glutathione and dr. bishop

A

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>love4josh</b></i>


If it is true what the doc says, why would dr bishop refuse?

</end quote></div>

In my opinion, doctors who turn up their noses at dietary supplements like the one you mentioned, do so wisely to protect their patients.

Supplements are not regulated by the FDA. It is the Dietary Supplement Health and Education Act (DHSEA) that sets the regulatory requirements. The DHSEA's main purpose is to ensure that the supplements are safe. This is not the same as making sure that they are useful/beneficial/effective. Safety and efficacy are very different things.

This is not to say that some people do not benefit from supplements or other aspects of alternative medicine. Everyone's body is different, and everyone responds differently to what goes into the body.

Physicians who are wary of starting their patients on supplements of certain types do so because there is not enough medical evidence or published evidence to back them up. Personally, I think this is a good thing that they are doing for us. I have had enough problems getting things sortted out with the medications that are familiar to them--I can't imagine the frustration of flying blind with a supplement that has little or no supporting documentation.

Although some doctors willingly stand behind supplements, most of the acclaim for supplements is anecdotal as opposed to scientific.

For more information about the rols of the FDA and supplements, please visit the following link: <a target=_blank class=ftalternatingbarlinklarge href="http://health.allrefer.com/alternative-medicine/dietary-supp-12.html">Understanding Dietary Supplements</a>
 
S

Scarlett81

New member
Slightly ot,
But I asked 2 naturopthatic doctors their opinion about the glut, and the problem (just according to them) is that you'd have to take such high doses of glut and some of these other supplements for them to acheive what it is you want. But in some cases those doses are not safe of course.

Almost every natural professional I have run this by says its much better to take what makes up glutathione-(NAC, Vit C, curc as a transfer) so your body will make the glut on its own naturally.

I have heard from too many doctors that nothing I do nutritionally or otherwise will help various conditions I have. That made me start to do my own research, see other professionals to help me, and take matters in to my own hands in a way. Meds and science have just as much of an important place I feel. But both have worked for me.

But I think there will always be the divide between medical docs and natural therapies. Some just don't believe in each other. Some docs are trying to be wise and cautious. Some just would rather have us pay out the wazoo for medicine than encourage natural alternatives-of course I think those docs are far and few between, but I think they exist.

My doc knows I've been on glut, and she doesn't really care-she doesn't do cartwheels, but she doesn't think its unsafe (in the dose I have taken) I'm really thankful I have a cf doc that encourgaes natural alternatives, or whatever I'm doing for my health.
 
A

anonymous

New member
The sad thing about what anonymous just posted about glutathione

"Physicians who are wary of starting their patients on supplements of certain types do so because there is not enough medical evidence or published evidence to back them up. Personally, I think this is a good thing that they are doing for us. I have had enough problems getting things sortted out with the medications that are familiar to them--I can't imagine the frustration of flying blind with a supplement that has little or no supporting documentation.

Although some doctors willingly stand behind supplements, most of the acclaim for supplements is anecdotal as opposed to scientific. "

is that you are soooo sadly ignorant. I could take a guess at who you are, but I guess that doesn't matter....anyone, not willing to do the research on something as benign as glutathione , is not only close-minded, but is putting waaay too much confidence in your good old cf doc.

Did you know that there have been numerous studies now outside of the us that have been sponsored be the CF Foundation? They have been written up and have been accepted by many reviewed journals....Journal of Respiratory Therapy, Chest......

Did you know that when the CFF brought together the foremost scientists in the world on anti-oxidants and the role they play in lung disease and over-all health, they asked D. Bishop to go? A little bitty doc from Utah who happened to be having amazing results with glutathione and cf patients? Did you know they wanted to take over his study?

Did you know that there is already an FDA approved glutathione which is an orphan drug for AIDS. AIDS patients, like many chronic illness suffers, have low plasma and rbc glutathione. They also have low glutathione in the surfactant in the lungs.....just like cf patients.

