I am from Australia and I have heard that Glyconutrients are being supplied in the US to people with CF either free or at a reduced cost because the success of them for people with Cf has been that good. Does anyone know any more about this, the products or if taking such things really does help. Has anyone tried them?Thanks J
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Glyconutrients
- Thread starter anonymous
- Start date
HI There,
I have my 7 year old son with CF on glyco nutrients, and I had heard of an organization called "Manna Relief". They have a web site that I believe is manna relief .org ? .. They originally started with CF in mind and they are firm believers of the products.
I have had my son on these for 3 months, and truthfully I have not seen improvement yet, but Sam has MRSA, and Psedomonas, so the antibiotics etc are massive...
I am not aware of a low cost program available in the US for these products, but I sure would like to know if one exists.
Manna Relief is a sposnsorship program that costs $600-700 for a 6 month supply. They do have anonymous donors to help families and we were blessed by our donated 6 month program.
I hope the organization can help your family as well, but in the meantime if you find any information about glyconutrients for lower costs in the US will you update this site?
Thanks and good luck
Murgie
I have my 7 year old son with CF on glyco nutrients, and I had heard of an organization called "Manna Relief". They have a web site that I believe is manna relief .org ? .. They originally started with CF in mind and they are firm believers of the products.
I have had my son on these for 3 months, and truthfully I have not seen improvement yet, but Sam has MRSA, and Psedomonas, so the antibiotics etc are massive...
I am not aware of a low cost program available in the US for these products, but I sure would like to know if one exists.
Manna Relief is a sposnsorship program that costs $600-700 for a 6 month supply. They do have anonymous donors to help families and we were blessed by our donated 6 month program.
I hope the organization can help your family as well, but in the meantime if you find any information about glyconutrients for lower costs in the US will you update this site?
Thanks and good luck
Murgie
I started my daughters on glyconutrients one week ago. I have talked to a mother of an eleven year old with cf who is doing much better she believes as a result of taking glyconutrients. There are testimonials at mannarelief.org regarding children with cf and there improvements with cf symptoms. I have hope that this may be beneficial to my kids and other children with cf however not many people in the cf community know about this yet. You can also go to mannatech.com or glycoscience.org for more information. D