give me what i want

[xosder22]

ok here is the situation i have faced recently

im in the office with the study coordinator and i know that it is time to come into the hospital for a "tune-up".

for the past year and a half i have participated in 5 studies which brings me to the clinic to see the study coordinator at least once a month, for essentially a full cf clinic visit.

now after the docs confirm that i need a hospital admission which i knew before even coming to the clinic because i know my body, the clinical nurse comes in and scolds me because its been over 1.5 years since my last regular cf clinic visit.

this really pisses me off because im 30 years old and i know my body better than anyone an tell me what is going on with my body. also im getting everything i need from the study visits minus the nutritionist and the social worker. neither of which i need to talk to. im at the highest weight i have ever been and i have a government job as a correctional officer that provides me with wonderful benefits at the time.

i am very involved in my care. when the docs tell me test results i dont want to hear they are all good. i want printouts with actual numbers because i want to see the numbers based on how i feel.

i feel that if i could walk into a given place and order up what i need at the time why would i need the docs at all?

i would like this test that test these drugs picc placement and let me get on my way and leave me alone.

i know my body

you know test results and a generic way to treat those results

give me what i want and when i want it and let me live my life as i see fit

anyone else feel like this

 

[xosder22]

ok here is the situation i have faced recently

im in the office with the study coordinator and i know that it is time to come into the hospital for a "tune-up".

for the past year and a half i have participated in 5 studies which brings me to the clinic to see the study coordinator at least once a month, for essentially a full cf clinic visit.

now after the docs confirm that i need a hospital admission which i knew before even coming to the clinic because i know my body, the clinical nurse comes in and scolds me because its been over 1.5 years since my last regular cf clinic visit.

this really pisses me off because im 30 years old and i know my body better than anyone an tell me what is going on with my body. also im getting everything i need from the study visits minus the nutritionist and the social worker. neither of which i need to talk to. im at the highest weight i have ever been and i have a government job as a correctional officer that provides me with wonderful benefits at the time.

i am very involved in my care. when the docs tell me test results i dont want to hear they are all good. i want printouts with actual numbers because i want to see the numbers based on how i feel.

i feel that if i could walk into a given place and order up what i need at the time why would i need the docs at all?

i would like this test that test these drugs picc placement and let me get on my way and leave me alone.

i know my body

you know test results and a generic way to treat those results

give me what i want and when i want it and let me live my life as i see fit

anyone else feel like this

 

[xosder22]

ok here is the situation i have faced recently

im in the office with the study coordinator and i know that it is time to come into the hospital for a "tune-up".

for the past year and a half i have participated in 5 studies which brings me to the clinic to see the study coordinator at least once a month, for essentially a full cf clinic visit.

now after the docs confirm that i need a hospital admission which i knew before even coming to the clinic because i know my body, the clinical nurse comes in and scolds me because its been over 1.5 years since my last regular cf clinic visit.

this really pisses me off because im 30 years old and i know my body better than anyone an tell me what is going on with my body. also im getting everything i need from the study visits minus the nutritionist and the social worker. neither of which i need to talk to. im at the highest weight i have ever been and i have a government job as a correctional officer that provides me with wonderful benefits at the time.

i am very involved in my care. when the docs tell me test results i dont want to hear they are all good. i want printouts with actual numbers because i want to see the numbers based on how i feel.

i feel that if i could walk into a given place and order up what i need at the time why would i need the docs at all?

i would like this test that test these drugs picc placement and let me get on my way and leave me alone.

i know my body

you know test results and a generic way to treat those results

give me what i want and when i want it and let me live my life as i see fit

anyone else feel like this

 

[xosder22]

ok here is the situation i have faced recently

im in the office with the study coordinator and i know that it is time to come into the hospital for a "tune-up".

for the past year and a half i have participated in 5 studies which brings me to the clinic to see the study coordinator at least once a month, for essentially a full cf clinic visit.

now after the docs confirm that i need a hospital admission which i knew before even coming to the clinic because i know my body, the clinical nurse comes in and scolds me because its been over 1.5 years since my last regular cf clinic visit.

this really pisses me off because im 30 years old and i know my body better than anyone an tell me what is going on with my body. also im getting everything i need from the study visits minus the nutritionist and the social worker. neither of which i need to talk to. im at the highest weight i have ever been and i have a government job as a correctional officer that provides me with wonderful benefits at the time.

i am very involved in my care. when the docs tell me test results i dont want to hear they are all good. i want printouts with actual numbers because i want to see the numbers based on how i feel.

i feel that if i could walk into a given place and order up what i need at the time why would i need the docs at all?

i would like this test that test these drugs picc placement and let me get on my way and leave me alone.

i know my body

you know test results and a generic way to treat those results

give me what i want and when i want it and let me live my life as i see fit

anyone else feel like this

 

