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Going in for a sweat test
- Thread starter mom2three
- Start date
Wishing the very best. <img src="i/expressions/rose.gif" border="0">
My daughter was not dx'ed until she was 7.5yrs old. We knew something was wrong with her for several years but CF never once entered my mind... the first it was mentioned to me was by the dr who ordered the sweat test, so I had only 5 days to think about it before her dx. Others here wonder about this dx specifically and chase it for years- but in any case, there are a lot of kids (unfortunately) that are dx'ed on the late side, esp since many states have only instituted newborn screening in the last several years. Her primary symptom was failure to thrive (she weighed 44lbs and was 46" tall at dx) and digestive stuff like bulky greasy stools, etc. She had more resp. stuff than her brothers but it wasn't a glaring thing (i.e. no hospitalizations like many kids with cf.)
Our sweat tests came back quickly too (same afternoon when done in the morning.) It's SO good to not have to wait on this, vs. some tests that take so long. Sweat tests are not foolproof, though, so I would encourage you to try and get genetic sequencing; i.e. Ambry Amplified. Not only will that help clarify her dx if the sweat test is inconclusive, odds are they will want to know what her mutations are anyway if it turns out she has CF.
My daughter was not dx'ed until she was 7.5yrs old. We knew something was wrong with her for several years but CF never once entered my mind... the first it was mentioned to me was by the dr who ordered the sweat test, so I had only 5 days to think about it before her dx. Others here wonder about this dx specifically and chase it for years- but in any case, there are a lot of kids (unfortunately) that are dx'ed on the late side, esp since many states have only instituted newborn screening in the last several years. Her primary symptom was failure to thrive (she weighed 44lbs and was 46" tall at dx) and digestive stuff like bulky greasy stools, etc. She had more resp. stuff than her brothers but it wasn't a glaring thing (i.e. no hospitalizations like many kids with cf.)
Our sweat tests came back quickly too (same afternoon when done in the morning.) It's SO good to not have to wait on this, vs. some tests that take so long. Sweat tests are not foolproof, though, so I would encourage you to try and get genetic sequencing; i.e. Ambry Amplified. Not only will that help clarify her dx if the sweat test is inconclusive, odds are they will want to know what her mutations are anyway if it turns out she has CF.
Wishing the very best. <img src="i/expressions/rose.gif" border="0">
My daughter was not dx'ed until she was 7.5yrs old. We knew something was wrong with her for several years but CF never once entered my mind... the first it was mentioned to me was by the dr who ordered the sweat test, so I had only 5 days to think about it before her dx. Others here wonder about this dx specifically and chase it for years- but in any case, there are a lot of kids (unfortunately) that are dx'ed on the late side, esp since many states have only instituted newborn screening in the last several years. Her primary symptom was failure to thrive (she weighed 44lbs and was 46" tall at dx) and digestive stuff like bulky greasy stools, etc. She had more resp. stuff than her brothers but it wasn't a glaring thing (i.e. no hospitalizations like many kids with cf.)
Our sweat tests came back quickly too (same afternoon when done in the morning.) It's SO good to not have to wait on this, vs. some tests that take so long. Sweat tests are not foolproof, though, so I would encourage you to try and get genetic sequencing; i.e. Ambry Amplified. Not only will that help clarify her dx if the sweat test is inconclusive, odds are they will want to know what her mutations are anyway if it turns out she has CF.
My daughter was not dx'ed until she was 7.5yrs old. We knew something was wrong with her for several years but CF never once entered my mind... the first it was mentioned to me was by the dr who ordered the sweat test, so I had only 5 days to think about it before her dx. Others here wonder about this dx specifically and chase it for years- but in any case, there are a lot of kids (unfortunately) that are dx'ed on the late side, esp since many states have only instituted newborn screening in the last several years. Her primary symptom was failure to thrive (she weighed 44lbs and was 46" tall at dx) and digestive stuff like bulky greasy stools, etc. She had more resp. stuff than her brothers but it wasn't a glaring thing (i.e. no hospitalizations like many kids with cf.)
Our sweat tests came back quickly too (same afternoon when done in the morning.) It's SO good to not have to wait on this, vs. some tests that take so long. Sweat tests are not foolproof, though, so I would encourage you to try and get genetic sequencing; i.e. Ambry Amplified. Not only will that help clarify her dx if the sweat test is inconclusive, odds are they will want to know what her mutations are anyway if it turns out she has CF.
