Hi, we found out last Friday that our baby girl had an ITP of 137 from her newborn heel prick. Our doc wanted us to wait until we get the results back from the second heel prick (she was 1 week old) before we proceeded with the sweat test. However, I'm so sick with worry and fear that I cannot wait 2 more weeks to get the results back from the second ITP. We asked our doc to set up a sweat test at a nearby CF center (about 2 hours from our home) and we go tomorrow for the test. I don't know how to prepare myself for finding out that she does indeed have CF. She appears to be a very healthy 2 week old baby and we have no family history of CF and 2 healthy boys (ages 4 & 5). Please, can someone pass along some tips for preparing for a positive diagnosis? I've been crying off & on since Friday, I'm so terrified. Any advice is appreciated, thank you.
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Going for sweat test tomorrow
- Thread starter luvin3
- Start date
Hi, we found out last Friday that our baby girl had an ITP of 137 from her newborn heel prick. Our doc wanted us to wait until we get the results back from the second heel prick (she was 1 week old) before we proceeded with the sweat test. However, I'm so sick with worry and fear that I cannot wait 2 more weeks to get the results back from the second ITP. We asked our doc to set up a sweat test at a nearby CF center (about 2 hours from our home) and we go tomorrow for the test. I don't know how to prepare myself for finding out that she does indeed have CF. She appears to be a very healthy 2 week old baby and we have no family history of CF and 2 healthy boys (ages 4 & 5). Please, can someone pass along some tips for preparing for a positive diagnosis? I've been crying off & on since Friday, I'm so terrified. Any advice is appreciated, thank you.
Hi, we found out last Friday that our baby girl had an ITP of 137 from her newborn heel prick. Our doc wanted us to wait until we get the results back from the second heel prick (she was 1 week old) before we proceeded with the sweat test. However, I'm so sick with worry and fear that I cannot wait 2 more weeks to get the results back from the second ITP. We asked our doc to set up a sweat test at a nearby CF center (about 2 hours from our home) and we go tomorrow for the test. I don't know how to prepare myself for finding out that she does indeed have CF. She appears to be a very healthy 2 week old baby and we have no family history of CF and 2 healthy boys (ages 4 & 5). Please, can someone pass along some tips for preparing for a positive diagnosis? I've been crying off & on since Friday, I'm so terrified. Any advice is appreciated, thank you.
Hi, we found out last Friday that our baby girl had an ITP of 137 from her newborn heel prick. Our doc wanted us to wait until we get the results back from the second heel prick (she was 1 week old) before we proceeded with the sweat test. However, I'm so sick with worry and fear that I cannot wait 2 more weeks to get the results back from the second ITP. We asked our doc to set up a sweat test at a nearby CF center (about 2 hours from our home) and we go tomorrow for the test. I don't know how to prepare myself for finding out that she does indeed have CF. She appears to be a very healthy 2 week old baby and we have no family history of CF and 2 healthy boys (ages 4 & 5). Please, can someone pass along some tips for preparing for a positive diagnosis? I've been crying off & on since Friday, I'm so terrified. Any advice is appreciated, thank you.
Hi, we found out last Friday that our baby girl had an ITP of 137 from her newborn heel prick. Our doc wanted us to wait until we get the results back from the second heel prick (she was 1 week old) before we proceeded with the sweat test. However, I'm so sick with worry and fear that I cannot wait 2 more weeks to get the results back from the second ITP. We asked our doc to set up a sweat test at a nearby CF center (about 2 hours from our home) and we go tomorrow for the test. I don't know how to prepare myself for finding out that she does indeed have CF. She appears to be a very healthy 2 week old baby and we have no family history of CF and 2 healthy boys (ages 4 & 5). Please, can someone pass along some tips for preparing for a positive diagnosis? I've been crying off & on since Friday, I'm so terrified. Any advice is appreciated, thank you.
Mommy2Alysa
New member
I can totally relate to how you feel. My eldest wasnt diagnosed until she was 18 months and when I found out I was like "huh? She has what?" I had never heard of it. My husband's cousin has it so I can see the family line there but as far as my family - I had no one so I guess my family must all be carriers. My second was diagnosed 6 months later when I was pregnant with her - I have TWO with CF so I have been through the turmoil you are feeling twice.
