Gina / Pepe

[thefrogprincess]

Considering the number of drugs they are pumping into her the hallucinations and nightmares are not suprising although it doesn't happen to everyone.

Her body is going through hell right now, not to mention she has a suppressed immune system now, so again pneumonia is a risk. Being able to sit up should help and the sooner she gets walking the better too.

As others have said considering her state before the transplant she is doing amazing. GO PEPE!

 

[thefrogprincess]

Considering the number of drugs they are pumping into her the hallucinations and nightmares are not suprising although it doesn't happen to everyone.

Her body is going through hell right now, not to mention she has a suppressed immune system now, so again pneumonia is a risk. Being able to sit up should help and the sooner she gets walking the better too.

As others have said considering her state before the transplant she is doing amazing. GO PEPE!

 

[thefrogprincess]

Considering the number of drugs they are pumping into her the hallucinations and nightmares are not suprising although it doesn't happen to everyone.

Her body is going through hell right now, not to mention she has a suppressed immune system now, so again pneumonia is a risk. Being able to sit up should help and the sooner she gets walking the better too.

As others have said considering her state before the transplant she is doing amazing. GO PEPE!

 

[thefrogprincess]

Considering the number of drugs they are pumping into her the hallucinations and nightmares are not suprising although it doesn't happen to everyone.

Her body is going through hell right now, not to mention she has a suppressed immune system now, so again pneumonia is a risk. Being able to sit up should help and the sooner she gets walking the better too.

As others have said considering her state before the transplant she is doing amazing. GO PEPE!

 

[thefrogprincess]

Considering the number of drugs they are pumping into her the hallucinations and nightmares are not suprising although it doesn't happen to everyone.
<br />
<br />Her body is going through hell right now, not to mention she has a suppressed immune system now, so again pneumonia is a risk. Being able to sit up should help and the sooner she gets walking the better too.
<br />
<br />As others have said considering her state before the transplant she is doing amazing. GO PEPE!

 

[Aspiemom]

Thanks for all of the replies and explanations, everybody. What you all said makes sense. I just wasn't sure. Hopefully things will turn around for her really soon!

 

[Aspiemom]

Thanks for all of the replies and explanations, everybody. What you all said makes sense. I just wasn't sure. Hopefully things will turn around for her really soon!

 

[Aspiemom]

Thanks for all of the replies and explanations, everybody. What you all said makes sense. I just wasn't sure. Hopefully things will turn around for her really soon!

 

[Aspiemom]

Thanks for all of the replies and explanations, everybody. What you all said makes sense. I just wasn't sure. Hopefully things will turn around for her really soon!

 

[Aspiemom]

Thanks for all of the replies and explanations, everybody. What you all said makes sense. I just wasn't sure. Hopefully things will turn around for her really soon!

 

[coltsfan715]

I think it depends on the state the person is in when they are actually transplanted.

When you think of all the things that Gina had working against her at the time of her transplant and the seriousness of the infections she was dealing with it is not unusual (at least I don't think) for her to be dealing with these issues.

A friend of mine was on a vent and basically only had a few days to live when she received her transplant (also had CF). She had issue after issue for the first 4 months post transplant. She is now roughly 7 months post transplant and has been relatively problem free since around month 4 post transplant. Leading up to that though she had lung collapse, fluid on her lung, a few rejection episodes, mild lung infections and so on. She was starting to go crazy with the issues she was having then once she reached a point that she was up and moving more and exercising more she started doing better.

The more you are able to move and do in the immediate post transplant period the better you will do immediately because it helps to keep any bugs from really settling in in the new lungs. I am not sure what all Gina is able to do but that may have something to do with it who knows.

Either way the transplant docs are amazing in most places and I am sure they are on top of things to treat her infection and get her back on track and moving in the right direction. Gina is one tough cookie one thing that I can say too - at least that I was told by my transplant docs that a lung infectionpost transplant can be a pain to deal with but in general they are easier to treat psot transplant than they ever were for us CFers pre transplant because we aren't fighting the horrendously thick and sticky bacteria festering mucous. SO hopefully though not fun her recovery period won't be as long as it used to be pre transplant.

Love Linds

 

[coltsfan715]

I think it depends on the state the person is in when they are actually transplanted.

When you think of all the things that Gina had working against her at the time of her transplant and the seriousness of the infections she was dealing with it is not unusual (at least I don't think) for her to be dealing with these issues.

A friend of mine was on a vent and basically only had a few days to live when she received her transplant (also had CF). She had issue after issue for the first 4 months post transplant. She is now roughly 7 months post transplant and has been relatively problem free since around month 4 post transplant. Leading up to that though she had lung collapse, fluid on her lung, a few rejection episodes, mild lung infections and so on. She was starting to go crazy with the issues she was having then once she reached a point that she was up and moving more and exercising more she started doing better.

The more you are able to move and do in the immediate post transplant period the better you will do immediately because it helps to keep any bugs from really settling in in the new lungs. I am not sure what all Gina is able to do but that may have something to do with it who knows.

Either way the transplant docs are amazing in most places and I am sure they are on top of things to treat her infection and get her back on track and moving in the right direction. Gina is one tough cookie one thing that I can say too - at least that I was told by my transplant docs that a lung infectionpost transplant can be a pain to deal with but in general they are easier to treat psot transplant than they ever were for us CFers pre transplant because we aren't fighting the horrendously thick and sticky bacteria festering mucous. SO hopefully though not fun her recovery period won't be as long as it used to be pre transplant.

Love Linds

 

[coltsfan715]

I think it depends on the state the person is in when they are actually transplanted.

When you think of all the things that Gina had working against her at the time of her transplant and the seriousness of the infections she was dealing with it is not unusual (at least I don't think) for her to be dealing with these issues.

