Grand Mal Seizure

chrissyd

New member
I really hope you feel better...When I was younger they thought my mitochondrial "shakes" were me having mini seizures. Can't even begin to imagine how you must have felt, you're in my thoughts and prayers.

<img src="i/expressions/rose.gif" border="0">

Chrissy
 

chrissyd

New member
I really hope you feel better...When I was younger they thought my mitochondrial "shakes" were me having mini seizures. Can't even begin to imagine how you must have felt, you're in my thoughts and prayers.

<img src="i/expressions/rose.gif" border="0">

Chrissy
 

chrissyd

New member
I really hope you feel better...When I was younger they thought my mitochondrial "shakes" were me having mini seizures. Can't even begin to imagine how you must have felt, you're in my thoughts and prayers.

<img src="i/expressions/rose.gif" border="0">

Chrissy
 

chrissyd

New member
I really hope you feel better...When I was younger they thought my mitochondrial "shakes" were me having mini seizures. Can't even begin to imagine how you must have felt, you're in my thoughts and prayers.

<img src="i/expressions/rose.gif" border="0">

Chrissy
 

chrissyd

New member
I really hope you feel better...When I was younger they thought my mitochondrial "shakes" were me having mini seizures. Can't even begin to imagine how you must have felt, you're in my thoughts and prayers.

<img src="i/expressions/rose.gif" border="0">

Chrissy
 

Marjolein

New member
O my, that sounds so scary. I'm glad to hear they could get it under control and that they know what is the cause

Hope you feel better soon

xxx, Marjolein
 

Marjolein

New member
O my, that sounds so scary. I'm glad to hear they could get it under control and that they know what is the cause

Hope you feel better soon

xxx, Marjolein
 

Marjolein

New member
O my, that sounds so scary. I'm glad to hear they could get it under control and that they know what is the cause

Hope you feel better soon

xxx, Marjolein
 

Marjolein

New member
O my, that sounds so scary. I'm glad to hear they could get it under control and that they know what is the cause

Hope you feel better soon

xxx, Marjolein
 

Marjolein

New member
O my, that sounds so scary. I'm glad to hear they could get it under control and that they know what is the cause

Hope you feel better soon

xxx, Marjolein
 

my65roses4me

New member
Thanks to you all for the warm wishes and prayers. I can really use them right now.

This was a very frightening thing to go through. I have been through alot over the past ten or so years with my CF. The massive hemoptysis being one of them. But out of everything I have been through I would say that was the scariest thing yet.

I am slowly getting my memory back about certain things that day. Of course I dont remember actually seizing but the events surrounding it are starting to come back. It scares me more to really start remembering things.

Like when I first starting coming to after the seizure I remember my hearing was faded. But I was hearing wierd wooshing and snapping noises. It sounded like I was listening to my brain. The snapping sounded like small rubberbands in my head. I had a bloody taste in my mouth from a nose bleed too.
So as I was coming to I can taste blood and hear wierd sounds. I thought for sure I was dying. I remember the paramedics telling me who they were and that I had a seizure and that they are going to take good care of me.
I asked them many times, "Am I going to die". They kept telling me to try to relax and trust that I am being taken care of and that people have seizures every day and dont die, even though it may seem like I am.

My hats are off to them and everyone in that county office. The people that work there were there for me even though they barely know me.
It just so happens that the Fire Dept Inspectors office is in the same building. It just so happens that there was a firefighter-paramedic there at the time. He isn't usually there but he was there that morning for some reason.
He came to my aid and called directly to the station himself as someone else was calling 911. Because of him I was taken care of alot faster than it would of been if we waited for 911.
He also got my cell phone out of my purse and called my husband himself. He was at work about 1 hr away. The paramedic spoke to him (he is a medic too) about what was happening to me. He comforted my husband and told him he is doing all he can. I am so greatful that they were not only there for me but my hubby too!!!!!

So far they think this was directly related to the Flagyl. It is a very rare occurence caused by this med. I just happen to be the lucky one!! LOL (kara)

They have ruled out anything else such as a brain tumor or bleed. They have done two cat scan of my head and they come out clear Thank God!! They also did a blood test to rule out an electrolite embalance too. It came back clear too.
So now they think it was the Flagyl.

<u><i>But for those that are taking it or need to take it in the future just know that this is very rare. It doesn't mean that it can happen to you too. </i></u>


It helps me by getting this all out. I think I have a little PTSD from this. So I am working on getting my feelings out so they dont stay bottled up. I apreciate all of your support!!! I dont know what I would do without all of you!!!!

