Good News

anonymous

New member
Hey Guys, I had a clinic appt. yesterday and I've gained ten pounds since December, thanks to insulin! I haven't felt or looked this good since highschool. I wanted to share this b/c I know some of you are being faced with the idea of CFRD and insulin and it can be a huge drag to have to add one more thing, but I would reccomend it to anyone. It has made a huge difference. I sleep better, have an even better appetite and so much energy. I hope this eases some tensions about taking insulin, it really isn't that big of a pain and once you feel the difference you'll be so happy.<img src="i/expressions/face-icon-small-happy.gif" border="0">Debbie23 w/ CF
 

kybert

New member
some doctors actually put their patients on insulin ,even if they dont really need it, to make them eat. though when you do need it its amazing the difference it makes. i can remember when i first got steroid induced diabetes. i couldnt concentrate, my eyes were all blurry and i felt so weird. when i was put on insulin and it started to kick in everything went back to normal. i wasnt floating around in space anymore.
 

anonymous

New member
Debbie,I'm so glad to hear you say that! My doctors tell me its just a matter of time before I develop CFRD. I'm checking my blood sugar daily just to monitor it. So far it has been within normal ranges, however, sometimes its a little high after meals. I dread going on insulin. I've heard there are a couple ways to give it. Either before each time you eat with fast acting insulin or once or twice a day with long acting insulin. Which way do you give it? My doctor also suggests balancing carbs throughout the day and cutting out sodas. Do you watch what you eat or eat whatever? This is what I'm most worried about, not being able to eat what I want when I want. I'm glad to hear you are doing good though. I just got a good report too, gained 5 pounds and PFT's went up a little - yay! Martha, 29, CF
 

anonymous

New member
Martha, I use the fast acting insuin right when I eat. I'm a HUGE soda fan, I'm not really into sweets, but I love my fizzy cokes! What my dietician suggested for CFRD was to keep concetrated sugars (i.e. candy, table sugar, soda) on the lower end because they can mess up blood sugars, however it is not a life or death kind of situation as with type one or two diebetes. With CF the most important thig is high calorie and variety in diet. As far as carbs go, if I'm eating alot of them, like with sushi for instance, I take a few more units of insulin. I can still eat whatever I want. The only thing I've been cautioned against is taking insulin when I'm going to be drinking more than one drink of alcohol, like if I'm having a snack at a party. CFRD really hasn't had much of a negative impact on my life at all. I think activly treating it has been the best health decision I've made in my adult life. I wish you luck with every thing, and that's good to hear about the weight gain and PFTs!Debbie23 w/ CF
 

anonymous

New member
Martha I would very interested in learning what you do for treatment....My docs don't think that I have developed CFRD but sometimes it sure seems like it to me. What kind of symptoms would you have when you first developed CFRD?ThanksJake
 

Dea

New member
Hi Jake,I'm 30...and have had CFRD for 5 1/2 yrs now. My symptoms were fatigue, being abnormally thirsty (didnt matter what I drank, just could not quench the thirst), having to urinate more than normal, and weight loss. I had these symptoms for about 2 weeks before I went to the doctor. Do they check your blood sugar when you go for a check up?Dea
 

anonymous

New member
Hi DeaI have a kit to check my blood sugars because my doctors thought I might have diabetes. Sometimes I get light-headed, almost drunk feeling. My sugars fluctuate wildly during that time. But my doctors don't seem to be concerned about it. what kind of levels should I be worried about?thanksJake
 

Dea

New member
Hey Jake,When I get light headed my sugar levels are usually low...meaning under 75 for me. My sugars range from 85-100 after I wake up in the morning to about 150 throughout the day. If your sugars get close to 200...I would be concerned. I dont know when you check them...but the best time is about 2 hrs after you eat a meal. This number is usually a pretty good indicator. Let me know.Dea
 

anonymous

New member
Thanks Dea. I am gonna take the measures with I get up, 2 hours after meals and then when I am light headed. I will post how it goes.ThanksJake
 

anonymous

New member
Jake,I haven't really had any symptoms yet, my doctors noticed that my HGa1c was a little high. They referred me to an endocrinologist and they said it was just a matter of time before I developed CFRD. I have done some reading on CFRD though and it looks like there are a couple of types. Some people only have high blood sugars right after they eat and others can have high blood sugars all the time, even when fasting. I don't know what I'll have, but I've been checking my blood sugars 2 hours after I eat to make sure my blood sugar isn't too high, just in case my bg is spiking after eating. So hopefully that will help you too. Debbie,Thanks for responding, I love sweets and sodas, but I've tried switching to diet soda and I hate it. I've still been eating whatever I want, but trying to eat a more balanced diet. Hopefully it will hold out for me for a while. Martha 29, CF
 

anonymous

New member
Thanks MarthaI do notice some high levels at times, and now I am going to more carefully check two after meals. It seems like my biggest problems are light headedness and sometimes some real bad hand shaking.Jake
 
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