Did you know that the same company that makes that "FDA regulated perscription glutathione" also makes a non-perscription brand with the exact same assay as the prescription brand? Did you know the perscription brand costs $300 for sixty pills and the other is around $50 for the exact same dosage?

Did you know there is a blood test that can measure your glutathione...just like the clinics test for which vitamins we as cfers are lacking? They give us ADEKs....
DID you KNOW that vitamin e is an anti-oxidant???? Did you know that as far as cells go, glutathione is the MOST IMPORTANT anti-oxidant in the body? for anyone?

Do you understand how anti-oxidants work in the body? Do you realize that cf, cfrd put enormous pressure in the oxidant load on the body? How do you expect your body to get the anti-oxidants it needs? By your great diet that is so poorly digested by the cf gut? Do you think your liver is making enough glutathione for your lungs, gut, sinuses, pancreas, kidneys and liver with all the toxic drugs we take to fight infection? Did you know that there is a study out suggesting that glutathione helps protect hearing in those taking Tobrmyacin?....that might be helpful.

Did you know that to do a small oral trial of glutathione in the US a researcher has to file an IND and pay close to four million dollars? Did you know the same trial costs a few thousand in Europe? or Canada?

My guess is that if you answered no to any of these questions, you might want to do a little research on the topic. I could talk all day about the results of the studies and that probably wouldn't matter either. Unless it comes from the good ole FDA, it sucks.

I am sorry to be so rude, that is not my intention. I am simply irrate. If you took glutathione and had a bad experience...please, do tell.....that is important!!! But if you are simply going by what someone told you (ie a doc who has no time to do the research), then you need re-think what you are saying and why you are saying it.

As far as glutathione goes, caution is good. Do the research and decide for yourself....talk to people who have been on it...who take it now.
I take 3000 mg a day...before I started my plasma glutathione level was 54, my red blood cell glutathione was 120...both of those are supposed to be between 200-400. My levels are now over 200. My energy is much better, my weight holds without doing anything extra, my asthma is gone, my pulse ox is 98-99% and my lungs have been the same now for almost four years.....and that is witha very nasty bug (m. abscessus)...I was fev1 mid 40's, now I am fev1 mid 50's and low 60's.

Glutathione is not a cf cure.....people who take it are trying to protect what they have left until the CURE comes along.

Maybe you are one of those who does not need to worry about it. maybe your fev1 is over 100!!! Maybe you wnat to preserve your lung function.....maybe you don't. Either way it is very irresponsible to speak on something which you very clearly know nothing about.
mandy
 
A

anonymous

New member
Hi I have a 9 yr old boy with cf. He only takes albuterol neb treatments and the vest once a day. He also takes 2 multivitamins(children) and 1 vit E daily and 1 enzyme w meals. I have been reading so much about supplements. Do you think that is something I should start on my son. His Pfts right now are 98. But I'm just curious if it would be benificial to start on anything else now. I take him to his cf appt next Tues - I am going to see what the doc says. I should mention that he has more problems (right now anyway) with nasal polyps and digestion. But has never been hospitalized since diagnosis at 6 mos. They want to do his 4th polyp surgery - but I'm going to try to wait til they bother him more. Any suggestions?
 
A

anonymous

New member
With all supplements there should be caution -- some aren't regulated, as was discussed when DS talked about OO. From what I understand, they asked Dr. Bishop to participate in a study, apply for a grant to further his research and he declined.

Last year I read a study about the use of chondroitin and glucoasamine for people with arthritis and joint disorders -- it can cause a sharp spike/increase in blood sugar levels. The study further discussed how it can cause diabetes in dogs. Our dog was on C&G for several years for joint issues -- at the age of 8 he developed diabetes and required insulin twice a day for the past 5 years. When we tried to start him back on the C&G, his blood sugar spiked significantly -- he drained his water dishes and needed to go outdoors much much more often.

