GI doc needed in CT
- Thread starter Simba15
- Start date
Simba15
Member
never heard of him. where is he?
Simba15
Member
Thanks Printer! That is 4 hours away. Good for consult and scripts but if I get sick it will be a problem
Simba15
Member
I wrote him and asked him if he would see me. waiting.
cheerfulpuppies
Member
Pinter,
I see you speak very highly of the doctors in mass. Obviously you live out that way but in your experience what makes them better than other doctors or has this been the only place you have had treatment for your cf issues? I ask out of curiosity not as an accusation or anything. I live in NY and have had many mixed feelings about the cf clinic here but since this is the only place I remember going (since I was 7) and it is close to where I live, and due to insurance of course I have not switched but would like to at least keep the thought in mind that if push came to shove I am not at the mercy of this area if I needed more than they could offer. Thanks for your time Bill.
oh and by the way your age is a great inspiration to me.
I see you speak very highly of the doctors in mass. Obviously you live out that way but in your experience what makes them better than other doctors or has this been the only place you have had treatment for your cf issues? I ask out of curiosity not as an accusation or anything. I live in NY and have had many mixed feelings about the cf clinic here but since this is the only place I remember going (since I was 7) and it is close to where I live, and due to insurance of course I have not switched but would like to at least keep the thought in mind that if push came to shove I am not at the mercy of this area if I needed more than they could offer. Thanks for your time Bill.
oh and by the way your age is a great inspiration to me.
cheerful:
No not at all. A little over two years ago when I changed my care to Boston Children's Hospital, they announced that they would be closing the clinic for several days. It seems that Mayo Clinic's handling of CF patients was considered superior to Boston Children's. The reason for the close down was to have EVERY person involved in CF care to visit Mayo to "find out what it is that they are doing better than we are, so we can be better".
It is that desire to "be the best" that impresses me.
Steve Freedman is located at a hospital separate from Children's but in the same area. There are so few CF GI Doctors and he is one of the best. I tell everyone to Google him.
There are great CF Doctors in many places in the USA, including NY.
Thanks for your kind words.
Bill
No not at all. A little over two years ago when I changed my care to Boston Children's Hospital, they announced that they would be closing the clinic for several days. It seems that Mayo Clinic's handling of CF patients was considered superior to Boston Children's. The reason for the close down was to have EVERY person involved in CF care to visit Mayo to "find out what it is that they are doing better than we are, so we can be better".
It is that desire to "be the best" that impresses me.
Steve Freedman is located at a hospital separate from Children's but in the same area. There are so few CF GI Doctors and he is one of the best. I tell everyone to Google him.
There are great CF Doctors in many places in the USA, including NY.
Thanks for your kind words.
Bill
I have been reading posts for a while and I know people are interested in information about the Affordable Care Act, medicare, Medicaid and coverage for CF care and medications. The Webcast described below is today at 2pm eastern time. Sorry I was not able to post as a separate post. Printer maybe you can re-post for me? Thanks in advance for any help. Hope you all can join for the Webcast today.
Webcast on Insurance and CF TODAY at 2pm eastern time!!
Do you need to know about new Medicare coverage rules? How to get help paying Medicare co-pays and deductibles? How to obtain an insurance policy that will cover all of your CF needs? How to get your current insurance to pay for your medications? What states allow adults with low income to enroll in Medicaid? Then Join us for a Webinar on Thursday, March 6th
As part of “Cystic Fibrosis Week at the ATS” and in conjunction with the ATS Public Advisory Roundtable partner the Cystic Fibrosis Foundation, the ATS hosts a live webinar on Thursday, March 6, 2014 at 2:00 pm ET. The talk entitled “Improving Access to Cystic Fibrosis Care and Medication” will be presented by Beth Sufian, JD, attorney, CF patient, and director of the CF Legal Information Hotline.
Improving Access to Cystic Fibrosis Care and Medication
Date:
Thursday, March 6, 2014
Time:
2:00 PM – 3:00 PM EST
After registering you will receive a confirmation email containing information about joining the Webinar.
System Requirements
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Required: Windows® 8, 7, Vista, XP or 2003 Server
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Space is limited.
Reserve your Webinar seat now at:
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Simba15
Member
CF Kitty. I am NOT impressed with Yale!