A friend of mine was on a vent and basically only had a few days to live when she received her transplant (also had CF). She had issue after issue for the first 4 months post transplant. She is now roughly 7 months post transplant and has been relatively problem free since around month 4 post transplant. Leading up to that though she had lung collapse, fluid on her lung, a few rejection episodes, mild lung infections and so on. She was starting to go crazy with the issues she was having then once she reached a point that she was up and moving more and exercising more she started doing better.

The more you are able to move and do in the immediate post transplant period the better you will do immediately because it helps to keep any bugs from really settling in in the new lungs. I am not sure what all Gina is able to do but that may have something to do with it who knows.

Either way the transplant docs are amazing in most places and I am sure they are on top of things to treat her infection and get her back on track and moving in the right direction. Gina is one tough cookie one thing that I can say too - at least that I was told by my transplant docs that a lung infectionpost transplant can be a pain to deal with but in general they are easier to treat psot transplant than they ever were for us CFers pre transplant because we aren't fighting the horrendously thick and sticky bacteria festering mucous. SO hopefully though not fun her recovery period won't be as long as it used to be pre transplant.

Love Linds

 

[coltsfan715]

I think it depends on the state the person is in when they are actually transplanted.

When you think of all the things that Gina had working against her at the time of her transplant and the seriousness of the infections she was dealing with it is not unusual (at least I don't think) for her to be dealing with these issues.

A friend of mine was on a vent and basically only had a few days to live when she received her transplant (also had CF). She had issue after issue for the first 4 months post transplant. She is now roughly 7 months post transplant and has been relatively problem free since around month 4 post transplant. Leading up to that though she had lung collapse, fluid on her lung, a few rejection episodes, mild lung infections and so on. She was starting to go crazy with the issues she was having then once she reached a point that she was up and moving more and exercising more she started doing better.

The more you are able to move and do in the immediate post transplant period the better you will do immediately because it helps to keep any bugs from really settling in in the new lungs. I am not sure what all Gina is able to do but that may have something to do with it who knows.

Either way the transplant docs are amazing in most places and I am sure they are on top of things to treat her infection and get her back on track and moving in the right direction. Gina is one tough cookie one thing that I can say too - at least that I was told by my transplant docs that a lung infectionpost transplant can be a pain to deal with but in general they are easier to treat psot transplant than they ever were for us CFers pre transplant because we aren't fighting the horrendously thick and sticky bacteria festering mucous. SO hopefully though not fun her recovery period won't be as long as it used to be pre transplant.

Love Linds

 

[coltsfan715]

I think it depends on the state the person is in when they are actually transplanted.
<br />
<br />When you think of all the things that Gina had working against her at the time of her transplant and the seriousness of the infections she was dealing with it is not unusual (at least I don't think) for her to be dealing with these issues.
<br />
<br />A friend of mine was on a vent and basically only had a few days to live when she received her transplant (also had CF). She had issue after issue for the first 4 months post transplant. She is now roughly 7 months post transplant and has been relatively problem free since around month 4 post transplant. Leading up to that though she had lung collapse, fluid on her lung, a few rejection episodes, mild lung infections and so on. She was starting to go crazy with the issues she was having then once she reached a point that she was up and moving more and exercising more she started doing better.
<br />
<br />The more you are able to move and do in the immediate post transplant period the better you will do immediately because it helps to keep any bugs from really settling in in the new lungs. I am not sure what all Gina is able to do but that may have something to do with it who knows.
<br />
<br />Either way the transplant docs are amazing in most places and I am sure they are on top of things to treat her infection and get her back on track and moving in the right direction. Gina is one tough cookie one thing that I can say too - at least that I was told by my transplant docs that a lung infectionpost transplant can be a pain to deal with but in general they are easier to treat psot transplant than they ever were for us CFers pre transplant because we aren't fighting the horrendously thick and sticky bacteria festering mucous. SO hopefully though not fun her recovery period won't be as long as it used to be pre transplant.
<br />
<br />Love Linds

 

[NYCLawGirl]

I have been following Gina's blog and, like everyone else, I HATE that she is going through so many hardships right now, but I agree that they are not uncommon. In dealing with the tx evaluation process lots of docs, etc, have warned me about the time immediately post-tx. I am super scared about it, but I figure any shot is better than nothing at all. I only pray that Gina can get some peace and rest after all that she has been through.

 

[NYCLawGirl]

I have been following Gina's blog and, like everyone else, I HATE that she is going through so many hardships right now, but I agree that they are not uncommon. In dealing with the tx evaluation process lots of docs, etc, have warned me about the time immediately post-tx. I am super scared about it, but I figure any shot is better than nothing at all. I only pray that Gina can get some peace and rest after all that she has been through.

 

[NYCLawGirl]

I have been following Gina's blog and, like everyone else, I HATE that she is going through so many hardships right now, but I agree that they are not uncommon. In dealing with the tx evaluation process lots of docs, etc, have warned me about the time immediately post-tx. I am super scared about it, but I figure any shot is better than nothing at all. I only pray that Gina can get some peace and rest after all that she has been through.

 

[NYCLawGirl]

I have been following Gina's blog and, like everyone else, I HATE that she is going through so many hardships right now, but I agree that they are not uncommon. In dealing with the tx evaluation process lots of docs, etc, have warned me about the time immediately post-tx. I am super scared about it, but I figure any shot is better than nothing at all. I only pray that Gina can get some peace and rest after all that she has been through.

 

[NYCLawGirl]

I have been following Gina's blog and, like everyone else, I HATE that she is going through so many hardships right now, but I agree that they are not uncommon. In dealing with the tx evaluation process lots of docs, etc, have warned me about the time immediately post-tx. I am super scared about it, but I figure any shot is better than nothing at all. I only pray that Gina can get some peace and rest after all that she has been through.