Wishing the very best. <img src="i/expressions/rose.gif" border="0">
<br />
<br />My daughter was not dx'ed until she was 7.5yrs old. We knew something was wrong with her for several years but CF never once entered my mind... the first it was mentioned to me was by the dr who ordered the sweat test, so I had only 5 days to think about it before her dx. Others here wonder about this dx specifically and chase it for years- but in any case, there are a lot of kids (unfortunately) that are dx'ed on the late side, esp since many states have only instituted newborn screening in the last several years. Her primary symptom was failure to thrive (she weighed 44lbs and was 46" tall at dx) and digestive stuff like bulky greasy stools, etc. She had more resp. stuff than her brothers but it wasn't a glaring thing (i.e. no hospitalizations like many kids with cf.)
<br />
<br />Our sweat tests came back quickly too (same afternoon when done in the morning.) It's SO good to not have to wait on this, vs. some tests that take so long. Sweat tests are not foolproof, though, so I would encourage you to try and get genetic sequencing; i.e. Ambry Amplified. Not only will that help clarify her dx if the sweat test is inconclusive, odds are they will want to know what her mutations are anyway if it turns out she has CF.
<br />
<br />My daughter was not dx'ed until she was 7.5yrs old. We knew something was wrong with her for several years but CF never once entered my mind... the first it was mentioned to me was by the dr who ordered the sweat test, so I had only 5 days to think about it before her dx. Others here wonder about this dx specifically and chase it for years- but in any case, there are a lot of kids (unfortunately) that are dx'ed on the late side, esp since many states have only instituted newborn screening in the last several years. Her primary symptom was failure to thrive (she weighed 44lbs and was 46" tall at dx) and digestive stuff like bulky greasy stools, etc. She had more resp. stuff than her brothers but it wasn't a glaring thing (i.e. no hospitalizations like many kids with cf.)
<br />
<br />Our sweat tests came back quickly too (same afternoon when done in the morning.) It's SO good to not have to wait on this, vs. some tests that take so long. Sweat tests are not foolproof, though, so I would encourage you to try and get genetic sequencing; i.e. Ambry Amplified. Not only will that help clarify her dx if the sweat test is inconclusive, odds are they will want to know what her mutations are anyway if it turns out she has CF.
Well we had a pediatrician appt yesterday afternoon and while we were there they informed us that our daughters test was negative (her level was 10) ~ so with further talking to the doctors and going over our daughters chart they have come to the conclussion that our daughter has a weak immune system and therefore we need to get her the flu and pneumonia shots every year ~ and that we need to introduce MORE veggies into her diet and more fiber ~ which made me laugh as we are already pretty much vegetarians with a side of fish and the occasional chicken due to her corn allergy ~ chicken can be expensive from the butcher when you have to "special order" a no corn feed chicken~ I just want to say thank you for your advise, thoughts and prayers ~ you will all always be in my thoughts and prayers
Well we had a pediatrician appt yesterday afternoon and while we were there they informed us that our daughters test was negative (her level was 10) ~ so with further talking to the doctors and going over our daughters chart they have come to the conclussion that our daughter has a weak immune system and therefore we need to get her the flu and pneumonia shots every year ~ and that we need to introduce MORE veggies into her diet and more fiber ~ which made me laugh as we are already pretty much vegetarians with a side of fish and the occasional chicken due to her corn allergy ~ chicken can be expensive from the butcher when you have to "special order" a no corn feed chicken~ I just want to say thank you for your advise, thoughts and prayers ~ you will all always be in my thoughts and prayers
Well we had a pediatrician appt yesterday afternoon and while we were there they informed us that our daughters test was negative (her level was 10) ~ so with further talking to the doctors and going over our daughters chart they have come to the conclussion that our daughter has a weak immune system and therefore we need to get her the flu and pneumonia shots every year ~ and that we need to introduce MORE veggies into her diet and more fiber ~ which made me laugh as we are already pretty much vegetarians with a side of fish and the occasional chicken due to her corn allergy ~ chicken can be expensive from the butcher when you have to "special order" a no corn feed chicken~ I just want to say thank you for your advise, thoughts and prayers ~ you will all always be in my thoughts and prayers
AleksandraKaczynska
New member
Wonderfull news! There are lots of ways on making the immune system stronger....
Happpy for you
Happpy for you
AleksandraKaczynska
New member
Wonderfull news! There are lots of ways on making the immune system stronger....
Happpy for you
Happpy for you
AleksandraKaczynska
New member
Wonderfull news! There are lots of ways on making the immune system stronger....
<br />Happpy for you
<br />Happpy for you