First off - I would breath and seek comfort in the fact that your child is being diagnosed early in life. Try not to go online and research too much as some of the studies posted are old and they have made many many advancements. Easier said then done, I know. I have gone online and seen sites I wish I hadnt but I wanted to learn everything I could about the disease that now consumed my life.
I have to admit, I was a little relieved when Alysa was diagnosed because I now had a name/treatment to what had been bothering her for over year. I wont lie to you it sucks nad yes, it is scary at times but as long as you are a stickler for treatments and medication you will do okay.
Another comforting thought was knowing that my child(ren) wouldnt look any different from their friends. They wouldnt be bound by a wheelchair or have any other differences. They would have to take pills before meals which may raise some questions but other then that - people wouldnt know they were sick unless I/they told them.
Cry if you need to, yell, kick and scream. Do whatever you feel you need to let all the frustration out. Don't bottle up inside because it will eat you - I have learned the hard way. You need to be healthy for your child so find someone to talk to.
I had a hard time findig someone to talk to. My husband didnt want to talk about it and my family didnt have a clue what I was going through. I came on this site and most people were helpful some got upset that I was preg again but you have to let some replies drip off your back. Feel free to PM me anytime sometimes having another CF parent to talk helps because when I say "I understand" I can honestly mean it ya know?
Hug your baby mama. There are many more happy days then sad ones. I hope you get a negative test result but if it does turn out to be positive then I know you will find the strength to rise up to the challenge. I am not religious but i believe that we are not given more then we can handle and everything we are given is a gift.
Don't think of your child has having a disability and try not to treat her any different. Like I said stick to her meds and treatments and she will thrive and be a handful and a heartbreaker <img src="">
First off - I would breath and seek comfort in the fact that your child is being diagnosed early in life. Try not to go online and research too much as some of the studies posted are old and they have made many many advancements. Easier said then done, I know. I have gone online and seen sites I wish I hadnt but I wanted to learn everything I could about the disease that now consumed my life.
I have to admit, I was a little relieved when Alysa was diagnosed because I now had a name/treatment to what had been bothering her for over year. I wont lie to you it sucks nad yes, it is scary at times but as long as you are a stickler for treatments and medication you will do okay.
Another comforting thought was knowing that my child(ren) wouldnt look any different from their friends. They wouldnt be bound by a wheelchair or have any other differences. They would have to take pills before meals which may raise some questions but other then that - people wouldnt know they were sick unless I/they told them.
Cry if you need to, yell, kick and scream. Do whatever you feel you need to let all the frustration out. Don't bottle up inside because it will eat you - I have learned the hard way. You need to be healthy for your child so find someone to talk to.
I had a hard time findig someone to talk to. My husband didnt want to talk about it and my family didnt have a clue what I was going through. I came on this site and most people were helpful some got upset that I was preg again but you have to let some replies drip off your back. Feel free to PM me anytime sometimes having another CF parent to talk helps because when I say "I understand" I can honestly mean it ya know?
Hug your baby mama. There are many more happy days then sad ones. I hope you get a negative test result but if it does turn out to be positive then I know you will find the strength to rise up to the challenge. I am not religious but i believe that we are not given more then we can handle and everything we are given is a gift.
Don't think of your child has having a disability and try not to treat her any different. Like I said stick to her meds and treatments and she will thrive and be a handful and a heartbreaker <img src="">
Mommy2Alysa
New member
I can totally relate to how you feel. My eldest wasnt diagnosed until she was 18 months and when I found out I was like "huh? She has what?" I had never heard of it. My husband's cousin has it so I can see the family line there but as far as my family - I had no one so I guess my family must all be carriers. My second was diagnosed 6 months later when I was pregnant with her - I have TWO with CF so I have been through the turmoil you are feeling twice.
First off - I would breath and seek comfort in the fact that your child is being diagnosed early in life. Try not to go online and research too much as some of the studies posted are old and they have made many many advancements. Easier said then done, I know. I have gone online and seen sites I wish I hadnt but I wanted to learn everything I could about the disease that now consumed my life.
I have to admit, I was a little relieved when Alysa was diagnosed because I now had a name/treatment to what had been bothering her for over year. I wont lie to you it sucks nad yes, it is scary at times but as long as you are a stickler for treatments and medication you will do okay.