So with this and all forms of alternative supplements, I guess I tend to be a bit more cautious. Liza
 
D

Diane

New member
<div class="FTQUOTE"><begin quote>



you are soooo sadly ignorant. I could take a guess at who you are, but I guess that doesn't matter.... Either way it is very irresponsible to speak on something which you very clearly know nothing about.

mandy</end quote></div>
This particular person does that LOT, thats why his/her post is under annonymous....lol
Apparently Mandy you have done a lot of research , which is great ! I also did a lot of research before i decided to use the gsh. Its always best to be as well informed as you can. I also read about gsh being used in hospitals in iv form, for something but i cant remember what it was used for off the top of my head. It's good to hear you are having such good results> I also have good results and am glad i tried it . My doctor is like yours, he doesn't think he knows everything and is always open to alternatives as long as they are within reason.
 
A

anonymous

New member
Hi mom of 9 year old cfer!
I am so happy he has such great lung function. As for the sinus stuff, I do believe there are some supplements that help. Look into getting him on a childrens's probiotic...there are several on the market that are made for children and are chewable or mix in water.....my nephew (no cf) takes a cherry one twice a day.

For a cfer, inflammation is the enemy. Probiotics are safe and effective and recent research suggests that they help with inflammation in the gut of cf children.

<i><i>Intestinal inflammation is a frequent feature of cystic fibrosis and is reduced by probiotic administration.Bruzzese E, Raia V, Gaudiello G, Polito G, Buccigrossi V, Formicola V, Guarino A.
Department of Pediatrics, University of Naples Federico II, Naples, Italy.

AIMS: To assess the incidence of intestinal inflammation in children with cystic fibrosis and to investigate whether probiotics decrease it. STUDY DESIGN: In this two-phase, controlled, prospective study, faecal calprotectin was measured by enzyme-linked immunosorbent assay in 30 children with cystic fibrosis, 30 healthy controls and 15 children with active inflammatory bowel disease. Ten children with cystic fibrosis received Lactobacillus GG, and faecal calprotectin was re-measured 4 weeks later. Rectal nitric oxide production was measured with the rectal dialysis bag technique in 20 children with cystic fibrosis, 20 healthy controls and 15 children with inflammatory bowel disease. Five children with cystic fibrosis received Lactobacillus GG and nitric oxide was re-measured 4 weeks later. RESULTS: Mean faecal calprotectin was significantly higher in the two groups of patients than in controls. Abnormal values were detected in 27 of 30 cystic fibrosis and in 15 of 15 inflammatory bowel disease children. Also mean nitric oxide production was increased in both group of patients, and abnormal values were detected in 19 of 20 cystic fibrosis and in 15 of 15 inflammatory bowel disease children. Calprotectin and nitric oxide concentrations were reduced after probiotics administration. CONCLUSIONS: Intestinal inflammation is a major feature of cystic fibrosis and is reduced by probiotics. The latter finding suggests that intestinal microflora play a major role in intestinal inflammation in cystic fibrosis children.</i>
PMID: 15379842 [PubMed - indexed for MEDLINE]

Here is why that is so significant....if probiotics reduce inflammation in the intestines, then it has to do a little something everywhere else because anywhere there is a place for bacteria to grow, these good bacteria can take up residence. Think about this.....good bacteria flourishing in lungs and nasal passages and intestines, reducing inflammation and actually fighting for space against more pathogenic bacteria like pseudo.

I am 33 and from 1990 to 2001 i had 8 sinus surgeries....my last surgery was on December 23 of 2003. In July of 2003 I started glutathione..... Normally, after a sinus surgery, my sinuses looked like crap about 3 months later.....
since beginning glutathione, I have had NO polyps....my surgery in 03 was to take out my frontal sinuses...most cfers don't have them...I did and they were contributing to my downfall. My ENT is floored everytime I go in...he says that I have normal healthy sinuses......he knows I take glutathione and probiotics and he is all for it because he has witnessed the difference in the before and after.

I believe in glutathione and probiotics whole-heartedly....
check out the utah valley site

www.members.tripod.com/uvicf/
It has a ton of info on supplements....

hope this helps.
mandy
 
A

anonymous

New member
Diane-
I think about you a lot. You are wise and you never "lose it" like I just did in the previous post. I am so glad that the glutathione has helped you.....I know it was a hard decision to make....I did not go into it lightly either.

