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GOING CRAZY!! NEED HELP!!
- Thread starter Zakarymom
- Start date
hey i'm robert and was dx with cf when i was 14. i was diagnosed with a sweat test and then they did a genetic test just to be sure and to find out what mutations i have, i have the delta 508 and another but i don't remember it right now. I know that not knowing for sure can really be nerve wrecking but hang in there, i would suggest that if insurance will pay for the sweat test and the genetic get both because the sweat test has a faster turn around time and you can get results sooner and the genetic test will tell you which mutations your son has if he has cf. if it turns out that he does have cf start learning what you can about it and keep asking questions, its the easiest way to get answers. keep us posted on how things turn out.
hey i'm robert and was dx with cf when i was 14. i was diagnosed with a sweat test and then they did a genetic test just to be sure and to find out what mutations i have, i have the delta 508 and another but i don't remember it right now. I know that not knowing for sure can really be nerve wrecking but hang in there, i would suggest that if insurance will pay for the sweat test and the genetic get both because the sweat test has a faster turn around time and you can get results sooner and the genetic test will tell you which mutations your son has if he has cf. if it turns out that he does have cf start learning what you can about it and keep asking questions, its the easiest way to get answers. keep us posted on how things turn out.
hey i'm robert and was dx with cf when i was 14. i was diagnosed with a sweat test and then they did a genetic test just to be sure and to find out what mutations i have, i have the delta 508 and another but i don't remember it right now. I know that not knowing for sure can really be nerve wrecking but hang in there, i would suggest that if insurance will pay for the sweat test and the genetic get both because the sweat test has a faster turn around time and you can get results sooner and the genetic test will tell you which mutations your son has if he has cf. if it turns out that he does have cf start learning what you can about it and keep asking questions, its the easiest way to get answers. keep us posted on how things turn out.
D
Destaney65R
Guest
hey im Destaney and i have cf i was dx at 6months old.my parents went through alot.i was dx with a sweat test also.my dad and mom split after that and my daddy raised me.id say just incase he does have it my advice there is just be there for him cuz at times it gets rilly hard!my mom jus came back in my life like 4 years ago. im 17 now and im still in and out the h-pital.but my dad treats me like a normal kid even tho every second of my life im reminded that im sick.but i love my dad cuz he was strong for me when i couldnt be.but i hope everything gose well and best of luck that he doesnt get it!
D
Destaney65R
Guest
hey im Destaney and i have cf i was dx at 6months old.my parents went through alot.i was dx with a sweat test also.my dad and mom split after that and my daddy raised me.id say just incase he does have it my advice there is just be there for him cuz at times it gets rilly hard!my mom jus came back in my life like 4 years ago. im 17 now and im still in and out the h-pital.but my dad treats me like a normal kid even tho every second of my life im reminded that im sick.but i love my dad cuz he was strong for me when i couldnt be.but i hope everything gose well and best of luck that he doesnt get it!
D
Destaney65R
Guest
hey im Destaney and i have cf i was dx at 6months old.my parents went through alot.i was dx with a sweat test also.my dad and mom split after that and my daddy raised me.id say just incase he does have it my advice there is just be there for him cuz at times it gets rilly hard!my mom jus came back in my life like 4 years ago. im 17 now and im still in and out the h-pital.but my dad treats me like a normal kid even tho every second of my life im reminded that im sick.but i love my dad cuz he was strong for me when i couldnt be.but i hope everything gose well and best of luck that he doesnt get it!
Hi Im Alexis and i was dignosed with CF right when I was born. so ive lived with it my hole life. A doctor told my Aunt that the best ltest to get is a blood test b/c that will be the most acurate! He told her that if ysou don't get enough cells on the swab the test won't be acurate! well good luck to you and you'r husband I hope this advice helps!<img src="i/expressions/present.gif" border="0">
Hi Im Alexis and i was dignosed with CF right when I was born. so ive lived with it my hole life. A doctor told my Aunt that the best ltest to get is a blood test b/c that will be the most acurate! He told her that if ysou don't get enough cells on the swab the test won't be acurate! well good luck to you and you'r husband I hope this advice helps!<img src="i/expressions/present.gif" border="0">
Hi Im Alexis and i was dignosed with CF right when I was born. so ive lived with it my hole life. A doctor told my Aunt that the best ltest to get is a blood test b/c that will be the most acurate! He told her that if ysou don't get enough cells on the swab the test won't be acurate! well good luck to you and you'r husband I hope this advice helps!<img src="i/expressions/present.gif" border="0">
Sweetheart
New member
Hey Destaney My Name is Sara ive only just been disgnosed in October so in some way im lucky even thought i dont feel it. Last year i was in hospital four times and i know what its like. The hardest thing is that one on in my family SEEMS to have it and i dont know who has giving it to me. I had never even heard of this before i was diagnosed! How on earth have u coped all your life when i cant even cope now? <img src="i/expressions/face-icon-small-confused.gif" border="0"> Its the worst thing to me and i hate not having any one to talk to i feel so ashamed that i have this disease and i wish it was never around they say it wont take over your life but it does! <img src="i/expressions/heart.gif" border="0">
Sweetheart
New member
Hey Destaney My Name is Sara ive only just been disgnosed in October so in some way im lucky even thought i dont feel it. Last year i was in hospital four times and i know what its like. The hardest thing is that one on in my family SEEMS to have it and i dont know who has giving it to me. I had never even heard of this before i was diagnosed! How on earth have u coped all your life when i cant even cope now? <img src="i/expressions/face-icon-small-confused.gif" border="0"> Its the worst thing to me and i hate not having any one to talk to i feel so ashamed that i have this disease and i wish it was never around they say it wont take over your life but it does! <img src="i/expressions/heart.gif" border="0">
Sweetheart
New member
Hey Destaney My Name is Sara ive only just been disgnosed in October so in some way im lucky even thought i dont feel it. Last year i was in hospital four times and i know what its like. The hardest thing is that one on in my family SEEMS to have it and i dont know who has giving it to me. I had never even heard of this before i was diagnosed! How on earth have u coped all your life when i cant even cope now? <img src="i/expressions/face-icon-small-confused.gif" border="0"> Its the worst thing to me and i hate not having any one to talk to i feel so ashamed that i have this disease and i wish it was never around they say it wont take over your life but it does! <img src="i/expressions/heart.gif" border="0">
Sweetheart
New member
Hey Dogsrule!! I understand what ur sayin n its not going to go away i know what now its just hard to understand that you have it and its not going to go away!! Thanks aniways for ur message <img src="i/expressions/heart.gif" border="0">
Sweetheart
New member
Hey Dogsrule!! I understand what ur sayin n its not going to go away i know what now its just hard to understand that you have it and its not going to go away!! Thanks aniways for ur message <img src="i/expressions/heart.gif" border="0">
Sweetheart
New member
Hey Dogsrule!! I understand what ur sayin n its not going to go away i know what now its just hard to understand that you have it and its not going to go away!! Thanks aniways for ur message <img src="i/expressions/heart.gif" border="0">