I have a 91/2 baby with CF and for the first time we will be living him with my mother for one day. I'm so scare that she will forget to give him the emzymes befor she feed him. I told her that I will write down everything that she need to do. She said that she will do OK and not to worry. I feel that I'm beign over protective, but I cant help it. My sister tell me that my husband and I need to go out as a couple but I feel king of guilty leving him. I need to hear from other mother that have cf kids that is ok to go out living your child with other people.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Going out
- Thread starter anonymous
- Start date
I have a 91/2 baby with CF and for the first time we will be living him with my mother for one day. I'm so scare that she will forget to give him the emzymes befor she feed him. I told her that I will write down everything that she need to do. She said that she will do OK and not to worry. I feel that I'm beign over protective, but I cant help it. My sister tell me that my husband and I need to go out as a couple but I feel king of guilty leving him. I need to hear from other mother that have cf kids that is ok to go out living your child with other people.
I totally think that parents of CFers need to get out alittle, just as if you had a non-CFer baby, all adults need time out it is very health for yourself-being. I believe that your mother did a great job with you so why wouldn't she be the best person for the job. Always remember that peolple do make mistakes not to say she will, but relax and enjoy your time with your husband. Everytime you leave it will get easier, and your baby will enjoy its time with his grandma. let us all know how it goes!
I totally think that parents of CFers need to get out alittle, just as if you had a non-CFer baby, all adults need time out it is very health for yourself-being. I believe that your mother did a great job with you so why wouldn't she be the best person for the job. Always remember that peolple do make mistakes not to say she will, but relax and enjoy your time with your husband. Everytime you leave it will get easier, and your baby will enjoy its time with his grandma. let us all know how it goes!
Emily65Roses
New member
Grandma's probably even more reliable than most. And my parents went out often and left me with a babysitter. Just make sure they know the drill, and how important all of it is... and go have yourself some fun!
Emily65Roses
New member
Grandma's probably even more reliable than most. And my parents went out often and left me with a babysitter. Just make sure they know the drill, and how important all of it is... and go have yourself some fun!
I wouldn't be concerned unless they haven't seen you do this before. They must know the importance of giving your child enzymes. My inlaws live nearby, so they pretty much know how many enzymes to give ds when he eats. And if they need to give him any medications, I have the syringes in a baggy in the fridge and leave written instructions on when to give him the medication. We haven't left DS alone over night 'cuz they don't "beat" him hard enough when doing manual CPT, but once we get the vest we figure we'll be more comforable.
I was a little nervous about leaving DS at daycare, so I went onto the CFF website and found a publication on feeding your infant, toddler. Explains how to give enzymes. What foods require enzymes... And while the director of the daycare keeps a very close watch on everything, I made sure to mention to the staff that should DS not get enzymes, they would have a horrible terrible diaper mess to clean up. Figure scare the younger workers who might think it's too much of a bother.
Another thing we did to make giving enzymes to ds easier, quicker, was to empty out the portion of capsules for a meal into one of those SMTWTFS drug dispensers, so all they'd have to do was dump the contents of one day onto the spoon with bananas rather than empty 2-4 capsules out.
I was a little nervous about leaving DS at daycare, so I went onto the CFF website and found a publication on feeding your infant, toddler. Explains how to give enzymes. What foods require enzymes... And while the director of the daycare keeps a very close watch on everything, I made sure to mention to the staff that should DS not get enzymes, they would have a horrible terrible diaper mess to clean up. Figure scare the younger workers who might think it's too much of a bother.
Another thing we did to make giving enzymes to ds easier, quicker, was to empty out the portion of capsules for a meal into one of those SMTWTFS drug dispensers, so all they'd have to do was dump the contents of one day onto the spoon with bananas rather than empty 2-4 capsules out.
I wouldn't be concerned unless they haven't seen you do this before. They must know the importance of giving your child enzymes. My inlaws live nearby, so they pretty much know how many enzymes to give ds when he eats. And if they need to give him any medications, I have the syringes in a baggy in the fridge and leave written instructions on when to give him the medication. We haven't left DS alone over night 'cuz they don't "beat" him hard enough when doing manual CPT, but once we get the vest we figure we'll be more comforable.
I was a little nervous about leaving DS at daycare, so I went onto the CFF website and found a publication on feeding your infant, toddler. Explains how to give enzymes. What foods require enzymes... And while the director of the daycare keeps a very close watch on everything, I made sure to mention to the staff that should DS not get enzymes, they would have a horrible terrible diaper mess to clean up. Figure scare the younger workers who might think it's too much of a bother.
Another thing we did to make giving enzymes to ds easier, quicker, was to empty out the portion of capsules for a meal into one of those SMTWTFS drug dispensers, so all they'd have to do was dump the contents of one day onto the spoon with bananas rather than empty 2-4 capsules out.
