going on dissability

[JazzysMom]

I just want to interject something else in here that happened with my Disability case.

MUCH of my care over the years was done on my own. There was a lot that was not "documented" with the doctor so not available to show during my disability process.

Because on paper my health was not "that bad", but evidentally an issue.....the thing that really saved me was my location & ability to obtain another job or similiar job within the same wage range.

Because I live in a rural area & the options for another position that would allow me the time to care for myself properly without being completely unable to work & allowing a similiar pay range was greatly diminished.

My final decision says just that also. Sadly a lot does depend on the caseworker. There are certain criteria that CF patients must meet & even meeting those getting approval can be tedious.

If you apply....chances are good that you will be denied the first time. Please know that you are not to reapply if this happens. The key is to APPEAL, APPEAL, APPEAL. If you reapply you dont get that retroactive $$. Appeals allow for that.

Some people hire lawyers like Beth Sufian (a CF patient herself, attorney & advocate) to apply initially or fight appeals. Her fee comes out of your retro active $$ so no $$ upfront.

There are many people that were able to do it without paying a lawyer tho.

Its a big step whether you remain on disability or not. You will see a difference in your health especially if you were like me and not the most compliant or have difficulty in balancing it all.

Good Luck!

 

[JazzysMom]

I just want to interject something else in here that happened with my Disability case.

MUCH of my care over the years was done on my own. There was a lot that was not "documented" with the doctor so not available to show during my disability process.

Because on paper my health was not "that bad", but evidentally an issue.....the thing that really saved me was my location & ability to obtain another job or similiar job within the same wage range.

Because I live in a rural area & the options for another position that would allow me the time to care for myself properly without being completely unable to work & allowing a similiar pay range was greatly diminished.

My final decision says just that also. Sadly a lot does depend on the caseworker. There are certain criteria that CF patients must meet & even meeting those getting approval can be tedious.

If you apply....chances are good that you will be denied the first time. Please know that you are not to reapply if this happens. The key is to APPEAL, APPEAL, APPEAL. If you reapply you dont get that retroactive $$. Appeals allow for that.

Some people hire lawyers like Beth Sufian (a CF patient herself, attorney & advocate) to apply initially or fight appeals. Her fee comes out of your retro active $$ so no $$ upfront.

There are many people that were able to do it without paying a lawyer tho.

Its a big step whether you remain on disability or not. You will see a difference in your health especially if you were like me and not the most compliant or have difficulty in balancing it all.

Good Luck!

 

[JazzysMom]

I just want to interject something else in here that happened with my Disability case.

MUCH of my care over the years was done on my own. There was a lot that was not "documented" with the doctor so not available to show during my disability process.

Because on paper my health was not "that bad", but evidentally an issue.....the thing that really saved me was my location & ability to obtain another job or similiar job within the same wage range.

Because I live in a rural area & the options for another position that would allow me the time to care for myself properly without being completely unable to work & allowing a similiar pay range was greatly diminished.

My final decision says just that also. Sadly a lot does depend on the caseworker. There are certain criteria that CF patients must meet & even meeting those getting approval can be tedious.

If you apply....chances are good that you will be denied the first time. Please know that you are not to reapply if this happens. The key is to APPEAL, APPEAL, APPEAL. If you reapply you dont get that retroactive $$. Appeals allow for that.

Some people hire lawyers like Beth Sufian (a CF patient herself, attorney & advocate) to apply initially or fight appeals. Her fee comes out of your retro active $$ so no $$ upfront.

There are many people that were able to do it without paying a lawyer tho.

Its a big step whether you remain on disability or not. You will see a difference in your health especially if you were like me and not the most compliant or have difficulty in balancing it all.

Good Luck!

 

[JazzysMom]

I just want to interject something else in here that happened with my Disability case.

MUCH of my care over the years was done on my own. There was a lot that was not "documented" with the doctor so not available to show during my disability process.

Because on paper my health was not "that bad", but evidentally an issue.....the thing that really saved me was my location & ability to obtain another job or similiar job within the same wage range.

Because I live in a rural area & the options for another position that would allow me the time to care for myself properly without being completely unable to work & allowing a similiar pay range was greatly diminished.

