Great website for CF!

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vestgirl

New member
Hey everyone I'm new! I am 21 years old with Cystic Fibrosis,
diagnosed at birth. I have the Delta F508 mutation, I should join
the club right <img src="i/expressions/face-icon-small-smile.gif" border="0"> and also W1282X mutation. I know that the second
one is a rare mutation. Does anyone else have this one? I wanted to
tell everyone about a search engine that I came across while
reading a Self magazine a few months back. The magazine mentioned a
search engine: http://www.goodsearch.com where every time you
search the web it donates a penny to a foundation or organization
of choice. Go to the site and type in Cystic Fibrosis on the bottom
box and then click verify. There are several different Cystic
Fibrosis organizations to choose from. Then in the top box type in
your search. Every penny can go a long way. Spread the word! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JazzysMom

New member
Welcome to the site! We have been notified of the GoodSearch.com in the past, but its good to bring it up again since we have many new members.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.goodsearch.com">http://www.goodsearch.com</a>
 
E

Emily65Roses

New member
My Mike uses that engine every time he searches for anything now. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/heart.gif" border="0">
 
A

Allie

New member
Welcome! You have the same mutation combination as my husband, that automatically makes you cool in my book.
 
C

chantelfox

New member
Wow! What a great idea! Thanks for sharing it, I put it at the top
of my favorites list. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

sue35

New member
which organization do you all put down? when i typed cystic fibrosis a couple came up and I don't know which to put<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

Jenica

Guest
I typed in Cystic Fibrosis Foundation, and it brought up only one. The location is Bethesda, MD, I believe.

This is a great site, I am going to pass it along to my address book today!
 
J

Jem

New member
Welcome and thanks for letting us know about Goodsearch.com.
 I will be passing on this info.  It nice to have you
join us and we look forward to reading your future
posts.<img src="i/expressions/heart.gif" border="0"><br>
<br>
<br>
P.S.  I love your handle name "Vestgirl."
 Sounds like a superhero!
 
K

kayleesgrandma

New member
Welcome Jen, I love Gray's A...Thanks for the info. You'll find this a great site, and will make great friends here! Look forward to hearing more from you. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
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vestgirl

New member
I am glad everyone likes the site. I use it all the time. <img src="i/expressions/face-icon-small-smile.gif" border="0"> When I
search, I use the CFF in Bethesda, MD. Thanks Risa and Jem for
liking my sign on name it was either that or the mucinator which I
thought would be really sexy. hehe. I hope everyone is doing
well. 
 
A

amber682

New member
Thanks Jen, I had never heard of it. I just checked it out and
added to my favorites. I thought it was neat that u can see the
amount raised so far.
 
A

anonymous

New member
Hey - I noticed you have the same mutations as my daughter, you look so healthy is there any suggestions for us as newly diagnosed parents and child. Maci is 4 years old and was diagnosed last November. We have heard of a study going on have you enrolled in it? My e-mail is cmddrewry@yahoo.com. I have not ever posted on this or any site so I don't know if I will be able to find your reply unless you e-mail me. Thanks Maci's mom
 
A

anonymous

New member
Hey - I noticed you have the same mutations as my daughter, you look so healthy is there any suggestions for us as newly diagnosed parents and child. Maci is 4 years old and was diagnosed last November. We have heard of a study going on have you enrolled in it? My e-mail is cmddrewry@yahoo.com. I have not ever posted on this or any site so I don't know if I will be able to find your reply unless you e-mail me. Thanks Maci's mom
 
A

anonymous

New member
Hey - I noticed you have the same mutations as my daughter, you look so healthy is there any suggestions for us as newly diagnosed parents and child. Maci is 4 years old and was diagnosed last November. We have heard of a study going on have you enrolled in it? My e-mail is cmddrewry@yahoo.com. I have not ever posted on this or any site so I don't know if I will be able to find your reply unless you e-mail me. Thanks Maci's mom
 
T

tleigh

New member
welcome Jen-thanks for reminding us about an easy way to
contribute $'s to a great cause that we are all passionate about.
 
T

tleigh

New member
welcome Jen-thanks for reminding us about an easy way to
contribute $'s to a great cause that we are all passionate about.
 
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