Hi All,
First I would like to introduce myself. My name is Leo and I'm 21 years old. I need feedback, help, comments anything from you guys. Well I was on Medi-Cal (medicaid) and California Childrens Services, both of these insurance cover all my CF needs. But I turned 21 last month and they closed them down. I apply to the Genetically Hadicapped Persons Program (GHPP) on January 4 and it has been a month and I have heard nothing from them. I've been calling these two ladys at GHPP one in Oakland and one in Sacramento and they say that I don't appear on the system and they don't know where my application is. I sent another one on February 1 so that's two and still don't know. I told one lady that I had proof from the US Postal that they had recieved it and signed it. Has any one gone through this.
At the moment I'm out of: Xoponex, Hyper-Sal, Tobi, Cayston, Vitamin D, and Azithromycin. I had run out of Creon as well but my clinic gave me a coupon and I have a month supply. I called the CF Patient Assistance and they gave me phone numbers to get aid to recieve free meds since I don't have insurance at the moment.
I though Medi-Cal was something I needed in order to get GHPP, so I went and applied but I was denied because I'm 21 and I'm NOT disabled (my lung function is at 80%) However, they did sign me up for LIHP (low income health plan) but that's just for primary care not specilty care for CF. Should I disinrolled from it since most programs that manufacturers offer they say that you should not be getting any governmental help?
Please anyone from California who has GHPP response and even others just give me words of advice. I'm so overwhelmed that I just feel like crying, I feel hopeless, my lungs are feeling the lack of medications. I know I'm 21 and that I'm an adult and should be acting like a man, but this is too much. I don't have parents which is the reason why I don't have insurance, my aunt raised me but she was never legally my legal guardian. So now that I'm 21 I am on my own.
-Thanks.
First I would like to introduce myself. My name is Leo and I'm 21 years old. I need feedback, help, comments anything from you guys. Well I was on Medi-Cal (medicaid) and California Childrens Services, both of these insurance cover all my CF needs. But I turned 21 last month and they closed them down. I apply to the Genetically Hadicapped Persons Program (GHPP) on January 4 and it has been a month and I have heard nothing from them. I've been calling these two ladys at GHPP one in Oakland and one in Sacramento and they say that I don't appear on the system and they don't know where my application is. I sent another one on February 1 so that's two and still don't know. I told one lady that I had proof from the US Postal that they had recieved it and signed it. Has any one gone through this.
At the moment I'm out of: Xoponex, Hyper-Sal, Tobi, Cayston, Vitamin D, and Azithromycin. I had run out of Creon as well but my clinic gave me a coupon and I have a month supply. I called the CF Patient Assistance and they gave me phone numbers to get aid to recieve free meds since I don't have insurance at the moment.
I though Medi-Cal was something I needed in order to get GHPP, so I went and applied but I was denied because I'm 21 and I'm NOT disabled (my lung function is at 80%) However, they did sign me up for LIHP (low income health plan) but that's just for primary care not specilty care for CF. Should I disinrolled from it since most programs that manufacturers offer they say that you should not be getting any governmental help?
Please anyone from California who has GHPP response and even others just give me words of advice. I'm so overwhelmed that I just feel like crying, I feel hopeless, my lungs are feeling the lack of medications. I know I'm 21 and that I'm an adult and should be acting like a man, but this is too much. I don't have parents which is the reason why I don't have insurance, my aunt raised me but she was never legally my legal guardian. So now that I'm 21 I am on my own.
-Thanks.