At some point, we just have to have faith that hard-line FDAers will come around and see that there are many things that can help outside the realm of conventional medicine. Although, like you said, IV gluathione is being used in hospitals to treat everything from parkinson's to asthma patients. I even read about a study done at one of the top burn units (maybe Parkland) about treating burn patients with glutathione. Third degree burn patients treated in icu with IV glutathione never developed pseudomonas as opposed to almost all of the non-treated patients developing pseudomonas....pseudo is very common in patients with severe burns. I emailed that article to Valerie Hudson...she, of course, was not surprised as glutathione protects against many pathogens.

Anyway, I hope people will do their own research....and make informed desicions.

mandy
 
E

Ender

New member
Hey Mandy,
I know you are part of the message board about cf and glutathione, so you probably heard of it before, but have you thought of using liposomal gsh? It works just as well as the pill form, perhaps even better, and you don't have to take nearly as much, to the tune of 1/4 teaspoon a day.

Anyways, I'm gonna give it a shot next month, and I'll let you know how it goes. I have tried the regular GSH in the past, but never on an ongoing basis. I also used 3000 mg a day. I think the dosage was 30mg/pound, right?

Anyways, I'll keep you posted. Nice to see people trying new things, aand actually looking to what else is out there outside "traditional" methods ie...nuke body with antibiotics heheh
 
L

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

The sad thing about what anonymous just posted about glutathione



"Physicians who are wary of starting their patients on supplements of certain types do so because there is not enough medical evidence or published evidence to back them up. Personally, I think this is a good thing that they are doing for us. I have had enough problems getting things sortted out with the medications that are familiar to them--I can't imagine the frustration of flying blind with a supplement that has little or no supporting documentation.



Although some doctors willingly stand behind supplements, most of the acclaim for supplements is anecdotal as opposed to scientific. "



is that you are soooo sadly ignorant. I could take a guess at who you are, but I guess that doesn't matter....anyone, not willing to do the research on something as benign as glutathione , is not only close-minded, but is putting waaay too much confidence in your good old cf doc.



Did you know that there have been numerous studies now outside of the us that have been sponsored be the CF Foundation? They have been written up and have been accepted by many reviewed journals....Journal of Respiratory Therapy, Chest......

<b>YES</b>

Did you know that when the CFF brought together the foremost scientists in the world on anti-oxidants and the role they play in lung disease and over-all health, they asked D. Bishop to go? A little bitty doc from Utah who happened to be having amazing results with glutathione and cf patients? Did you know they wanted to take over his study?

<b>YES</b>



Did you know that there is already an FDA approved glutathione which is an orphan drug for AIDS. AIDS patients, like many chronic illness suffers, have low plasma and rbc glutathione. They also have low glutathione in the surfactant in the lungs.....just like cf patients.

<b>YES</b>


Did you know that the same company that makes that "FDA regulated perscription glutathione" also makes a non-perscription brand with the exact same assay as the prescription brand? Did you know the perscription brand costs $300 for sixty pills and the other is around $50 for the exact same dosage?

<b>YES</b>



Did you know there is a blood test that can measure your glutathione...just like the clinics test for which vitamins we as cfers are lacking? They give us ADEKs....
<b>YES</b>

DID you KNOW that vitamin e is an anti-oxidant???? Did you know that as far as cells go, glutathione is the MOST IMPORTANT anti-oxidant in the body? for anyone?

<b>YES</b>

Do you understand how anti-oxidants work in the body? Do you realize that cf, cfrd put enormous pressure in the oxidant load on the body? How do you expect your body to get the anti-oxidants it needs? By your great diet that is so poorly digested by the cf gut? Do you think your liver is making enough glutathione for your lungs, gut, sinuses, pancreas, kidneys and liver with all the toxic drugs we take to fight infection? Did you know that there is a study out suggesting that glutathione helps protect hearing in those taking Tobrmyacin?....that might be helpful.