Another comforting thought was knowing that my child(ren) wouldnt look any different from their friends. They wouldnt be bound by a wheelchair or have any other differences. They would have to take pills before meals which may raise some questions but other then that - people wouldnt know they were sick unless I/they told them.
Cry if you need to, yell, kick and scream. Do whatever you feel you need to let all the frustration out. Don't bottle up inside because it will eat you - I have learned the hard way. You need to be healthy for your child so find someone to talk to.
I had a hard time findig someone to talk to. My husband didnt want to talk about it and my family didnt have a clue what I was going through. I came on this site and most people were helpful some got upset that I was preg again but you have to let some replies drip off your back. Feel free to PM me anytime sometimes having another CF parent to talk helps because when I say "I understand" I can honestly mean it ya know?
Hug your baby mama. There are many more happy days then sad ones. I hope you get a negative test result but if it does turn out to be positive then I know you will find the strength to rise up to the challenge. I am not religious but i believe that we are not given more then we can handle and everything we are given is a gift.
Don't think of your child has having a disability and try not to treat her any different. Like I said stick to her meds and treatments and she will thrive and be a handful and a heartbreaker <img src="">
First off - I would breath and seek comfort in the fact that your child is being diagnosed early in life. Try not to go online and research too much as some of the studies posted are old and they have made many many advancements. Easier said then done, I know. I have gone online and seen sites I wish I hadnt but I wanted to learn everything I could about the disease that now consumed my life.
I have to admit, I was a little relieved when Alysa was diagnosed because I now had a name/treatment to what had been bothering her for over year. I wont lie to you it sucks nad yes, it is scary at times but as long as you are a stickler for treatments and medication you will do okay.
Another comforting thought was knowing that my child(ren) wouldnt look any different from their friends. They wouldnt be bound by a wheelchair or have any other differences. They would have to take pills before meals which may raise some questions but other then that - people wouldnt know they were sick unless I/they told them.
Cry if you need to, yell, kick and scream. Do whatever you feel you need to let all the frustration out. Don't bottle up inside because it will eat you - I have learned the hard way. You need to be healthy for your child so find someone to talk to.
I had a hard time findig someone to talk to. My husband didnt want to talk about it and my family didnt have a clue what I was going through. I came on this site and most people were helpful some got upset that I was preg again but you have to let some replies drip off your back. Feel free to PM me anytime sometimes having another CF parent to talk helps because when I say "I understand" I can honestly mean it ya know?
Hug your baby mama. There are many more happy days then sad ones. I hope you get a negative test result but if it does turn out to be positive then I know you will find the strength to rise up to the challenge. I am not religious but i believe that we are not given more then we can handle and everything we are given is a gift.
Don't think of your child has having a disability and try not to treat her any different. Like I said stick to her meds and treatments and she will thrive and be a handful and a heartbreaker <img src="">
Mommy2Alysa
New member
I can totally relate to how you feel. My eldest wasnt diagnosed until she was 18 months and when I found out I was like "huh? She has what?" I had never heard of it. My husband's cousin has it so I can see the family line there but as far as my family - I had no one so I guess my family must all be carriers. My second was diagnosed 6 months later when I was pregnant with her - I have TWO with CF so I have been through the turmoil you are feeling twice.
First off - I would breath and seek comfort in the fact that your child is being diagnosed early in life. Try not to go online and research too much as some of the studies posted are old and they have made many many advancements. Easier said then done, I know. I have gone online and seen sites I wish I hadnt but I wanted to learn everything I could about the disease that now consumed my life.
I have to admit, I was a little relieved when Alysa was diagnosed because I now had a name/treatment to what had been bothering her for over year. I wont lie to you it sucks nad yes, it is scary at times but as long as you are a stickler for treatments and medication you will do okay.
Another comforting thought was knowing that my child(ren) wouldnt look any different from their friends. They wouldnt be bound by a wheelchair or have any other differences. They would have to take pills before meals which may raise some questions but other then that - people wouldnt know they were sick unless I/they told them.
Cry if you need to, yell, kick and scream. Do whatever you feel you need to let all the frustration out. Don't bottle up inside because it will eat you - I have learned the hard way. You need to be healthy for your child so find someone to talk to.