I was a little nervous about leaving DS at daycare, so I went onto the CFF website and found a publication on feeding your infant, toddler. Explains how to give enzymes. What foods require enzymes... And while the director of the daycare keeps a very close watch on everything, I made sure to mention to the staff that should DS not get enzymes, they would have a horrible terrible diaper mess to clean up. Figure scare the younger workers who might think it's too much of a bother.
Another thing we did to make giving enzymes to ds easier, quicker, was to empty out the portion of capsules for a meal into one of those SMTWTFS drug dispensers, so all they'd have to do was dump the contents of one day onto the spoon with bananas rather than empty 2-4 capsules out.
I left Reece w/ his grandma for the first time overnight about 3months ago. I didnt sleep mind you, but he did better then me. He called me the next morning with an excitment in his voice (brought tears to my eyes) He had the best time!!!!!!!!!! Since then I have let him spend the night once every month. He has a blast. He says they have a PJ party. He gets to stay up late, eat whatever he wants whenever he wants. He stays w/ me ALL day long so he NEEDS to know someone else is able to care for him besides me!!!! So yes it does get easier each time. I need the time to myself also or w/ my hubby. LOL Everything will be fine. I was the one who thought I could only take care of Reece the right way. It took me along time to trust others w/ his care!!!!!!!!!!
Leah mommy 2 Reece 3yrs old w/ CF<img src="i/expressions/angel_ani.gif" border="0">
Leah mommy 2 Reece 3yrs old w/ CF<img src="i/expressions/angel_ani.gif" border="0">
I left Reece w/ his grandma for the first time overnight about 3months ago. I didnt sleep mind you, but he did better then me. He called me the next morning with an excitment in his voice (brought tears to my eyes) He had the best time!!!!!!!!!! Since then I have let him spend the night once every month. He has a blast. He says they have a PJ party. He gets to stay up late, eat whatever he wants whenever he wants. He stays w/ me ALL day long so he NEEDS to know someone else is able to care for him besides me!!!! So yes it does get easier each time. I need the time to myself also or w/ my hubby. LOL Everything will be fine. I was the one who thought I could only take care of Reece the right way. It took me along time to trust others w/ his care!!!!!!!!!!
Leah mommy 2 Reece 3yrs old w/ CF<img src="i/expressions/angel_ani.gif" border="0">
Leah mommy 2 Reece 3yrs old w/ CF<img src="i/expressions/angel_ani.gif" border="0">
My mother is my regular babysitter - in fact I went back to full time work when Mikayla was 5 months old because I had to. We had just built a house and my husband was an apprentice still. My mum therefore looked after Mikayla while I was at work. I love that my children have such a close bond with their grandparents and I love being able to leave them with my mum when I need to get things done or just need a break.
I have kept her informed of the girls medical requirements the whole time so that she always knows what is going on. She always gives the girls their enzymes and antibiotics including nebs when they go to stay with her......grandmothers always have a way of turning these things into a game so the girls love spending time over there.
You will probably find that once you have gotton over your first seperation with your child you won't be so anxious over future stays.
I have kept her informed of the girls medical requirements the whole time so that she always knows what is going on. She always gives the girls their enzymes and antibiotics including nebs when they go to stay with her......grandmothers always have a way of turning these things into a game so the girls love spending time over there.
You will probably find that once you have gotton over your first seperation with your child you won't be so anxious over future stays.
My mother is my regular babysitter - in fact I went back to full time work when Mikayla was 5 months old because I had to. We had just built a house and my husband was an apprentice still. My mum therefore looked after Mikayla while I was at work. I love that my children have such a close bond with their grandparents and I love being able to leave them with my mum when I need to get things done or just need a break.
I have kept her informed of the girls medical requirements the whole time so that she always knows what is going on. She always gives the girls their enzymes and antibiotics including nebs when they go to stay with her......grandmothers always have a way of turning these things into a game so the girls love spending time over there.
You will probably find that once you have gotton over your first seperation with your child you won't be so anxious over future stays.
I have kept her informed of the girls medical requirements the whole time so that she always knows what is going on. She always gives the girls their enzymes and antibiotics including nebs when they go to stay with her......grandmothers always have a way of turning these things into a game so the girls love spending time over there.
