing their sis deteriorate.
<br />I do try to have fun though and enjoy the days I do have. We just have to pack more fun in a smaller amount of time<img src="i/expressions/face-icon-small-smile.gif" border="0">