My final decision says just that also. Sadly a lot does depend on the caseworker. There are certain criteria that CF patients must meet & even meeting those getting approval can be tedious.

If you apply....chances are good that you will be denied the first time. Please know that you are not to reapply if this happens. The key is to APPEAL, APPEAL, APPEAL. If you reapply you dont get that retroactive $$. Appeals allow for that.

Some people hire lawyers like Beth Sufian (a CF patient herself, attorney & advocate) to apply initially or fight appeals. Her fee comes out of your retro active $$ so no $$ upfront.

There are many people that were able to do it without paying a lawyer tho.

Its a big step whether you remain on disability or not. You will see a difference in your health especially if you were like me and not the most compliant or have difficulty in balancing it all.

Good Luck!

 

[JazzysMom]

I just want to interject something else in here that happened with my Disability case.

MUCH of my care over the years was done on my own. There was a lot that was not "documented" with the doctor so not available to show during my disability process.

Because on paper my health was not "that bad", but evidentally an issue.....the thing that really saved me was my location & ability to obtain another job or similiar job within the same wage range.

Because I live in a rural area & the options for another position that would allow me the time to care for myself properly without being completely unable to work & allowing a similiar pay range was greatly diminished.

My final decision says just that also. Sadly a lot does depend on the caseworker. There are certain criteria that CF patients must meet & even meeting those getting approval can be tedious.

If you apply....chances are good that you will be denied the first time. Please know that you are not to reapply if this happens. The key is to APPEAL, APPEAL, APPEAL. If you reapply you dont get that retroactive $$. Appeals allow for that.

Some people hire lawyers like Beth Sufian (a CF patient herself, attorney & advocate) to apply initially or fight appeals. Her fee comes out of your retro active $$ so no $$ upfront.

There are many people that were able to do it without paying a lawyer tho.

Its a big step whether you remain on disability or not. You will see a difference in your health especially if you were like me and not the most compliant or have difficulty in balancing it all.

Good Luck!

 

[LouLou]

Just wanted to say that Jennifer1981 was also in healthcare and cultured MRSA. She had exposed cancer patients to it and therefore a JACO (sp?) had to be filed. She could no longer work at her job. This I believe helped her case. Your boss situation aside, if you are working in a pharmacy, aren't you exposing other patients to your MRSA? If you go on disability maybe a JACO would help. If there's concern that you should be wearing a mask I don't think the pharmacy is a place for you to be working. I wouldn't be happy to see a person wearing a mask with a cough behind the counter at the pharmacy. I know this might hurt and I'm sorry for that.

Personally, I think cfers should be highly discouraged to work in any medical field. It should be part of the transition to adult care and career planning.

Consider contacting Jennifer1981. Her FEV1 is 70% and she's on disability. She's very nice.

 

[LouLou]

Just wanted to say that Jennifer1981 was also in healthcare and cultured MRSA. She had exposed cancer patients to it and therefore a JACO (sp?) had to be filed. She could no longer work at her job. This I believe helped her case. Your boss situation aside, if you are working in a pharmacy, aren't you exposing other patients to your MRSA? If you go on disability maybe a JACO would help. If there's concern that you should be wearing a mask I don't think the pharmacy is a place for you to be working. I wouldn't be happy to see a person wearing a mask with a cough behind the counter at the pharmacy. I know this might hurt and I'm sorry for that.

Personally, I think cfers should be highly discouraged to work in any medical field. It should be part of the transition to adult care and career planning.

Consider contacting Jennifer1981. Her FEV1 is 70% and she's on disability. She's very nice.

 

[LouLou]

Just wanted to say that Jennifer1981 was also in healthcare and cultured MRSA. She had exposed cancer patients to it and therefore a JACO (sp?) had to be filed. She could no longer work at her job. This I believe helped her case. Your boss situation aside, if you are working in a pharmacy, aren't you exposing other patients to your MRSA? If you go on disability maybe a JACO would help. If there's concern that you should be wearing a mask I don't think the pharmacy is a place for you to be working. I wouldn't be happy to see a person wearing a mask with a cough behind the counter at the pharmacy. I know this might hurt and I'm sorry for that.