<b>YES</b>

Did you know that to do a small oral trial of glutathione in the US a researcher has to file an IND and pay close to four million dollars? Did you know the same trial costs a few thousand in Europe? or Canada?

<b>YES</b>

My guess is that if you answered no to any of these questions, you might want to do a little research on the topic. I could talk all day about the results of the studies and that probably wouldn't matter either. Unless it comes from the good ole FDA, it sucks.

I am sorry to be so rude, that is not my intention. I am simply irrate.

<b>Apology accepted, I just don't know why you're taking out your frustration on me</b>

If you took glutathione and had a bad experience...please, do tell.....that is important!!! But if you are simply going by what someone told you (ie a doc who has no time to do the research), then you need re-think what you are saying and why you are saying it.

<b>I said nothing disparaging or misleading about glutathione, I only answered the question of why a doctor MIGHT not get behind a certain--unspecified in my response--supplement. </b>

As far as glutathione goes, caution is good. Do the research and decide for yourself....talk to people who have been on it...who take it now.


Glutathione is not a cf cure.....people who take it are trying to protect what they have left until the CURE comes along.


Maybe you are one of those who does not need to worry about it. maybe your fev1 is over 100!!! Maybe you wnat to preserve your lung function.....maybe you don't. Either way it is very irresponsible to speak on something which you very clearly know nothing about.</end quote></div>

<b>Certainly I worry about preserving my health, a process that becomes more difficult as the years pass. And I, like you, am most likely going to succumb to this disease way before a cure is found. Again, I'm not sure why you're so upset --upset enough to make presumptions about my health that have nothing to do with anything I said. All I did was pose an answer to a simple question in the original post. Please don't presume that I am 'speak[ing] on a subject' which with I 'clearly know nothing about.'</b>

Respectfully,
lightNlife
 
L

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

The sad thing about what anonymous just posted about glutathione



"Physicians who are wary of starting their patients on supplements of certain types do so because there is not enough medical evidence or published evidence to back them up. Personally, I think this is a good thing that they are doing for us. I have had enough problems getting things sortted out with the medications that are familiar to them--I can't imagine the frustration of flying blind with a supplement that has little or no supporting documentation.



Although some doctors willingly stand behind supplements, most of the acclaim for supplements is anecdotal as opposed to scientific. "



is that you are soooo sadly ignorant. I could take a guess at who you are, but I guess that doesn't matter....anyone, not willing to do the research on something as benign as glutathione , is not only close-minded, but is putting waaay too much confidence in your good old cf doc.



Did you know that there have been numerous studies now outside of the us that have been sponsored be the CF Foundation? They have been written up and have been accepted by many reviewed journals....Journal of Respiratory Therapy, Chest......

<b>YES</b>

Did you know that when the CFF brought together the foremost scientists in the world on anti-oxidants and the role they play in lung disease and over-all health, they asked D. Bishop to go? A little bitty doc from Utah who happened to be having amazing results with glutathione and cf patients? Did you know they wanted to take over his study?

<b>YES</b>



Did you know that there is already an FDA approved glutathione which is an orphan drug for AIDS. AIDS patients, like many chronic illness suffers, have low plasma and rbc glutathione. They also have low glutathione in the surfactant in the lungs.....just like cf patients.

<b>YES</b>


Did you know that the same company that makes that "FDA regulated perscription glutathione" also makes a non-perscription brand with the exact same assay as the prescription brand? Did you know the perscription brand costs $300 for sixty pills and the other is around $50 for the exact same dosage?

<b>YES</b>



Did you know there is a blood test that can measure your glutathione...just like the clinics test for which vitamins we as cfers are lacking? They give us ADEKs....
<b>YES</b>

DID you KNOW that vitamin e is an anti-oxidant???? Did you know that as far as cells go, glutathione is the MOST IMPORTANT anti-oxidant in the body? for anyone?