I had a hard time findig someone to talk to. My husband didnt want to talk about it and my family didnt have a clue what I was going through. I came on this site and most people were helpful some got upset that I was preg again but you have to let some replies drip off your back. Feel free to PM me anytime sometimes having another CF parent to talk helps because when I say "I understand" I can honestly mean it ya know?
Hug your baby mama. There are many more happy days then sad ones. I hope you get a negative test result but if it does turn out to be positive then I know you will find the strength to rise up to the challenge. I am not religious but i believe that we are not given more then we can handle and everything we are given is a gift.
Don't think of your child has having a disability and try not to treat her any different. Like I said stick to her meds and treatments and she will thrive and be a handful and a heartbreaker <img src="">
First off - I would breath and seek comfort in the fact that your child is being diagnosed early in life. Try not to go online and research too much as some of the studies posted are old and they have made many many advancements. Easier said then done, I know. I have gone online and seen sites I wish I hadnt but I wanted to learn everything I could about the disease that now consumed my life.
I have to admit, I was a little relieved when Alysa was diagnosed because I now had a name/treatment to what had been bothering her for over year. I wont lie to you it sucks nad yes, it is scary at times but as long as you are a stickler for treatments and medication you will do okay.
Another comforting thought was knowing that my child(ren) wouldnt look any different from their friends. They wouldnt be bound by a wheelchair or have any other differences. They would have to take pills before meals which may raise some questions but other then that - people wouldnt know they were sick unless I/they told them.
Cry if you need to, yell, kick and scream. Do whatever you feel you need to let all the frustration out. Don't bottle up inside because it will eat you - I have learned the hard way. You need to be healthy for your child so find someone to talk to.
I had a hard time findig someone to talk to. My husband didnt want to talk about it and my family didnt have a clue what I was going through. I came on this site and most people were helpful some got upset that I was preg again but you have to let some replies drip off your back. Feel free to PM me anytime sometimes having another CF parent to talk helps because when I say "I understand" I can honestly mean it ya know?
Hug your baby mama. There are many more happy days then sad ones. I hope you get a negative test result but if it does turn out to be positive then I know you will find the strength to rise up to the challenge. I am not religious but i believe that we are not given more then we can handle and everything we are given is a gift.
Don't think of your child has having a disability and try not to treat her any different. Like I said stick to her meds and treatments and she will thrive and be a handful and a heartbreaker <img src="">
Mommy2Alysa
New member
I can totally relate to how you feel. My eldest wasnt diagnosed until she was 18 months and when I found out I was like "huh? She has what?" I had never heard of it. My husband's cousin has it so I can see the family line there but as far as my family - I had no one so I guess my family must all be carriers. My second was diagnosed 6 months later when I was pregnant with her - I have TWO with CF so I have been through the turmoil you are feeling twice.
First off - I would breath and seek comfort in the fact that your child is being diagnosed early in life. Try not to go online and research too much as some of the studies posted are old and they have made many many advancements. Easier said then done, I know. I have gone online and seen sites I wish I hadnt but I wanted to learn everything I could about the disease that now consumed my life.
I have to admit, I was a little relieved when Alysa was diagnosed because I now had a name/treatment to what had been bothering her for over year. I wont lie to you it sucks nad yes, it is scary at times but as long as you are a stickler for treatments and medication you will do okay.
Another comforting thought was knowing that my child(ren) wouldnt look any different from their friends. They wouldnt be bound by a wheelchair or have any other differences. They would have to take pills before meals which may raise some questions but other then that - people wouldnt know they were sick unless I/they told them.
Cry if you need to, yell, kick and scream. Do whatever you feel you need to let all the frustration out. Don't bottle up inside because it will eat you - I have learned the hard way. You need to be healthy for your child so find someone to talk to.
I had a hard time findig someone to talk to. My husband didnt want to talk about it and my family didnt have a clue what I was going through. I came on this site and most people were helpful some got upset that I was preg again but you have to let some replies drip off your back. Feel free to PM me anytime sometimes having another CF parent to talk helps because when I say "I understand" I can honestly mean it ya know?
