(good)CF Centers in Central Europe??!?

V

Vaultboy

New member
Hi folks!
Can anyone recommend me a CF Center in the alpine Region? Like in Austria, southern Germany, Switzerland or Northern Italy.
The thing is i'm living quite near to a CF Center but i don't go there because the treatment there is really bad and don't trust and don't like them. Seriously.
I know it's a bit of a "special" question, but if there's anyone out there from that little corner of the world that could help me, that would really be great!
thx guys
 
V

Vaultboy

New member
Hi folks!
Can anyone recommend me a CF Center in the alpine Region? Like in Austria, southern Germany, Switzerland or Northern Italy.
The thing is i'm living quite near to a CF Center but i don't go there because the treatment there is really bad and don't trust and don't like them. Seriously.
I know it's a bit of a "special" question, but if there's anyone out there from that little corner of the world that could help me, that would really be great!
thx guys
 
J

juliefaler

New member
University Hospital Innsbruck, Austria. We are from the states, but last summer my 27 yr old daughter was visiting Europe got very sick and spent 3 weeks in the hospital. It is a big hospital, transplant center and Cystic Fibrosis Center. They immediately got her records from the states and took very good care of her. Her care during her stay was similar to her care back home in the states. She has a complicate case, she needed oxygen, newly CFRD, liver issues, etc. They were able to handle all of it.
I would have no problem seeing this doctor (Dr. Eder) are the CF center if it was back in the states. The adults are seen in the children's hospital, but they told me they are working at transitioning the adults to the main part of the hospital.
 
J

juliefaler

New member
University Hospital Innsbruck, Austria. We are from the states, but last summer my 27 yr old daughter was visiting Europe got very sick and spent 3 weeks in the hospital. It is a big hospital, transplant center and Cystic Fibrosis Center. They immediately got her records from the states and took very good care of her. Her care during her stay was similar to her care back home in the states. She has a complicate case, she needed oxygen, newly CFRD, liver issues, etc. They were able to handle all of it.
I would have no problem seeing this doctor (Dr. Eder) are the CF center if it was back in the states. The adults are seen in the children's hospital, but they told me they are working at transitioning the adults to the main part of the hospital.
 
V

Vaultboy

New member
Hi juliefaler, thx for your answer. im glad you e.g. your daughter got well treated there. did you have anything to do with Dr. Ellemunter during this time?
 
V

Vaultboy

New member
Hi juliefaler, thx for your answer. im glad you e.g. your daughter got well treated there. did you have anything to do with Dr. Ellemunter during this time?
 
Z

zamanka

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bigstar</b></i> UK anyone?</end quote>

In London Royal Brompton & Harefield hospital is the one which specialised in CF.
My husband is their patient. I don't know if they're good or bad as we didn't have a chance to compare with any other hospital.
 
Z

zamanka

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>bigstar</b></i> UK anyone?</end quote>

In London Royal Brompton & Harefield hospital is the one which specialised in CF.
My husband is their patient. I don't know if they're good or bad as we didn't have a chance to compare with any other hospital.
 
J

juliefaler

New member
We did meet with Dr. Ellemunter, he seems good, but we mainly dealt with Dr. Eder and he was wonderful. Since we didn't know German he had to speak in English which couldn't of been easy, especially since her CF is so complex. He took the time to made sure we understood everything and we knew what was going on. We left the hospital with complete records, so it was easy for her USA CF doctors to continue her care. Good Luck.
 
J

juliefaler

New member
We did meet with Dr. Ellemunter, he seems good, but we mainly dealt with Dr. Eder and he was wonderful. Since we didn't know German he had to speak in English which couldn't of been easy, especially since her CF is so complex. He took the time to made sure we understood everything and we knew what was going on. We left the hospital with complete records, so it was easy for her USA CF doctors to continue her care. Good Luck.
 
V

Vaultboy

New member
thanks again for sharing you experience julie. seems like things have changed in innsbruck (i've been treated there as a kid). but i guess i would still rather go some other place else if someone had another tip..
 
V

Vaultboy

New member
thanks again for sharing you experience julie. seems like things have changed in innsbruck (i've been treated there as a kid). but i guess i would still rather go some other place else if someone had another tip..
 
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