<b>YES</b>

Do you understand how anti-oxidants work in the body? Do you realize that cf, cfrd put enormous pressure in the oxidant load on the body? How do you expect your body to get the anti-oxidants it needs? By your great diet that is so poorly digested by the cf gut? Do you think your liver is making enough glutathione for your lungs, gut, sinuses, pancreas, kidneys and liver with all the toxic drugs we take to fight infection? Did you know that there is a study out suggesting that glutathione helps protect hearing in those taking Tobrmyacin?....that might be helpful.

<b>YES</b>

Did you know that to do a small oral trial of glutathione in the US a researcher has to file an IND and pay close to four million dollars? Did you know the same trial costs a few thousand in Europe? or Canada?

<b>YES</b>

My guess is that if you answered no to any of these questions, you might want to do a little research on the topic. I could talk all day about the results of the studies and that probably wouldn't matter either. Unless it comes from the good ole FDA, it sucks.

I am sorry to be so rude, that is not my intention. I am simply irrate.

<b>Apology accepted, I just don't know why you're taking out your frustration on me</b>

If you took glutathione and had a bad experience...please, do tell.....that is important!!! But if you are simply going by what someone told you (ie a doc who has no time to do the research), then you need re-think what you are saying and why you are saying it.

<b>I said nothing disparaging or misleading about glutathione, I only answered the question of why a doctor MIGHT not get behind a certain--unspecified in my response--supplement. </b>

As far as glutathione goes, caution is good. Do the research and decide for yourself....talk to people who have been on it...who take it now.


Glutathione is not a cf cure.....people who take it are trying to protect what they have left until the CURE comes along.


Maybe you are one of those who does not need to worry about it. maybe your fev1 is over 100!!! Maybe you wnat to preserve your lung function.....maybe you don't. Either way it is very irresponsible to speak on something which you very clearly know nothing about.</end quote></div>

<b>Certainly I worry about preserving my health, a process that becomes more difficult as the years pass. And I, like you, am most likely going to succumb to this disease way before a cure is found. Again, I'm not sure why you're so upset --upset enough to make presumptions about my health that have nothing to do with anything I said. All I did was pose an answer to a simple question in the original post. Please don't presume that I am 'speak[ing] on a subject' which with I 'clearly know nothing about.'</b>

Respectfully,
lightNlife
 
L

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

The sad thing about what anonymous just posted about glutathione



"Physicians who are wary of starting their patients on supplements of certain types do so because there is not enough medical evidence or published evidence to back them up. Personally, I think this is a good thing that they are doing for us. I have had enough problems getting things sortted out with the medications that are familiar to them--I can't imagine the frustration of flying blind with a supplement that has little or no supporting documentation.



Although some doctors willingly stand behind supplements, most of the acclaim for supplements is anecdotal as opposed to scientific. "



is that you are soooo sadly ignorant. I could take a guess at who you are, but I guess that doesn't matter....anyone, not willing to do the research on something as benign as glutathione , is not only close-minded, but is putting waaay too much confidence in your good old cf doc.



Did you know that there have been numerous studies now outside of the us that have been sponsored be the CF Foundation? They have been written up and have been accepted by many reviewed journals....Journal of Respiratory Therapy, Chest......

<b>YES</b>

Did you know that when the CFF brought together the foremost scientists in the world on anti-oxidants and the role they play in lung disease and over-all health, they asked D. Bishop to go? A little bitty doc from Utah who happened to be having amazing results with glutathione and cf patients? Did you know they wanted to take over his study?

<b>YES</b>



Did you know that there is already an FDA approved glutathione which is an orphan drug for AIDS. AIDS patients, like many chronic illness suffers, have low plasma and rbc glutathione. They also have low glutathione in the surfactant in the lungs.....just like cf patients.

<b>YES</b>


Did you know that the same company that makes that "FDA regulated perscription glutathione" also makes a non-perscription brand with the exact same assay as the prescription brand? Did you know the perscription brand costs $300 for sixty pills and the other is around $50 for the exact same dosage?

