<b>Sorry The First Post was very very Hard to Read</b>
Hey Vikki14,
I am Karen, I can definately answer a few of your questions...they're pretty easy though and the first two will give you really good answers if you Google them<img src="i/expressions/face-icon-small-tongue.gif" border="0">
3. how does CF affect your everyday life?
Cf can be hard to deal with on a day to day bases, The biggest issue for me is finding time for all my meds and physio. it can definately be a drag when I would rather go out with friends than have to spend time on aerosols or physio but I know what is most important.You really just need to get a routin or schedual to help keep everything straight!
4. do your friends understand how your illness affects you?
My friends are very understanding of my Cf ( otherwise they wouldnt be friends lol ) There has been time when certain ppl have treated me like i was made of glass but not often. A few potential boyfriends were alil scared at frist but meh!
5. do you get treated differently because of your illness?
Not much...only relatives and friends know about it...however, the way i am treated is ALIL different when someone doesnt know about it and then I eventually tell them but its not big issue for me.
6. Can a person with Cf lead a normal life?
People with Cf can definately lead normal lives...we just have to put our health first and ensure that we take all our meds.
7. How much medication do you take and how often?
The ammount of medication people with Cf varies from person to person depending on how sever their case is. Personally I take:
Cotazym ECS20 8 wth meals 5 with snacks (this helps to digest my food)
Cipro 3 tabs twice daily (antibiotic)
Spornax 2tabs once daily
Urso 1 tab three times daily ( helps produce liver enzymes i think)
ADEK 2 tabs daily ( its a vitamin)
Pulmozye ( take it in an aerosol mask 1 daily)
Tobramycin ( three times daily in aersol mask)
Ventolin 3 times daily in aerosol
Flonase ( Its a nose spray)
Advair ( a puffer )
Prednisone 20 mg every second day ( its like a steriod sorta I think)
Zantac 2 times a day ( helps with indigestion and heartburn) l
Thats all my meds i think but remember this isnt the same for every CFer
8. do you have much time of school/work because off your illness?
I get hospitalized a few times a year for about three weeks at a time which really sucks and is very hard on my Makrs(grades) but i always manage. My teachers were always very understanding in highschool and now that I am in university my proffessors are pretty good about it too. I always feel like i am asking to be treated differently when i am in the hospital ...for example the very last set of exams to pass high school i had to miss because i was pretty sick but all my trachers said it was ok and i could still graduate and just not take them. This seemed alil unfair b/c everyone else was studyig their butts off but oh well.
9. what does the future hold for a person with CF?
Um hopefully alot! Nowadays ppl with cf are living much longer lives. Like when I was growing up i really honestly thought i was just gonna drop dead when i hit 18 but hey I am still here. Like I dont know many older cfers but I see on here that there are many that are into their 50s which is Awesome!!!
10. do any of yor other family members have CF?
I have an older brother ( he is 26) he has cf to. It is a genetic disorder so this happens alot. I have 3 other cf free siblings though. My brother with cf just recieved a double lung transplant and is doing amazing <img src="i/expressions/face-icon-small-happy.gif" border="0">
