Getting sick while on Tobi?

[sarabeth87]

Okay I called my doctor last week (the same day I posted this) She never did return my call. Anyways, I decided to just go ahead and start taking Bactrium. I had about a 2 week supply of it from last time I was on it and my doc changed me to Zyvox in the middle of it. Anyways, I'm not feeling 100% better, but I'm not running fevers anymore and have had a lot more energy. I've noticed that when I get sick from MRSA, I feel WAY worse then when the PA makes me sick. She has talked about putting my on Cayston, but right now she has no nurse b/c my CF nurse just left for a better job. I think she told me that I will have to get the Cayston from a speciality pharmacy and I'll also have to get the device to take it in. I go to UMC in Jackson, MS and it's a very small CF clinic. There is only 1 adult doctor and 1 pediatric doctor.

 

[tleigh]

It is my understanding that the Cayston works well on the PA. Have you had a sputum culture recently? They can check and see what abx the bugs are more sensitive too. This should help in figuring out if the Cayston or something else will work on your MRSA.

 

[tleigh]

It is my understanding that the Cayston works well on the PA. Have you had a sputum culture recently? They can check and see what abx the bugs are more sensitive too. This should help in figuring out if the Cayston or something else will work on your MRSA.

 

[tleigh]

It is my understanding that the Cayston works well on the PA. Have you had a sputum culture recently? They can check and see what abx the bugs are more sensitive too. This should help in figuring out if the Cayston or something else will work on your MRSA.