Sally,
I know you would have been there for me if you had the chance and I apreciate that!! You are a great person!!! Thanks
P.S sorry to hear about SOC!!!!

Kara,
Thanks for all of your support! You have put yourself out there for me even while you are going through crap yourself!! Thanks

Melissa,
thanks for your insite on this, if anyone understands it would be you!!! If I have any questions can I PM you? Thanks

Thanks to the rest of you for your support it means the world to me!!!!!!!!!!!
<b>THANKS</b>
 

my65roses4me

New member
Thanks to you all for the warm wishes and prayers. I can really use them right now.

This was a very frightening thing to go through. I have been through alot over the past ten or so years with my CF. The massive hemoptysis being one of them. But out of everything I have been through I would say that was the scariest thing yet.

I am slowly getting my memory back about certain things that day. Of course I dont remember actually seizing but the events surrounding it are starting to come back. It scares me more to really start remembering things.

Like when I first starting coming to after the seizure I remember my hearing was faded. But I was hearing wierd wooshing and snapping noises. It sounded like I was listening to my brain. The snapping sounded like small rubberbands in my head. I had a bloody taste in my mouth from a nose bleed too.
So as I was coming to I can taste blood and hear wierd sounds. I thought for sure I was dying. I remember the paramedics telling me who they were and that I had a seizure and that they are going to take good care of me.
I asked them many times, "Am I going to die". They kept telling me to try to relax and trust that I am being taken care of and that people have seizures every day and dont die, even though it may seem like I am.

My hats are off to them and everyone in that county office. The people that work there were there for me even though they barely know me.
It just so happens that the Fire Dept Inspectors office is in the same building. It just so happens that there was a firefighter-paramedic there at the time. He isn't usually there but he was there that morning for some reason.
He came to my aid and called directly to the station himself as someone else was calling 911. Because of him I was taken care of alot faster than it would of been if we waited for 911.
He also got my cell phone out of my purse and called my husband himself. He was at work about 1 hr away. The paramedic spoke to him (he is a medic too) about what was happening to me. He comforted my husband and told him he is doing all he can. I am so greatful that they were not only there for me but my hubby too!!!!!

So far they think this was directly related to the Flagyl. It is a very rare occurence caused by this med. I just happen to be the lucky one!! LOL (kara)

They have ruled out anything else such as a brain tumor or bleed. They have done two cat scan of my head and they come out clear Thank God!! They also did a blood test to rule out an electrolite embalance too. It came back clear too.
So now they think it was the Flagyl.

<u><i>But for those that are taking it or need to take it in the future just know that this is very rare. It doesn't mean that it can happen to you too. </i></u>


It helps me by getting this all out. I think I have a little PTSD from this. So I am working on getting my feelings out so they dont stay bottled up. I apreciate all of your support!!! I dont know what I would do without all of you!!!!

Sally,
I know you would have been there for me if you had the chance and I apreciate that!! You are a great person!!! Thanks
P.S sorry to hear about SOC!!!!

Kara,
Thanks for all of your support! You have put yourself out there for me even while you are going through crap yourself!! Thanks

Melissa,
thanks for your insite on this, if anyone understands it would be you!!! If I have any questions can I PM you? Thanks

Thanks to the rest of you for your support it means the world to me!!!!!!!!!!!
<b>THANKS</b>
 

my65roses4me

New member
Thanks to you all for the warm wishes and prayers. I can really use them right now.

This was a very frightening thing to go through. I have been through alot over the past ten or so years with my CF. The massive hemoptysis being one of them. But out of everything I have been through I would say that was the scariest thing yet.

I am slowly getting my memory back about certain things that day. Of course I dont remember actually seizing but the events surrounding it are starting to come back. It scares me more to really start remembering things.

Like when I first starting coming to after the seizure I remember my hearing was faded. But I was hearing wierd wooshing and snapping noises. It sounded like I was listening to my brain. The snapping sounded like small rubberbands in my head. I had a bloody taste in my mouth from a nose bleed too.
So as I was coming to I can taste blood and hear wierd sounds. I thought for sure I was dying. I remember the paramedics telling me who they were and that I had a seizure and that they are going to take good care of me.
I asked them many times, "Am I going to die". They kept telling me to try to relax and trust that I am being taken care of and that people have seizures every day and dont die, even though it may seem like I am.