[xosder22]

ok here is the situation i have faced recently
<br />
<br />im in the office with the study coordinator and i know that it is time to come into the hospital for a "tune-up".
<br />
<br />for the past year and a half i have participated in 5 studies which brings me to the clinic to see the study coordinator at least once a month, for essentially a full cf clinic visit.
<br />
<br />now after the docs confirm that i need a hospital admission which i knew before even coming to the clinic because i know my body, the clinical nurse comes in and scolds me because its been over 1.5 years since my last regular cf clinic visit.
<br />
<br />this really pisses me off because im 30 years old and i know my body better than anyone an tell me what is going on with my body. also im getting everything i need from the study visits minus the nutritionist and the social worker. neither of which i need to talk to. im at the highest weight i have ever been and i have a government job as a correctional officer that provides me with wonderful benefits at the time.
<br />
<br />i am very involved in my care. when the docs tell me test results i dont want to hear they are all good. i want printouts with actual numbers because i want to see the numbers based on how i feel.
<br />
<br />i feel that if i could walk into a given place and order up what i need at the time why would i need the docs at all?
<br />
<br /> i would like this test that test these drugs picc placement and let me get on my way and leave me alone.
<br />
<br />i know my body
<br />
<br />you know test results and a generic way to treat those results
<br />
<br />give me what i want and when i want it and let me live my life as i see fit
<br />
<br />anyone else feel like this

 

[redheadedmommy]

YES!!! who knows your body better us?!

 

[redheadedmommy]

YES!!! who knows your body better us?!

 

[redheadedmommy]

YES!!! who knows your body better us?!

 

[redheadedmommy]

YES!!! who knows your body better us?!

 

[redheadedmommy]

YES!!! who knows your body better us?!

 

[jbrandonAW]

I totally feel you! Sometimes I just wanna slap my docs and be like "I'm not a moron ya know" but they think that they know more -sometimes they do BUT I too am one of those that can tell how I feel. When I went to vandy they were VERY open to that approach and when I was sick I could call in and they would just get the ball rolling. HERE is louisiana OMG its like a constant fight with doctors, drugs, hospitals and procrastination. (atleast now that she has gotten some new doctors) but yea sometimes I DEF feel like you.

 

[jbrandonAW]

I totally feel you! Sometimes I just wanna slap my docs and be like "I'm not a moron ya know" but they think that they know more -sometimes they do BUT I too am one of those that can tell how I feel. When I went to vandy they were VERY open to that approach and when I was sick I could call in and they would just get the ball rolling. HERE is louisiana OMG its like a constant fight with doctors, drugs, hospitals and procrastination. (atleast now that she has gotten some new doctors) but yea sometimes I DEF feel like you.

 

[jbrandonAW]

I totally feel you! Sometimes I just wanna slap my docs and be like "I'm not a moron ya know" but they think that they know more -sometimes they do BUT I too am one of those that can tell how I feel. When I went to vandy they were VERY open to that approach and when I was sick I could call in and they would just get the ball rolling. HERE is louisiana OMG its like a constant fight with doctors, drugs, hospitals and procrastination. (atleast now that she has gotten some new doctors) but yea sometimes I DEF feel like you.

 

[jbrandonAW]

I totally feel you! Sometimes I just wanna slap my docs and be like "I'm not a moron ya know" but they think that they know more -sometimes they do BUT I too am one of those that can tell how I feel. When I went to vandy they were VERY open to that approach and when I was sick I could call in and they would just get the ball rolling. HERE is louisiana OMG its like a constant fight with doctors, drugs, hospitals and procrastination. (atleast now that she has gotten some new doctors) but yea sometimes I DEF feel like you.

 

[jbrandonAW]

I totally feel you! Sometimes I just wanna slap my docs and be like "I'm not a moron ya know" but they think that they know more -sometimes they do BUT I too am one of those that can tell how I feel. When I went to vandy they were VERY open to that approach and when I was sick I could call in and they would just get the ball rolling. HERE is louisiana OMG its like a constant fight with doctors, drugs, hospitals and procrastination. (atleast now that she has gotten some new doctors) but yea sometimes I DEF feel like you.

 

[cf4life]

Yup, a number of years ago I switched to a pulmonoligist instead of the CF Clinic and he is much better at doing what I want. It is really great now, I have full say now in my care, including hospital stays, antibiotic selection, and when and what tests to run.

 

[cf4life]

Yup, a number of years ago I switched to a pulmonoligist instead of the CF Clinic and he is much better at doing what I want. It is really great now, I have full say now in my care, including hospital stays, antibiotic selection, and when and what tests to run.

 

[cf4life]

Yup, a number of years ago I switched to a pulmonoligist instead of the CF Clinic and he is much better at doing what I want. It is really great now, I have full say now in my care, including hospital stays, antibiotic selection, and when and what tests to run.

 

[cf4life]

Yup, a number of years ago I switched to a pulmonoligist instead of the CF Clinic and he is much better at doing what I want. It is really great now, I have full say now in my care, including hospital stays, antibiotic selection, and when and what tests to run.

 

[cf4life]

Yup, a number of years ago I switched to a pulmonoligist instead of the CF Clinic and he is much better at doing what I want. It is really great now, I have full say now in my care, including hospital stays, antibiotic selection, and when and what tests to run.