You will probably find that once you have gotton over your first seperation with your child you won't be so anxious over future stays.
babyjaden2004
New member
Trust me you need to get out. I have a awesome sitter who watches Jaden so Dh and I go to dinner, it is our "date" and I love it. Do not feel guilty for wanting some time away. I always get so excited for our dates and we have one rule No talking about the kids! lol. Just make sure they have everythinggrandma will need and she will be fine. They both will be fine. Enjoy your time together.
babyjaden2004
New member
Trust me you need to get out. I have a awesome sitter who watches Jaden so Dh and I go to dinner, it is our "date" and I love it. Do not feel guilty for wanting some time away. I always get so excited for our dates and we have one rule No talking about the kids! lol. Just make sure they have everythinggrandma will need and she will be fine. They both will be fine. Enjoy your time together.
fourkidsmom
New member
Grandma's are the best!! Our kids love to stay at grandma's-- they get spoiled!!! One idea for you is maybe keep track of everything in a notebook, since Brady was born grandma and I write every medicine, enzymes too, breathing treatment times, stools, etc., in a daily dairy, it works out great. He will be 5 and we still write everything down, I always write everything for my 3 year old too. It is habit now. It also helps others when they watch your cf child to remember medicines, etc.,
Angie
Step mom to Brittany 13 no cf
Mom to Tyler 12 no cf, cf carrier
Mom to Brady 4 with cf
Mom to Taylor 3 no cf, but chromsome 9q 21.2 q 22.1 deletion
Angie
Step mom to Brittany 13 no cf
Mom to Tyler 12 no cf, cf carrier
Mom to Brady 4 with cf
Mom to Taylor 3 no cf, but chromsome 9q 21.2 q 22.1 deletion
fourkidsmom
New member
Grandma's are the best!! Our kids love to stay at grandma's-- they get spoiled!!! One idea for you is maybe keep track of everything in a notebook, since Brady was born grandma and I write every medicine, enzymes too, breathing treatment times, stools, etc., in a daily dairy, it works out great. He will be 5 and we still write everything down, I always write everything for my 3 year old too. It is habit now. It also helps others when they watch your cf child to remember medicines, etc.,
Angie
Step mom to Brittany 13 no cf
Mom to Tyler 12 no cf, cf carrier
Mom to Brady 4 with cf
Mom to Taylor 3 no cf, but chromsome 9q 21.2 q 22.1 deletion
Angie
Step mom to Brittany 13 no cf
Mom to Tyler 12 no cf, cf carrier
Mom to Brady 4 with cf
Mom to Taylor 3 no cf, but chromsome 9q 21.2 q 22.1 deletion
Thank God for Grandparents! My father in law and his gal are wonderful with making sure Cale gets what he needs. I just leave clear notes. It DOES get easier with time. We actually haven't been out much lately, as my sister was going to take the kids for a weekend and backed out on me. My family is notorious for that, however, my in laws are the BEST! How many people can say that? <img src="i/expressions/face-icon-small-wink.gif" border="0">
Thank God for Grandparents! My father in law and his gal are wonderful with making sure Cale gets what he needs. I just leave clear notes. It DOES get easier with time. We actually haven't been out much lately, as my sister was going to take the kids for a weekend and backed out on me. My family is notorious for that, however, my in laws are the BEST! How many people can say that? <img src="i/expressions/face-icon-small-wink.gif" border="0">
I went back to work when Emily was 9 weeks old. We didn't feel comfortable having her in daycare like we did with our oldest at that age, so she is cared for in our home by relatives while we work. My MIL and a college age niece have been pretty reliable in terms of doing the enzymes, nebs, antacid, vitamin...I typed out a three page document to cover everything. More than they'd ever need to know really, but I felt better knowing I was leaving them all the information they'd need. We also have a record keeping sheet that we use daily to log bottles, amount taken, time of feeding, diapers, vomits/spitups and weight gain. With so many people taking care of her (well, really its only us and two others) it is helpful to have everything down on paper. Makes it much easier when I talke to our cf doctors/dietician and they ask how much she's taking in in a day or how many stools there are. It also keeps our caregivers on top of things because there's a column to check off when the vitamin is given or when PT is done and so forth. Now, if I could get them all to put her down once in a while so she learns to comfort herself and gets used to being in a crib, life would be grand!
I went back to work when Emily was 9 weeks old. We didn't feel comfortable having her in daycare like we did with our oldest at that age, so she is cared for in our home by relatives while we work. My MIL and a college age niece have been pretty reliable in terms of doing the enzymes, nebs, antacid, vitamin...I typed out a three page document to cover everything. More than they'd ever need to know really, but I felt better knowing I was leaving them all the information they'd need. We also have a record keeping sheet that we use daily to log bottles, amount taken, time of feeding, diapers, vomits/spitups and weight gain. With so many people taking care of her (well, really its only us and two others) it is helpful to have everything down on paper. Makes it much easier when I talke to our cf doctors/dietician and they ask how much she's taking in in a day or how many stools there are. It also keeps our caregivers on top of things because there's a column to check off when the vitamin is given or when PT is done and so forth. Now, if I could get them all to put her down once in a while so she learns to comfort herself and gets used to being in a crib, life would be grand!