Hug your baby mama. There are many more happy days then sad ones. I hope you get a negative test result but if it does turn out to be positive then I know you will find the strength to rise up to the challenge. I am not religious but i believe that we are not given more then we can handle and everything we are given is a gift.
Don't think of your child has having a disability and try not to treat her any different. Like I said stick to her meds and treatments and she will thrive and be a handful and a heartbreaker <img src="">
First off - I would breath and seek comfort in the fact that your child is being diagnosed early in life. Try not to go online and research too much as some of the studies posted are old and they have made many many advancements. Easier said then done, I know. I have gone online and seen sites I wish I hadnt but I wanted to learn everything I could about the disease that now consumed my life.
I have to admit, I was a little relieved when Alysa was diagnosed because I now had a name/treatment to what had been bothering her for over year. I wont lie to you it sucks nad yes, it is scary at times but as long as you are a stickler for treatments and medication you will do okay.
Another comforting thought was knowing that my child(ren) wouldnt look any different from their friends. They wouldnt be bound by a wheelchair or have any other differences. They would have to take pills before meals which may raise some questions but other then that - people wouldnt know they were sick unless I/they told them.
Cry if you need to, yell, kick and scream. Do whatever you feel you need to let all the frustration out. Don't bottle up inside because it will eat you - I have learned the hard way. You need to be healthy for your child so find someone to talk to.
I had a hard time findig someone to talk to. My husband didnt want to talk about it and my family didnt have a clue what I was going through. I came on this site and most people were helpful some got upset that I was preg again but you have to let some replies drip off your back. Feel free to PM me anytime sometimes having another CF parent to talk helps because when I say "I understand" I can honestly mean it ya know?
Hug your baby mama. There are many more happy days then sad ones. I hope you get a negative test result but if it does turn out to be positive then I know you will find the strength to rise up to the challenge. I am not religious but i believe that we are not given more then we can handle and everything we are given is a gift.
Don't think of your child has having a disability and try not to treat her any different. Like I said stick to her meds and treatments and she will thrive and be a handful and a heartbreaker <img src="">
Mommy2Alysa
New member
I can totally relate to how you feel. My eldest wasnt diagnosed until she was 18 months and when I found out I was like "huh? She has what?" I had never heard of it. My husband's cousin has it so I can see the family line there but as far as my family - I had no one so I guess my family must all be carriers. My second was diagnosed 6 months later when I was pregnant with her - I have TWO with CF so I have been through the turmoil you are feeling twice.
<br />
<br />First off - I would breath and seek comfort in the fact that your child is being diagnosed early in life. Try not to go online and research too much as some of the studies posted are old and they have made many many advancements. Easier said then done, I know. I have gone online and seen sites I wish I hadnt but I wanted to learn everything I could about the disease that now consumed my life.
<br />
<br />I have to admit, I was a little relieved when Alysa was diagnosed because I now had a name/treatment to what had been bothering her for over year. I wont lie to you it sucks nad yes, it is scary at times but as long as you are a stickler for treatments and medication you will do okay.
<br />
<br />Another comforting thought was knowing that my child(ren) wouldnt look any different from their friends. They wouldnt be bound by a wheelchair or have any other differences. They would have to take pills before meals which may raise some questions but other then that - people wouldnt know they were sick unless I/they told them.
<br />
<br />Cry if you need to, yell, kick and scream. Do whatever you feel you need to let all the frustration out. Don't bottle up inside because it will eat you - I have learned the hard way. You need to be healthy for your child so find someone to talk to.
<br />
<br />I had a hard time findig someone to talk to. My husband didnt want to talk about it and my family didnt have a clue what I was going through. I came on this site and most people were helpful some got upset that I was preg again but you have to let some replies drip off your back. Feel free to PM me anytime sometimes having another CF parent to talk helps because when I say "I understand" I can honestly mean it ya know?
<br />
<br />Hug your baby mama. There are many more happy days then sad ones. I hope you get a negative test result but if it does turn out to be positive then I know you will find the strength to rise up to the challenge. I am not religious but i believe that we are not given more then we can handle and everything we are given is a gift.