<b>YES</b>



Did you know there is a blood test that can measure your glutathione...just like the clinics test for which vitamins we as cfers are lacking? They give us ADEKs....
<b>YES</b>

DID you KNOW that vitamin e is an anti-oxidant???? Did you know that as far as cells go, glutathione is the MOST IMPORTANT anti-oxidant in the body? for anyone?

<b>YES</b>

Do you understand how anti-oxidants work in the body? Do you realize that cf, cfrd put enormous pressure in the oxidant load on the body? How do you expect your body to get the anti-oxidants it needs? By your great diet that is so poorly digested by the cf gut? Do you think your liver is making enough glutathione for your lungs, gut, sinuses, pancreas, kidneys and liver with all the toxic drugs we take to fight infection? Did you know that there is a study out suggesting that glutathione helps protect hearing in those taking Tobrmyacin?....that might be helpful.

<b>YES</b>

Did you know that to do a small oral trial of glutathione in the US a researcher has to file an IND and pay close to four million dollars? Did you know the same trial costs a few thousand in Europe? or Canada?

<b>YES</b>

My guess is that if you answered no to any of these questions, you might want to do a little research on the topic. I could talk all day about the results of the studies and that probably wouldn't matter either. Unless it comes from the good ole FDA, it sucks.

I am sorry to be so rude, that is not my intention. I am simply irrate.

<b>Apology accepted, I just don't know why you're taking out your frustration on me</b>

If you took glutathione and had a bad experience...please, do tell.....that is important!!! But if you are simply going by what someone told you (ie a doc who has no time to do the research), then you need re-think what you are saying and why you are saying it.

<b>I said nothing disparaging or misleading about glutathione, I only answered the question of why a doctor MIGHT not get behind a certain--unspecified in my response--supplement. </b>

As far as glutathione goes, caution is good. Do the research and decide for yourself....talk to people who have been on it...who take it now.


Glutathione is not a cf cure.....people who take it are trying to protect what they have left until the CURE comes along.


Maybe you are one of those who does not need to worry about it. maybe your fev1 is over 100!!! Maybe you wnat to preserve your lung function.....maybe you don't. Either way it is very irresponsible to speak on something which you very clearly know nothing about.</end quote></div>

<b>Certainly I worry about preserving my health, a process that becomes more difficult as the years pass. And I, like you, am most likely going to succumb to this disease way before a cure is found. Again, I'm not sure why you're so upset --upset enough to make presumptions about my health that have nothing to do with anything I said. All I did was pose an answer to a simple question in the original post. Please don't presume that I am 'speak[ing] on a subject' which with I 'clearly know nothing about.'</b>

Respectfully,
lightNlife
 
D

Diane

New member
LightNLife,
She ( Mandy) wasn't referring to you. She was referring to the anonymous poster at the top of this page, the one that says 09 / 08 / 2006 3:37 am.
Now if that anonymous poster was you, then i guess she was referring to you.............lol
 
D

Diane

New member
LightNLife,
She ( Mandy) wasn't referring to you. She was referring to the anonymous poster at the top of this page, the one that says 09 / 08 / 2006 3:37 am.
Now if that anonymous poster was you, then i guess she was referring to you.............lol
 
D

Diane

New member
LightNLife,
She ( Mandy) wasn't referring to you. She was referring to the anonymous poster at the top of this page, the one that says 09 / 08 / 2006 3:37 am.
Now if that anonymous poster was you, then i guess she was referring to you.............lol
 
K

kybert

New member
wouldnt suprise me if dr bishop really did decline a trial. <img src="http://forums.vogue.com.au/images/smilies/newsmiles/eusa_whistle.gif">
 
K

kybert

New member
wouldnt suprise me if dr bishop really did decline a trial. <img src="http://forums.vogue.com.au/images/smilies/newsmiles/eusa_whistle.gif">
 
K

kybert

New member
wouldnt suprise me if dr bishop really did decline a trial. <img src="http://forums.vogue.com.au/images/smilies/newsmiles/eusa_whistle.gif">
 
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