My hats are off to them and everyone in that county office. The people that work there were there for me even though they barely know me.
It just so happens that the Fire Dept Inspectors office is in the same building. It just so happens that there was a firefighter-paramedic there at the time. He isn't usually there but he was there that morning for some reason.
He came to my aid and called directly to the station himself as someone else was calling 911. Because of him I was taken care of alot faster than it would of been if we waited for 911.
He also got my cell phone out of my purse and called my husband himself. He was at work about 1 hr away. The paramedic spoke to him (he is a medic too) about what was happening to me. He comforted my husband and told him he is doing all he can. I am so greatful that they were not only there for me but my hubby too!!!!!

So far they think this was directly related to the Flagyl. It is a very rare occurence caused by this med. I just happen to be the lucky one!! LOL (kara)

They have ruled out anything else such as a brain tumor or bleed. They have done two cat scan of my head and they come out clear Thank God!! They also did a blood test to rule out an electrolite embalance too. It came back clear too.
So now they think it was the Flagyl.

<u><i>But for those that are taking it or need to take it in the future just know that this is very rare. It doesn't mean that it can happen to you too. </i></u>


It helps me by getting this all out. I think I have a little PTSD from this. So I am working on getting my feelings out so they dont stay bottled up. I apreciate all of your support!!! I dont know what I would do without all of you!!!!

Sally,
I know you would have been there for me if you had the chance and I apreciate that!! You are a great person!!! Thanks
P.S sorry to hear about SOC!!!!

Kara,
Thanks for all of your support! You have put yourself out there for me even while you are going through crap yourself!! Thanks

Melissa,
thanks for your insite on this, if anyone understands it would be you!!! If I have any questions can I PM you? Thanks

Thanks to the rest of you for your support it means the world to me!!!!!!!!!!!
<b>THANKS</b>
 

my65roses4me

New member
Thanks to you all for the warm wishes and prayers. I can really use them right now.

This was a very frightening thing to go through. I have been through alot over the past ten or so years with my CF. The massive hemoptysis being one of them. But out of everything I have been through I would say that was the scariest thing yet.

I am slowly getting my memory back about certain things that day. Of course I dont remember actually seizing but the events surrounding it are starting to come back. It scares me more to really start remembering things.

Like when I first starting coming to after the seizure I remember my hearing was faded. But I was hearing wierd wooshing and snapping noises. It sounded like I was listening to my brain. The snapping sounded like small rubberbands in my head. I had a bloody taste in my mouth from a nose bleed too.
So as I was coming to I can taste blood and hear wierd sounds. I thought for sure I was dying. I remember the paramedics telling me who they were and that I had a seizure and that they are going to take good care of me.
I asked them many times, "Am I going to die". They kept telling me to try to relax and trust that I am being taken care of and that people have seizures every day and dont die, even though it may seem like I am.

My hats are off to them and everyone in that county office. The people that work there were there for me even though they barely know me.
It just so happens that the Fire Dept Inspectors office is in the same building. It just so happens that there was a firefighter-paramedic there at the time. He isn't usually there but he was there that morning for some reason.
He came to my aid and called directly to the station himself as someone else was calling 911. Because of him I was taken care of alot faster than it would of been if we waited for 911.
He also got my cell phone out of my purse and called my husband himself. He was at work about 1 hr away. The paramedic spoke to him (he is a medic too) about what was happening to me. He comforted my husband and told him he is doing all he can. I am so greatful that they were not only there for me but my hubby too!!!!!

So far they think this was directly related to the Flagyl. It is a very rare occurence caused by this med. I just happen to be the lucky one!! LOL (kara)

They have ruled out anything else such as a brain tumor or bleed. They have done two cat scan of my head and they come out clear Thank God!! They also did a blood test to rule out an electrolite embalance too. It came back clear too.
So now they think it was the Flagyl.

<u><i>But for those that are taking it or need to take it in the future just know that this is very rare. It doesn't mean that it can happen to you too. </i></u>


It helps me by getting this all out. I think I have a little PTSD from this. So I am working on getting my feelings out so they dont stay bottled up. I apreciate all of your support!!! I dont know what I would do without all of you!!!!

Sally,
I know you would have been there for me if you had the chance and I apreciate that!! You are a great person!!! Thanks
P.S sorry to hear about SOC!!!!

Kara,
Thanks for all of your support! You have put yourself out there for me even while you are going through crap yourself!! Thanks

Melissa,
thanks for your insite on this, if anyone understands it would be you!!! If I have any questions can I PM you? Thanks

Thanks to the rest of you for your support it means the world to me!!!!!!!!!!!
<b>THANKS</b>
 

my65roses4me

New member
Thanks to you all for the warm wishes and prayers. I can really use them right now.

