Getting reaquainted

[babyjaden2004]

HI I've posted only a few times and lurk mostly but like to become more active so I thought I'd reintroduce myself.

I'm Chrissy mom to Jaden who has CF, she is 2 and doing very well health wise. We have only culture PA once since her getting diagnosed (at 8 months). We have had no lung issues and are dealing with poopy issues though. She is typical 2 year old and has so much energry we joke about taping her to her chair so she quits buring all those calories. She is almost 26 1/2 lbs and almost 34 1/2 inches tall. We go to the clinic in Monroville which is apart of Childrens in Pittsburgh. She has a awesome team working with us. We got to the clinic every 2 months and talk pretty regular with our dietition. Jaden has a big brother Zack who is 11 and is so great with her and he really takes a beating from this girl,lol. He gives her her enzymes and loves taking her for walks. I have a friend who is doing a photo doctumentry on her and hopefully it will be soon in our local paper.

I hope to become more active. I really need someplace where people understand. I know people mean well but some just don't get it.

Chrissy <img src="i/expressions/heart.gif" border="0">

 

[babyjaden2004]

HI I've posted only a few times and lurk mostly but like to become more active so I thought I'd reintroduce myself.

I'm Chrissy mom to Jaden who has CF, she is 2 and doing very well health wise. We have only culture PA once since her getting diagnosed (at 8 months). We have had no lung issues and are dealing with poopy issues though. She is typical 2 year old and has so much energry we joke about taping her to her chair so she quits buring all those calories. She is almost 26 1/2 lbs and almost 34 1/2 inches tall. We go to the clinic in Monroville which is apart of Childrens in Pittsburgh. She has a awesome team working with us. We got to the clinic every 2 months and talk pretty regular with our dietition. Jaden has a big brother Zack who is 11 and is so great with her and he really takes a beating from this girl,lol. He gives her her enzymes and loves taking her for walks. I have a friend who is doing a photo doctumentry on her and hopefully it will be soon in our local paper.

I hope to become more active. I really need someplace where people understand. I know people mean well but some just don't get it.

Chrissy <img src="i/expressions/heart.gif" border="0">

 

[babyjaden2004]

HI I've posted only a few times and lurk mostly but like to become more active so I thought I'd reintroduce myself.

I'm Chrissy mom to Jaden who has CF, she is 2 and doing very well health wise. We have only culture PA once since her getting diagnosed (at 8 months). We have had no lung issues and are dealing with poopy issues though. She is typical 2 year old and has so much energry we joke about taping her to her chair so she quits buring all those calories. She is almost 26 1/2 lbs and almost 34 1/2 inches tall. We go to the clinic in Monroville which is apart of Childrens in Pittsburgh. She has a awesome team working with us. We got to the clinic every 2 months and talk pretty regular with our dietition. Jaden has a big brother Zack who is 11 and is so great with her and he really takes a beating from this girl,lol. He gives her her enzymes and loves taking her for walks. I have a friend who is doing a photo doctumentry on her and hopefully it will be soon in our local paper.

I hope to become more active. I really need someplace where people understand. I know people mean well but some just don't get it.

Chrissy <img src="i/expressions/heart.gif" border="0">

 

[Mairi]

Hi

I'm Mary, mum to Liam who will be 2 next month and has CF. I also have a four, almost five year old son without cf. We live on the Isle of Skye off the North West coast of Scotland - ever heard of it?!! Liam was diagnosed shortly after birth due to meconium ileus. After a difficult first 4 months, Liam continues (touch wood) to do well. He is full of energy and at times drives us completely mad! He too, has not had any lung issues but does have the poo ones!! Glad your little girl is doing well. Look forward to seeing you on here again.

Mary

 

[Mairi]

Hi

I'm Mary, mum to Liam who will be 2 next month and has CF. I also have a four, almost five year old son without cf. We live on the Isle of Skye off the North West coast of Scotland - ever heard of it?!! Liam was diagnosed shortly after birth due to meconium ileus. After a difficult first 4 months, Liam continues (touch wood) to do well. He is full of energy and at times drives us completely mad! He too, has not had any lung issues but does have the poo ones!! Glad your little girl is doing well. Look forward to seeing you on here again.

Mary

 

[Mairi]

Hi

I'm Mary, mum to Liam who will be 2 next month and has CF. I also have a four, almost five year old son without cf. We live on the Isle of Skye off the North West coast of Scotland - ever heard of it?!! Liam was diagnosed shortly after birth due to meconium ileus. After a difficult first 4 months, Liam continues (touch wood) to do well. He is full of energy and at times drives us completely mad! He too, has not had any lung issues but does have the poo ones!! Glad your little girl is doing well. Look forward to seeing you on here again.

Mary

 

[kayleesgrandma]

Hi Crissy, and Mary. Welcome to our little family here. You'll find a great and very interestinggroup. There is great support here, and many cybershoulders to lean on/cry on. It's been life-changing for me since finding it. I have found what I hope to be life-long friends--may everyone have a long life here...Looking forward to hearing from you both.

 

[kayleesgrandma]

Hi Crissy, and Mary. Welcome to our little family here. You'll find a great and very interestinggroup. There is great support here, and many cybershoulders to lean on/cry on. It's been life-changing for me since finding it. I have found what I hope to be life-long friends--may everyone have a long life here...Looking forward to hearing from you both.

 

[kayleesgrandma]

Hi Crissy, and Mary. Welcome to our little family here. You'll find a great and very interestinggroup. There is great support here, and many cybershoulders to lean on/cry on. It's been life-changing for me since finding it. I have found what I hope to be life-long friends--may everyone have a long life here...Looking forward to hearing from you both.