<br />
<br />Don't think of your child has having a disability and try not to treat her any different. Like I said stick to her meds and treatments and she will thrive and be a handful and a heartbreaker <img src="">
<br />
<br />First off - I would breath and seek comfort in the fact that your child is being diagnosed early in life. Try not to go online and research too much as some of the studies posted are old and they have made many many advancements. Easier said then done, I know. I have gone online and seen sites I wish I hadnt but I wanted to learn everything I could about the disease that now consumed my life.
<br />
<br />I have to admit, I was a little relieved when Alysa was diagnosed because I now had a name/treatment to what had been bothering her for over year. I wont lie to you it sucks nad yes, it is scary at times but as long as you are a stickler for treatments and medication you will do okay.
<br />
<br />Another comforting thought was knowing that my child(ren) wouldnt look any different from their friends. They wouldnt be bound by a wheelchair or have any other differences. They would have to take pills before meals which may raise some questions but other then that - people wouldnt know they were sick unless I/they told them.
<br />
<br />Cry if you need to, yell, kick and scream. Do whatever you feel you need to let all the frustration out. Don't bottle up inside because it will eat you - I have learned the hard way. You need to be healthy for your child so find someone to talk to.
<br />
<br />I had a hard time findig someone to talk to. My husband didnt want to talk about it and my family didnt have a clue what I was going through. I came on this site and most people were helpful some got upset that I was preg again but you have to let some replies drip off your back. Feel free to PM me anytime sometimes having another CF parent to talk helps because when I say "I understand" I can honestly mean it ya know?
<br />
<br />Hug your baby mama. There are many more happy days then sad ones. I hope you get a negative test result but if it does turn out to be positive then I know you will find the strength to rise up to the challenge. I am not religious but i believe that we are not given more then we can handle and everything we are given is a gift.
<br />
<br />Don't think of your child has having a disability and try not to treat her any different. Like I said stick to her meds and treatments and she will thrive and be a handful and a heartbreaker <img src="">
I am a CFer, but also a Mom to a Non CFer. I dont have any real advice for you, but I think you will find tons of feedback & support here.
IF you child does have CF....appreciate the fact that you got the diagnosis so early. The earlier the treatment begins the better chances overall.
Please be sure to let us know either way what the results are & ask for the actual # on the results. Dont just accept negative, borderline or positive.
HUGS to you for now & please remember you are not alone!!!
IF you child does have CF....appreciate the fact that you got the diagnosis so early. The earlier the treatment begins the better chances overall.
Please be sure to let us know either way what the results are & ask for the actual # on the results. Dont just accept negative, borderline or positive.
HUGS to you for now & please remember you are not alone!!!
I am a CFer, but also a Mom to a Non CFer. I dont have any real advice for you, but I think you will find tons of feedback & support here.
IF you child does have CF....appreciate the fact that you got the diagnosis so early. The earlier the treatment begins the better chances overall.
Please be sure to let us know either way what the results are & ask for the actual # on the results. Dont just accept negative, borderline or positive.
HUGS to you for now & please remember you are not alone!!!
IF you child does have CF....appreciate the fact that you got the diagnosis so early. The earlier the treatment begins the better chances overall.
Please be sure to let us know either way what the results are & ask for the actual # on the results. Dont just accept negative, borderline or positive.
HUGS to you for now & please remember you are not alone!!!
I am a CFer, but also a Mom to a Non CFer. I dont have any real advice for you, but I think you will find tons of feedback & support here.
IF you child does have CF....appreciate the fact that you got the diagnosis so early. The earlier the treatment begins the better chances overall.
Please be sure to let us know either way what the results are & ask for the actual # on the results. Dont just accept negative, borderline or positive.
HUGS to you for now & please remember you are not alone!!!
IF you child does have CF....appreciate the fact that you got the diagnosis so early. The earlier the treatment begins the better chances overall.
Please be sure to let us know either way what the results are & ask for the actual # on the results. Dont just accept negative, borderline or positive.
HUGS to you for now & please remember you are not alone!!!
I am a CFer, but also a Mom to a Non CFer. I dont have any real advice for you, but I think you will find tons of feedback & support here.
IF you child does have CF....appreciate the fact that you got the diagnosis so early. The earlier the treatment begins the better chances overall.
Please be sure to let us know either way what the results are & ask for the actual # on the results. Dont just accept negative, borderline or positive.
HUGS to you for now & please remember you are not alone!!!