Personally, I think cfers should be highly discouraged to work in any medical field. It should be part of the transition to adult care and career planning.

Consider contacting Jennifer1981. Her FEV1 is 70% and she's on disability. She's very nice.

 

[LouLou]

Just wanted to say that Jennifer1981 was also in healthcare and cultured MRSA. She had exposed cancer patients to it and therefore a JACO (sp?) had to be filed. She could no longer work at her job. This I believe helped her case. Your boss situation aside, if you are working in a pharmacy, aren't you exposing other patients to your MRSA? If you go on disability maybe a JACO would help. If there's concern that you should be wearing a mask I don't think the pharmacy is a place for you to be working. I wouldn't be happy to see a person wearing a mask with a cough behind the counter at the pharmacy. I know this might hurt and I'm sorry for that.

Personally, I think cfers should be highly discouraged to work in any medical field. It should be part of the transition to adult care and career planning.

Consider contacting Jennifer1981. Her FEV1 is 70% and she's on disability. She's very nice.

 

[LouLou]

Just wanted to say that Jennifer1981 was also in healthcare and cultured MRSA. She had exposed cancer patients to it and therefore a JACO (sp?) had to be filed. She could no longer work at her job. This I believe helped her case. Your boss situation aside, if you are working in a pharmacy, aren't you exposing other patients to your MRSA? If you go on disability maybe a JACO would help. If there's concern that you should be wearing a mask I don't think the pharmacy is a place for you to be working. I wouldn't be happy to see a person wearing a mask with a cough behind the counter at the pharmacy. I know this might hurt and I'm sorry for that.

Personally, I think cfers should be highly discouraged to work in any medical field. It should be part of the transition to adult care and career planning.

Consider contacting Jennifer1981. Her FEV1 is 70% and she's on disability. She's very nice.

 

[candi1976]

LouLou , thanks for your help and input.. Its just hard to consider that I am now at that point in my life that I am no longer the girl that never coughed or never got sick, its just these last 5 years that I have shown any sign of cf, I never knew this was coming with me no longer being able to work in healthcare for the sake of others and myself. I guess it was a part of denial for me .... I didnt see myself as sick nor did others, now its time for me to make the best out of it, I have not only myself to think about but my loving and caring husband that wants me around for a long time. I just feel really guilty.... how do you get rid of that feeling??.. My husband works really hard every day, and the thought of me staying home, I know I will have that income coming in after everything is done and said but , its that feeling ..the thought of being disabled... I know im rambling on and on....

 

[candi1976]

LouLou , thanks for your help and input.. Its just hard to consider that I am now at that point in my life that I am no longer the girl that never coughed or never got sick, its just these last 5 years that I have shown any sign of cf, I never knew this was coming with me no longer being able to work in healthcare for the sake of others and myself. I guess it was a part of denial for me .... I didnt see myself as sick nor did others, now its time for me to make the best out of it, I have not only myself to think about but my loving and caring husband that wants me around for a long time. I just feel really guilty.... how do you get rid of that feeling??.. My husband works really hard every day, and the thought of me staying home, I know I will have that income coming in after everything is done and said but , its that feeling ..the thought of being disabled... I know im rambling on and on....

 

[candi1976]

LouLou , thanks for your help and input.. Its just hard to consider that I am now at that point in my life that I am no longer the girl that never coughed or never got sick, its just these last 5 years that I have shown any sign of cf, I never knew this was coming with me no longer being able to work in healthcare for the sake of others and myself. I guess it was a part of denial for me .... I didnt see myself as sick nor did others, now its time for me to make the best out of it, I have not only myself to think about but my loving and caring husband that wants me around for a long time. I just feel really guilty.... how do you get rid of that feeling??.. My husband works really hard every day, and the thought of me staying home, I know I will have that income coming in after everything is done and said but , its that feeling ..the thought of being disabled... I know im rambling on and on....