This was a very frightening thing to go through. I have been through alot over the past ten or so years with my CF. The massive hemoptysis being one of them. But out of everything I have been through I would say that was the scariest thing yet.

I am slowly getting my memory back about certain things that day. Of course I dont remember actually seizing but the events surrounding it are starting to come back. It scares me more to really start remembering things.

Like when I first starting coming to after the seizure I remember my hearing was faded. But I was hearing wierd wooshing and snapping noises. It sounded like I was listening to my brain. The snapping sounded like small rubberbands in my head. I had a bloody taste in my mouth from a nose bleed too.
So as I was coming to I can taste blood and hear wierd sounds. I thought for sure I was dying. I remember the paramedics telling me who they were and that I had a seizure and that they are going to take good care of me.
I asked them many times, "Am I going to die". They kept telling me to try to relax and trust that I am being taken care of and that people have seizures every day and dont die, even though it may seem like I am.

My hats are off to them and everyone in that county office. The people that work there were there for me even though they barely know me.
It just so happens that the Fire Dept Inspectors office is in the same building. It just so happens that there was a firefighter-paramedic there at the time. He isn't usually there but he was there that morning for some reason.
He came to my aid and called directly to the station himself as someone else was calling 911. Because of him I was taken care of alot faster than it would of been if we waited for 911.
He also got my cell phone out of my purse and called my husband himself. He was at work about 1 hr away. The paramedic spoke to him (he is a medic too) about what was happening to me. He comforted my husband and told him he is doing all he can. I am so greatful that they were not only there for me but my hubby too!!!!!

So far they think this was directly related to the Flagyl. It is a very rare occurence caused by this med. I just happen to be the lucky one!! LOL (kara)

They have ruled out anything else such as a brain tumor or bleed. They have done two cat scan of my head and they come out clear Thank God!! They also did a blood test to rule out an electrolite embalance too. It came back clear too.
So now they think it was the Flagyl.

<u><i>But for those that are taking it or need to take it in the future just know that this is very rare. It doesn't mean that it can happen to you too. </i></u>


It helps me by getting this all out. I think I have a little PTSD from this. So I am working on getting my feelings out so they dont stay bottled up. I apreciate all of your support!!! I dont know what I would do without all of you!!!!

Sally,
I know you would have been there for me if you had the chance and I apreciate that!! You are a great person!!! Thanks
P.S sorry to hear about SOC!!!!

Kara,
Thanks for all of your support! You have put yourself out there for me even while you are going through crap yourself!! Thanks

Melissa,
thanks for your insite on this, if anyone understands it would be you!!! If I have any questions can I PM you? Thanks

Thanks to the rest of you for your support it means the world to me!!!!!!!!!!!
<b>THANKS</b>
 

beleache

New member
Wow Khristina, What a scary experience that was .. See and just when you think ppl suck, they go and step up in a situationa like yours.. I was also on flagyl, so thank you for the heads up.. I'm glad that they know the cause, and that it's an easy fix .. Hope you are on the road to a speedy recovery.. Keep us posted , God Bless...<img src="i/expressions/heart.gif" border="0">
 

beleache

New member
Wow Khristina, What a scary experience that was .. See and just when you think ppl suck, they go and step up in a situationa like yours.. I was also on flagyl, so thank you for the heads up.. I'm glad that they know the cause, and that it's an easy fix .. Hope you are on the road to a speedy recovery.. Keep us posted , God Bless...<img src="i/expressions/heart.gif" border="0">
 

beleache

New member
Wow Khristina, What a scary experience that was .. See and just when you think ppl suck, they go and step up in a situationa like yours.. I was also on flagyl, so thank you for the heads up.. I'm glad that they know the cause, and that it's an easy fix .. Hope you are on the road to a speedy recovery.. Keep us posted , God Bless...<img src="i/expressions/heart.gif" border="0">
 

beleache

New member
Wow Khristina, What a scary experience that was .. See and just when you think ppl suck, they go and step up in a situationa like yours.. I was also on flagyl, so thank you for the heads up.. I'm glad that they know the cause, and that it's an easy fix .. Hope you are on the road to a speedy recovery.. Keep us posted , God Bless...<img src="i/expressions/heart.gif" border="0">
 

beleache

New member
Wow Khristina, What a scary experience that was .. See and just when you think ppl suck, they go and step up in a situationa like yours.. I was also on flagyl, so thank you for the heads up.. I'm glad that they know the cause, and that it's an easy fix .. Hope you are on the road to a speedy recovery.. Keep us posted , God Bless...<img src="i/expressions/heart.gif" border="0">
 
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