My mother recently grabbed me this <a target=_blank class=ftalternatingbarlinklarge href="http://www.mycysticfibrosis.com/growing_older.asp">http://www.mycysticfibrosis.com/growing_older.asp</a> handbook at a CF walk. I was wondering if anyone had an updated version or maybe even a better one out there? It was written in 1997 and as we all know many things have changed since then. It just seems somewhat fruitless to read something that is already outdated in many ways.
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Growing Older With CF
- Thread starter LeonBlack
- Start date
My mother recently grabbed me this <a target=_blank class=ftalternatingbarlinklarge href="http://www.mycysticfibrosis.com/growing_older.asp">http://www.mycysticfibrosis.com/growing_older.asp</a> handbook at a CF walk. I was wondering if anyone had an updated version or maybe even a better one out there? It was written in 1997 and as we all know many things have changed since then. It just seems somewhat fruitless to read something that is already outdated in many ways.
My mother recently grabbed me this <a target=_blank class=ftalternatingbarlinklarge href="http://www.mycysticfibrosis.com/growing_older.asp">http://www.mycysticfibrosis.com/growing_older.asp</a> handbook at a CF walk. I was wondering if anyone had an updated version or maybe even a better one out there? It was written in 1997 and as we all know many things have changed since then. It just seems somewhat fruitless to read something that is already outdated in many ways.
My mother recently grabbed me this <a target=_blank class=ftalternatingbarlinklarge href="http://www.mycysticfibrosis.com/growing_older.asp">http://www.mycysticfibrosis.com/growing_older.asp</a> handbook at a CF walk. I was wondering if anyone had an updated version or maybe even a better one out there? It was written in 1997 and as we all know many things have changed since then. It just seems somewhat fruitless to read something that is already outdated in many ways.
My mother recently grabbed me this <a target=_blank class=ftalternatingbarlinklarge href="http://www.mycysticfibrosis.com/growing_older.asp">http://www.mycysticfibrosis.com/growing_older.asp</a> handbook at a CF walk. I was wondering if anyone had an updated version or maybe even a better one out there? It was written in 1997 and as we all know many things have changed since then. It just seems somewhat fruitless to read something that is already outdated in many ways.
Sevenstars
New member
My clinic recently gave me a book (for free) called "Beyond Lungs - Meeting the Needs of Adults with Cystic Fibrosis". It was published in 2006 by Solvay Pharmeceuticals. Editors: Annie McKenna and Howard Goldsweig. ISBN 3-00-19525-4
Just giving you all the info in case you want to ask about it or look for it, it does contain a lot of "updated" topics, and especially a lot of post transplant info. I even learned some things from the book! I've looked around online for it for the past 20 minutes and can't find a thing, so I guess you have to contact Solvay or your doctor if you want a copy.
Just giving you all the info in case you want to ask about it or look for it, it does contain a lot of "updated" topics, and especially a lot of post transplant info. I even learned some things from the book! I've looked around online for it for the past 20 minutes and can't find a thing, so I guess you have to contact Solvay or your doctor if you want a copy.
Sevenstars
New member
My clinic recently gave me a book (for free) called "Beyond Lungs - Meeting the Needs of Adults with Cystic Fibrosis". It was published in 2006 by Solvay Pharmeceuticals. Editors: Annie McKenna and Howard Goldsweig. ISBN 3-00-19525-4
Just giving you all the info in case you want to ask about it or look for it, it does contain a lot of "updated" topics, and especially a lot of post transplant info. I even learned some things from the book! I've looked around online for it for the past 20 minutes and can't find a thing, so I guess you have to contact Solvay or your doctor if you want a copy.
Just giving you all the info in case you want to ask about it or look for it, it does contain a lot of "updated" topics, and especially a lot of post transplant info. I even learned some things from the book! I've looked around online for it for the past 20 minutes and can't find a thing, so I guess you have to contact Solvay or your doctor if you want a copy.
Sevenstars
New member
My clinic recently gave me a book (for free) called "Beyond Lungs - Meeting the Needs of Adults with Cystic Fibrosis". It was published in 2006 by Solvay Pharmeceuticals. Editors: Annie McKenna and Howard Goldsweig. ISBN 3-00-19525-4
Just giving you all the info in case you want to ask about it or look for it, it does contain a lot of "updated" topics, and especially a lot of post transplant info. I even learned some things from the book! I've looked around online for it for the past 20 minutes and can't find a thing, so I guess you have to contact Solvay or your doctor if you want a copy.
Just giving you all the info in case you want to ask about it or look for it, it does contain a lot of "updated" topics, and especially a lot of post transplant info. I even learned some things from the book! I've looked around online for it for the past 20 minutes and can't find a thing, so I guess you have to contact Solvay or your doctor if you want a copy.
Sevenstars
New member
My clinic recently gave me a book (for free) called "Beyond Lungs - Meeting the Needs of Adults with Cystic Fibrosis". It was published in 2006 by Solvay Pharmeceuticals. Editors: Annie McKenna and Howard Goldsweig. ISBN 3-00-19525-4
Just giving you all the info in case you want to ask about it or look for it, it does contain a lot of "updated" topics, and especially a lot of post transplant info. I even learned some things from the book! I've looked around online for it for the past 20 minutes and can't find a thing, so I guess you have to contact Solvay or your doctor if you want a copy.
Just giving you all the info in case you want to ask about it or look for it, it does contain a lot of "updated" topics, and especially a lot of post transplant info. I even learned some things from the book! I've looked around online for it for the past 20 minutes and can't find a thing, so I guess you have to contact Solvay or your doctor if you want a copy.
Sevenstars
New member
My clinic recently gave me a book (for free) called "Beyond Lungs - Meeting the Needs of Adults with Cystic Fibrosis". It was published in 2006 by Solvay Pharmeceuticals. Editors: Annie McKenna and Howard Goldsweig. ISBN 3-00-19525-4
<br />
<br />Just giving you all the info in case you want to ask about it or look for it, it does contain a lot of "updated" topics, and especially a lot of post transplant info. I even learned some things from the book! I've looked around online for it for the past 20 minutes and can't find a thing, so I guess you have to contact Solvay or your doctor if you want a copy.
<br />
<br />Just giving you all the info in case you want to ask about it or look for it, it does contain a lot of "updated" topics, and especially a lot of post transplant info. I even learned some things from the book! I've looked around online for it for the past 20 minutes and can't find a thing, so I guess you have to contact Solvay or your doctor if you want a copy.