 

[candi1976]

LouLou , thanks for your help and input.. Its just hard to consider that I am now at that point in my life that I am no longer the girl that never coughed or never got sick, its just these last 5 years that I have shown any sign of cf, I never knew this was coming with me no longer being able to work in healthcare for the sake of others and myself. I guess it was a part of denial for me .... I didnt see myself as sick nor did others, now its time for me to make the best out of it, I have not only myself to think about but my loving and caring husband that wants me around for a long time. I just feel really guilty.... how do you get rid of that feeling??.. My husband works really hard every day, and the thought of me staying home, I know I will have that income coming in after everything is done and said but , its that feeling ..the thought of being disabled... I know im rambling on and on....

 

[candi1976]

LouLou , thanks for your help and input.. Its just hard to consider that I am now at that point in my life that I am no longer the girl that never coughed or never got sick, its just these last 5 years that I have shown any sign of cf, I never knew this was coming with me no longer being able to work in healthcare for the sake of others and myself. I guess it was a part of denial for me .... I didnt see myself as sick nor did others, now its time for me to make the best out of it, I have not only myself to think about but my loving and caring husband that wants me around for a long time. I just feel really guilty.... how do you get rid of that feeling??.. My husband works really hard every day, and the thought of me staying home, I know I will have that income coming in after everything is done and said but , its that feeling ..the thought of being disabled... I know im rambling on and on....

 

[LouLou]

chin up candi. you still can be that girl with no cough and no one would ever know. it's going to take some dedication and maybe a step back or a step in a different direction though. i'm going through the same thing right now. re-evaluating things. it's not easy. do you know how much we could work if on SSDI? how long have you been married? are you guys planning on having kids one day? not that i'm trying to encourage it or push it but if it's something you want to do in this lifetime, your FEV1 dictates that you do it soon. it could be the motivation to take your health to another level...how much are you exercising, doing extra clearance beyond your normal routine when your lungs are crudy, etc. pm me if you want to chat.

 

[LouLou]

chin up candi. you still can be that girl with no cough and no one would ever know. it's going to take some dedication and maybe a step back or a step in a different direction though. i'm going through the same thing right now. re-evaluating things. it's not easy. do you know how much we could work if on SSDI? how long have you been married? are you guys planning on having kids one day? not that i'm trying to encourage it or push it but if it's something you want to do in this lifetime, your FEV1 dictates that you do it soon. it could be the motivation to take your health to another level...how much are you exercising, doing extra clearance beyond your normal routine when your lungs are crudy, etc. pm me if you want to chat.

 

[LouLou]

chin up candi. you still can be that girl with no cough and no one would ever know. it's going to take some dedication and maybe a step back or a step in a different direction though. i'm going through the same thing right now. re-evaluating things. it's not easy. do you know how much we could work if on SSDI? how long have you been married? are you guys planning on having kids one day? not that i'm trying to encourage it or push it but if it's something you want to do in this lifetime, your FEV1 dictates that you do it soon. it could be the motivation to take your health to another level...how much are you exercising, doing extra clearance beyond your normal routine when your lungs are crudy, etc. pm me if you want to chat.

 

[LouLou]

chin up candi. you still can be that girl with no cough and no one would ever know. it's going to take some dedication and maybe a step back or a step in a different direction though. i'm going through the same thing right now. re-evaluating things. it's not easy. do you know how much we could work if on SSDI? how long have you been married? are you guys planning on having kids one day? not that i'm trying to encourage it or push it but if it's something you want to do in this lifetime, your FEV1 dictates that you do it soon. it could be the motivation to take your health to another level...how much are you exercising, doing extra clearance beyond your normal routine when your lungs are crudy, etc. pm me if you want to chat.

 

[LouLou]

chin up candi. you still can be that girl with no cough and no one would ever know. it's going to take some dedication and maybe a step back or a step in a different direction though. i'm going through the same thing right now. re-evaluating things. it's not easy. do you know how much we could work if on SSDI? how long have you been married? are you guys planning on having kids one day? not that i'm trying to encourage it or push it but if it's something you want to do in this lifetime, your FEV1 dictates that you do it soon. it could be the motivation to take your health to another level...how much are you exercising, doing extra clearance beyond your normal routine when your lungs are crudy, etc. pm me if you want to chat.