IF you child does have CF....appreciate the fact that you got the diagnosis so early. The earlier the treatment begins the better chances overall.
Please be sure to let us know either way what the results are & ask for the actual # on the results. Dont just accept negative, borderline or positive.
HUGS to you for now & please remember you are not alone!!!
I am a CFer, but also a Mom to a Non CFer. I dont have any real advice for you, but I think you will find tons of feedback & support here.
<br />
<br />IF you child does have CF....appreciate the fact that you got the diagnosis so early. The earlier the treatment begins the better chances overall.
<br />
<br />Please be sure to let us know either way what the results are & ask for the actual # on the results. Dont just accept negative, borderline or positive.
<br />
<br />HUGS to you for now & please remember you are not alone!!!
<br />
<br />IF you child does have CF....appreciate the fact that you got the diagnosis so early. The earlier the treatment begins the better chances overall.
<br />
<br />Please be sure to let us know either way what the results are & ask for the actual # on the results. Dont just accept negative, borderline or positive.
<br />
<br />HUGS to you for now & please remember you are not alone!!!
I don't really have any advice in preparation. Even though the doctors told us that DS probably had CF, we were still in denial -- no family history, no lung symptoms -- was born with a bowel obstruction...
When DS' bloodwork came back positive for CF, it still just seemed like a bad dream. We just took it one step at a time. One day at a time. The future what ifs were very overwhelming, so we just tried to focus on learning about CF, meds, cpt and keeping our child healthy
When DS' bloodwork came back positive for CF, it still just seemed like a bad dream. We just took it one step at a time. One day at a time. The future what ifs were very overwhelming, so we just tried to focus on learning about CF, meds, cpt and keeping our child healthy
I don't really have any advice in preparation. Even though the doctors told us that DS probably had CF, we were still in denial -- no family history, no lung symptoms -- was born with a bowel obstruction...
When DS' bloodwork came back positive for CF, it still just seemed like a bad dream. We just took it one step at a time. One day at a time. The future what ifs were very overwhelming, so we just tried to focus on learning about CF, meds, cpt and keeping our child healthy
When DS' bloodwork came back positive for CF, it still just seemed like a bad dream. We just took it one step at a time. One day at a time. The future what ifs were very overwhelming, so we just tried to focus on learning about CF, meds, cpt and keeping our child healthy
I don't really have any advice in preparation. Even though the doctors told us that DS probably had CF, we were still in denial -- no family history, no lung symptoms -- was born with a bowel obstruction...
When DS' bloodwork came back positive for CF, it still just seemed like a bad dream. We just took it one step at a time. One day at a time. The future what ifs were very overwhelming, so we just tried to focus on learning about CF, meds, cpt and keeping our child healthy
When DS' bloodwork came back positive for CF, it still just seemed like a bad dream. We just took it one step at a time. One day at a time. The future what ifs were very overwhelming, so we just tried to focus on learning about CF, meds, cpt and keeping our child healthy
I don't really have any advice in preparation. Even though the doctors told us that DS probably had CF, we were still in denial -- no family history, no lung symptoms -- was born with a bowel obstruction...
When DS' bloodwork came back positive for CF, it still just seemed like a bad dream. We just took it one step at a time. One day at a time. The future what ifs were very overwhelming, so we just tried to focus on learning about CF, meds, cpt and keeping our child healthy
When DS' bloodwork came back positive for CF, it still just seemed like a bad dream. We just took it one step at a time. One day at a time. The future what ifs were very overwhelming, so we just tried to focus on learning about CF, meds, cpt and keeping our child healthy
I don't really have any advice in preparation. Even though the doctors told us that DS probably had CF, we were still in denial -- no family history, no lung symptoms -- was born with a bowel obstruction...
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<br />When DS' bloodwork came back positive for CF, it still just seemed like a bad dream. We just took it one step at a time. One day at a time. The future what ifs were very overwhelming, so we just tried to focus on learning about CF, meds, cpt and keeping our child healthy
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<br />When DS' bloodwork came back positive for CF, it still just seemed like a bad dream. We just took it one step at a time. One day at a time. The future what ifs were very overwhelming, so we just tried to focus on learning about CF, meds, cpt and keeping our child healthy